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Research Article

Involvement, Readiness for Primary Caregiving, Loneliness, and Self-Efficacy: A Comparison between Adult Sisters and Brothers of Individuals with Intellectual and Developmental Disabilities

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References

  • Al Khatib, S. A. (2012). Exploring the relationship among loneliness, self-esteem, self-efficacy and gender in United Arab Emirates college students. Europe’s Journal of Psychology, 8(1), 159–181.
  • Amnie, G. A. (2018). An investigation of predictors of self-efficacy to cope with stress and implications for health education practice. American Journal of Health Education, 49(3), 155–165.
  • Arnett, J. J. (2001). Conceptions of the transition to adulthood: Perspectives from adolescence through midlife. Journal of Adult Development, 8(2), 133–143.
  • Arnold, K. C., Heller, T., & Kramer, J. (2012). Support needs of siblings of people with developmental disabilities. Intellectual and Developmental Disabilities, 50(5), 373–382.
  • Bandura, A. (2012). On the functional properties of perceived self-efficacy revisited. Journal of Management, 38(1), 9–44.
  • Brady, A. M., Burke, M. M., Landon, T., & Oertle, K. (2019). Siblings of adults with intellectual and developmental disabilities: Their knowledge and perspectives on guardianship and its alternatives. Journal of Applied Research in Intellectual Disabilities, 32, 1078–1087.
  • Burke, M. M., Taylor, J. L., Urbano, R., & Hodapp, R. M. (2012). Predictors of future caregiving by adult siblings of individuals with intellectual and developmental disabilities. American Journal on Intellectual and Developmental Disabilities, 117(1), 33–47.
  • Burke, M. M., Lee, C., Arnold, C., & Owen, A. (2017). The perceptions of professionals toward siblings of individuals with intellectual and developmental disabilities. Intellectual and Developmental Disabilities, 55(2), 72–83.
  • Casale, M. M., Burke, R. C., Arnold, C. K., Hodapp, R. M., & Hodapp, R. M. (2021). Getting from here to there: Future planning as reported by adult siblings of individuals with disabilities. Journal of Intellectual Disability Research, 65(3), 246–261. https://doi.org/10.1111/jppi.12359
  • Chen, G., Gully, S. M., & Eden, D. (2001). Validation of a new general self-efficacy scale. Organizational Research Methods, 4(1), 62–83.
  • Cohen, J. (1988). Statistical power analysis for the behavioural sciences (2nd ed.). Hillsdale, NJ: Lawrence Erlbaum Associates, Publishers.
  • De Jong Gierveld, J., & Van Tilburg, T. (2006). A 6-Item scale for overall, emotional, and social loneliness confirmatory tests on survey data. Research on Aging, 28(5), 582–598.
  • Floyd, F. J., Costigan, C. L., & Richardson, S. S. (2016). Sibling relationships in adolescence and early adulthood with people who have intellectual disability. American Journal on Intellectual and Developmental Disabilities, 121(5), 383–397.
  • Hall, S. A., & Rossetti, Z. (2018). The roles of adult siblings in the lives of people with severe intellectual and developmental disabilities. Journal of Applied Research Intellectual Disability, 31(3), 423–434.
  • Hamama, L., & Gaber, S. (2021). Seeing the siblings: Gender differences in emerging-adult siblings of individuals with autism spectrum disorder. Research in Developmental Disabilities, 108, 103829.
  • Heller, T., & Arnold, C. K. (2010). Siblings of adults with developmental disabilities: Psychosocial outcomes, relationships, and future planning. Journal of Policy and Practice in Intellectual Disabilities, 7(1), 16–25.
  • Ingber, S. (2004). The philosophy and practice of parental involvement in early intervention for children with hearing impairment in Israel (Unpublished doctoral dissertation). Tel Aviv University.
  • Israel Ministry of Justice. (2016). Appointing a guardian. https://www.gov.il/he/service/request_to_appoint_guardian
  • Israel Ministry of Justice (2021). Legal capacity. https://www.justice.gov.il/En/Units/CommissionEqualRightsPersonsDisabilities/Equality-and-Inclusion/Pages/Legal-Capacity.aspx
  • Kaminsky, L., & Dewey, D. (2002). Psychosocial adjustment in siblings of children with autism. Journal of Child Psychology and Psychiatry, 43(2), 225–232.
  • Koukouriki, E., Athanasopoulou, E., & Andreoulakis, E. (2021). Feelings of loneliness and social dissatisfaction in siblings of children with autism spectrum disorders: The role of birth order and perceived social support. Journal of Autism and Developmental Disorders, 5, 1–17.
  • Lee, E. L., Burke, M. M., & Stelter, C. R. (2019). Exploring the perspectives of parents and siblings toward future planning for individuals with intellectual and developmental disabilities. Intellectual and Developmental Disabilities, 57(3), 198–211.
  • Lee, C. L., Burke, M. M., Arnold, K., Sawhney, I., Chester, V., Malcolm, V., & Langdon, P. E. (2021). Sibling participation in service planning meetings for their brothers and sisters with intellectual and developmental disabilities in the United States. Journal of Policy and Practice in Intellectual Disabilities, 18(2), 104–112. https://doi.org/10.1111/jppi.12359
  • Luque Salas, B., Rodríguez, V. Y., Urbieta, C. T., & Cuadrado, E. (2017). The role of coping strategies and self-efficacy as predictors of life satisfaction in a sample of parents of children with autism spectrum disorder. Psicothema, 29(1), 55–60.
  • Margalit, M. (2012). Lonely children and adolescents: Self perceptions, social exclusion and hope. New York: Springer.
  • Millar, D. S. (2013). Guardianship alternatives: Their use affirms self-determination of individuals with intellectual disabilities. Education and Training in Autism and Developmental Disabilities, 48(3), 291–305. https://www.jstor.org/stable/23880988
