Making Cancer Visible: Unmasking Patients’ Subjective Experiences

References

• Atkinson, J. M., & Heritage, J. (Eds.). (1984). Structures of social action: Studies in conversation analysis. Cambridge, UK: Cambridge University Press.
   Google Scholar
• Bannerjee, S. C., D’Agnostino, T. A., Gordon, M. L., & Hay, J. L. (2016). “It’s not just skin cancer”: Understanding their cancer experience from melanoma survivor narratives shared online. Health Communication, 33, 188–201. doi:10.1080/10410236.2016.1250707
   PubMed Web of Science ®Google Scholar
• Beach, W. A. (2001). Introduction: Diagnosing lay diagnosis. Text, 21(1/2), 13–16. doi:10.1515/text.1.21.1-2.13
   Google Scholar
• Beach, W. A. (2009). A natural history of family cancer: Interactional resources for managing illness. New York. Hampton Press, Inc.
   Google Scholar
• Beach, W. A. (Ed.). (2013a). Handbook of patient-provider interactions: Raising and responding to concerns about life, illness, and disease. New York, NY: Hampton Press, Inc.
   Google Scholar
• Beach, W. A. (2013b). Patients’ efforts to justify wellness in a comprehensive cancer clinic. Health Communication, 28, 577–591. doi:10.1080/10410236.2012.704544
   PubMed Web of Science ®Google Scholar
• Beach, W. A. (2014). Managing hopeful moments: Initiating and responding to delicate concerns about illness and health. In H. E. Hamilton & W. S. Chou (Eds.), Handbook of language and health communication (pp. 459–476). New York, NY: Routledge.
   Google Scholar
• Beach, W. A. (2015). Doctor-patient interaction. In K. Tracy (Ed.), Encyclopedia of language and social interaction (pp. 476–493). Hoboken, NJ: John Wiley & Sons, Inc.
   Google Scholar
• Beach, W. A., Buller, M. K., Dozier, D., Buller, D., & Gutzmer, K. (2014). Conversations about Cancer (CAC): Assessing feasibility and audience impacts from viewing. The Cancer Play. Health Communication, 9, 462–472. doi:10.1080/10410236.2013.767874
   Google Scholar
• Beach, W. A., & Dozier, D. (2015). Fears, uncertainties, and hopes: Patient-initiated actions and doctors’ responses during oncology interviews. Journal of Health Communication, 20, 1243–1254. doi:10.1080/10810730.2015.1018644
   PubMed Web of Science ®Google Scholar
• Beach, W. A., Dozier, D. D., Buller, M. K., Gutzmer, K., Fluharty, L., Myers, V. H., & Buller, D. B. (2016). The Conversations about Cancer (CAC) Project -Phase II: National findings from watching When Cancer Calls… and implications for entertainment-education (E-E). Patient Education & Counseling, 99, 393–399. doi:10.1016/j.pec.2015.10.008
   PubMed Web of Science ®Google Scholar
• Beach, W. A., Easter, D. W., Good, J. S., & Pigeron, E. (2005). Disclosing and responding to cancer fears during oncology interviews. Social Science & Medicine, 60, 893–910. doi:10.1016/j.socscimed.2004.06.031
   PubMed Web of Science ®Google Scholar
• Beach, W. A., & Pricket, E. (2017). Laughter, humor, & cancer: Delicate moments and poignant interactional circumstances. Health Communication, 32, 791–802. doi:10.1080/10410236.2016.1172291
   PubMed Web of Science ®Google Scholar
• Beckman, H. B., & Frankel, R. (1984). The effect of physician behavior on the collection of data. Annals of Internal Medicine, 101, 692–696.
   PubMed Web of Science ®Google Scholar
• Byrne, P. S., & Long, B. E. L. (1976). Doctors talking to patients: A study of the verbal behavior of general practitioners consulting in their surgeries. London, UK: H.M. Stationery Office.
   Google Scholar
• Chapman, C., & Beach, W. A. (2018). Upgrading and downgrading pain in the cancer clinic. International Conference on Conversation Analysis. Loughborough, UK.
   Google Scholar
• Charon, R. (2006). Narrative medicine: Honoring the stories of illness. New York, NY: Oxford University Press.
