Physician-Perceived Contradictions in End-of-Life Communication: Toward a Self-Report Measurement Scale

REFERENCES

• Amati, R., & Hannawa, A. F. (2014). Relational dialectics theory: Disentangling physician-perceived tensions of end-of-life communication. Health Communication. doi:10.1080/10410236.2013.815533
   Web of Science ®Google Scholar
• Anselm, A. H., Palda, V., Guest, C. B., McLean, R. F., Vachon, M. L., Kelner, M., & Lam-McCulloch, J. (2005). Barriers to communication regarding end-of-life care: Perspectives of care providers. Journal of Critical Care, 20, 214–223.
   PubMed Web of Science ®Google Scholar
• Barclay, S., Momen, N., Case-Upton, S., Kuhn, I., & Smith, E. (2011). End-of-life care conversations with heart failure patients: A systematic literature review and narrative synthesis. British Journal of General Practice, 61(582), e49–e62.
   Google Scholar
• Baxter, L. A., & Montgomery, B. M. (1996). Relating: Dialogues and dialectics. New York, NY: Guilford.
   Google Scholar
• Blank, R. H. (2011). End-of-life decision making across cultures. Journal of Law, Medicine & Ethics, 39, 201–214.
   PubMed Web of Science ®Google Scholar
• Bullock, K. (2011). The influence of culture on end-of-life decision making. Journal of Social Work in End-of-Life and Palliative Care, 7, 83–98.
   PubMedGoogle Scholar
• Carlet, J., Thijs, L. G., Antonelli, M., Cassell, J., Cox, P., Hill, N., …Thompson, B. T. (2004). Challenges in end-of-life care in the ICU: Statement of the 5th International Consensus Conference in Critical Care, Brussels, Belgium, April 2003. Intensive Care Medicine, 30, 770–784.
   PubMed Web of Science ®Google Scholar
• Considine, J., & Miller, K. (2010). The dialectics of care: Communicative choices at the end of life. Health Communication, 25, 165–174.
   PubMed Web of Science ®Google Scholar
• Cox, C., & Monk, A. (1993). Hispanic culture and family care of Alzheimer patients. Health & Social Work, 18, 92–100.
   PubMedGoogle Scholar
• Curtis, J. R., & Patrick, D. L. (2001). How to discuss dying and death in the ICU. In R. J. Curtis & G. D. Rubenfeld (Eds.), Managing death in the intensive care unit: The transition from cure to comfort (pp. 85–102). New York, NY: Oxford.
   Google Scholar
• Curtis, J. R., Patrick, D. L., Caldwell, E. S., & Collier, A. C. (2000). Why don’t patients and physicians talk about end-of-life care? Barriers to communication for patients with acquired immunodeficiency syndrome and their primary care clinicians. Archives of Internal Medicine, 160, 1690–1696.
   PubMed Web of Science ®Google Scholar
• Dalla-Vorgia, P., Katsouyanni, K., Garanis, T. N., Touloumi, G., Drogarri, P., & Koutselinis, A. (1992). Attitudes of a Mediterranean population to the truth-telling issue. Journal of Medical Ethics, 18, 67–74.
   PubMed Web of Science ®Google Scholar
• Galushko, M., Romotzky, V., & Voltz, R. (2012). Challenges in end-of-life communication. Current Opinion Supportive Palliative Care, 6, 355–364.
   PubMed Web of Science ®Google Scholar
• Grassi, L., Magnani, K., & Ercolani, M. (1999). Attitudes toward euthanasia and physician-assisted suicide among Italian primary care physicians. Journal of Pain and Symptom Management, 17, 188–196.
   PubMed Web of Science ®Google Scholar
• Hanson, L. C., Danis, M., & Garrett, J. (1997). What is wrong with end-of-life care? Opinions of bereaved family members. Journal of the American Gerontological Society, 45, 1339–1344.
   Google Scholar
• Heyland, D. K., Dodek, P., Rocker, G., Groll, D., Gafni, A., Pichora, D., …Lam, M. (2006). What matters most in end-of-life care: Perceptions of seriously ill patients and their family members. Canadian Medical Association Journal, 174, 627–633.
   PubMed Web of Science ®Google Scholar
• Hickman, S. E. (2002). Improving communication near the end of life. American Behavioral Scientist, 46, 252–267.
