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Articles

Exploring women’s experiences of sexuality education, sexual expression and violence: inclusive research with disabled women

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Pages 422-434 | Received 14 Dec 2020, Accepted 23 Apr 2022, Published online: 14 May 2022

References

  • Australian Bureau of Statistics. 2015. “Disability, Ageing and Carers, Australia: Summary of Findings, 2018.” Viewed October 24, 2019. https://www.abs.gov.au/ausstats/[email protected]/mf/4430.0
  • Bahner, J. 2018. “Cripping Sex Education: Lessons Learned from a Programme Aimed at Young People with Mobility Impairments.” Sex Education 18 (6): 1–654. doi:10.1080/14681811.2018.1456417.
  • Balbale, S. N., K. A. Lones, J. N. Hill, and S. L. LaVela. 2017. “Examining Participation among Persons with Spinal Cord Injuries and Disorders Using Photovoice.” Qualitative Report (Online) 22 (7): 1830–1847. doi:10.46743/2160-3715/2017.2782.
  • Barton, L. 2005. “Emancipatory Research and Disabled People: Some Observations and Questions.” Educational Review 57 (3): 317–327. doi:10.1080/00131910500149325.
  • Butler, J. 1993. Bodies That Matter: On the Discursive Limits of "Sex”. Abingdon: Routledge.
  • Butler, R. 1999. “Double the Trouble or Twice the Fun? Disabled Bodies in the Gay Community.” In Mind and Body Spaces Geographies of Illness, Impairment, and Disability, edited by R. Butler and H. Parr, 199–216. London: Routledge.
  • Campbell, F. K. 2009. Contours of Ableism. Basingstoke, UK: Pallgrave Macmillan.
  • Carlone, H. B. 2012. “Methodological Considerations for Studying Identities in School Science: An Anthropological Approach.” In Identity Construction and Science Education Research: Learning, Teaching, and Being in Multiple Contexts, edited by M. Varelas, 9–25. Rotterdam, The Netherlands: Sense Publishers.
  • Clark, A., and Morriss, L. 2015. “The Use of Visual Methodologies in Social Work Research Over the Last Decade: A Narrative Review and Some Questions for the Future.” Qualitative Social Work 16 (1): 29–43. doi:10.1177/1473325015601205.
  • Crenshaw, K. 1991. “Mapping the Margins: Intersectionality, Identity Politics, and Violence against Women of Color.” Stanford Law Review 43 (6): 1241–1299. doi:10.2307/1229039.
  • Daniels, J. N. 2019. “Disabled Mothering? Outlawed, Overlooked and Severely Probhibited: Interrogating Ableism in Motherhood.” Social Inclusion 7 (1): 114–123. doi:10.17645/si.v7i1.1551.
  • de Than, C. 2015. “Sex, Disability and Human Rights: Current Legal and Practical Problems.” In Supporting Disabled People with Their Sexual Lives, edited by T. Owens and C. de Than, 86–102. London: Jessica Kingsley Publishers.
  • Deegan, M. J., and N. A. Brooks. 2018a. “Introduction.” In Women and Disability: The Double Handicap, edited by M. J. Deegan and N. A. Brooks, 1–5. London: Routledge.
  • Deegan, M. J., and N. A. Brooks. 2018b. Women and Disability: The Double Handicap, New York: Routledge.
  • Dowse, L., C. Frohmader, and A. Didi. 2016. “Violence against Disabled Women in the Global South: Working Locally, Acting Globally.” In Disability in the Global South: The Critical Handbook, edited by S. Grech and K. Soldatic (pp. 323-336). Cham, Switzerland: Springer International Publishing.
  • Dutta, S. 2015. “Discrimination Generated by the Intersection of Gender and Disability.” Journal of Dental and Medical Sciences 14 (6): 33–36. doi:10.9790/0853-14663336.
