Key characteristics of the refugee journey for Iraqi and Syrian family members who support their children or siblings with disability

References

• Australian Government. 2012. “Australian Government Response to the Joint Standing Committee on Migration Report: Enabling Australia Inquiry into the Migration Treatment of Disability.” https://www.homeaffairs.gov.au/reports-and-pubs/files/joint-standing-comm-enabling-australia.pdf.
   Google Scholar
• BenEzer, G., and R. Zetter. 2015. “Searching for Directions: Conceptual and Methodological Challenges in Researching Refugee Journeys.” Journal of Refugee Studies 28 (3): 297–318. doi:10.1093/jrs/feu022.
   Web of Science ®Google Scholar
• Berghs, M. 2015. “Radicalising ‘Disability’ in Conflict and Post-Conflict Situations.” Disability & Society 30 (5): 743–758. doi:10.1080/09687599.2015.1052044.
   Web of Science ®Google Scholar
• Bešić, E., L. Paleczek, and B. Gasteiger-Klicpera. 2020. “Don’t Forget about Us: Attitudes towards the Inclusion of Refugee Children with(out) Disabilities.” International Journal of Inclusive Education 24 (2): 202–217. doi:10.1080/13603116.2018.1455113.
   Web of Science ®Google Scholar
• Bogenschutz, M. 2014. “ "We Find a Way": Challenges and Facilitators for Health Care Access among Immigrants and Refugees with Intellectual and Developmental Disabilities.” Medical Care 52 (10 Suppl 3): S64–S70. doi:10.1097/MLR.0000000000000140.
   PubMed Web of Science ®Google Scholar
• Braun, V., and V. Clarke. 2019. “Reflecting on Reflexive Thematic Analysis.” Qualitative Research in Sport, Exercise and Health 11 (4): 589–597. doi:10.1080/2159676X.2019.1628806.
   Web of Science ®Google Scholar
• Bryman, A. 2001. Social Research Methods. Oxford UK: Oxford University Press.
   Google Scholar
• Burns, N. 2017. “The Human Right to Health: Exploring Disability, Migration and Health.” Disability & Society 32 (10): 1463–1484. doi:10.1080/09687599.2017.1358604.
   Web of Science ®Google Scholar
• Crock, M., C. Ernst, and R. M. Ao. 2012. “Where Disability and Displacement Intersect: Asylum Seekers and Refugees with Disabilities.” International Journal of Refugee Law 24 (4): 735–764. doi:10.1093/ijrl/ees049.
   Google Scholar
• Dew, A., C. Lenette, L. Smith, K. Boydell, H. Bibby, J. Lappin, M. Coello, et al. 2021. “To the Arabic Community Disability is Not Normal’: Multiple Stakeholder Perceptions of the Understandings of Disability among Iraqi and Syrian People from Refugee Backgrounds.” Journal of Refugee Studies 34 (3): 2849–2870. doi:10.1093/jrs/feaa111.
   Web of Science ®Google Scholar
• Duda-Mikulin, E., L. Scullion, and R. Currie. 2020. “Wasted Lives in Scapegoat Britain: Overlaps and Departures between Migration Studies and Disability Studies.” Disability & Society 35 (9): 1373–1397. doi:10.1080/09687599.2019.1690428.
   Web of Science ®Google Scholar
• Duell-Piening, P. 2018. “Refugee Resettlement and the Convention on the Rights of Persons with Disabilities.” Disability & Society 33 (5): 661–684. doi:10.1080/09687599.2018.1444582.
   Web of Science ®Google Scholar
• Frilund, R. 2019. “Tibetan Refugee Journeys: Representations of Escape and Transit.” Refugee Survey Quarterly 38 (3): 290–313. doi:10.1093/rsq/hdz007.
   Web of Science ®Google Scholar
• Goodley, D. 1997. “Locating Self-Advocacy in Models of Disability: Understanding Disability in the Support of Self-Advocates with Learning Difficulties.” Disability & Society 12 (3): 367–379. doi:10.1080/09687599727227.
