“That Was Grown Folks’ Business”: Narrative Reflection and Response in Older Adults’ Family Health History Communication

REFERENCES

• Alspach, J. G. (2011). The importance of family health history: Your patients’ and your own. Critical Care Nurse, 31, 10–15.
   Google Scholar
• Ashida, S., Goodman, M., Pandya, C., Koehly, L. M., Lachance, C., Stafford, J., & Kaphingst, K. A. (2011). Age differences in genetic knowledge, health literacy and causal beliefs for health conditions. Public Health Genomics, 14, 307–316.
   PubMed Web of Science ®Google Scholar
• Banks-Wallace, J. (1998). Emancipatory potential of storytelling in a group. Journal of Nursing Scholarship, 30, 17–21.
   Google Scholar
• Banks-Wallace, J. (2000). Womanist ways of knowing: Theoretical considerations for research with African American women. Advances in Nursing Science, 22(3), 33–45.
   PubMed Web of Science ®Google Scholar
• Banks-Wallace, J. (2002). Talk that talk: Storytelling and analysis rooted in African American oral tradition. Qualitative Health Research, 12, 410–426.
   PubMed Web of Science ®Google Scholar
• Baptiste-Roberts, K., Gary, T. L., Beckles, G. L. A., Gregg, E. W., Owens, M., Porterfield, D., & Engelgau, M. M. (2007). Family history of diabetes, awareness of risk factors, and health behaviors among African Americans. American Journal of Public Health, 97, 907–912.
   PubMed Web of Science ®Google Scholar
• Bates, B. R. (2005). Care of the self and patient participation in genetic discourse: A Foucauldian reading of the Surgeon General’s “My Family Health Portrait” program. Journal of Genetic Counseling, 14, 423–434.
   PubMedGoogle Scholar
• Boje, D. (2001). Narrative methods for organizational and communication research. Thousand Oaks, CA: Sage.
   Google Scholar
• Bowen, D. J., Bourcier, E., Press, N., Lewis, F. M., & Burke, W. (2004). Effects of individual and family functioning on interest in genetic testing. Community Genetics, 7, 25–32.
   PubMedGoogle Scholar
• Brody, H. (2003). Stories of sickness (2nd ed.). New York, NY: Oxford University Press.
   Google Scholar
• Burke, K. (1969). A grammar of motives. Berkeley: University of California Press.
   Google Scholar
• Charmaz, K. (2006). Constructing grounded theory: A practical guide through qualitative analysis. Thousand Oaks, CA: Sage.
   Google Scholar
• Charon, R. (2001). Narrative medicine: A model for empathy, reflection, profession, and trust. Journal of the American Medical Association, 286, 1897–1902.
   PubMed Web of Science ®Google Scholar
• Charon, R. (2006). Narrative medicine: Honoring the stories of illness. New York, NY: Oxford University Press.
   Google Scholar
• Cortazzi, M. (2001). Narrative analysis in ethnography. In P. Atkinson, A. Coffey, S. Delamont, J. Lofland, & L. Lofland (Eds.), Handbook of ethnography (pp. 384–394). Thousand Oaks, CA: Sage.
   Google Scholar
• Foster, C., Watson, M., Moynihan, C., Jones, A., & Eeles, R. (2002). Genetic testing for breast and ovarian cancer predisposition: Cancer burden and responsibility. Journal of Health Psychology, 7, 469–484.
   PubMed Web of Science ®Google Scholar
• Frank, A. W. (1995). The wounded storyteller: Body, illness, and ethics. Chicago, IL: University of Chicago Press.
   Google Scholar
• Frank, A. W. (2010). Letting stories breathe: A socio-narratology. Chicago, IL: University of Chicago Press.
   Google Scholar
• Freeman, M. (2010). Hindsight: The promise and peril of looking backward. New York, NY: Oxford University Press.
   Google Scholar
• Gubrium, J. F., & Holstein, J. A. (2009). Analyzing narrative reality. Thousand Oaks, CA: Sage.
   Google Scholar
• Guttmacher, A. E., Collins, F. S., & Carmona, R. H. (2004). The family history—More important than ever. New England Journal of Medicine, 351, 2333–2336.
   PubMed Web of Science ®Google Scholar
• Hanson, C., Novilla, L., Barnes, M., De La Cruz, N., & Meacham, A. (2007). Using family health history for chronic disease prevention in the age of genomics: Translation to health education practice. American Journal of Health Education, 38, 219–229.
   Google Scholar
• Harter, L. M. (2009). Narratives as dialogic, contested, and aesthetic performances. Journal of Applied Communication Research, 37, 140–150.
   Web of Science ®Google Scholar
• Harter, L. M., Japp, P. M., & Beck, C. S. (Eds.). (2005). Narratives, health, and healing: Communication theory, research, and practice. Mahwah, NJ: Lawrence Erlbaum Associates.
   Google Scholar
• Hovick, S. R., Yamasaki, J., Burton, A. M., & Peterson, S. K. (in press). Patterns of family health history communication among African American older adults. Journal of Health Communication.
   Google Scholar
• Kaphingst, K. A., Goodman, M., Pandya, C., Garg, P., Stafford, J., & Lachance, C. (2012). Factors affecting frequency of communication about family health history with family members and doctors in a medically underserved population. Patient Education and Counseling, 88, 291–297.
   PubMed Web of Science ®Google Scholar
• Kelly, K. M., Ferketich, A. K., Sturm, A. C., Porter, K., Sweet, K., Kemp, K., … Westman, J. A. (2009). Cancer risk and risk communication in urban, lower-income neighborhoods. Preventive Medicine, 48, 392–396.
