1,667
Views
17
CrossRef citations to date
0
Altmetric
Research Article

Cancer as Communal: Understanding Communication and Relationships from the Perspectives of Survivors, Family Caregivers, and Health Care Providers

, , &

References

  • Afifi, T. D., Hutchinson, S., & Krouse, S. (2006). Toward a theoretical model of communal coping in postdivorce families and other naturally occurring groups. Communication Theory, 16, 378–409. doi:10.1111/j.1468-2885.2006.00275.x
  • Afifi, T. D., & McManus, T. (2006). Communal coping dilemmas in post-divorce families: Introducing meaning back into coping. In R. A. Dailey & B. A. Le Poire (Eds.), Applied interpersonal communication matters (pp. 67–89). New York, NY: Peter Lang. doi:10.111/j.1468-2885.2006.00275.x
  • American Society of Clinical Oncology. (2014). The state of cancer care in America, 2014: A report by the American Society of Clinical Oncology. Retrieved from Jop.ascopubs.org
  • Badr, H., & Acitelli, L. K. (2005). Dyadic adjustment in chronic illness: Does relationship talk matter? Journal of Family Psychology, 19, 465–469. doi:10.1037/08933200.19.3.465
  • Bakitas, M., Stevens, M., Ahles, T., Kirn, M., Skalla, K., Kane, N., & Greenberg, E. R. (2004). Project ENABLE: A palliative care demonstration project for advanced cancer patients in three settings. Journal of Palliative Medicine, 7, 363–372. doi:10.1089/109662104773709520
  • Barnard, D. B. (2002). Advance care planning is not about ‘getting it right’. Journal of Palliative Medicine, 5, 475–481. doi:10.1089/109662102760269706
  • Baxter, L. A., & Babbie, E. (2004). The basics of communication research. Belmont, CA: Wadsworth.
  • Beckstrand, R. L., Moore, J., Callister, L., & Bond, E. (2009). Oncology nurses’ perceptions of obstacles and supportive behaviors at the end of life. Oncology Nursing Forum, 36, 446–453. doi:10.1188/09.ONF.446-453
  • Bevans, M. F., & Sternberg, E. M. (2012). Caregiving burden, stress, and health effects among family caregivers of adult cancer patients. JAMA, 307, 398–403. doi:10.1001/jama.2012.29
  • Bodenmann, G., Pihet, S., & Kayser, K. (2006). The relationship between dyadic coping and marital quality: A 2-year longitudinal study. Journal of Family Psychology, 20, 485–493. doi:10.1037/0893-3200.20.3.485
  • Booth-Butterfield, M., Chory-Assad, R. M., Vandine Pucky, A., & Weber, K. (2005, May). Relational maintenance and satisfaction in relationships affected by cancer. International Communication Association Annual Meeting, New York, NY, 1–31.
  • Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3, 77–101. doi:10.1191/1478088706qp063oa
  • Caughlin, J. P., Mikucki-Enyart, S. L., Middleton, A. V., Stone, A. M., & Brown, L. E. (2011). Being open without talking about it: A rhetorical/normative approach to understanding topic avoidance in families after a lung cancer diagnosis. Communication Monographs, 78, 409–436. doi:10.1080/03637751.2011.618141
  • Charon, R. (2006). Narrative medicine: Honoring the stories of illness. Oxford, UK: Oxford University Press. doi:10.1056/NEJMbkrev57383
  • Cochrane, B. B., Lewis, F. M., & Griffith, K. A. (2011). Exploring a diffusion of benefit: Does a woman with breast cancer derive benefit from an intervention delivered to her partner? Oncology Nursing Forum, 38, 207–214. doi:10.1188/11.ONF.207-214
  • Cohen, M. Z., Ferrell, B., Vrabel, M., Visovsky, C., & Babcock, B. (2010). What does it mean to be an oncology nurse? Reexamining the life cycle concepts. Oncology Nursing Forum, 37(5), 561–570. doi:10.118/10.ONF.561-570
  • Devers, K. J., & Frankel, R. M. (2000). Study design in qualitative research—Sampling and data collection strategies. Education for Health, 13, 113–123. doi:10.1080/1357628005007543
  • Donovan-Kicken, E., & Caughlin, J. P. (2010). A multiple goals perspective on topic avoidance and relationship satisfaction in the context of breast cancer. Communication Monographs, 77, 231–256. doi:10.1080/03637751003758219
  • Dorros, S. M., Card, N. A., Segrin, C., & Badger, T. A. (2010). Interdependence in women with breast cancer and their partners: An interindividual model of distress. Journal of Consulting and Clinical Psychology, 78, 121–125. doi:10.1037/a0017724
