What can be learned from patient stories about living with the chronicity of heart illness? A narrative inquiry

References

• Baker, S. J. (2010). Post-visit phone calls save lives, improve clinical outcomes, and reduce readmissions. Journal of Emergency Nursing, 36(3), 256–259. doi: 10.1016/j.jen.2010.01.011
   PubMed Web of Science ®Google Scholar
• Banerjee, A. T., Faulkner, G., Grace, S. L., & Thomas, S. G. (2010). Cultural factors facilitating cardiac rehabilitation participation among Canadian South Asians: A qualitative study. Heart & Lung: The Journal of Acute and Critical Care, 39(6), 494–503. doi: 10.1016/j.hrtlng.2009.10.021
   PubMed Web of Science ®Google Scholar
• Bekelman, D. B., Sydney, M. D., Becker, D. M., Wittstein, I. S., Hendricks, D. E., Tamashita, T. E., & Gottlieb, S. H. (2007). Spiritual well-being and depression in patients with heart failure. Journal of General Internal Medicine, 22(4), 470–477. doi: 10.1007/s11606-006-0044-9
   PubMed Web of Science ®Google Scholar
• Brink, E., Hallberg, L. R. M., & Karlson, B. W. (2005). Readjustment five months after a first-time myocardial infarction: Reorienting the active self. Journal of Advanced Nursing, 53(4), 403–411. doi: 10.1111/j.1365-2648.2006.03737.x
   Web of Science ®Google Scholar
• Carlsson, M., Kristofferzon, M. L., & Lofmark, R. (2007). Striving for balance in daily life: Experiences of Swedish women and men after a myocardial infarction. Journal of Clinical Nursing, 16, 391–401. doi: 10.1111/j.1365-2702.2005.01518.x
   PubMed Web of Science ®Google Scholar
• Census of Canada. (2001). Retrieved from http://www12.statcan.gc.ca/English/census01/home/index.cfm
   Google Scholar
• Clandinin, D. J., Pushor, D., & Murray Orr, A. (2007). Navigating sites for narrative inquiry. Journal of Teacher Education, 58(21), 21–35. doi: 10.1177/0022487106296218
   Web of Science ®Google Scholar
• Clandinin, J., & Connelly, M. (2000). Narrative inquiry, experience and story in qualitative research. San Francisco, CA: Jossey-Bass.
   Google Scholar
• Connelly, F. M., & Clandinin, D. J. (1990). Stories of experience and narrative inquiry. Educational Researcher, 19(5), 2–14. doi: 10.3102/0013189X019005002
   Google Scholar
• Connelly, F. M., & Clandinin, D. J. (2006). Narrative inquiry. In J. L. Green, G. Camilli, P. B. Elmore, A. Skukauskaite, & E. Grace (Eds.), Handbook of complementary methods in education research (pp. 477–487). Washington, DC: Lawrence Erlbaum Associates.
   Google Scholar
• Courtney, M., Edwards, H., Chang, A., Parker, A., Finlayson, K., & Hamilton, K. (2009). Fewer emergency readmission and better quality of life for older adults at risk of hospital readmission: A randomized controlled trial to determine the effectiveness of a 24-week exercise and telephone follow-up program. Journal of the American Geriatrics Society, 57, 395–402. doi: 10.1111/j.1532-5415.2009.02138.x
   PubMed Web of Science ®Google Scholar
• Davidson, P. M., Daly, J., Hancock, K., Chang, E., Moser, D., & Cockburn, J. (2003). Perceptions and experiences of heart disease: A literature review and identification of a research agenda in older women. European Journal of Cardiovascular Nursing, 2, 255–264. doi: 10.1016/S1474-5151(03)00056-2
   PubMedGoogle Scholar
• Davidson, P. M., DiGiacomo, M., & McGrath, S. J. (2011). The feminization of aging: How will this impact on health outcomes and services? Health Care for Women International, 32, 1031–1045. doi: 10.1080/07399332.2011.610539
   PubMed Web of Science ®Google Scholar
• Dickstein, K., Cohen-Solal, A., Filippatos, G., McMurray, J. J. V., Ponikowski, P., Poole-Wilson, P. A., … Swedberg, K. (2008). ESC guidelines for the diagnosis and treatment of acute and chronic heart failure. European Heart Journal, 29(24), 2388–2442.
