Memorable Messages Parents of Children with Vascular Birthmarks Receive from Others: Implications for Stigma and Identity

References

• Adeyemo, W. L., James, O., & Butali, A. (2016). Cleft lip and palate: Parental experiences of stigma, discrimination, and social/structural inequalities. Annals of Maxillofacial Surgery, 6, 195–203. doi:10.4103/2231-0746.200336
   PubMedGoogle Scholar
• Bradbury, E. (2012). Meeting the psychological needs of patients with facial disfigurement. British Journal of Oral and Maxillofacial Surgery, 50, 193–196. doi:10.1016/j.bjoms.2010.11.022
   PubMed Web of Science ®Google Scholar
• Bradbury, E. T., & Hewison, J. (1994). Early parental adjustment to visible congenital disfigurement. Child: Care, Health and Development, 20, 251–266. doi:10.1111/j.1365-2214.1994.tb00388.x
   PubMed Web of Science ®Google Scholar
• Buckmiller, L. M., Richter, G. T., & Suen, J. Y. (2010). Diagnosis and management of hemangiomas and vascular malformations of the head and neck. Oral Diseases, 16, 405–418. doi:10.1111/j.1601-0825.2010.01661.x
   PubMed Web of Science ®Google Scholar
• Charmaz, K. (1991). Good days, bad days: The self in chronic illness and time. New Brunswick, NJ: Rutgers University Press.
   Google Scholar
• Cooke-Jackson, A., & Rubinsky, V. (2018). Deeply rooted in memories: 30 years of memorable message research. Health Communication, 33, 409–422. doi:10.1080/10410236.2016.1278491
   PubMed Web of Science ®Google Scholar
• Espinel, A. G., & Bauman, N. M. (2018). Psychosocial impact of vascular anomalies on children and their families. Otolaryngologic Clinics of North America, 51, 99–110. doi:10.1016/j.otc.2017.09.018
   PubMed Web of Science ®Google Scholar
• Fishman, S. J., & Mulliken, J. B. (1998). Vascular anomalies: A primer for pediatricians. Pediatric Clinics of North America, 45, 1455–1477. doi:10.1016/S0031-3955(05)70099-7
   PubMed Web of Science ®Google Scholar
• Glaser, B., & Strauss, A. (1967). The discovery of grounded theory: Strategies for qualitative research. Chicago, IL: Aldine.
   Google Scholar
• Goffman, E. (1963). Stigma: Notes on the management of spoiled identity. Englewood Cliffs, NJ: Prentice-Hall.
   Google Scholar
• Goffman, E. (1967). Interaction ritual: Essays on face-to-face behavior. Garden City, NY: Doubleday.
   Google Scholar
• Goldsmith, D. J., & Fitch, K. (1997). The normative context of advice as social support. Human Communication Research, 23, 454–476. doi:10.1111/j.1468-2958.1997.tb00406.x
   Web of Science ®Google Scholar
• Gray, D. E. (2002). “Everybody just freezes. Everybody is just embarrassed”: Felt and enacted stigma among parents of children with high functioning autism. Sociology of Health & Illness, 24, 734–749. doi:10.1111/1467-9566.00316
   Web of Science ®Google Scholar
• Greenwell, M. R. (2018). Memorable messages from family members about mental health: Young adult perceptions of relational closeness, message satisfaction, and clinical help-seeking attitudes. Health Communication, 1–9. doi:10.1080/10410236.2018.1431021
   PubMed Web of Science ®Google Scholar
• Hecht, M. L. (1993). A research odyssey: Toward the development of a communication theory of identity. Communication Monographs, 60, 76–82. doi:10.1080/03637759309376297
   Web of Science ®Google Scholar
