1,467
Views
9
CrossRef citations to date
0
Altmetric
Research Article

Feasibility and Acceptability of a Synchronous Online Parent-Mediated Early Intervention for Children with Autism in a Low Resource Setting During COVID-19 Pandemic

ORCID Icon, , , &

References

  • Alvi, M., Gupta, S., Meinzen-Dick, R., & Ringler, C. (2020, July 14). Phone surveys to understand gendered impacts of COVID-19: A cautionary note. CGIAR. https://pim.cgiar.org/2020/07/14/phone-surveys-to-understand-gendered-impacts-of-covid-19-a-cautionary-note/
  • Amaral, D. G., & De Vries, P. J. (2020). COVID‐19 and Autism research: Perspectives from around the globe. Autism Research, 13(6), 844.
  • Ameis, S. H., Lai, M. C., Mulsant, B. H., & Szatmari, P. (2020). Coping, fostering resilience, and driving care innovation for autistic people and their families during the COVID-19 pandemic and beyond. Molecular Autism, 11(1), 1–9.
  • Baggett, K. M., Davis, B., Feil, E. G., Sheeber, L. L., Landry, S. H., Carta, J. J., & Leve, C. (2010). Technologies for expanding the reach of evidence-based interventions: Preliminary results for promoting social-emotional development in early childhood. Topics in Early Childhood Special Education, 29(4), 226–238.
  • Bali, S., Gupta, A., Khan, A., & Pakhare, A. (2016). Evaluation of telemedicine centres in Madhya Pradesh, Central India. Journal of Telemedicine and Telecare, 22(3), 183–188.
  • Barua, M., Kaushik, J. S., & Gulati, S. (2017). Legal provisions, educational services and health care across the lifespan for autism spectrum disorders in India. The Indian Journal of Pediatrics, 84(1), 76–82.
  • Blake, J. M., Rubenstein, E., Tsai, P. C., Rahman, H., Rieth, S. R., Ali, H., & Lee, L. C. (2017). Lessons learned while developing, adapting and implementing a pilot parent-mediated behavioural intervention for children with autism spectrum disorder in rural Bangladesh. Autism, 21(5), 611–621.
  • Chinman, M., Imm, P., & Wandersman, A. (2004). Getting to outcomes™ 2004: Promoting accountability through methods and tools for planning, implementation, and evaluation. Rand Corporation. Retrieved from https://www.rand.org/content/dam/rand/pubs/technical_reports/2004/RAND_TR101.pdf.
  • Council, N. R. (2001). Educating children with autism. Washington, DC: National Academies Press. https://doi.org/10.17226/10017
  • Creswell, J. W., Hanson, W. E., Clark Plano, V. L., & Morales, A. (2007). Qualitative research designs: Selection and implementation. The Counseling Psychologist, 35(2), 236–264.
  • Creswell, J. W., Plano Clark, V. L., Gutmann, M. L., & Hanson, W. E. (2003). Advanced mixed methods research designs. Handbook of Mixed Methods in Social and Behavioral Research, 209(240), 209–240.
  • Dababnah, S., Ghosh, S., Campion, K., Hussein, D., & Downton, K. D. (2018). Autism interventions in India: A systematic review. Review Journal of Autism and Developmental Disorders, 5(3), 260–267.
  • Divan, G., Hamdani, S. U., Vajartkar, V., Minhas, A., Taylor, C., Aldred, C., … Patel, V. (2015). Adapting an evidence-based intervention for autism spectrum disorder for scaling up in resource-constrained settings: The development of the PASS intervention in South Asia. Global Health Action, 8(1), 27278.
  • Hahler, E. M., & Elsabbagh, M. (2015). Autism: A global perspective. Current Developmental Disorders Reports, 2(1), 58–64.
  • Hollon, S. D., Muñoz, R. F., Barlow, D. H., Beardslee, W. R., Bell, C. C., Bernal, G., … Linehan, M. M. (2002). Psychosocial intervention development for the prevention and treatment of depression: Promoting innovation and increasing access. Biological Psychiatry, 52(6), 610–630.
  • Howard, P. N., & Mazaheri, N. (2009). Telecommunications reform, Internet use and mobile phone adoption in the developing world. World Development, 37(7), 1159–1169.
  • Howroyd, C., & Peeters, T. (2007). Parent participation in early intervention with software-assisted guidance from AutismPro. Good Autism Practice (GAP), 8(2), 31–36.
  • Hrastinski, S. (2008). Asynchronous and synchronous e-learning. Educause Quarterly, 31(4), 51–55.