   PubMed Web of Science ®Google Scholar
• Ebrahimi, Z., Wilhelmson, K., Dea Moore, C., & Jakobsson, A. (2012). Frail elder's experiences with and perceptions of health. Qualitative Health Research, 22(11), 1513–1523. doi: 10.1177/1049732312457246
   PubMed Web of Science ®Google Scholar
• Enguidanos, S., Gibbs, N., & Jamison, P. (2012). From hospital to home: A brief nurse practitioner intervention for vulnerable older adults. Journal of Gerontological Nursing, 38(3), 40–50. doi: 10.3928/00989134-20120116-01
   PubMed Web of Science ®Google Scholar
• Galdas, P. M., & Kang, H. B. K. (2010). Punjabi Sikh patients’ cardiac rehabilitation experiences following myocardial infarction: A qualitative analysis. Journal of Clinical Nursing, 19, 3134–3142. doi: 10.1111/j.1365-2702.2010.03430.x
   PubMed Web of Science ®Google Scholar
• Goffman, E. (1959). The presentation of self in everyday life. New York: Anchor books.
   Google Scholar
• Greenwald, J. L., & Jack, B. W. (2009). Preventing the preventable: Reducing hospitalization through coordinated patient-centered discharge process. Professional Case Management, 14(3), 135–140. doi: 10.1097/NCM.0b013e318198d4e1
   PubMedGoogle Scholar
• Grewal, S., Bottorff, J. L., & Hilton, B. A. (2005). The influence of family on immigrant South Asian women's health. Journal of Family Nursing, 11, 242–263. doi: 10.1177/1074840705278622
   PubMed Web of Science ®Google Scholar
• Gupta, M., Singh, N., & Verma, S. (2006). South Asians and cardiovascular risk: What clinicians should know. Circulation, 113, e924–e929. doi: 10.1161/CIRCULATIONAHA.105.583815
   Web of Science ®Google Scholar
• Guruge, S. (2007). The influence of gender, racial, social, and economic inequalities on the production of and the responses to intimate partner violence in the post migration context (Unpublished doctoral dissertation). University of Toronto, Toronto, ON, Canada.
   Google Scholar
• Guruge, S., & Collins, E. (2008). Emerging trends in Canadian immigration and challenges for newcomers. In S. Guruge & E. Collins (Eds.), Working with immigrant women: Issues and strategies for mental health professionals (pp. 3–15). Toronto, ON: Centre for Addiction and Mental Health.
   Google Scholar
• Hauptman, P. J., Swindle, J., Burroughs, T. E., & Schnitzler, M. A. (2008). Resource utilization in patients hospitalized with heart failure: Insights from a contemporary national hospital database. American Heart Journal, 155(6), 978–985. doi: 10.1016/j.ahj.2008.01.015
   PubMed Web of Science ®Google Scholar
• Hawkins, A. H. (1999a). Reconstructing illness: Studies in pathography. West Lafayette, IA: Purdue University Press.
   Google Scholar
• Hawkins, A. H. (1999b). Pathography: Patient narratives of illness. Western Journal of Medicine, 171(2), 127–129.
   PubMedGoogle Scholar
• He, M. F. (2000). A river forever flowing: Cross-cultural lives and identities in the multicultural landscape. Greenwich, CT: Information Age Publishing.
   Google Scholar
• Howard, A. F., Bottorff, J. L., Balneaves, L. G., & Grewal, S. K. (2007). Punjabi immigrant women's breast cancer stories. Journal of Immigrant and Minority Health, 9, 269–279. doi: 10.1007/s10903-007-9044-z
   PubMedGoogle Scholar
• Hyman, I. (2007). Immigration and health: Reviewing evidence of the healthy immigrant effect in Canada. Toronto, ON: Joint Centre of Excellence for Research on Immigration and Settlement-Toronto.