   Web of Science ®Google Scholar
• Grech, S. 2009. “Disability, Poverty and Development: Critical Reflections on the Majority World Debate.” Disability & Society 24 (6): 771–784. doi:10.1080/09687590903160266.
   Web of Science ®Google Scholar
• Guba, E. G. 1981. “Criteria for Assessing the Trustworthiness of Naturalistic Inquiries.” Educational Communication and Technology Journal 29 (2): 75–91.
   Web of Science ®Google Scholar
• Harding, S., and K. Libal. 2012. “Iraqi Refugees and the Humanitarian Costs of the Iraq War: What Role for Social Work?” International Journal of Social Welfare 21 (1): 94–104. doi:10.1111/j.1468-2397.2011.00780.x.
   Web of Science ®Google Scholar
• Harris, J. 2003. “All Doors Are Closed to Us’: A Social Model Analysis of the Experiences of Disabled Refugees and Asylum Seekers in Britain.” Disability & Society 18 (4): 395–410. doi:10.1080/0968759032000080968.
   Web of Science ®Google Scholar
• Heenan, R. C., T. Volkman, S. Stokes, S. Tosif, H. Graham, A. Smith, D. Tran, and G. Paxton. 2019. “ ‘I Think We’ve Had a Health Screen’: New Offshore Screening, New Refugee Health Guidelines, New Syrian and Iraqi Cohorts: Recommendations, Reality, Results and Review.” Journal of Paediatrics and Child Health 55 (1): 95–103. doi:10.1111/jpc.14142.
   PubMed Web of Science ®Google Scholar
• Hotton, P., T. Brown, S. Raman, R. Hurwitz, and M. Smith. 2015. “Developmental Disability in Refugee Children and Youth in South Western Sydney: Double Jeopardy.” Journal of Paediatrics and Child Health 51 (S2): 7–7.
   Google Scholar
• Jackson, F., and T. Fong. 2017. “Why Not a Peer Worker?” Mental Health and Social Inclusion 21 (3): 176–183. doi:10.1108/MHSI-03-2017-0018
   Web of Science ®Google Scholar
• King, J., N. Edwards, I. Correa-Velez, S. Hair, and M. Fordyce. 2016. “Disadvantage and Disability: Experiences of People from Refugee Backgrounds with Disability Living in Australia.” Disability and the Global South 3 (1): 843–864.
   Google Scholar
• Kofman, E. 2019. “Gendered Mobilities and Vulnerabilities: Refugee Journeys to and in Europe.” Journal of Ethnic and Migration Studies 45 (12): 2185–2199. doi:10.1080/1369183X.2018.1468330.
   Web of Science ®Google Scholar
• Laban, C. J., I. H. Komproe, H. B. P. E. Gernaat, and J. T. V. M. de Jong. 2008. “The Impact of a Long Asylum Procedure on Quality of Life, Disability and Physical Health in Iraqi Asylum Seekers in The Netherlands.” Social Psychiatry and Psychiatric Epidemiology 43 (7): 507–515. doi:10.1007/s00127-008-0333-1.
   PubMed Web of Science ®Google Scholar
• Miles, S. 2013. “Education in Times of Conflict and the Invisibility of Disability: A Focus on Iraq?” Disability & Society 28 (6): 798–811. doi:10.1080/09687599.2013.802220.
   Web of Science ®Google Scholar
• Mirza, M. 2011a. “Disability and Cross-Border Mobility: Comparing Resettlement Experiences of Cambodian and Somali Refugees with Disabilities.” Disability & Society 26 (5): 521–535. doi:10.1080/09687599.2011.589188.
   Web of Science ®Google Scholar
• Mirza, M. 2011b. “Disability and Humanitarianism in Refugee Camps: The Case for a Travelling Supranational Disability Praxis.” Third World Quarterly 32 (8): 1527–1536. doi:10.1080/01436597.2011.604524.
   Web of Science ®Google Scholar
• Munt, S. R. 2012. “Journeys of Resilience: The Emotional Geographies of Refugee Women.” Gender, Place & Culture 19 (5): 555–577. doi:10.1080/0966369X.2011.610098.