   Web of Science ®Google Scholar
• Hofstede, G. (1983). National cultures in four dimensions: A research-based theory of cultural differences among nations. International Studies of Management & Organization, 13(1,2), 46–74.
   Google Scholar
• Hsieh H. F., Shannon, S. E., & Curtis, J. R. (2006). Contradictions and communication strategies during end-of-life decision making in the intensive care. Journal of Critical Care, 21, 294–304.
   PubMed Web of Science ®Google Scholar
• Kagawa-Singer, M., & Blackhall, L. J. (2001). Negotiating cross-cultural issues at the end of life: “You got to go where he lives.” Journal of the American Medical Association, 286, 2993–3001.
   PubMed Web of Science ®Google Scholar
• Larson, D. G., & Tobin, D. R. (2000). End-of-life conversations: Evolving practice and theory. Journal of the American Medical Association, 284, 1573–1578.
   PubMed Web of Science ®Google Scholar
• Lautrette, A., Darmon, M., Megarbane, B., Joly, L. M., Chevret, S., Adrie, C., …Azoulay, E. (2007). A communication strategy and brochure for relatives of patients dying in the ICU. New England Journal of Medicine, 356, 469–478.
   PubMed Web of Science ®Google Scholar
• Levin, T. T., Moreno, B., Silvester, W., & Kissane, D. W. (2010). End-of-life communication in the intensive care unit. General Hospital Psychiatry, 32, 433–442.
   PubMed Web of Science ®Google Scholar
• McDonagh, J. R., Elliott, T. B., Engelberg, R. A., Treece, P. D., Shannon, S. E., Rubenfeld, G. D., …Curtis, J. R. (2004). Family satisfaction with family conferences about end-of-life care in the intensive care unit: Increased proportion of family speech is associated with increased satisfaction. Critical Care Medicine, 32, 1484–1488.
   PubMed Web of Science ®Google Scholar
• Meñaca, A., Evans, N., Andrew, E. V. W., Toscani, F., Finetti, S., Gómez-Batiste, X., …Gysels, M. (2012). End-of-life across Southern Europe: A critical review of cultural similarities and differences between Italy, Spain and Portugal. Critical Reviews in Oncology/Hematology, 82, 387–401.
   PubMed Web of Science ®Google Scholar
• Meyer, E. C., Sellers, D. E., Browning, D. M., McGuffie, K., Solomon, M. Z., & Truog, R. D. (2009). Difficult conversations: Improving communication skills and relational abilities in health care. Pediatric Critical Care Medicine, 10, 352–359.
   PubMed Web of Science ®Google Scholar
• Miccinesi, G., Fischer, S., Paci, E., Onwuteaka-Philipsen, B. D., Cartwright, C., van der Heide, A., …EURELD Consortium. (2005). Physicians’ attitudes towards end-of-life decisions: A comparison between seven countries. Social Science & Medicine, 60, 1961–1974.
   PubMed Web of Science ®Google Scholar
• Miller, V. D., & Knapp, M. L. (1986). Communication paradoxes and the maintenance of living relationships with the dying. Journal of Family Issues, 7, 255–275.
   Web of Science ®Google Scholar
• Mitchell, J. L. (1998). Cross-cultural issues in the disclosure of cancer. Cancer Practice, 6, 153–160.
   PubMedGoogle Scholar
• Morrison, M. F. (1998). Obstacles to doctor–patient communication at the end of life. In M. D. Steinber & S. J. Youngner (Eds.), End-of-life decisions: A psychosocial perspective (pp. 109–136). Washington, DC: American Psychiatric Press.
   Google Scholar
• Parker, S. M., Clayton, J. M., Hancock, K., Walder, S., Butow, P. N., Carrick, S., …Tattersall, M. H. (2007). A systematic review of prognostic/end-of-life communication with adults in the advanced stages of a life-limiting illness: Patient/caregiver preferences for the content, style, and timing of information. Journal of Pain and Symptom Management, 34, 81–93.
   PubMed Web of Science ®Google Scholar
• Quill, T. E., & Brody, H. (1996). Physician recommendations and patient autonomy: Finding a balance between physician power and patient choice. Annals of Internal Medicine, 125, 763–769.
   PubMed Web of Science ®Google Scholar
• Reese, D. J., Ahern, R. E., Nair, S., O’Faire, J. D., & Warren, C. (1999). Hospice access and use by African Americans: Addressing cultural and institutional barriers through participatory action research. Social Work, 44, 549–559.
