Cultural Beliefs about Autism in Indonesia

References

• American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders fifth edition (DSM-5). Washington, DC: Author.
   Google Scholar
• Bornstein, M. H. (2012). Cultural approaches to parenting. Parenting, 12, 212–221. doi:10.1080/15295192.2012.683359
   PubMed Web of Science ®Google Scholar
• Boyd, B. A. (2002). Examining the relationship between stress and lack of social support in mothers of children with autism. Focus on Autism and Other Developmental Disabilities, 17, 208–215. doi:10.1177/10883576020170040301
   Google Scholar
• Braun, V., & Clarke, V. (2013). Successful qualitative research: A practical guide for beginners. London: Sage.
   Google Scholar
• Center for Disease Control. (2014a). Prevalence of autism spectrum disorder among children aged 8 years-autism and developmental disabilities monitoring network, 11 Sites, United States, 2014. Morbidity and Mortality Weekly Report, 63, 1–21.
   PubMed Web of Science ®Google Scholar
• Center for Disease Control. (2014b). Summary of autism spectrum disorder (ASD) prevalence studies. Morbidity and Mortality Weekly Report, 61, 1–6.
   PubMedGoogle Scholar
• Connors, J. L., & Donnellan, A. M. (1998). Walk in beauty: Western perspectives on disability and Navajo family/cultural resilience. In H. I. McCubbin, E. A. Thompson, A. I. Thompson, & J. E. Fromer (Eds.), Resiliency in Native American and immigrant families (pp. 159–182). Thousand Oaks, CA: Sage.
   Google Scholar
• Daley, T. C. (2004). From symptom recognition to diagnosis: Children with autism in urban India. Social Science and Medicine, 58, 1323–1335. doi:10.1023/A:1017947922349
   PubMed Web of Science ®Google Scholar
• Dehnavi, S. R., Malekpour, M., Faramarz, S., & Talebi, H. (2011). The share of internalized stigma and autism quotient in predicting the mental health of mothers with autism children in Iran. International Journal of Business and Social Science, 2, 251–259.
   Google Scholar
• Duarte, C. S., Bordin, I. A., Yazigi, L., & Mooney, J. (2005). Factors associated with stress in mothers of children with autism. Autism, 9, 416–427. doi:10.1177/1362361305056081
   PubMed Web of Science ®Google Scholar
• Dyches, T. T., Smith, T. B., Korth, B. B., Roper, S. O., & Mandleco, B. (2012). Positive parenting of children with developmental disabilities: A meta-analysis. Research in Developmental Disabilities, 33, 2213–2220. doi:10.1016/j.ridd.2012.06.015
   PubMed Web of Science ®Google Scholar
• Ecker, J., & College, B. (2010). Cultural belief systems in autism and the effects on families. Cultural Psychology. Retrieved from http://www.academiccommons.columbia.edu/.../Cultural_Psych_ECKER.pdf
   Google Scholar
• Emmen, R. A. G., Malda, M., Mesman, J., van IJzendoorn, M. H., Prevoo, M. J. L., & Yeniad, N. (2013). Socioeconomic status and parenting in ethnic minority families: Testing a minority family stress model. Journal of Family Psychology, 27, 896–904. doi:10.1037/a0034693
   PubMed Web of Science ®Google Scholar
• Gau, S. S. F., Chou, M. C., Lee, J. C., Wong, C. C., Chou, W. J., Chen, M. F., … Wu, Y. Y. (2010). Behavioral problems and parenting style among Taiwanese children with autism and their siblings. Psychiatry and Clinical Neurosciences, 64, 70–78. doi:10.1111/j.1440-1819.2009.02034.x
   PubMed Web of Science ®Google Scholar
• Gray, D. E. (2002). ‘Everybody just freezes. Everybody is just embarrassed’: Felt and enacted stigma among parents of children with high functioning autism. Sociology of Health & Illness, 24, 734–749.10.1111/1467-9566.00316
   Web of Science ®Google Scholar
• Green, B. E., Sack, W. H., & Pabrum, A. (1981). A review of child psychiatric epidemiology with special reference to American Indian and Alaska Native children. White Cloud Journal, 2, 22–36.