   Web of Science ®Google Scholar
• Nardone, M., and I. Correa-Velez. 2016. “Unpredictability, Invisibility and Vulnerability: Unaccompanied Asylum-Seeking Minors’ Journeys to Australia.” Journal of Refugee Studies 29 (3): 295–314. doi:10.1093/jrs/fev020.
   Web of Science ®Google Scholar
• National Disability Insurance Agency. 2021. "What is the NDIS?" https://www.ndis.gov.au/understanding/what-ndis#ndis-what-does-it-mean.
   Google Scholar
• Pearce, E. 2015. “Ask Us What We Need’: Operationalizing Guidance on Disability Inclusion in Refugee and Displaced Persons Programs.” Disability and the Global South 2 (1): 460–478.
   Google Scholar
• Pineteh, E. A. 2017. “Moments of Suffering, Pain and Resilience: Somali Refugees’ Memories of Home and Journeys to Exile.” Cogent Social Sciences 3 (1): 1372815–1372848. doi:10.1080/23311886.2017.1372848.
   Google Scholar
• Refugee Council of Australia. 2016. "Discussion Paper. Humanitarian Arrivals with Disabilities." https://www.refugeecouncil.org.au/wp-content/uploads/2016/06/1606-SPN-disability.pdf.
   Google Scholar
• Said, E. (1978). Orientalism. Harmondsworth, Penguin.
   Google Scholar
• Smith-Khan, C. 2019. “‘The Highest Attainable Standard’: The Right to Health for Refugees with Disabilities.” Societies (Basel, Switzerland) 9 (2): 33. doi:10.3390/soc9020033.
   Google Scholar
• Soldatic, K., G. van Toorn, L. Dowse, and K. Muir. 2014. “Intellectual Disability and Complex Intersections: Marginalisation under the National Disability Insurance Scheme.” Research and Practice in Intellectual and Developmental Disabilities 1 (1): 6–16. doi:10.1080/23297018.2014.906050.
   Google Scholar
• Soldatic, K., K. Somers, A. Buckley, and C. Fleay. 2015. “Nowhere to Be Found’: Disabled Refugees and Asylum Seekers within the Australian Resettlemnt Landscape.” Disability and the Global South 2 (1): 501–522.
   Google Scholar
• Straimer, C. 2011. “Between Protection and Assistance: Is There Refuge for Asylum Seekers with Disabilities in Europe?” Disability & Society 26 (5): 537–551. doi:10.1080/09687599.2011.589189.
   Web of Science ®Google Scholar
• Twigg, J. 2014. “Attitude before Method: Disability in Vulnerability and Capacity Assessment.” Disasters 38 (3): 465–482. doi:10.1111/disa.12066.
   PubMed Web of Science ®Google Scholar
• United Nations General Assembly. 2006. "Convention on the Rights of Persons with Disabilities." https://www.un.org/development/desa/disabilities/convention-on-the-rights-of-persons-with-disabilities.html.
   Google Scholar
• United Nations High Commissioner for Refugees. 2020. “Global Trends: Forced Displacement in 2019.” https://www.unhcr.org/5ee200e37.pdf.
   Google Scholar
• Van Dam, N., and Van Dam, N. (1996). Struggle for Power in Syria. St. Martin’s Press.
   Google Scholar
• Wells, R., M. Murad, M. Higgins, L. Smith, C. Lenette, J. Lappin, A. Dew, et al. 2020. “Exploring the Intersection of Human Rights, Health, Disability and Refugee Status: An Arts-Based Approach.” Australian Journal of Human Rights 26 (3): 387–404. doi:10.1080/1323238X.2021.1882044.
   Google Scholar
• Women’s Refugee Commission. 2008. Disabilities among Refugees and Conflict-Affected Populations. New York.
   Google Scholar
• World Health Organisation. 2011. "World Report on Disability." https://www.who.int/teams/noncommunicable-diseases/disability-and-rehabilitation/world-report-on-disability.
   Google Scholar