• Heisler, J. M., & Butler Ellis, J. (2008). Motherhood and the construction of “mommy identity”: Messages about motherhood and face negotiation. Communication Quarterly, 56, 445–467. doi:10.1080/01463370802448246
   Google Scholar
• Holman, A., & Koenig Kellas, J. (2018). “Say something instead of nothing”: Adolescents’ perceptions of memorable conversations about sex-related topics with their parents. Communication Monographs, 85, 357–379. doi:10.1080/03637751.2018.1426870
   Web of Science ®Google Scholar
• Hoornweg, M. J., Grootenhuis, M. A., & van der Horst, C. M. (2009). Health-related quality of life and impact of haemangiomas on children and their parents. Journal of Plastic, Reconstructive & Aesthetic Surgery, 62, 1265–1271. doi:10.1016/j.bjps.2008.03.021
   PubMed Web of Science ®Google Scholar
• Joachim, G., & Acorn, S. (2000). Stigma of visible and invisible chronic conditions. Journal of Advanced Nursing, 32, 243–248. doi:10.1046/j.1365-2648.2000.01466.x
   PubMed Web of Science ®Google Scholar
• Kenny, S. A., Majeed, N., Zhand, N., Glikstein, R., Agid, R., & Dos Santos, M. P. (2016). Psychological comorbidities and compliance to interventional treatment of patients with cutaneous vascular malformations. Interventional Neuroradiology, 22, 489–494. doi:10.1177/1591019916647194
   PubMed Web of Science ®Google Scholar
• Kerr, A. M., & Haas, S. M. (2014). Parental uncertainty in illness: Managing uncertainty surrounding an “orphan” illness. Journal of Pediatric Nursing, 29, 393–400. doi:10.1016/j.pedn.2014.01.008
   PubMed Web of Science ®Google Scholar
• Kerr, A. M., Harrington, N. G., & Scott, A. M. (2019). Communication and the appraisal of uncertainty: Exploring parents’ communication with credible authorities in the context of chronic childhood illness. Health Communication, 34, 201–211. doi:10.1080/10410236.2017.1399508
   PubMed Web of Science ®Google Scholar
• Klein, T., Pope, A. W., Getahun, E., & Thompson, J. (2006). Mothers’ reflections on raising a child with a craniofacial anomaly. The Cleft Palate-Craniofacial Journal, 43, 590–597. doi:10.1597/05-117
   PubMed Web of Science ®Google Scholar
• Knapp, M. L., Stohl, C., & Reardon, K. K. (1981). “Memorable” messages. Journal of Communication, 31, 27–41. doi:10.1111/j.1460-2466.1981.tb00448.x
   Web of Science ®Google Scholar
• Koenig-Kellas, J. (2010). Transmitting relational worldviews: The relationship between mother- daughter memorable messages and adult daughters’ romantic relational schemata. Communication Quarterly, 58, 458–479. doi:10.1080/01463373.2010.525700
   Google Scholar
• Kranstuber, H., Carr, K., & Hosek, A. M. (2012). “If you can dream it, you can achieve it.” Parent memorable messages as indicators of college success. Communication Education, 61, 44–66. doi:10.1080/03634523.2011.620617
   Web of Science ®Google Scholar
• Link, B. G., Mirotznik, J., & Cullen, F. T. (1991). The effectiveness of stigma coping orientations: Can negative consequences of mental illness labeling be avoided? Journal of Health and Social Behavior, 32, 302–320. doi:10.2307/2136810
   PubMed Web of Science ®Google Scholar
• MacGeorge, E. L., Feng, B., & Thompson, E. R. (2008). “Good” and “bad” advice: How to advise more effectively. In M. T. Motley (Ed.), Studies in applied interpersonal communication (pp. 145–164). Thousand Oaks, CA: Sage.