   Google Scholar
• Charon, R., DasGupta, S., Hermann, N., Irvine, C., Marcus, E. R., Rivera Colon, E., … Spiegel, M. (2017). What is narrative medicine?: The principals and practice of narrative medicine. New York, NY: Oxford University Press.
   Google Scholar
• Coulter, J. (1979). The social construction of mind: Studies in ethnomethodology and linguistic philosophy. Totowa, NJ: Rowman & Littlefield.
   Google Scholar
• Dozier, D., Beach, W. A., Gutzmer, G., & Yagade, A. (2017). The transformative power of authentic Conversations about Cancer. Health Communication, 32, 1350–1357. doi:10.1080/10410236.2016.1220045
   PubMed Web of Science ®Google Scholar
• Drew, P., & Heritage, J. (Eds.). (1992). Talk at work: Interaction in institutional settings. Cambridge, UK: Cambridge University Press.
   Google Scholar
• Ellingson, L. L., & Buzzanel, P. M. (2009). Listening to women’s narratives of breast cancer treatment: A feminists approach to patient satisfaction with patient-physician communication. Health Communication, 11, 153–183. doi:10.1207/s15327027hc1102_3
   Google Scholar
• Epstein, R. M., & Street, R. L. (2007). Patient-centered communication in cancer care: Promoting healing and reducing suffering. Bethesda, MD: National Cancer Institute, NIH Publication No. 07-6225.
   Google Scholar
• Frank, L. B., Murphy, S. T., Chatterjee, J. S., Moran, M. B., & Bawzconde-Garbatani, L. (2015). Telling stories, saving lives: Creating narrative health messages. Health Communication, 30, 154–163. doi:10.1080/10410236.2014.974126
   PubMed Web of Science ®Google Scholar
• Gibbs, R. W., & Franks, H. (2002). Embodied methaphor in women’s narratives about their experiences with cancer. Health Communication, 14, 139–165. doi:10.1207/S15327027HC1402_1
   PubMed Web of Science ®Google Scholar
• Gill, V. T. (1998). Doing attributions in medical interaction: Patients’ explanations for illness and doctors’ responses. Social Psychology Quarterly, 61, 342–360. doi:10.2307/2787034
   Web of Science ®Google Scholar
• Glenn, P. (2003). Laughter in interaction. Cambridge, UK: Cambridge University Press.
   Google Scholar
• Goffman, E. (1981). Footing. In E. Goffman (Ed.), Forms of talk (pp. 124–159). Oxford, UK: Blackwell.
   Google Scholar
• Goodwin, C. (2003a). Pointing as situated practice. In S. Kita (Ed.), Pointing: Where language, culture, and cognition meet (pp. 217–241). Mahwah, NJ: Lawrence Erlbaum Associates, Inc.
   Google Scholar
• Goodwin, C. (Ed.). (2003b). Conversation and brain damage. Oxford, UK: Oxford University Press.
   Google Scholar
• Heath, C. (1986). Body movement and speech in medical interaction. Cambridge, UK: Cambridge University Press.
   Google Scholar
• Heath, C. (1989). Pain talk: The expression of suffering in the medical consultation. Social Psychology Quarterly, 52, 113–125. doi:10.2307/2786911
   Web of Science ®Google Scholar
• Heath, C. (2002). Demonstrable suffering: The gestural (re)embodiment of symptoms. Journal of Communication, 52, 597–616. doi:10.1111/j.1460-2466.2002.tb02564.x
   Web of Science ®Google Scholar
• Heath, C. (2002). Demonstrable suffering: The gestural (re)embodiment of symptoms. Journal Of Communication, 52, 597–616.
   Web of Science ®Google Scholar
• Hechtkopf, K. (2005). Curing ‘The Doorknob Phenomenon’. CBS News/Associated Press. https://www.cbsnews.com/news/curing-the-doorknob-phenomenon/
   Google Scholar
• Heritage, J. (2005). Revisiting authority in physician-patient interaction. In J. Duchan & D. Kovarsky (Eds.), Diagnosis as cultural practice (pp. 83–102). New York, NY: Mouton de Greyter.