  • Fletcher, B., Cohen, M. Z., Schumacher, K., & Lydiatt, W. (2012). Blessing and a curse: Head and neck cancer survivors’ experiences. Cancer Nursing: An International Journal for Cancer Care, 35, 126–132. doi:10.1097/NCC.0b013e31821bd054
  • Foxwell, K. R., & Scott, S. E. (2011). Coping together and apart: Exploring how patients and their caregivers manage terminal head and neck cancer. Journal of Psychosocial Oncology, 29, 308–326. doi:10.1080/07347332.2011.563343
  • Fukumori, T., Miyazaki, A., Takaba, C., Taniguchi, S., & Asai, M. (2018). Cognitive reactions of nurses exposed to cancer patients’ traumatic experiences: A qualitative study to identify triggers of the onset of compassion fatigue. Journal of Psycho-Oncology, 27, 620–625. doi:10.1002/pon.4555
  • Gerbino, S. (2014). Chronic cancer: Brining palliative care into the conversation. Social Work in Health Care, 53, 74–80. doi:10.1080/00981389.2013.834034
  • Goldsmith, D. J. (2004). Communicating social support. New York, NY: Cambridge University Press.
  • Goldsmith, J., Ferrell, B., Wittenberg-Lyles, E., & Ragan, S. L. (2013). Palliative care communication in oncology nursing. Clinical Journal of Oncology Nursing, 17, 163–167. doi:10.1188/13.CJON.163-167
  • Gotcher, J. M. (1993). The effects of family communication on psychosocial adjustment of cancer patients. Journal of Applied Communication Research, 21, 176–188. doi:10.1080/00909889309365365
  • Hebert, R. S., & Schulz, R. (2006). Caregiving at the end of life. Journal of Palliative Medicine, 9, 1174–1187. doi:10.1089/jmp.2006.9.1174
  • High, A. C., & Crowley, J. L. (2016). Gaps among desired, sought and received support: Deficits and surpluses in support when coping with taboo marital stressors. Communication Research, 45, 319–338. doi:10.1177/00936502/5626975
  • High, A. C., & Steuber, K. R. (2014). An examination of support (in)adequacy: Types, sources, and consequences of social support among infertile women. Communication Monographs, 81, 157–178. doi:10.1080/03637751.2013.878868
  • Hoerger, M., Epstein, R. M., Winters, P. C., Fiscella, K., Duberstein, P. R., Gramling, R., & Kravitz, R. L. (2013). Values and options in cancer care (VOICE): Study design and rationale for a patient-centered communication and decision-making intervention for physicians, patients with advanced cancer, and their caregivers. BMC Cancer, 13, 1–14. doi:10.1186/1471-2407-13-188
  • IOM (Institute of Medicine). (2013). Delivering high-quality cancer care: Charting a new course for a system in crisis. Washington, DC: The National Academies Press.
  • Kamal, A. H., Bull, J., Kavalieratos, D., Taylor, D. H., Jr., Downey, W., & Abernethy, A. P. (2011). Palliative care needs of patients with cancer living in the community. Journal of Oncology Practice, 7, 382–388. doi:10.1200/JOP.2011.000455
  • Koenig Kellas, J. (2018). Communicated narrative sense-making theory: Linking storytelling and health. In D. O. Braithwaite, E. Suter, & K. Floyd (Eds.), Engaging theories in family communication (2nd ed., pp. 62–74). New York, NY: Routledge.
  • Koenig Kellas, J., Willer, E. K., & Trees, A. R. (2013). Communicated perspective-taking: Spouses’ perceptions of each others’ behaviors during stories of marital stress. Southern Communication Journal, 78, 326–351. doi:10.1080/1041794X.2013.815264
  • Lindloff, T. R., & Taylor, B. C. (1995). Qualitative communication research methods. Thousand Oaks, CA: Publications.
  • Lyons, R. F., Mickelson, K., Sullivan, J. L., & Coyne, J. C. (1998). Coping as a communal process. Journal of Social and Personal Relationships, 15, 579–607. doi:10.1177/0265407598155001
  • Manne, S., & Badr, H. (2008). Intimacy and relationship processes in couples’ psychosocial adaptation to cancer. Cancer, 112, 2541–2555. doi:10.1002/cncr.23450
  • McLaren, R. M., & High, A. C. (2015). The effect of under- and over-benefitted support gaps on hurt feelings, esteem, and relationships. Communication Research, 46, 785–810. doi:10.1177/00936502/5605/55
