Keepers of the Secret: Desires to Conceal a Family Member's HIV-Positive Status in Namibia, Africa

REFERENCES

• Afifi , T. D. and Olson , L. 2005 . The chilling effect in families and the pressure to conceal secrets . Communication Monographs , 72 : 192 – 216 .
   Web of Science ®Google Scholar
• Afifi , T. D. , Olson , L. N. and Armstrong , C. 2005 . The chilling effect and family secrets: Examining the role of self protection, other protection, and communication efficacy . Human Communication Research , 31 : 564 – 598 .
   Web of Science ®Google Scholar
• Alonzo , A. A. and Reynolds , N. R. 1995 . Stigma, HIV and AIDS: An exploration and elaboration of a stigma trajectory . Social Science and Medicine , 41 : 303 – 315 .
   PubMed Web of Science ®Google Scholar
• Altman , I. 1975 . Environmental and social behavior: Privacy, personal space, territory, and crowding , Monterey, CA : Brooks/Cole .
   Google Scholar
• Babcock , J. H. 1998 . “ Involving family and significant others in acute care ” . In HIV and social work , Edited by: Aronstein , D. M. and Thompson , B. J. 101 – 108 . Binghamton, NY : Harrington .
   Google Scholar
• Beals , K. P. 2003 . Stigma management and well-being: The role of social support, cognitive processing, and suppression: Unpublished doctoral dissertation , Los Angeles : University of California .
   Google Scholar
• Bochner , A. P. 1982 . “ On the efficacy of openness in close relationships ” . In Communication yearbook 5 , Edited by: Burgoon , M. 109 – 124 . New Brunswick, NJ : Transaction Books .
   Google Scholar
• Bond , K. C. , Valente , T. W. and Kendall , C. 1999 . Social network influences on reproductive health behaviors in urban northern Thailand . Social Science and Medicine , 49 : 1599 – 1614 .
   PubMed Web of Science ®Google Scholar
• Bok , S. 1984 . Secrets: On the ethics of concealment and revelation , New York : Vintage .
   Google Scholar
• Bradshaw , J. 1995 . Family secrets: What you don't know can hurt you , New York : Bantam .
   Google Scholar
• Brashers , D. E. , Neidig , J. L. and Goldsmith , D. J. 2004 . Social support and the management of uncertainty for people living with HIV or AIDS . Health Communication , 16 : 305 – 331 .
   PubMed Web of Science ®Google Scholar
• Brown , L. , Macintyre , K. and Trujillo , L. 2003 . Interventions to reduce HIV/AIDS stigma: What have we learned? . AIDS Education and Prevention , 15 : 49 – 69 .
   PubMed Web of Science ®Google Scholar
• Cameron , E. 1993 . Legal rights, human rights and AIDS: The first decade. Report from South Africa 2 . AIDS Analysis Africa , 3 : 3 – 4 .
   PubMedGoogle Scholar
• Cameron , E. . Breaking the silence . Opening remarks at International Conference on AIDS . Durban, South Africa. January ,
   Google Scholar
• Caughlin , J. and Afifi , T. D. 2004 . When is topic avoidance unsatisfying? A more complete investigation into the underlying links between avoidance and dissatisfaction in parent–child and dating relationships . Human Communication Research , 30 : 479 – 513 .
   Web of Science ®Google Scholar
• Caughlin , J. P. , Golish , T. D. , Olson , L. N. , Sargent , J. E. , Cook , J. S. and Petronio , S. 2000 . Intrafamily secrets in various family configurations: A communication boundary management perspective . Communication Studies , 51 : 116 – 134 .
   Google Scholar
• Chandra , P. S. , Deepthivarma , S. and Manjula , V. 2003 . Disclosure of HIV in South India: Patterns, reasons and reactions . AIDS Care , 15 : 207 – 215 .
   PubMed Web of Science ®Google Scholar
• Chekryn , J. 1989 . Families of people with AIDS . Canadian Nurse , 85 : 30 – 32 .
   PubMedGoogle Scholar
• Cloven , D. H. and Roloff , M. E. 1993 . The chilling effect of aggressive potential on the expression of complaints in intimate relationships . Communication Monographs , 60 : 199 – 219 .
   Web of Science ®Google Scholar
• Dago-Akribi , H. A. and Adjoua , M. C. 2004 . Psychosexual developments among HIV-positive adolescents in Abidgan, Cote d'Ivoire . Reproductive Health Matters , 12 : 19 – 28 .