   PubMed Web of Science ®Google Scholar
• Kelly, K. M., Shedlosky-Shoemaker, R., Porter, K., Remy, A., DeSimone, P., & Andrykowski, M. A. (2007). Cancer family history reporting: Impact of method and psychosocial factors. Journal of Genetic Counseling, 16, 373–382.
   PubMedGoogle Scholar
• Kenen, R., Ardern-Jones, A., & Eeles, R. (2003). Family stories and the use of heuristics: Women from suspected hereditary breast and ovarian cancer (HBOC) families. Sociology of Health & Illness, 25, 838–865.
   PubMed Web of Science ®Google Scholar
• Kenyon, G., Bohlmeijer, E., & Randall, W. L. (Eds.). (2011). Storying later life: Issues, investigations, and interventions in narrative gerontology. New York, NY: Oxford University Press.
   Google Scholar
• Koehly, L. M., Peters, J. A., Kenen, R., Hoskins, L. M., Ersig, A. L., Kuhn, N. R., … Greene, M. H. (2009). Characteristics of health information gatherers, disseminators, and blockers within families at risk of hereditary cancer: Implications for family health communication interventions. American Journal of Public Health, 99, 2203–2209.
   PubMed Web of Science ®Google Scholar
• Kreuter, M. W., Holmes, K., Alcaraz, K., Kalesan, B., Rath, S., Richert, M., … Clark, E. M. (2010). Comparing narrative and informational videos to increase mammography in low-income African American women. Patient Education and Counseling, 81S, S6–S14.
   Web of Science ®Google Scholar
• Langellier, K. M. (2006). Family storytelling as communication practice. In L. H. Turner & R. West (Eds.), The family communication handbook (pp. 109–128). Thousand Oaks, CA: Sage.
   Google Scholar
• Manoogian, M. M., Harter, L. M., & Denham, S. A. (2010). The storied nature of health legacies in the familial experience of type 2 diabetes. Journal of Family Communication, 10, 40–56.
   Google Scholar
• McQueen, A., Kreuter, M. W., Kalesan, B., & Alcaraz, K. I. (2011). Understanding narrative effects: The impact of breast cancer survivor stories on message processing, attitudes, and beliefs among African American women. Health Psychology, 30, 674–682.
   PubMed Web of Science ®Google Scholar
• Murff, H. J., Greevy, R. A., & Syngal, S. (2007). The comprehensiveness of family cancer history assessments in primary care. Community Genetics, 10, 174–180.
   PubMedGoogle Scholar
• Murthy, V. S., Garza, M. A., Almario, D. A., Vogel, K. J., Grubs, R. E., Gettig, E. A., … Thomas, S. B. (2011). Using a family history intervention to improve cancer risk perception in a black community. Journal of Genetic Counseling, 20, 639–649.
   PubMed Web of Science ®Google Scholar
• Nsiah-Kumi, P. M. M., Ariza, A. M., Mikhail, L. M., Feinglass, J. P., & Binns, H. M. M. (2009). Family history and parents’ beliefs about consequences of childhood overweight and their influence on children’s health behaviors. Academic Pediatrics, 9, 53.
   PubMed Web of Science ®Google Scholar
• Orom, H., Kiviniemi, M. T., Underwood, W., Ross, L., & Shavers, V. L. (2010). Perceived cancer risk: Why is it lower among nonwhites than whites? Cancer Epidemiology Biomarkers & Prevention, 19, 746–754.
   PubMed Web of Science ®Google Scholar
• Petruccio, C., Mills Shaw, K. R., Boughman, J., Fernandez, C., Harlow, I., Kruesi, M., … McKain, F. (2008). Healthy choices through family history: A community approach to family history awareness. Community Genetics, 11, 343–351.
   PubMedGoogle Scholar
• Randall, W. L. (2011). Memory, metaphor, and meaning: Reading for wisdom in the stories of our lives. In G. Kenyon, E. Bohlmeijer, & W. L. Randall (Eds.), Storying later life: Issues, investigations, and interventions in narrative gerontology (pp. 20–38). New York, NY: Oxford University Press.
   Google Scholar
• Rich, E. G., Burke, W., Heaton, C. J., Haga, S., Pinsky, L., Short, M. P., & Acheson, L. (2004). Reconsidering the family history in primary care. Journal of General Internal Medicine, 19, 273–280.
   PubMed Web of Science ®Google Scholar
• Riessman, C. K. (2008). Narrative methods for the human sciences. Thousand Oaks, CA: Sage.
   Google Scholar
• Rubinstein, W. S. (2013). Family history and health risk assessment. In G. S. Ginsburg & H. F. Willard (Eds.), Genomic and personalized medicine (2nd ed., pp. 306–323). London, UK: Elsevier.
   Google Scholar
• Sharf, B. F., Harter, L. M., Yamasaki, J., & Haidet, P. (2011). Narrative turns epic: Continuing developments in health narrative scholarship. In T. L. Thompson, R. Parrott, & J. F. Nussbaum (Eds.), Routledge handbook of health communication (2nd ed., pp. 36–51). New York, NY: Routledge.
   Google Scholar
• Vogel, K. J., Murthy, V. S., Dudley, B., Grubs, R. E., Gettig, E., Ford, A., & Thomas, S. B. (2007). The use of family health histories to address health disparities in an African American community. Health Promotion Practice, 8, 350–357.
   PubMedGoogle Scholar
• Walter, F. M., & Emery, J. (2006). Perceptions of family history across common diseases: A qualitative study in primary care. Family Practice, 23, 472–480.
   PubMed Web of Science ®Google Scholar
• Yoon, P. W., Scheuner, M. T., Gwinn, M., Khoury, M. J., Jorgensen, C., Hariri, S., & Lyn, S. (2004). Awareness of family health history as a risk factor for disease—United States, 2004. Morbid. Mortal. Weekly Rep., 53, 1044–1046.
   PubMedGoogle Scholar