   Google Scholar
• Grinker, R. R., & Cho, K. (2013). Border children: Interpreting autism spectrum disorder in South Korea. Journal of the Society for Psychological Anthropology, 41, 46–74. doi:10.1111/etho.12002
   Web of Science ®Google Scholar
• Gupta, A., & Singhal, N. (2004). Positive perceptions in parents of children with disabilities. Asia Pacific Disability Rehabilitation Journal, 15, 22–35.
   Google Scholar
• Kim, H. U. (2012). Autism across cultures: Rethinking autism. Disability and Society, 27, 535–545. doi:10.1080/09687599.2012.659463
   Web of Science ®Google Scholar
• Kim, Y. S., Leventhal, B. L., Koh, Y., Fombonne, E., Laska, E., Lim, E., … Grinker, R. (2011). Prevalence of autism spectrum disorders in a total population sample. American Journal of Psychiatry, 168, 904–912.10.1176/appi.ajp.2011.10101532
   PubMed Web of Science ®Google Scholar
• Lestari, W., & Wardhani, W. F. (2014). Stigma and management on people with severe mental disorders with “pasung” (physical restraint). Bulletin of Health System Research, 17, 157–166. Retrieved from http://ejournal.litbang.depkes.go.id/index.php/hsr/article/view/3605/3556
   Google Scholar
• Mahoney, G., & Perales, F. (2003). Using relationship-focused intervention to enhance the social-emotional functioning of young children with autism spectrum disorders. Topics in Early Childhood Special Education, 23, 77–89. doi:10.1177/02711214030230020301
   Web of Science ®Google Scholar
• Mak, W. W. S., & Kwok, Y. T. Y. (2010). Internalization of stigma for parents of children with autism spectrum disorder in Hong Kong. Social Science and Medicine, 70, 2045–2051. doi:10.1016/j.socscimed.2010.02.023
   PubMed Web of Science ®Google Scholar
• Ministry of Health of Republic of Indonesia. (2009). Pengembangan pelayanan keterapian fisik di rumah sakit [Development of physical therapy services in hospitals]. Jakarta: Direktorat Jenderal Bina Upaya Kesehatan, Kementrian Kesehatan, RI. Retrieved from http://buk.kemkes.go.id/index.php?option=com_content&view=article&id=163%3Apengembangan-pelayanan-keterapian-fisik-di-rumah-sakit&Itemid=136
   Google Scholar
• Ministry of National Education Republic of Indonesia. (2010). Inclusive education. Jakarta: Directorate General for Management of Primary and Secondary Education.
   Google Scholar
• Ministry of National Education Republic of Indonesia. (2012). Kemdikbud akan bangun autis center di 29 lokasi [MONE to develop autism centres at 29 locations]. Jakarta: Direktorat Pendidikan Khusus dan Layanan Khusus Pendidikan Dasar, Kementrian Pendidikan dan Kebudayaan, RI. Retrieved from http://kemdikbud.go.id/kemdikbud/berita/861
   Google Scholar
• Mirza, I., Tareen, A., Davidson, L. L., & Rahman, A. (2009). Community management of intellectual disabilities in Pakistan: A mixed methods study. Journal of Intellectual Disability Research, 53, 559–570.10.1111/jir.2009.53.issue-6
   PubMed Web of Science ®Google Scholar
• Mulder, N. (1992). Individual and society in Java: A cultural analysis (2nd ed.). Yokyakarta: Gadjah Mada University Press.
   Google Scholar
• Orsmond, G. I., Seltzer, M. M., Greenberg, J. S., & Krauss, M. W. (2006). Mother–child relationship quality among adolescents and adults with autism. American Journal on Mental Retardation, 111, 121–137.10.1352/0895-8017(2006)111[121:MRQAAA]2.0.CO;2
   PubMedGoogle Scholar
• Pujiatni, K., & Kirana, A. (2013). Penjaga nilai-nilai dalam keluarga: Peran kakek dan nenek dalam pengasuhan cucu [Guards in family values: The role of grandparents in parenting grandchildren]. Publikasi Ilmiah Universitas Muhammadiyah Surakarta, A28, 302–309. Retrieved from http://publikasiilmiah.ums.ac.id/bitstream/handle/123456789/3968/A28.pdf?sequence=1
   Google Scholar
• Rachmayanti, S., & Zulkaida, A. (2007). Penerimaan diri orangtua terhadap anak autisme dan peranannya dalam terapi autisme [Parent’s acceptance of autism in their child and their roles in therapy]. Jurnal Ilmiah Psikologi, 1, 7–17. Retrieved from http://www.ejournal.gunadarma.ac.id/index.php/psiko/article/view/277/217
   Google Scholar
• Raznahan, A., & Bolton, P. (2008). Autism spectrum disorder in childhood. Medicine, 36, 489–492. doi:10.1016/j.mpmed.2008.07.005
   Google Scholar
• Respler-Herman, M., Mowder, B. A., Yasik, A. E., & Shamah, R. (2012). Parenting beliefs, parental stress, and social support relationships. Journal of Child and Family Studies, 21, 190–198. doi:10.1007/s10826-011-9462-3
   Web of Science ®Google Scholar
• Riany, Y. E., Meredith, P., & Cuskelly, M. (in press). The influence of traditional cultural values on indonesian parenting style. Marriage & Family Review.