   PubMedGoogle Scholar
• Derlega , V. J. and Grzelak , J. 1979 . “ Appropriateness of self-disclosure ” . In Self disclosure: Origins, patterns, and implications of openness in interpersonal relationships , Edited by: Chelune , G. 151 – 176 . San Francisco : Jossey-Bass .
   Google Scholar
• Derlega , V. J. , Metts , S. , Petronio , S. and Margulis , S. T. 1993 . Self-disclosure , Newbury Park, CA : Sage .
   Google Scholar
• Derlega , V. J. , Winstead , B. A. and Folk-Barron , L. 2000 . “ Reasons for and against disclosing HIV-seropositive test results to an intimate partner: A functional perspective ” . In Balancing the secrets of private disclosures , Edited by: Petronio , S. Mahwah, NJ : Lawrence Erlbaum Associates, Inc .
   Google Scholar
• Derlega , V. J. , Winstead , B. A. , Greene , K. , Serovich , J. and Elwood , W. N. 2004 . Reasons for HIV disclosure/nondisclosure in close relationships: Testing a model of HIV-disclosure decision making . Journal of Social and Clinical Psychology , 23 : 747 – 767 .
   Web of Science ®Google Scholar
• Dindia , K. 2000 . “ Sex differences in self-disclosure, reciprocity of self-disclosure, and self-disclosure and liking: Three meta-analyses reviewed ” . In Balancing the secrets of private disclosures , Edited by: Petronio , S. Mahwah, NJ : Lawrence Erlbaum Associates, Inc .
   Google Scholar
• Dupras , A. , Levy , J. and Samson , J. 1989 . Homophobia and attitudes about AIDS . Psychological Reports , 62 : 236 – 238 .
   Google Scholar
• Fife , B. L. and Wright , E. R. 2000 . The dimensionality of stigma: A comparison of its impact on the self of persons with HIV/AIDS and cancer . Journal of Health and Social Behavior , 41 : 50 – 67 .
   PubMed Web of Science ®Google Scholar
• Fishbein , M. and Ajzen , I. 1975 . Belief, attitude, intention and behavior: An introduction to theory and research , Reading, MA : Addison-Wesley .
   Google Scholar
• Gardner , C. B. 1991 . Stigma and the public self: Notes on communication, self, and others . Journal of Contemporary Ethnography , 20 : 251 – 262 .
   Web of Science ®Google Scholar
• Goffman , E. 1963 . Stigma: Notes on the management of spoiled identity , Englewood Cliffs, NJ : Prentice Hall .
   Google Scholar
• Gold , D. B. and Wegner , D. M. 1995 . Origins of ruminative thought—trauma, incompleteness, nondisclosure, and suppression . Journal of Applied Social Psychology , 25 : 1245 – 1261 .
   Web of Science ®Google Scholar
• Granovetter , M. S. 1973 . The strength of weak ties . American Journal of Sociology , 78 : 1360 – 1380 .
   Web of Science ®Google Scholar
• Greene , K. 2000 . “ Disclosure of chronic illness varies by topic and target: The role of stigma and boundaries in willingness to disclose ” . In Balancing the secrets of private disclosures , Edited by: Petronio , S. Mahwah, NJ : Lawrence Erlbaum Associates, Inc .
   Google Scholar
• Greene , K. , Derlega , V. J. and Mathews , A. 2006 . “ Self-disclosure in personal relationships ” . In The Cambridge handbook of personal relationships , Edited by: Vangelisti , A. 409 – 427 . New York : Cambridge University Press .
   Google Scholar
• Greene , K. , Derlega , V. J. , Yep , G. A. and Petronio , S. 2003 . Privacy and disclosure of HIV in interpersonal relationships: A sourcebook for researchers and practitioners , Mahwah, NJ : Lawrence Erlbaum Associates, Inc .
   Google Scholar
• Greene , K. , Frey , L. R. and Derlega , V. J. 2002 . Interpersonalizing AIDS: Attending to the personal and social relationships of individuals living with HIV and/or Aids . Journal of Social and Personal Relationships , 19 : 5 – 17 .
   Web of Science ®Google Scholar
• Gysels , M. , Pool , R. and Bwanika , K. 2001 . Truck drivers, middlemen and commercial sex workers: AIDS and the mediation of sex in southwest Uganda . AIDS Care , 13 : 373 – 385 .