  • Ingersoll, B., & Berger, N. I. (2015). Parent engagement with a telehealth-based parent-mediated intervention program for children with autism spectrum disorders: Predictors of program use and parent outcomes. Journal of Medical Internet Research, 17(10), e227.
  • Ingersoll, B., & Dvortcsak, A. (2010). Teaching social communication to children with autism: A practitioner’s guide to parent training and a manual for parents. New York, NY: The Guilford Press.
  • Ingersoll, B., Shannon, K., Berger, N., Pickard, K., & Holtz, B. (2017). Self-directed telehealth parent-mediated intervention for children with autism spectrum disorder: Examination of the potential reach and utilization in community settings. Journal of Medical Internet Research, 19(7), e248.
  • Jang, J., Dixon, D. R., Tarbox, J., Granpeesheh, D., Kornack, J., & De Nocker, Y. (2012). Randomized trial of an eLearning program for training family members of children with autism in the principles and procedures of applied behavior analysis. Research in Autism Spectrum Disorders, 6(2), 852–856.
  • Juneja, M., Mukherjee, S. B., Sharma, S., Jain, R., Das, B., & Sabu, P. (2012). Evaluation of a parent-based behavioral intervention program for children with autism in a low-resource setting. Journal of Pediatric Neurosciences, 7(1), 16.
  • Kaka, N., Madgavkar, A., Kshirsagar, A., Gupta, R., Manyika, J., Bahl, K., & Gupta, S. (2019, March 27). Digital India: Technology to transform a connected nation. McKinsey Digital. https://www.mckinsey.com/business-functions/mckinsey-digital/our-insights/digital-india-technology-to-transform-a-connected-nation.
  • Kasari, C., Lawton, K., Shih, W., Barker, T. V., Landa, R., Lord, C., … Senturk, D. (2014). Caregiver-mediated intervention for low-resourced preschoolers with autism: An RCT. Pediatrics, 134(1), e72–e79.
  • Kazi, A. M., Qazi, S. A., Ahsan, N., Khawaja, S., Sameen, F., Saqib, M., … Kalimuddin, H. (2020). Current challenges of digital health interventions in Pakistan: Mixed methods analysis. Journal of Medical Internet Research, 22(9), e21691.
  • Keelery, S. (2020, July 07). Internet usage in India. Statista https://www.statista.com/topics/2157/internet-usage-in-india/
  • Krupa, M., Boominathan, P., Sebastian, S., & Ramanan, P. V. (2019). Child-directed communication behaviours during mother-child interaction in children with autism spectrum disorder and typically developing children in south India. Research in Autism Spectrum Disorders, 67, 101423.
  • Liu, Q., Hsieh, W. Y., & Chen, G. (2020). A systematic review and meta-analysis of parent-mediated intervention for children and adolescents with autism spectrum disorder in mainland China, Hong Kong, and Taiwan. Autism, 24(8), 1960–1979.
  • Maglione, M. A., Gans, D., Das, L., Timbie, J., & Kasari, C. (2012). Nonmedical interventions for children with ASD: Recommended guidelines and further research needs. Pediatrics, 130(Supplement 2), S169–S178.
  • Masulani-Mwale, C., Kauye, F., Gladstone, M., Mathanga, D., & Federici, S. (2019). Development of a psycho-social intervention for reducing psychological distress among parents of children with intellectual disabilities in Malawi. Plos One, 14(2), e0210855.
  • Maulik, P. K., & Darmstadt, G. L. (2007). Childhood disability in low-and middle-income countries: Overview of screening, prevention, services, legislation, and epidemiology. Pediatrics, 120(Supplement 1), S1–S55.
  • Musa-Jaber, M., Abd Ghani, M. K., & Suryana Herman, N. (2014). A Review of adoption of telemedicine in middle east countries: Toward building Iraqi telemedicine framework. Science International, 26, 5.
  • Nair, M. K. C., Russell, P. S. S., George, B., Prasanna, G. L., Bhaskaran, D., Leena, M. L., … Mammen, P. (2014). CDC Kerala 9: Effectiveness of low intensity home based early intervention for autism spectrum disorder in India. The Indian Journal of Pediatrics, 81(2), 115–119.