   Google Scholar
• Heritage, J. (2012). Epistemics in action: Action formation and territories of knowledge. Research on Language and Social Interaction, 45, 1–29. doi:10.1080/08351813.2012.646684
   Web of Science ®Google Scholar
• Heritage, J., & Raymond, G. (2005). The terms of agreement: Indexing epistemic authority and subordination in assessment sequences. Social Psychology Quarterly, 68, 15–38. doi:10.1177/019027250506800103
   Web of Science ®Google Scholar
• Heritage, J., & Robinson, J. (2006). The structure of patients’ presenting concerns: Physicians’ opening questions. Health Communication, 19, 89–102. doi:10.1207/s15327027hc1902_1
   PubMed Web of Science ®Google Scholar
• Holt, E. (1993). The structure of death announcements: Looking on the bright side of death. Text, 13, 189–212. doi:10.1515/text.1.1993.13.2.189
   Google Scholar
• Jefferson, G. (1979). A technique for inviting laughter and its subsequent acceptance declination. In G. Psathas (Ed.), Everyday language: Studies in ethnomethodology (pp. 79–96). New York, NY: Irvington.
   Google Scholar
• Jefferson, G. (1980). The analysis of conversation in which “troubles” and “anxieties” are expressed. Final report for the British Social Science Research Council, UK: Report nos. HR 4805/ 1-2.
   Google Scholar
• Jefferson, G. (1984). On stepwise transition from talk about a trouble to inappropriately next-positioned matters. In J. M. Atkinson & J. Heritage (Eds.), Structures of social action: Studies in conversation analysis (pp. 191–222). Cambridge, UK: Cambridge University Press.
   Google Scholar
• Jefferson, G. (1988). On the sequential organization of troubles talk in ordinary conversation. Social Problems, 35, 418–441. doi:10.2307/800595
   Web of Science ®Google Scholar
• Jefferson, G. (2015). Talking about troubles in conversation. (P. Drew, J. Heritage, G. H. Lerner, & A. Pomerantz, Eds). New York, NY: Oxford University Press.
   Google Scholar
• Kleinman, A. (1988). The illness narratives: Suffering, healing, and the human condition. New York, NY: Basic Books, Inc.
   Google Scholar
• Larkey, L. K., & Hecht, M. (2010). A model of effects of narrative as culture-centric health promotion. Journal of Health Communication, 15, 114–135. doi:10.1080/10810730903528017
   PubMed Web of Science ®Google Scholar
• Lerner, G. H. (1989). Notes on overlap management in conversation: The case of delayed completion. Western Journal of Speech Communication, 53, 167–177. doi:10.1080/10570318909374298
   Google Scholar
• Lerner, G. H. (2004). Collaborative turn sequences. In G. H. Lerner (Ed.), Conversation analysis: Studies from the first generation (pp. 225–256). Amsterdam, NL: John Benjamins.
   Google Scholar
• Marvel, K., Epstein, R. M., Flowers, K., & Beckman, H. B. (1999). Soliciting the patient’s agenda: Have we improved? Journal of the American Medical Association, 281, 283–287.
   PubMed Web of Science ®Google Scholar
• Maynard, D. (2003). Good news, bad news: Conversational order in everyday talk and clinical settings. Chicago, IL: The University of Chicago Press.
   Google Scholar
• Maynard, D., & Frankel, R. (2006). On diagnostic rationality: Bad news, good news, and the symptom residue. In J. Heritage & D. Maynard (Eds.), Communication in medical care: Interaction between primary care physicians and patients (pp. 248–278). Cambridge, UK: Cambridge University Press.
   Google Scholar
• McCoy, M., Stinson, M. A., Bermudez, J. M., & Gladney, L. A. (2013). Utilizing a narrative approach to increasing intimacy after prostate cancer. Journal of Crativity in Mental Health, 8, 48–69. doi:10.1080/15401383.2013.763684
   Google Scholar
• McQueen, A., Arnold, L. D., & Balter, M. (2015). Characterizing online narratives about colonoscopy experiences: Comparing colon cancer “screeners” versus “survivors”. Journal of Health Communication, 8, 958–968. doi:10.1080/10810730.2015.1018606
   Google Scholar
• Moran, M. B., Frank, L. B., Chatterjee, J. S., Murphy, S. T., & Baezconde-Garbanati, L. (2016). A pilot test of the acceptability and efficacy of narrative and non-narrative health education materials in a low health literacy population. Journal of Communication in Healthcare, 9, 40–48. doi:10.1080/17538068.2015.1126995
   PubMedGoogle Scholar
• Murphy, S. T., Frank, L. B., Chatterjee, J. S., Moran, M. B., Zhao, N., de Herrera, P. A., & Baezconde Garbanati, L. A. (2015). Comparing the relative efficacy of narrative vs nonnarrative health messages in reducing health disparities using a randomized trial. American Journal of Public Health, 105, 2117–2123. doi:10.2105/AJPH.2014.302332
   PubMed Web of Science ®Google Scholar
• Occa, A., & Suggs, L. S. (2016). Communicating breast cancer screening with young women: An experimental test of didactic and narrative messages using video and infographics. Journal of Health Communication, 21, 1–11. doi:10.1080/10810730.2015.1018611
   PubMed Web of Science ®Google Scholar
• Ott Anderson, J., & Geist Martin, P. (2009). Narratives and healing: Exploring one family’s stories of cancer survivorship. Health Communication, 15, 133–143. doi:10.1207/S15327027HC1502_2
   Google Scholar
• Parsons, T. (1951). The social system. New York, NY: Routledge.