  • East, L. J., and T. R. Orchard. 2014. “Somebody Else’s Job: Experiences of Sex Education among Health Professionals, Parents and Adolescents with Physical Disabilities in Southwestern Ontario.” Sexuality and Disability 32 (3): 335–350. doi:10.1007/s11195-013-9289-5.
  • Eide, A. H., and M. Loeb. 2016. “Counting Disabled People: Historical Perspectives and the Challenges of Disability Statistics.” In Disability in the Global South: The Critical Handbook, edited by S Grech and K Soldatic (pp. 51-68). New York: Springer.
  • Dwyer, S. C., and J. L. Buckle. 2009. “The Space between: On Being an Insider-Outsider in Qualitative Research.” International Journal of Qualitative Methods 8 (1): 54–63. International Institute for Qualitative Methodology, Alberta, Canada. doi:10.1177/160940690900800105.
  • Erickson, L. 2007. “Revealing Femmegimp: A Sex-Positive Reflection on Sites of Shame as Sites of Resistance for People with Disabilities.” Atlantis 31 (2): 11.
  • Finger, A. 1992. “Forbidden Fruit: Why Shouldn’t Disabled People Have Sex or Become Parents?” New Internationalist (233): 8–10. https://newint.org/features/1992/07/05/fruit
  • Gerschick, T. J. 2016. “The Body, Disability, Sexuality.” In Introducing the New Sexuality Studies, edited by N. L. Fischer and S. Seidman, 3rd ed., pp. 271-280. London: Routledge.
  • Gill, M. 2015. Already Doing It: Intellectual Disability and Sexual Agency. Minneapolis: University of Minnesota Press.
  • Goodley, D., R. Lawthom, K. Liddiard, and K. Runswick-Cole. 2019. “Provocations for Critical Disability Studies.” Disability & Society 34 (6): 972–997. doi:10.1080/09687599.2019.1566889.
  • Harper, D. 2002. “Talking about Pictures: A Case for Photo Elicitation.” Visual Studies 17 (1): 13–26. doi:10.1080/14725860220137345.
  • Hassouneh-Phillips, D., and E. McNeff. 2005. ““I Thought I Was Less Worthy": Low Sexual and Body Esteem and Increased Vulnerability to Intimate Partner Abuse in Women with Physical Disabilities.” Sexuality and Disability 23 (4): 227–240. doi:10.1007/s11195-005-8930-3.
  • Hayfield, N., and Huxley, C. 2015. “Insider and Outsider Perspectives: Reflections on Researcher Identities in Research with Lesbian and Bisexual Women.” Qualitative Research in Psychology 12 (2): 91–106. doi:10.1080/14780887.2014.918224.
  • Hewitt-Taylor, J. 2002. “Inside Knowledge: Issues in Insider Research.” Nursing Standard 16 (20): 33–35. doi:10.7748/ns2002.07.16.46.33.c3239.
  • Jaramillo Ruiz, F. 2017. “The Committee on the Rights of Persons with Disabilities and its Take on Sexuality.” Reproductive Health Matters 25 (50): 92–103. doi:10.1080/09688080.2017.1332449.
  • Kanuha, V. K. 2000. “Being Native versus “Going Native”: Conducting Social Work Research as an Insider.” Social Work 45 (5): 439–477. doi:10.1093/sw/45.5.439.
  • Kemmery, M. A., and M. V. Compton. 2014. “Are You Deaf or Hard of Hearing? Which Do You Go by: Perceptions of Identity in Families of Students with Hearing Loss.” The Volta Review 114 (2): 157–192. doi:10.17955/tvr.114.2.748.
  • Lester, J. N., and E. A. Nusbaum. 2018. “Reclaiming” Disability in Critical Qualitative Research: Introduction to the Special Issue.” Qualitative Inquiry 24 (1): 3–7. doi:10.1177/107780041772776.
  • Liddiard, K. 2014. “The Work of Disabled Identities in Intimate Relationships.” Disability & Society 29 (1): 115–128. doi:10.1080/09687599.2013.776486.
  • Liddiard, K. 2018. The Intimate Lives of Disabled People. Routledge: London.