   Google Scholar
• Johnson, K. (2000). Use of telephone follow-up for post-cardiac surgery patients. Intensive and Critical Care Nursing, 16(3), 144–150. doi: 10.1054/iccn.2000.1478
   PubMedGoogle Scholar
• Leininger, M. (2007). Theoretical questions and concerns: Response from the theory of culture care diversity and universality perspective. Nursing Science Quarterly, 20(1), 9–13. doi: 10.1177/0894318406296784
   PubMed Web of Science ®Google Scholar
• Lim, L. L., & Ng, T. P. (2010). Living alone, lack of a confidant and psychological well-being of elderly women in Singapore: The mediating role of loneliness. Asia-Pacific Psychiatry, 2(1), 33–40. doi: 10.1111/j.1758-5872.2009.00049.x
   Web of Science ®Google Scholar
• Lindsay, G., Cross, N., & Ives-Baine, L. (2012). Narratives of neonatal intensive care unit nurses: Experience with end-of-life care. Illness, Crisis & Loss, 20(3), 239–253. doi: 10.2190/IL.20.3.c
   Google Scholar
• Lindsay, G., & Schwind, J. K. (May 2014). Arts-informed Narrative Inquiry: Constructing person-centred care. Retrieved from www.theartofexperience.ca (website © 2014)
   Google Scholar
• Madhavi, A. V. P., Guruge, S., Schwind, J., & Schindel Martin, L. (2014). Exploring the experiences of loneliness among older Sinhalese immigrant women in Canada. Perspectives, 37(1), 6–14.
   Google Scholar
• Mathews, R., & Zachariah, R. (2008). Coronary heart disease in South Asian immigrants: Synthesis of research and implications for health promotion and prevention in nursing practice. Journal of Transcultural Nursing, 19(2), 292–299. doi: 10.1177/1043659608317448
   PubMed Web of Science ®Google Scholar
• Morrison, L., Guruge, S., & Snarr, K. A. (1999). Sri Lankan Tamil immigrants in Toronto: Gender, marriage patterns, and sexuality. In G. A. Kelson & D. L. DeLaet (Eds.), Gender and immigration (pp. 144–162). London: Macmillan Press.
   Google Scholar
• Moser, D. K. (2007). The rest of life: Impact of anxiety on cardiac patients. American Journal of Critical Care, 16(4), 361–369.
   PubMed Web of Science ®Google Scholar
• Phillion, J., He, M. F., & Connelly, F. M. (2005). Narrative and experience in multicultural education. Thousand Oaks, CA: Sage.
   Google Scholar
• Plach, S. K., & Heidrich, S. M. (2001). Women's perceptions of their social roles after heart surgery and coronary angioplasty. Heart & Lung: The Journal of Acute and Critical Care, 30(2), 117–127. doi: 10.1067/mhl.2001.113561
   PubMed Web of Science ®Google Scholar
• Polanyi, M. (1966/2009). The Tacit Dimension. Chicago: The University of Chicago Press.
   Google Scholar
• Public Health Agency of Canada. (2009). Tracking heart disease and stroke in Canada: Report highlights. Retrieved from http://www.phac-aspc.gc.ca/publicat/2009/cvd-avc/report-rapport-eng.php
   Google Scholar
• Rajadurai, J., Lopez, E. A., Rahajoe, A. U., Goh, P. P., Uboldejpracharak, Y., & Zambahari, R. (2012). Women's cardiovascular health: Perspectives from South-East Asia. Nature Reviews Cardiology, 9, 464–477. doi: 10.1038/nrcardio.2012.59
   PubMed Web of Science ®Google Scholar
• Schwind, J. K. (2003). Reflective process in the study of illness stories as experienced by three nurse-teachers. Reflective Practice, 4(1), 19–32. doi: 10.1080/1462394032000053521
   Google Scholar
• Schwind, J. K. (2004). When nurse-teachers become ill: A narrative inquiry into the personal illness experience of three nurse-teachers (Unpublished doctoral dissertation). OISE/University of Toronto, ON, Canada.
   Google Scholar
• Schwind, J. K. (2008). Accessing humanness: From experience to research, from classroom to praxis. In J. K. Schwind & G. M. Lindsay (Eds.), From experience to relationships: Reconstructing ourselves in education and healthcare (pp. 77–94). Charlotte, NC: Information Age Publishing.
   Google Scholar
• Schwind, J. K. (2014). Narrative reflective process: Giving voice to experience of illness. In C. McLean (Ed.), Creative arts in humane medicine (pp. 125–140). Edmonton, AL: Brush Education.