  • Millar, D. S. (2014). Extending transition to address guardianship alternatives: An issue concerning students who have intellectual disability. Education and Training in Autism and Developmental Disabilities, 49(3), 449–463. https://www.jstor.org/stable/23881268
  • Murrin, M., Beffel, J. H., & Nuttall, A. K. (2021). The moderating role of self-disclosure among typically developing siblings of individuals with autism spectrum disorder. Journal of Child and Family Studies, 30(2), 364–374.
  • Nuttall, A. K., Coberly, B., & Diesel, S. J. (2018). Childhood caregiving roles, perceptions of benefits, and future caregiving intentions among typically developing adult siblings of individuals with autism spectrum disorder. Journal of Autism and Developmental Disorders, 48(4), 1199–1209.
  • O’Kane Grissom, M., & Borkowski, J. G. (2002). Self-efficacy in adolescents who have siblings with or without disabilities. American Journal on Mental Retardation, 107(2), 79–90.
  • Ong, C.-S., Chang, S.-C., & Wang, -C.-C. (2011). Comparative loneliness of users versus nonusers of online chatting. Cyberpsychology, Behavior, and Social Networking, 14(1–2), 35–40.
  • Peplau, L. A., & Perlman, D. (Eds.). (1982). Loneliness: A sourcebook of current theory research, and therapy. New York: Wiley interscience.
  • Prino, L. E., Scigalab, D., Fabris, M. A., & Longobardi, C. (2019). The moderating role of gender in siblings of adults with intellectual disabilities. An International Journal on Personal Relationships, 13(1), 1–13.
  • Rimon-Greenspan, H., Yabo, M., Namer Furstenberg, R., & Rivkin, D. (2020). Supported decision-making: Applied aspects, supervision, and defining optimal support – International review. Myers JDC Brookdale. https://brookdale.jdc.org.il/en/publication/supported-decision-making-applied-aspects-supervision-and-defining-optimal-support-international-review
  • Rosenstreich, E., Feldman, D. B., Davidson, O. B., Maza, E., & Margalit, M. (2015). Hope, optimism and loneliness among first-year college students with learning disabilities: A brief longitudinal study. European Journal of Special Needs Education, 30(3), 338–350.
  • Rossetti, Z., & Hall, S. (2015). Adult sibling relationships with brothers and sisters with severe disabilities. Research and Practice for Persons with Severe Disabilities, 40(2), 120–137.
  • Rossetti, Z., Lee, C. E., Burke, M., & Hall, S. (2020). Perspectives about adult sibling relationships: A dyadic analysis of siblings with and without intellectual and developmental disabilities. Research in Developmental Disabilities, 96(January), 2020.
  • Sharabi, A., & Marom-Golan, D. (2018). Social support, education levels, and parents' involvement: A comparison between mothers and fathers of young children with autism spectrum disorder. Topics in Early Childhood Special Education, 38(1), 54–64. https://doi.org/10.1177/2F0271121418762511
  • Shivers, C. M., & Dykens, E. M. (2017). Adolescent siblings of individuals with and without intellectual and developmental disabilities: Self reported empathy and feelings about their brothers and sisters. American Journal on Intellectual and Developmental Disabilities, 122(1), 62–77.
  • Shivers, C. M., Jackson, J. B., & McGregor, C. M. (2019). Functioning among typically developing siblings of individuals with autism spectrum disorder: A meta-analysis. Clinical Child and Family Psychology Review, 22(2), 172–196.
  • Smith, L. O., Elder, J. H., Satorch, E. A., & Rowe, M. A. (2015). Predictors of sense of coherence in typically developing adolescent siblings of individuals with autism. Journal of Intellectual Disability Research, 59(1), 26–38.
  • Stocker, C. M., Kopack, E. T., Lantheir, R. P., Gilligan, M., Conger, K. J., Neppl, T. K., & Wickrama, K. A. S. (2020). Sibling relationships in adulthood: Links with loneliness and well-being. Journal of Family Psychology, 34(2), 175–185.
  • Tomeny, T. S., Barry, T. D., & Fair, E. C. (2017a). Parentification of adult siblings of individuals with autism spectrum disorder: Distress sibling relationship attitudes, and the role of social support. Journal of Intellectual & Developmental Disability, 42(4), 320–331.
  • Tomeny, T. S., Barry, T. D., Fair, E. C., & Riley, R. (2017b). Parentification of adult siblings of individuals with autism spectrum disorder. Journal of Child Family Studies, 26(4), 1056–1067.
  • Tozer, R., Atkin, K., & Wenham, A. (2013). Continuity, commitment and context: Adult siblings of people with autism plus learning disability. Health & Social Care in the Community, 21(5), 480–488.
  • Tsamparli, A., Tsibidaki, A., & Roussos, P. (2011). Siblings in Greek families: Raising a child with disabilities. Scandinavian Journal of Disability Research, 13(1), 1–19.
  • United Nations [Department of Economic and Social Affairs]. (2020). Article 12: Equal recognition before the law. United Nations Publications. https://www.un.org/development/desa/disabilities/convention-on-the-rights-of-persons-with-disabilities/article-12-equal-recognition-before-the-law.html
  • Weiss, J. A., Robinson, S., Fung, S., Tint, A., Chalmers, P., & Lunsky, Y. (2013). Family hardiness, social support, and self-efficacy in mothers of individuals with autism spectrum disorders. Research in Autism Spectrum Disorders, 7(11), 1310–1317.
  • Werner, S., & Chabany, R. (2016). Guardianship law versus supported decision-making policies: Perceptions of persons with intellectual or psychiatric disabilities and parents. American Journal of Orthopsychiatry, 86(5), 486–499.

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