   PubMed Web of Science ®Google Scholar
• Herek , G. M. 1999 . AIDS and stigma . American Behavioral Scientist , 42 : 1106 – 1116 .
   Web of Science ®Google Scholar
• Herek , G. M. 2002 . Thinking about AIDS and stigma: A psychologist's perspective . Journal of Law, Medicine and Ethics , 30 : 594 – 607 .
   PubMed Web of Science ®Google Scholar
• Hunt , T. and Paine-Gernee , K. 1994 . Secrets to tell, secrets to keep , New York : Warner Books .
   Google Scholar
• Hunter , J. E. and Gerbing , D. W. 1982 . “ Unidimensional measurement, second order factor analysis, and causal models ” . In Research in organizational behavior , Edited by: Staw , B. M. and Cummings , L. L. 267 – 320 . Greenwich, CT : JAI . Vol. 4
   Google Scholar
• Imber-Black , E. 1998 . The secret life of families: Truth-telling, privacy, and reconciliation in a tell-all society , New York : Bantam .
   Google Scholar
• Kalichman , S. C. 1995 . Understanding AIDS: A guide for mental health professionals , Washington, DC : American Psychological Association .
   Google Scholar
• Kalichman , S. C. and Simbayi , L. 2004 . Traditional beliefs about the cause of AIDS and AIDS-related stigma in South Africa . AIDS Care , 16 : 572 – 580 .
   PubMed Web of Science ®Google Scholar
• Karpel , M. A. 1980 . Family secrets: I and II: Conceptual and ethical issues in the relational context . Family Process , 19 : 295 – 306 .
   PubMed Web of Science ®Google Scholar
• Katz , A. 1997 . “Mom, I have something to tell you”—disclosing HIV infection . Journal of Advanced Nursing , 25 : 139 – 143 .
   PubMed Web of Science ®Google Scholar
• Kelly , G. A. 1955 . The psychology of personal constructs , Vol. 1 & 2 , New York : Norton .
   Google Scholar
• Koerner , A. F. and Fitzpatrick , M. A. 1997 . Family type and conflict: The impact of conversation orientation and conformity orientation on conflict in the family . Communication Studies , 48 : 59 – 76 .
   Google Scholar
• Lane , J. D. and Wegner , D. M. 1995 . The cognitive consequences of secrecy . Journal of Personality and Social Psychology , 69 : 237 – 253 .
   Web of Science ®Google Scholar
• Leary , M. R. and Schreindorfer , L. S. 1998 . “ The stigmatization of HIV and AIDS: Rubbing salt in the wound ” . In HIV and social interaction , Edited by: Derlega , V. J. and Barbee , A. P. 12 – 29 . Thousand Oaks, CA : Sage .
   Google Scholar
• Lovejoy , N. C. 1990 . AIDS: Impact on the gay man's homosexual and heterosexual families . Marriage and Family Review , 14 : 285 – 316 .
   Google Scholar
• Major , B. and Gramzow , R. H. 1999 . Abortion as stigma: Cognitive and emotional implications of concealment . Journal of Personality and Social Psychology , 77 : 735 – 745 .
   PubMed Web of Science ®Google Scholar
• Makoul , G. and Roloff , M. 1998 . The role of efficacy and outcome expectations in the decision to withhold relational complaints . Communication Research , 25 : 5 – 29 .
   Web of Science ®Google Scholar
• Markowitz , F. E. 1998 . The effects of stigma on the psychological well-being and life satisfaction of persons with mental illness . Journal of Health and Social Behavior , 39 : 335 – 348 .
   PubMed Web of Science ®Google Scholar
• Matthews , A. K. , Sellergren , S. A. , Manfredi , C. and Williams , M. 2002 . Factors influencing medical information seeking among African American cancer patients . Journal of Health Communication , 7 : 205 – 219 .
   PubMed Web of Science ®Google Scholar
• McDonell , J. R. , Abell , N. and Miller , J. 1991 . Family members' willingness to care for people with AIDS: A psychosocial assessment model . Social Work , 36 : 43 – 53 .
   PubMed Web of Science ®Google Scholar
• Mufune , P. 2005 . Myths about condoms and HIV/AIDS in rural northern Namibia . International Social Science Journal , 57 : 675 – 686 .
   Google Scholar
• Murphy , D. A. , Roberts , K. J. and Hoffman , D. 2002 . Stigma and ostracism associated with HIV/AIDS: Children carrying the secret of their mothers' HIV+ serostatus . Journal of Child and Family Studies , 11 : 191 – 202 .