   Google Scholar
• Rutgers, A. H., van IJzendoorn, M. H., Bakermans-Kranenburg, M. J., Swinkels, S. H., van Daalen, E., Dietz, C., … van Engeland, H. (2007). Autism, attachment and parenting: A comparison of children with autism spectrum disorder, mental retardation, language disorder, and non-clinical children. Journal of Abnormal Child Psychology, 35, 859–870. doi:10.1007/s10802-007-9139-y
   PubMed Web of Science ®Google Scholar
• Schieve, L. A., Blumberg, S. J., Rice, C., Visser, S. N., & Boyle, C. (2007). The relationship between autism and parenting stress. Pediatrics, 119, S114–S121. doi:10.1542/peds.2006-2089Q
   PubMed Web of Science ®Google Scholar
• Skinner, D., Bailey, D. B., Correa, V., & Rodriguez, P. (1999). Narrating self and disability: Latino mothers’ construction of identities vis-a-vis their child with special needs. Exceptional Children, 65, 481–495. doi:10.1207/s15327922par0502_3
   Web of Science ®Google Scholar
• Stone-MacDonald, A. (2012). Cultural beliefs about disability in practice: Experiences at a special school in Tanzania. International Journal of Disability, Development and Education, 59, 393–407. doi:10.1080/1034912x.2012.723947
   Web of Science ®Google Scholar
• Sun, X., & Allison, C. (2010). A review of the prevalence of autism spectrum disorder in Asia. Research in Autism Spectrum Disorders, 4, 156–167. doi:10.1016/j.rasd.2009.10.003
   Web of Science ®Google Scholar
• Tehee, E., Honan, R., & Hevey, D. (2009). Factors contributing to stress in parents of individuals with autistic spectrum disorders. Journal of Applied Research in Intellectual Disabilities, 22, 34–42. doi:10.1111/j.1468-3148.2008.00437.x
   Web of Science ®Google Scholar
• Thompson, G., & McFerran, K. S. (2015). “We’ve got a special connection”: Qualitative analysis of descriptions of change in the parent–child relationship by mothers of young children with autism spectrum disorder. Nordic Journal of Music Therapy, 24, 3–26. doi:10.1080/08098131.2013.858762
   Web of Science ®Google Scholar
• ten Have, P. (2004). Qualitative methods in social research. In Paul ten Have (Ed.), Understanding qualitative research and ethnomethodology (pp. 2–14). London: Sage. doi:10.4135/9780857020192.n1
   Google Scholar
• Wang, J., Hu, Y., Wang, Y., Qin, X., Xia, W., Sun, C., … Wang, J. (2013). Parenting stress in Chinese mothers of children with autism spectrum disorders. Social Psychiatry and Psychiatric Epidemiology, 48, 575–582.10.1007/s00127-012-0569-7
   PubMed Web of Science ®Google Scholar
• Werner, S., & Shulman, C. (2015). Does type of disability make a difference in affiliate stigma among family caregivers of individuals with autism, intellectual disability or physical disability? Journal of Intellectual Disability Research, 59, 272–283. doi:10.1111/jir.12136
   PubMed Web of Science ®Google Scholar
• Woodgate, R. L., Ateah, C., & Secco, L. (2008). Living in a world of our own: The experience of parents who have a child with autism. Qualitative Health Research, 18, 1075–1083. doi:10.1177/1049732308320112
   PubMed Web of Science ®Google Scholar