  • Parsons, L., Cordier, R., Munro, N., Joosten, A., Speyer, R., & Van Wouwe, J. P. (2017). A systematic review of pragmatic language interventions for children with autism spectrum disorder. PLoS One, 12(4), e0172242.
  • Patel, V., Kieling, C., Maulik, P. K., & Divan, G. (2013). Improving access to care for children with mental disorders: A global perspective. Archives of Disease in Childhood, 98(5), 323–327.
  • Rahman, A., Divan, G., Hamdani, S. U., Vajaratkar, V., Taylor, C., Leadbitter, K., … Patel, V. (2016). Effectiveness of the parent-mediated intervention for children with autism spectrum disorder in south Asia in India and Pakistan (PASS): A randomised controlled trial. The Lancet Psychiatry, 3(2), 128–136.
  • Rogers, E. M. (2003). Diffusion of Innovations (5th ed.). New York: Free Press.
  • Rourke, L., Anderson, T., Garrison, D., & Archer, W. (1999). Assessing social presence in asynchronous text-based computer conferencing. Journal of Distance Education, 14(2), 50-71.
  • Salehahmadi, Z., & Hajialiasghari, F. (2013). Telemedicine in Iran: Chances and challenges. World Journal of Plastic Surgery, 2(1), 18.
  • Scott Kruse, C., Karem, P., Shifflett, K., Vegi, L., Ravi, K., & Brooks, M. (2018). Evaluating barriers to adopting telemedicine worldwide: A systematic review. Journal of Telemedicine and Telecare, 24(1), 4–12.
  • Sengupta, K., Mahadik, S., & Kapoor, G. (2020). Glocalizing project ImPACT: Feasibility, acceptability and preliminary outcomes of a parent-mediated social communication intervention for autism adapted to the Indian context. Research in Autism Spectrum Disorders, 76, 101585.
  • Shi, S., & Morrow, B. V. (2006). E-conferencing for instruction: What works? Educause Quarterly, 29(4), 42–49.
  • Snodgrass, M. R., Chung, M. Y., Biller, M. F., Appel, K. E., Meadan, H., & Halle, J. W. (2017). Telepractice in speech–language therapy: The use of online technologies for parent training and coaching. Communication Disorders Quarterly, 38(4), 242–254.
  • Stahmer, A. C., & Gist, K. (2001). The effects of an accelerated parent education program on technique mastery and child outcome. Journal of Positive Behavior Interventions, 3(2), 75–82.
  • Tekola, B., Girma, F., Kinfe, M., Abdurahman, R., Tesfaye, M., Yenus, Z., … Servili, C. (2020). Adapting and pre-testing the World Health Organization’s Caregiver Skills Training programme for autism and other developmental disorders in a very low-resource setting: Findings from Ethiopia. Autism, 24(1), 51–63.
  • Tilahun, D., Hanlon, C., Fekadu, A., Tekola, B., Baheretibeb, Y., & Hoekstra, R. A. (2016). Stigma, explanatory models and unmet needs of caregivers of children with developmental disorders in a low-income African country: A cross-sectional facility-based survey. BMC Health Services Research, 16(1), 152.
  • Uwaezuoke, S. N. (2015). Autism Spectrum Disorder in children: The disparities between the developed and developing countries. Autism-open Access, 5(3), 152.
  • Venkatesh, V., Morris, M. G., Davis, G. B., & Davis, F. D. (2003). User acceptance of information technology: Toward a unified view. In MIS quarterly, 27(3), 425–478.
  • Wandersman, A., Duffy, J., Flaspohler, P., Noonan, R., Lubell, K., Stillman, L., … Saul, J. (2008). Bridging the gap between prevention research and practice: The interactive systems framework for dissemination and implementation. American Journal of Community Psychology, 41(3–4), 171–181.
  • World Health Organization. (2010). Telemedicine: Opportunities and development in member states: report on the second globalsurvey on eHealth 2009. WHO Global Observatory for eHealthSeries, 2. (Global Observatory for eHealth series – Volume 2). Author. Retrieved from https://www.who.int/goe/publications/goe_telemedicine_2010.pdf
  • World Health Organization. (2020). Whose Life Matters? Challenges, barriers and impact of COVID-19 pandemic on persons with disability and their care givers (No. SEA-Disablity-11). Author. Retrieved from https://apps.who.int/iris/bitstream/handle/10665/336569/seadisability-11-eng.pdf?sequence=1&isAllowed=y

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.