   Google Scholar
• Muula , A. S. and Mfutso-Bengo , J. M. 2005 . When is public disclosure of HIV seropositivity acceptable? . Nursing Ethics , 12 : 288 – 295 .
   PubMed Web of Science ®Google Scholar
• National Planning Commission . 2003 . 2001 Population and housing census, Caprivi Region: Basic analysis with highlights , Windhoek, Namibia : National Planning Commission .
   Google Scholar
• Nyanzi , S. , Nyanzi , B. , Kalina , B. and Pool , R. 2004 . Mobility, sexual networks and exchange among Bodabodamen in southwest Uganda . Culture, Health and Sexuality , 6 : 239 – 254 .
   PubMed Web of Science ®Google Scholar
• Parker , R. and Aggleton , P. 2003 . HIV and AIDS-related stigma and discrimination: A conceptual framework and implications for action . Social Science and Medicine , 57 : 13 – 24 .
   PubMed Web of Science ®Google Scholar
• Parks , M. R. 1982 . “ Ideology in interpersonal communication: Off the couch and into the world ” . In Communication yearbook 5 , Edited by: Burgoon , M. 79 – 107 . New Brunswick, NJ : Transaction Books .
   Google Scholar
• Pennebaker , J. W. and Chew , C. H. 1985 . Behavioral inhibition and electrodermal activity during deception . Journal of Personality and Social Psychology , 49 : 1427 – 1433 .
   PubMed Web of Science ®Google Scholar
• Pennebaker , J. W. , Colder , M. and Sharp , L. K. 1990 . Accelerating the coping process . Journal of Personality and Social Psychology , 58 : 528 – 537 .
   PubMed Web of Science ®Google Scholar
• Pennebaker , J. W. , Hughes , C. F. and O'Heeron , R. C. 1987 . The psychophysiology of confession: Linking inhibitory and psychosomatic processes . Journal of Personality and Social Psychology , 52 : 781 – 793 .
   PubMed Web of Science ®Google Scholar
• Petronio , S. 2002 . Boundaries of privacy: Dialectics of disclosure , Albany : State University of New York Press .
   Google Scholar
• Petronio , S. 2006 . Impact of medical mistakes: Navigating work–family boundaries for physicians and their families . Communication Monographs , 73 : 462 – 467 .
   Web of Science ®Google Scholar
• Petronio , S. , Ellemers , N. , Giles , H. and Gallois , C. 1998 . (Mis)communicating across boundaries: Interpersonal and intergroup considerations . Communication Research , 25 : 571 – 595 .
   Web of Science ®Google Scholar
• Petronio , S. and Martin , J. N. 1986 . Ramification for revealing private information: A gender gap . Journal of Clinical Psychology , 42 : 499 – 506 .
   Web of Science ®Google Scholar
• Petronio , S. , Reeder , H. M. , Hecht , M. L. and Roz-Mendoza , T. M. 1996 . Disclosure of sexual abuse by children and adolescents . Journal of Applied Communication Research , 24 : 181 – 199 .
   Web of Science ®Google Scholar
• Petronio , S. , Sargent , J. , Andea , L. , Reganis , P. and Cichockl , D. 2004 . Family and friends as healthcare advocates: Dilemmas of confidentiality and privacy . Journal of Social and Personal Relationships , 21 : 33 – 52 .
   Web of Science ®Google Scholar
• Reyland , S. A. , Higgins-D'Alessandro , A. and McMahon , T. J. 2002 . Tell them you love them because you never know when things could change: Voices of adolescents living with HIV-positive mothers . AIDS Care , 14 : 285 – 294 .
   PubMed Web of Science ®Google Scholar
• Rosenfeld , L. B. 1979 . Self-disclosure avoidance: Why I am afraid to tell you who I am . Communication Monographs , 46 : 63 – 74 .
   Web of Science ®Google Scholar
• Ruiz-Casares , M. 2006 . Strengthening the capacity of child-headed households in Namibia to meet their own needs: A social networks approach , Unpublished dissertation, Cornell University .
   Google Scholar
• Siegel , K. and Freund , B. 1994 . “ Parental loss and latency age children ” . In AIDS and the new orphans , Edited by: Dane , B. O. and Levine , C. 43 – 58 . Westport, CT : Auburn House .
   Google Scholar
• Simkins , L. and Kushner , A. 1986 . Attitudes toward AIDS, herpes II, and toxic shock syndrome: Two years later . Psychological Reports , 59 : 883 – 891 .