   PubMed Web of Science ®Google Scholar
• Roter, D. L., & Hall, J. A. (2006). Doctors talking with patients/patients talking with doctors: Improving communication in medical visits. Westport, CT: Praeger.
   Google Scholar
• Schouten, B. C., & Meeuwesen, L. (2006). Cultural difference in medical communication: A review of the literature. Patient Education and Counseling, 64, 21–34.
   PubMed Web of Science ®Google Scholar
• Searight, H. R., & Gafford, J. (2005). Cultural diversity at the end of life: Issues and guidelines for family physicians. American Family Physician, 71, 515–522.
   PubMed Web of Science ®Google Scholar
• Shrank, W. H., Kutner, J. S., Richardson, T. Mularski, R. A., Fischer, S., & Kagawa-Singer, M. (2005). Focus group findings about the influence of culture on communication preference in end-of-life care. Journal of General Internal Medicine, 20, 703–709.
   PubMed Web of Science ®Google Scholar
• Sparks, L., & Villagran, M. (2010). Provider characteristics. In L. Sparks & M. Villagran (Eds.), Patient and provider interaction: A global health communication perspective (pp. 51–69). Cambridge, UK: Polity Press.
   Google Scholar
• Sprung, C. L., Maia, P., Bulow, H. H., Armaganidis, A., Baras, M., Ricou, B., …Ethicus Study Group. (2007). The importance of religious affiliation and culture on end-of-life decisions in European intensive care units. Intensive Care Medicine, 33, 1732–1739.
   PubMed Web of Science ®Google Scholar
• Steinhauser, K. E., Christakis, N. A., Clipp, E. C., McNeilly, M., Grambow, S., Parker, J., & Tulsky, J. A. (2001). Preparing for the end of life: Preferences of patients, families, physicians, and other care providers. Journal of Pain Symptom Management, 22, 727–737.
   PubMed Web of Science ®Google Scholar
• Surbone, A. (2008). Cultural aspects of communication in cancer care. Support Care Cancer, 16, 235–240.
   PubMed Web of Science ®Google Scholar
• Surbone, A., Ritossa, C., & Spagnolo, A. G. (2004). Evolution of truth-telling attitudes and practices in Italy. Critical Reviews in Oncology/Hematology, 52, 165–172.
   PubMed Web of Science ®Google Scholar
• Teres, D. (1993). Trends from the United States with end-of-life decisions in the intensive care unit. Intensive Care Medicine, 19, 316–322.
   PubMed Web of Science ®Google Scholar
• Thomas, N. D. (2001). The importance of culture throughout all of life and beyond. Holistic Nursing Practice, 15, 40–46.
   PubMedGoogle Scholar
• Truog, R. D. (2008). End-of-life decision-making in the United States. European Journal of Anesthesiology, 25, 43–50.
   PubMed Web of Science ®Google Scholar
• van der Heide, A., Deliens, L., Faisst, K., Nilstun, T., Norup, M., Paci, E., …van der Maas, P. J. (2003). End-of-life decision-making in six European countries: Descriptive study. Lancet, 362, 345–350.
   PubMed Web of Science ®Google Scholar
• Vincent, J. L. (1998). Information in the ICU: Are we being honest with our patients? The results of a European questionnaire. Intensive Care Medicine, 24, 1251–1256.
   PubMed Web of Science ®Google Scholar
• Vincent, J. L. (1999). Forgoing life support in western European intensive care units: The results of an ethical questionnaire. Critical Care Medicine, 27, 1626–1633.
   PubMed Web of Science ®Google Scholar
• von Gunten, C. F., Ferris, F. D., & Emanuel, L. L. (2000). Ensuring competency in end-of-life care: Communication and relational skills. Journal of the American Medical Association, 284, 3051–3057.
   PubMed Web of Science ®Google Scholar
• Wenrich, M. D., Curtis, J. R., Shannon, S. E., Carline, J. D., Ambrozy, D. M., & Ramsey, P. G. (2001). Communicating with dying patients within the spectrum of medical care from terminal diagnosis to death. Archives of Internal Medicine, 161, 868–874.
   PubMed Web of Science ®Google Scholar
• Yabroff, K. R., Mandelblatt, J. S., & Ingham, J. (2004). The quality of medical care at the end-of-life in the USA: Existing barriers and examples of process and outcome measures. Palliative Medicine, 18, 202–216.
   PubMed Web of Science ®Google Scholar