1,195
Views
19
CrossRef citations to date
0
Altmetric
Articles

Provocations on privilege in palliative care: Are we meeting our core mandate?

ORCID Icon

References

  • McKnight JL. John Deere and the bereavement counselor. Bull Sci Technol Soc. 1984;4:597–604. doi: 10.1177/027046768400400610
  • Seale C. Constructing death: the sociology of dying and bereavement. New York (NY): Cambridge University Press; 1998.
  • Elias N. The loneliness of dying. Oxford (UK): Basil Blackwell; 1985.
  • James N, Field D. The routinization of hospice: Charisma and bureaucratization. Soc Sci Med. 1992;34(12):1363–75. doi: 10.1016/0277-9536(92)90145-G
  • The Conversation: End of life care: how to save hospices from collapse? Less medicine and some lessons from India (Clark D); 2019 Feb 9. Available from: http://theconversation.com/end-of-life-care-how-to-save-hospices-from-collapse-less-medicine-and-some-lessons-from-india-111226
  • Brennan F. Palliative care as an international human right. J Pain Symptom Manage. 2007;33(5):494–9. doi: 10.1016/j.jpainsymman.2007.02.022
  • Gwyther L, Brennan F, Harding R. Advancing palliative care as a human right. J Pain Symptom Manage. 2009;38(5):767–74. doi: 10.1016/j.jpainsymman.2009.03.003
  • Kirk TW. The meaning, limitations and possibilities of making palliative care a public health priority by declaring it a human right. Public Health Ethics. 2011;4(1):84–92. doi: 10.1093/phe/phr002
  • Sleeman KE, Davies JM, Verne J, Gao W, Higginson IJ. The changing demographics of inpatient hospice death: population-based cross-sectional study in England, 1993-2012. Palliat Med. 2016;30(1):45–53. doi: 10.1177/0269216315585064
  • PalliMed: Privilege and palliative care (Hess D); 2017 Sep 9. Available from: https://www.pallimed.org/2017/09/privilege-and-palliative-care.html
  • Privilege [Def. 2]. (n.d.). Oxford English Dictionary Online. In Oxford English Dictionary. Available from: https://www.oed.com/.
  • Garnets L, Kimmel DC. Psychological perspectives on lesbian, gay, and bisexual experiences. New York (NY): Columbia University Press; 2003.
  • Blum L. ‘White privilege’: a mild critique. Theory Res Educ. 2008;6(3):309–21. doi: 10.1177/1477878508095586
  • McIntosh P. White privilege and male privilege: a personal account of coming to see correspondences through work in Women's Studies. 1988. Available from: https://www.collegeart.org/pdf/diversity/white-privilege-and-male-privilege.pdf.
  • Reimer-Kirkham S, Stajduhar K, Pauly B, Giesbrecht M, Mollison A, McNeil R, et al. Death is a social justice issue: perspectives on equity-informed palliative care. ANS Adv Nurs Sci. 2016;39(4):293–307. doi: 10.1097/ANS.0000000000000146
  • Browne AJ, Varcoe CM, Wong ST, Smye VL, Lavoie J, Littlejohn D, et al. Closing the health equity gap: evidence-based strategies for primary health care organizations. Int J Equity Health. 2012;11(59). doi: 10.1186/1475-9276-11-59
  • Stajduhar KI. Chronic illness, palliative care, and the problematic nature of dying. Can J Nurs Res. 2011;43(3):7–15.
  • McNeil R, Guirguis-Younger M, Dilley LB, Aubry TD, Turnbull J, Hwang SW. Harm reduction services as a point-of-entry to and source of end-of-life care and support for homeless and marginally housed persons who use alcohol and/or illicit drugs: a qualitative analysis. BMC Public Health. 2012;12:312–21. doi: 10.1186/1471-2458-12-312
  • Stienstra D, Chochinov HM. Palliative care for vulnerable populations. Palliat Support Care. 2012;10(1):37–42. doi: 10.1017/S1478951511000563
  • McNeil R, Guirguis-Younger M, Dilley LB. Recommendations for improving the end-of-life care system for homeless populations: a qualitative study of the views of Canadian health and social services professionals. BMC Palliat Care. 2012;11(14). doi: 10.1186/1472-684X-11-14
  • Stajduhar KI, Mollison A, Giesbrecht M, McNeil R, Pauly B, Reimer-Kirkham S, et al. “Just too busy living in the moment and surviving”: barriers to accessing health care for structurally vulnerable populations at the end-of-life. BMC Palliat Care. 2019;18(11). doi: 10.1186/s12904-019-0396-7
  • Stajduhar KI, Mollison A. Too little, too late: how we fail vulnerable Canadians as they die and what to do about it. University of Victoria, Victoria, B.C.: Institute on Aging and Lifelong Health; 2018. Available from https://www.uvic.ca/research/groups/peol/assets/docs/too-little-too-late.pdf.
  • Giesbrecht M, Stajduhar KI, Mollison A, Pauly B, Reimer-Kirkham S, McNeil R, et al. Hospitals, clinics and palliative care units: place-based experiences of formal healthcare settings by people experiencing structural vulnerability at the end-of-life. Health Place. 2018;53:43–51. doi: 10.1016/j.healthplace.2018.06.005
  • McNeil R, Guirguis-Younger M. Illicit drug use as a challenge to the delivery of end-of-life care services to homeless persons: perceptions of health and social services professionals. Palliat Med. 2012;26(4):350–9. doi: 10.1177/0269216311402713
  • Song J, Wall MM, Ratner ER, Bartels DM, Ulvestad N, Gelberg L. Engaging homeless persons in end of life preparations. J Gen Intern Med. 2008;23(12):2031–45. doi: 10.1007/s11606-008-0771-1
  • Tarzian A, Neal MT, O’Neil JA. Attitudes, experiences, and beliefs affecting end-of-life decision-making among homeless individuals. J Palliat Med. 2005;8(1):36–48. doi: 10.1089/jpm.2005.8.36
  • Kushel MB, Miaskowski C. End-of-life care for homeless patients: “she says she is there to help me in any situation”. JAMA. 2006;296(24):2959–66. doi: 10.1001/jama.296.24.2959
  • Camobell L. History of the hospice movement. Cancer Nurs. 1986;9(6):333–8. doi: 10.1097/00002820-198612000-00007
  • Torrens PR. Development of special care programs for the dying: a brief history. In: Torrens PR, editor. Hospice programs and public policy. Chicago (IL): American Hospital Publishing; 1985. p. 3–29.
  • Kellehear A. Health-promoting palliative care. Melbourne: Oxford University Press, 1999.
  • Kellehear A. Compassionate cities: public health and end-of-life care. Melbourne: Routledge, 2005.
  • Roy DJ. Palliative care Canada 1999 – a question period. J Palliat Care. 1999;15(1):3–5. doi: 10.1177/082585979901500101

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.