  • Miles, M. B., Huberman, M. A., & Saldana, J. (2014). Qualitative data analysis: A methods sourcebook (3rd ed.). Los Angeles, CA: Sage.
  • Norton, T. R., & Manne, S. L. (2007). Support concordance among couples coping with cancer: Relationship, individual, and situational factors. Journal of Social & Personal Relationships, 24, 675–692. doi:10.1177/0265407507081454
  • Patton, M. Q. (1990). Qualitative evaluation and research methods (2nd ed.). Newbury Park, CA: Sage. doi:10.1002/nur.4770140111
  • Robinson, J. D., & Turner, J. (2003). Impersonal, interpersonal, and hyperpersonal social support: Cancer and older adults. Health Communication, 15, 227–234. doi:10.1207/S15327027HC1502_10
  • Rosland, A., Heisler, M., & Piette, J. D. (2012). The impact of family behaviors and communication patterns on chronic illness outcomes: A systematic review. Journal of Behavioral Medicine, 35, 221–239. doi:10.1007/s10865-011-9354-4
  • Sandelowski, M. (2010). What’s in a name? Qualitative description revisited. Research in Nursing & Health, 33, 77–84.
  • Savundranayagam, M. Y., Hummert, M. L., & Montgomery, R. J. V. (2005). Investigating the effects of communication problems on caregiver burden. Journal of Gerontology, 60B, S48–S55. doi:10.1093/geronb/60.1
  • Savundranayagam, M. Y., Montgomery, R. J. V., Kosloski, K., & Little, T. D. (2010). Impact of a psychoeducational program on three types of caregiver burden among spouses. International Journal of Geriatric Psychiatry, 26, 388–396. doi:10.1002/gps.2538
  • Schumacher, K. L., Stewart, B. J., Archbold, P. G., Caparro, M., Mutale, F., & Agrawal, S. (2008). Effects of caregiving demand, mutuality, and preparedness on family caregiver outcomes during cancer treatment. Oncology Nursing Forum, 35, 49–56. doi:10.1188/08.ONF.49-56
  • Segrin, C., & Badger, T. (2011). Interdependence in family systems adjusting to breast and prostate cancer. In M. Miller-Day (Ed.), Family communication, connections, and health transitions: Going through this together (pp. 19–55). New York, NY: Peter Lang Publishing.
  • Silva, S. A., Charon, R., & Wyer, P. C. (2011). The marriage of evidence and narrative: Scientific nurturance within clinical practice. Journal of Evaluation in Clinical Practice, 17, 585–593. doi:10.1111/j.1365-2753.2010.01551.x
  • Smith, T. J., Temin, S., Alesi, E. R., Abernethy, A. P., Balboni, T. A., Basch, E. M., & Von Roenn, J. H. (2012). American society of clinical oncology provisional clinical opinion: The integration of palliative care into standard oncology care. Journal of Clinical Oncology, 30, 880–887. doi:10.1200/JCO.2011.38.5161
  • Spitzberg, B. H., & Cupach, W. R. (2007). Disentangling the dark side of interpersonal communication. In B. H. Spitzberg & W. R. Cupach (Eds.), The dark side of interpersonal communication (2nd ed., pp. 3–28). Mahwah, NJ: Lawrence Erlbaum.
  • Stajduhar, K. I., Martin, W. L., Barwich, D., & Fyles, G. (2008). Factors influencing family caregivers’ ability to cope with providing end-of-life cancer care at home. Cancer Nursing, 31, 77–85. doi:10.1097/01.NCC.0000305686.36637.b5
  • Stanley, P., & Hurst, M. (2011). Narrative palliative care: A method for building empathy. Journal of Social Work in End-of-life & Palliative Care, 7, 39–55. doi:10.1080/15524256.2011.548046
  • Thorne, S. E., Hislop, T. G., Armstrong, E., & Oglov, V. (2008). Cancer care communication: The power to harm and the power to heal? Patient Education and Counseling, 71, 34–40. doi:10.1016/j.pec.2007.11.010
  • Wittenberg-Lyles, E., Goldsmith, J., Ragan, S. L., & Sanchez-Reilly, S. (2010). Dying with comfort: Family illness narratives and early palliative care. Oxford, UK: Oxford University Press. doi:10.1089/jpm.2012.9602
  • Wolf, B. M. (2015). Do families cope communally with breast cancer, or is it just talk? Qualitative Health Research, 25, 320–335. doi:10.1177/1049732314549605
  • Zhang, A. Y., & Siminoff, L. A. (2003). Silence and cancer: Why do families and patients fail to communicate? Health Communication., 15, 415–429. doi:10.1207/S15327027HC1504_03

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.