- BACH , M. 1994 . “ Quality of life: questioning the vantage points for research ” . In Disability is not Measles: new research paradigms in disability , 128 – 151 . Ontario : L'Institut Rocher .
- BERESFORD , P. and CAMPBELL , J. 1994 . Disabled people, service users, user involvement, and representation . Disability and Society , 9 : 315 – 325 .
- BROCK , D. Sept-Oct 1994 . Good decisionmaking for incompetent patients , Hastings Center Report (Special Supp) Sept-Oct , S8 – S11 .
- BROWN , H. and SMITH , H. 1989 . Whose life is it anyway? Community care policy . Disability Handicap and Society , 4 (2) : 105 – 119 .
- CARSON , D. 1993 . Disabling progress: the law commission's proposals on mentally incapacitated adults' decision-making . Journal of Social Welfare and Family Law , 5 : 305
- CHERRY , C. 1997 . Health care, human worth, and the limits of the particular . Journal of Medical Ethics , 23 Oct. : 310 – 314 .
- COUNCIL OF EUROPE . 1996 . Convention for the Protection of Human Rights and Dignity of the Human Being with Regard to the Application of Biology and Medicine , Strasbourg : Council of Europe .
- DEPARTMENT OF HEALTH . 1991 . Local Research Ethics Committees 161 cited in McHaIe (1993)
- DRESSER , R. and WHITEHOUSE , P. 1994 . The incompetent patient on the slippery slope , Hastings Center Report, 24, No. 4 6 – 12 .
- FENNELL , P. 1996 . Treatment Without Consent: law, psychiatry and the treatment of mentally disordered , London : Routledge .
- FETHE , C. 1993 . Beyond voluntary consent: Hans Jonas on the moral requirements of human experimentation . Journal of Medical Ethics , 19 : 99 – 103 .
- FULFORD , K.W.M. and HOWSE , K. 1993 . Ethics of research with psychiatric patients: principles, problems, and the primary responsibilities of researchers . Journal of Medical Ethics , 19 : 85
- GADD , E. 1998 . Changing the law on decision making for mentally incapacitated adults . British Medical Journal , 316 10 January : 90
- GILLMAN , M. , SWAIN , J. and HEYMAN , B. 1997 . Life history or 'case history': the objectification of people with learning difficulties through the tyranny of professional discourses . Disability and Society , 12 : 675 – 693 .
- GLEASON , J. 1994 . Theoretical framework for what persons with severe and profound multiple disabilities do in context, Disability is not Measles: new research paradigms in disability , 247 Ontario : L'Institut Rocher .
- GOODING , C. 1994 . Disabling Laws, Enabling Acts: disability rights in Britain and America , London : Pluto .
- GOODING , C. 1996 . Blackstone's Guide to the Disability Discrimination Act 1995 , London : Blackstone's Press .
- INCLUSION INTERNATIONAL . 1996 . Promoting and Ensuring Human Dignity and Human Rights: response to the I.B.C. preliminary draft of a universal declaration of March 1996 on the Human Genome and Human Rights , Ontario : L'Institut Rocher .
- JONAS , H. 1972 . Philosophical Essays: from ancient creed to technological man , Chicago : University of Chicago Press .
- KASS , N. , SUGARMAN , J. , FADEN , R. and SCHOCH-SPANA , M. 1996 . Trust: the fragile foundation of biomedical research , Hastings Center Report 25 – 29 .
- KOENIG , B. 1996 . The power (and limits) of proximity , Hastings Center Report 29 – 31 .
- 1995 . “ 'Mental Incapacity' ” . In LAW COMMISSION REPORT , London : HMSO . No. 231
- L'INSTITUT ROEHER . 1994 . Just Technology? From Principles to Practice in Bio-Ethical Principles: issue paper of the International League of Societies for Persons with Mental Handicap , Ontario : L'Institut Roeher .
- LORD CHANCELLOR'S DEPARTMENT . 1997 . Who Decides? Making decisions on behalf of mentally incapacitated adults, cm3803 , London : HMSO .
- McCUBBlN , M. and COHEN , D. 1996 . Extremely unbalanced: interest divergence and power disparities between clients and psychiatry . International Journal of Law and Psychiatry , 19 : 1
- McGREGOR VENNELL , M. 1995 . Medical research and treatment: ethical standards in the international context . Medical Law International , 2 : 13
- McHALE , J.V. 1993 . Guidelines for medical research: some ethical and legal problems . Medical Law Review , 1 Summer : 160 – 185 .
- MORENO , J. 1993 . Who's to choose? Surrogate decision-making in New York State , Hastings Center Reports 5 – 11 .
- MORREIM , G.H. 1993 . Profoundly diminished life , Hastings Center Report 33 – 42 .
- MORRlS , J. 1993 . Involving Disabled People in Community Care Planning, Dept of Social Policy and Social Work , Manchester : University of Manchester .
- 1998 . Fears of research . New York Times , 22 April : A24 1998, Col. 1
- NUFFIELD COUNCIL . 1997 . Mental Disorders and Genetics: the ethical context, in scope of study , London : Nuffield Council .
- OLIVER , M. 1990 . The Politics of Disablement , Basingstoke : Macmillan .
- PHILLIPS , M. 1995 . Rage, rage against the dying of our rights . The Observer , : 11 5/11/95
- RAWLS , J.A. 1971 . A Theory of Justice , Oxford : Oxford University Press .
- SMITH , C. 1997 . Disabling autonomy: the role of government, the law, and the family . Journal of Law and Society , 24 : 421 – 439 .
- STALKER , K. 1998 . Some ethical and methodological issues in research with people with learning difficulties . Disability and Society , 13 : 5 – 19 .
- SUGARMAN , J. Nov-Dec 1994 . Recognizing good decisionmaking for incapacitated patients , Hastings Center Report, Special Suppl Nov-Dec , S11 – S13 .
- SUTCLlFFE , J. and SIMONS , K. 1993 . Self-advocacy and Adults with Learning Difficulties , London : NIACE .
- TURNBULL , H.R. 1988 . “ Fifteen questions: ethical inquiries in mental retardation ” . In Mental Retardation and Mental Health: classification, diagnosis, treatment, services , Edited by: STARK , J. New York : Springer-Verlag .
- UNION OF PHYSICALLY IMPAIRED AGAINST SEGREGATION (UPIAS) . 1970 . Fundamental Principles of Disability , London : UPIAS .
- WARD , A. 1996 . Consensus for Change: a report on a major conference to consider the need for a fundamental review of the Mental Health (Scotland) Act 1984, Plenary Lecture 6 December 1996 , Edinburgh : The Law Society of Scotland .
- WlLKINSON , R.G. 1996 . Unhealthy Societies: the afflictions of inequality , London : Routledge .
- WOLFENSBERGER , W. 1994 . The growing threat to the lives of handicapped people in the context of modernistic values . Disability and Society , 9 : 395
International Ethical Safeguards: Genetics and people with learning disabilities
Reprints and Corporate Permissions
Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?
To request a reprint or corporate permissions for this article, please click on the relevant link below:
Academic Permissions
Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?
Obtain permissions instantly via Rightslink by clicking on the button below:
If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.
Related research
People also read lists articles that other readers of this article have read.
Recommended articles lists articles that we recommend and is powered by our AI driven recommendation engine.
Cited by lists all citing articles based on Crossref citations.
Articles with the Crossref icon will open in a new tab.