   Google Scholar
• Peräkylä, A. (1993). Invoking a hostile world: Discussing the patient’s future in AIDS counseling. Text, 13, 302–338.
   Google Scholar
• Peräkylä, A. (1995). AIDS counselling: Institutional interaction and clinical practice. Cambridge: Cambridge University Press.
   Google Scholar
• Peräkylä, A. (1998). Authority and accountability: The delivery of diagnosis in primary health care. Social Psychology Quarterly, 6, 301–320. doi:10.2307/2787032
   Web of Science ®Google Scholar
• Peräkylä, A., & Sorjonen, M. L. (2012). Emotion in interaction. New York, NY: Oxford University Press.
   Google Scholar
• Raymond, G., & Heritage, J. (2006). The epistemics of social relationships: Owning grandchildren. Language in Society, 35, 677–705. doi:10.1017/S0047404506060325
   Web of Science ®Google Scholar
• Sacks, H. (1992). Lectures on conversation. Vol. I & II. G. Jefferson (Ed.). Oxford, UK: Blackwell.
   Google Scholar
• Scott, J. G., & Crommet, P. (2003). The face of cancer. Annals of Family Medicine, 1, 52–54.
   PubMedGoogle Scholar
• Shaffer, V. A., Tomek, S., & Hulsey, L. (2014). The effect of narrative information in a publicly available patient decision aid for early-stage breast cancer. Health Communication, 29, 64–73. doi:10.1080/10410236.2012.717341
   PubMed Web of Science ®Google Scholar
• Sharf, B. (2009). Physician-patient communication as interpersonal rhetoric: A narrative approach. Health Communication, 2, 217–231. doi:10.1207/s15327027hc0204_2
   Google Scholar
• Sidnell, J., & Stivers, T. (Eds.). (2013). Handbook of conversation analysis. Cambridge, UK: Blackwell-Riley.
   Google Scholar
• Sontag, S. (1977). Illness as metaphor. New York, NY: Farrar, Straus, Giroux.
   Google Scholar
• Step, M. M., & Berlin Ray, E. (2011). Patient perceptions of oncologist-patient communication about prognosis: Changes from initial diagnosis to cancer recurrence. Health Communication, 26, 48–58. doi:10.1080/10410236.2011.527621
   PubMed Web of Science ®Google Scholar
• Stivers, T., & Heritage, J. (2001). Breaking the sequential mould: Answering ‘more than the question’ during comprehensive history taking. Text, 21(1/2), 151–186. doi:10.1515/text.1.21.1-2.151
   Google Scholar
• Suchman, A.L., Markakis, K., Beckman, H.B., & Frankel, R. (1997). A model of empathic communication in the medical interview. Journal of the American Medical Association, 277, 678–682.
   PubMed Web of Science ®Google Scholar
• Wittgenstein, L. (1953). Blue & brown books. New York, NY: Basil Blackwell.
   Google Scholar
• Witttgenstein, L. (1958). Philosophical investigations. New York, NY: Basil Blackwell.
   Google Scholar
• Zennini, L., Cuttaneo, C., Jankovic, M., & Masera, G. (2014). Surviving childhood leukemia in a Latin culture: An explorative study based on young adults’ written narratives. Journal of Psychosocial Oncology, 32, 576–601. doi:10.1080/07347332.2014.936648
   PubMed Web of Science ®Google Scholar