  • Meekosha, H., and R. Shuttleworth. 2009. “What’s So ‘Critical’ about Critical Disability Studies?” Australian Journal of Human Rights 15 (1): 47–75. doi:10.1080/1323238X.2009.11910861.
  • Martin, K., L. Verduzco-Baker, J. Torres, and K. Luke. 2011. “Privates, Pee-Pees, and Coochies: Gender and Genital Labeling for/with Young Children.” Feminism & Psychology 21 (3): 420–430. doi:10.1177/0959353510384832.
  • Merriam, S. B., J. Johnson-Bailey, M. Y. Lee, Y. Kee, G. Ntseane, and M. Muhamad. 2001. “Power and Positionality: Negotiating Insider/Outsider Status within and across Cultures.” International Journal of Lifelong Education 20 (5): 405–416. doi:10.1080/02601370110059537.
  • Newman, S. D. 2010. “Evidence-Based Advocacy: Using Photovoice to Identify Barriers and Facilitators to Community Participation after Spinal Cord Injury.” Rehabilitation Nursing 35 (2): 47–59. doi:10.1002/j.2048-7940.2010.tb00031.x.
  • Nosek, M. A., C. Clubb Foley, R. B. Hughes, and C. A. Howland. 2001a. “Vulnerabilities for Abuse among Women with Disabilities.” Sexuality and Disability 19 (3): 177–189. DOI: 0146-1044/01/0900-0177/0. doi:10.1023/A:1013152530758.
  • Nosek, M. A., C. Howland, D. H. Rintala, M. E. Young, and G. F. Chanpong. 2001b. “National Study of Women with Physical Disabilities: Final Report.” Sexuality and Disability 19 (1): 5–40. DOI: 0146-1044/01/0300-0005. doi:10.1023/A:1010716820677.
  • Ollerton, J. 2012. “IPAR, an Inclusive Disability Research Methodology with Accessible Analytical Tools.” International Practice Development Journal 2: 1-16. http://www.fons.org/library/journal.aspx.
  • Owens, T., and C. de Than. 2015. “Supporting Young Disabled People and Their Parents.” In Supporting Disabled People with Their Sexual Lives, edited by T. Owens and C. de Than, 103–115. London: Jessica Kingsley Publishers.
  • Parsons, A. L., Reichl, A. J. and Pedersen, C. L. 2017. “Gendered Ableism: Media Representations and Gender Role Beliefs’ Effect on Perceptions of Disability and Sexuality.” Sexuality and Disability 35 (2): 207–225. doi:10.1007/s11195-016-9464-6.
  • Payne, D. A., H. Hickey, A. Nelson, K. Rees, H. Bollinger, and S. Hartley. 2016. “Physically Disabled Women and Sexual Identity: A Photovoice Study.” Disability & Society 31 (8): 1030–1049. doi:10.1080/09687599.2016.123044.
  • Phelan, S, and E. A. Kinsella. 2011. “Photoelicitation Interview Methods and Research with Children.” In Creative Spaces for Qualitative Researching: Living Research, edited by J. Higgs, A. Titchen, D. Horsfall, and D. Bridges (pp. 125-134). Rotterdam: Sense Publishers.
  • Rich, K. 2014. ““My Body Came between us”: Accounts of Partner-Abused Women with Physical Disabilities.” Affilia 29 (4): 418–433. doi:10.1177/0886109914522626.
  • Rock, P. J. 1996. “Eugenics and Euthanasia: A Cause for Concern for Disabled People, Particularly Disabled Women.” Disability & Society 11 (1): 121–127. doi:10.1080/09687599650023399.
  • Sanders, T. 2010. “Sexual Citizenship, Sexual Facilitation and the Right to Pleasure.” In Sex and Disability: Politics, Identity and Access, edited by R. Shuttleworth and T. Saunders, 139–154. Leeds: Disability Press.