   PubMed Web of Science ®Google Scholar
• Smart , L. and Wegner , D. M. 1999 . Covering up what can't be seen: Concealable stigma and mental control . Journal of Personality and Social Psychology , 77 : 474 – 486 .
   PubMed Web of Science ®Google Scholar
• Smith , R. A. , Ferrara , M. and Witte , K. 2007 . Social sides of health risks: Stigma and collective efficacy . Health Communication , 21 : 1 – 10 .
   PubMed Web of Science ®Google Scholar
• Steele , R. , Tripp , G. , Kotchick , B. A. , Summer , P. and Forehand , R. 1997 . Family members' uncertainty about parental chronic illness: The relationship of hemophilia and HIV infection to child functioning . Pediatric Psychology , 22 : 577 – 591 .
   PubMedGoogle Scholar
• Stein , J. A. and Nyamathi , A. 2000 . Gender differences in behavioural and psychosocial predictors of HIV testing and return for test results in a high-risk population . AIDS Care , 12 : 343 – 356 .
   PubMed Web of Science ®Google Scholar
• Stulberg , I. and Buckingham , S. L. 1988 . Parallel issues for AIDS patients, families, and others: Social casework . The Journal of Contemporary Social Work , 69 : 355 – 359 .
   Google Scholar
• Thomas , F. 2006 . Stigma, fatigue and social breakdown: Exploring the impacts of HIV/AIDS on patient and carer well-being in the Caprivi Region, Namibia . Social Science & Medicine , 63 : 3174 – 3187 .
   PubMed Web of Science ®Google Scholar
• Tjaronda, W. (2004, May, 10). Red Cross day focuses on stigma. New Era. http://www.newera.com.na/archives.php?id=1624&date=2004-05-10 (Accessed: 4 September 2007 ).
   Google Scholar
• UNAIDS . 2002 . Report on the global AIDS epidemic , Geneva, , Switzerland : Author .
   Google Scholar
• UNAIDS . 2004 . Namibia: Epidemiological fact sheets on HIV/AIDS and sexually transmitted infections , Joint United Nations Programme on HIV/AIDS .
   Google Scholar
• Vangelisti , A. L. 1994 . Family secrets: Forms, functions and correlates . Journal of Social and Personal Relationships , 11 : 113 – 135 .
   Web of Science ®Google Scholar
• Vangelisti , A. L. and Caughlin , J. P. 1997 . Revealing family secrets: The influence of topic, function, and relationships . Journal of Social and Personal Relationships , 14 : 679 – 705 .
   Web of Science ®Google Scholar
• Vangelisti , A. L. , Caughlin , J. P. and Timmerman , L. 2001 . Criteria for revealing family secrets . Communication Monographs , 68 : 14
   Google Scholar
• Vrij , A. , Nunkoosing , K. , Paterson , B. , Oosterwegel , A. and Soukara , S. 2002 . Characteristics of secrets and the frequency, reasons, and effects of secret keeping and disclosure . Journal of Community and Applied Social Psychology , 12 : 56 – 70 .
   Web of Science ®Google Scholar
• Webster , H. 1991 . Family secrets: How telling and not telling affects our children, our relationships, and our lives , Reading, MA : Addison-Wesley .
   Google Scholar
• Wegner , D. M. and Erber , R. 1992 . The hyperaccessibility of suppressed thoughts . Journal of Personality and Social Psychology , 63 : 903 – 912 .
   Web of Science ®Google Scholar
• Wegner , D. M. , Lane , J. D. and Dimitri , S. 1994 . The allure of secret relationships . Journal of Personality and Social Psychology , 66 : 287 – 300 .
   Web of Science ®Google Scholar
• Weitz , R. 1990 . Living with the stigma of AIDS . Qualitative Sociology , 13 : 23 – 38 .
   Google Scholar
• Yep , G. A. 2000 . “ Disclosure of HIV infection in interpersonal relationships: A communication boundary management approach ” . In Balancing the secrets of private disclosures , Edited by: Petronio , S. 83 – 96 . Mahwah, NJ : Lawrence Erlbaum Associates, Inc .
   Google Scholar
• Zuckerman , G. L. and Gordon , C. 1988 . Meeting the psychosocial and legal needs of women with AIDS and their families . New York State Journal of Medicine , 88 : 619 – 620 .
   PubMedGoogle Scholar