   Google Scholar
• Schwind, J. K., Cameron, D., Franks, J., Graham, C., & Robinson, T. (2012). Engaging in narrative reflective process to fine tune Self-as-Instrument of Care. Reflective Practice, 13(2), 223–235. doi:10.1080/14623943.2011.626030. 1–13, iFirstArticle
   Google Scholar
• Schwind, J. K., Lindsay, G., Coffey, S., Morrison, D., & Mildon, B. (2014). Opening the black-box of person-centred care: An arts-informed narrative inquiry into mental health education and practice. Nurse Education Today, Special Issue NET 2013, 34(8), 1167–1171.doi:10.1016/j.nedt.2014.04.010
   Google Scholar
• Schwind, J. K., Santa Mina, E., Metersky, K., & Patterson, E. (2015). Using the Narrative Reflective Process to explore how students learn about caring in their nursing program: An arts-informed Narrative Inquiry. Reflective Practice. doi:10.1080/14623943.2015.1052385
   Web of Science ®Google Scholar
• Schwind, J., Zanchetta, M., Aksenchuk, K., & Gorospe, F. (2013). Nursing students’ international placement experience: An Arts-Informed Narrative Inquiry. Reflective Practice, 14(6), 705–716. doi:10.1080/14623943.2013.810619
   Google Scholar
• Todero, C. M., La Framboise, L. M., Zimmerman, L. M. (2002). Symptom status and quality-of-life outcomes of home-based disease management program for heart failure patients. Outcomes Management, 6(4), 161–168.
   PubMedGoogle Scholar
• Vuksan, V., Devansen, S., Teo, K. K., Montague, P. A., Kelemen, L., Yi, C., … McQueen, M. (2000). Differences in risk factors, atherosclerosis and cardiovascular disease between ethnic groups in Canada: The study of health assessment and risk in ethnic groups (SHARE). Lancet, 356(9226), 279–284. doi: 10.1016/S0140-6736(00)02502-2
   PubMed Web of Science ®Google Scholar
• Wang, W., Thompson, D. R., Chair, S. Y., & Twinn, S. F. (2007). Chinese couples’ experience during convalescence from a first heart attack: A focus group study. Journal of Advanced Nursing, 61(3), 307–315. doi: 10.1111/j.1365-2648.2007.04529.x
   Web of Science ®Google Scholar
• Watkins, L., Hall, C., & Kring, D. (2012). Hospital to home: A transition program for frail older adults. Professional Case Management, 17(3), 117–123. doi: 10.1097/NCM.0b013e318243d6a7
   PubMedGoogle Scholar
• Whitsitt, D. R. (2012). Coping strategies and adaptation to coronary artery bypass surgery as experienced by three couples. Heart & Lung: The Journal of Acute and Critical Care, 41, 350–359. doi: 10.1016/j.hrtlng.2012.02.013
   PubMed Web of Science ®Google Scholar
• Winawer, S. J. (1998). Healing lessons. Boston, MA: Little Brown.
   Google Scholar
• Wong, F. K., Chow, S., Chung, L., Chang, K., Chan, T., Lee, W. M., & Lee, R. (2008). Can home visits help reduce hospital readmission? Randomized control trial. Journal of Advanced Nursing, 62(5), 585–595. doi: 10.1111/j.1365-2648.2008.04631.x
   PubMed Web of Science ®Google Scholar
• Wong, F. K., Ho, M. H., Yeung, S. Y., Tam, S. K., & Chow, S. K. (2011). Effects of a health-social partnership transitional program on hospital readmission: A randomized controlled trial. Social Science & Medicine, 73(1), 960–969. doi: 10.1016/j.socscimed.2011.06.036
   PubMed Web of Science ®Google Scholar
• Yu, D. S., Lee, D. T., Kwong, A. N., Thompson, D. R., & Woo, J. (2007). Living with chronic heart failure: A review of qualitative studies of older people. Journal of Advanced Nursing, 61(5), 474–483. doi: 10.1111/j.1365-2648.2007.04553.x
   Web of Science ®Google Scholar
• Zeilani, R., & Seymour, J. E. (2012). Muslim women's narratives about bodily change and care during critical illness: A qualitative study. Journal of Nursing Scholarship, 44(1), 99–107. doi: 10.1111/j.1547-5069.2011.01427.x
   PubMed Web of Science ®Google Scholar