  • Saxton, M. 2018. “A peer counseling training program for disabled women: A tool for social and individual change.” In Women and Disability: The Double Handicap, edited by M. J. Deegan and N. A. Brooks (pp. 95-104). London: Routledge.
  • Sexuality Information and Education Council of the United States (SIECUS). 2004. Guidelines for Comprehensive Sexuality Education: Kindergarten-12th Grade. 3rd ed. National Guidelines Taskforce. https://siecus.org/wp-content/uploads/2018/07/Guidelines-CSE.pdf
  • Shakespeare, T. (2017). Disability: The Basics (1st ed.). Routledge: London. doi:10.4324/9781315624839.
  • Shakespeare, T., K. Gillespie-Sells, and D. Davies. 1996. The Sexual Politics of Disability: Untold Desires. London: Burns & Oates.
  • Siebers, T. 2011. Disability Theory. Ann Arbor, MI: The University of Michigan Press.
  • Sinding, C., Rachel W., and Cathy P. 2014. “Social Work and the Arts: Images at the Intersection.” Qualitative social work: QSW: Research and Practice 13 (2): 187–202. doi:10.1177/1473325012464384.
  • Stone, E., and M. Priestley. 1996. “Parasites, Pawns and Partners: Disability Research and the Role of Non-Disabled Researchers.” The British Journal of Sociology 47 (4): 699–716. doi:10.2307/591081.
  • Taleporos, G., and McCabe, M. P. 2003. “Relationships, Sexuality and Adjustment among People with Physical Disability.” Sexual and Relationship Therapy 18 (1): 25–43. doi:10.1080/1468199031000061245.
  • Taub, D. E., McLorg, P. A., and Bartnick A. K. 2009. “Physical and Social Barriers to Social Relationships: Voices of Rural Disabled Women in the USA.” Disability & Society 24 (2): 201–215. 6 doi:10.1080/0968759080265249.
  • Tepper, M. S. 2000. “Sexuality and Disability: The Missing Discourse of Pleasure.” Sexuality and Disability 18 (4): 283–290. doi:10.1023/A:1005698311392.
  • Tough, H., Siegrist, J., and Fekete, C. 2017. “Social Relationships, Mental Health and Wellbeing in Physical Disability: A Systematic Review.” BMC Public Health 17. doi:10.1186/s12889-01743086.
  • van Heugten, K. 2004. “Managing Insider Research: Learning from Experience.” Qualitative Social Work 3 (2): 203–219. doi:10.1177/1473325004043386.
  • United Nations. 2006. United Nations Convention on the Rights of Persons with Disabilities. Accessed 20 March 2020. https://www.un.org/development/desa/disabilities/convention-on-the-rights-of-persons-with-disabilities.html
  • Wang, C. C. 1999. “Photovoice: A Participatory Action Research Strategy Applied to Women’s Health”. Journal of Women’s Health 8 (2): 185–192.
  • Wang C. C., Yi, W. K., Tao, Z. W., and Carovano, K. 1998. “Photovoice as a Participatory Health Promotion Strategy.” Health Promotion International 13 (1): 75–86. doi:10.1093/heapro/13.1.75.
  • Wang, C., and M. A. Burris. 1997. “Photovoice: Concept, Methodology, and Use for Participatory Needs Assessments.” Health Education & Behavior 24 (3): 369–387. doi:10.1177/109019819702400309.
  • Wang, C., S. Morrel-Samuels, P. M. Hutchison, L. Bell, and R. M. Pestronk. 2004. “Flint Photovoice: Community Building among Youths, Adults and Policymakers.” American Journal of Public Health 94 (6): 911–913. doi:10.2105/AJPH.94.6.911.
  • World Health Organization. 2006. “Defining Sexual Health: Report of a Technical Consultation on Sexual Health.” 28-31 January 2002, Geneva, World Health Organization, Geneva, Switzerland, viewed 7 November 2019. https://www.who.int/reproductivehealth/publications/sexual_health/defining_sh/en/
  • World Health Organization. 2011. World Report on Disability. Geneva: WHO Press.