   Google Scholar
• Masnari, O., Landolt, M. A., Roessler, J., Weingaertner, S. K., Neuhaus, K., Meuli, M., & Schiestl, C. (2012). Self- and parent-perceived stigmatisation in children and adolescents with congenital or acquired facial differences. Journal of Plastic, Reconstructive & Aesthetic Surgery, 65, 1664–1670. doi:10.1016/j.bjps.2012.06.004
   PubMed Web of Science ®Google Scholar
• Mcbride, M. C. (2010). Saving face with family members: Corrective facework after reconciling with a romantic partner. Journal of Family Communication, 10, 215–235. doi:10.1080/15267431003682450
   Google Scholar
• Miller, A. C., Pit-Ten Cate, I. M., Watson, H. S., & Geronemus, R. G. (1999). Stress and family satisfaction in parents of children with facial port-wine stains. Pediatric Dermatology, 16, 190–197. doi:10.1046/j.1525-1470.1999.00051.x
   PubMed Web of Science ®Google Scholar
• Nelson, P., Glenny, A.-M., Kirk, S., & Caress, A.-L. (2012). Parents’ experiences of caring for a child with a cleft lip and/or palate: A review of the literature. Child: Care, Health and Development, 38, 6–20. doi:10.1111/j.1365-2214.2011.01244.x
   PubMed Web of Science ®Google Scholar
• Nuru, A. K., Coleman, M. J., & Saxton Coleman, L. (2018). “You just can’t trust them”: Exploring the memorable messages Costa Rican natives recall about race. Journal of Intercultural Communication Research, 47, 310–325. doi:10.1080/17475759.2018.1473277
   Google Scholar
• Reno, J. E., & McNamee, L. G. (2015). Do sororities promote members’ health? A study of memorable messages regarding weight and appearance. Health Communication, 30, 385–397. doi:10.1080/10410236.2013.863702
   PubMed Web of Science ®Google Scholar
• Rubinsky, V., & Cooke-Jackson, A. F. (2016). “Where is the love?”: Expanding and theorizing with LGTBQ memorable messages of sex and sexuality. Health Communication, 32, 1472–1480. doi:10.1080/10410236.2016.1230809
   PubMed Web of Science ®Google Scholar
• Sandler, G., Adams, S., & Taylor, C. (2009). Paediatric vascular birthmarks: The psychological impact and the role of the GP. Australian Family Physician, 38, 169–171.
   PubMedGoogle Scholar
• Scambler, G., & Hopkins, A. (1986). Being epileptic: Coming to terms with stigma. Sociology of Health & Illness, 8, 26–43. doi:10.1111/1467-9566.ep11346455
   Web of Science ®Google Scholar
• Schneider, J. W., & Conrad, P. (1980). In the closet with illness: Epilepsy, stigma potential and information control. Social Problems, 28, 32–44. doi:10.2307/800379
   Web of Science ®Google Scholar
• Shaw, W. C. (1981). Folklore surrounding facial deformity and the origins of facial prejudice. British Journal of Plastic Surgery, 34, 237–246. doi:10.1016/s0022-3468(82)80029-8
   PubMedGoogle Scholar
• Smith, R. A. (2011). Stigma communication and health. In T. L. Thompson, R. Parrott, & J. Nussbaum (Eds.), Handbook of health communication (2nd ed., pp. 455–468). London, UK: Taylor & Francis.
   Google Scholar
• Smith, S., & Butler Ellis, J. (2001). Memorable messages as guides to self-assessment of behavior: An initial investigation. Communication Monographs, 68, 154–168. doi:10.1080/03637750128058
   Web of Science ®Google Scholar
• Stohl, C. (1986). The role of memorable messages in the process of organizational socialization. Communication Quarterly, 34, 231–249. doi:10.1080/01463378609369638
   Google Scholar
• Strauss, A. L., & Corbin, J. M. (1990). Basics of qualitative research: Grounded theory procedures and techniques. Newbury Park, CA: Sage.
   Google Scholar
• Swann, W. B. (1987). Identity negotiation: Where two roads meet. Journal of Personality and Social Psychology, 53, 1038–1051. doi:10.1037/0022-3514.53.6.1038
   PubMed Web of Science ®Google Scholar
• Tanner, J. L., Dechert, M. P., & Frieden, I. J. (1998). Growing up with a facial hemangioma: Parent and child coping and adaptation. Pediatrics, 101, 446–452. doi:10.1016/s0278-2391(99)90252-5
   PubMed Web of Science ®Google Scholar
• Weinstein, J. M., & Chamlin, S. L. (2005). Quality of life in vascular anomalies. Lymphatic Research and Biology, 3, 256–259. doi:10.1089/lrb.2005.3.256
   PubMedGoogle Scholar
• Williams, E. F., Hochman, M., Rodgers, B. J., Brockbank, D., Shannon, L., & Lam, S. M. (2003). A psychological profile of children with hemangiomas and their families. Archives of Facial Plastic Surgery, 5, 229–234. doi:10.1001/archfaci.5.3.229
   PubMedGoogle Scholar