Inviting the Patient to Talk About a Conversation They Had with Another Healthcare Practitioner: A Way of Promoting Discussion About Disease Progression and End of Life in Palliative Care Interactions

References

• Almack, K., Cox, K., Moghaddam, N., Pollock, K., & Seymour, J. (2012). After you: Conversations between patients and healthcare professionals in planning for end of life care. BMC Palliative Care, 11(15), 1–10. https://doi.org/10.1186/1472-684X-11-15
   PubMedGoogle Scholar
• Anderson, R. J. (2020). Communication with the relatives and friends of imminently dying patients in a hospice [Unpublished doctoral dissertation]. University College London.
   Google Scholar
• Anderson, R. J., Stone, P. C., Low, J. T. S., & Bloch, S. (2020). Managing uncertainty and references to time in prognostic conversations with family members at the end of life: A conversation analytic study. Palliative Medicine, 34(7), 896–905. https://doi.org/10.1177/0269216320910934
   PubMed Web of Science ®Google Scholar
• Bergmann, J. R. (1992). Veiled morality: Notes on discretion in psychiatry. In P. Drew & J. Heritage (Eds.), Talk at work: Interaction in institutional settings (pp. 137–162). Cambridge University Press.
   Google Scholar
• Brighton, L. J., & Bristowe, K. (2016). Communication in palliative care: Talking about the end of life, before the end of life. Postgraduate Medical Journal, 92(1090), 466–470. https://doi.org/10.1136/postgradmedj-2015-133368
   PubMed Web of Science ®Google Scholar
• Bye, R. A. (1998). When clients are dying: Occupational therapists’ perspectives. Occupational Therapy Journal of Research, 18(1), 3–24. https://doi.org/10.1177/153944929801800101
   Google Scholar
• Cortez, D., Maynard, D. W., & Campbell, T. C. (2019). Creating space to discuss end-of-life issues in cancer care. Patient Education and Counseling, 102(2), 216–222. https://doi.org/10.1016/j.pec.2018.07.002
   PubMed Web of Science ®Google Scholar
• Deppermann, A., & Reineke, S. (2020). Practices of indexing discrepant assumptions with the German Ich dachte (‘I thought’) in talk-in-interaction. Functions of Language, 27(2), 113–142. https://doi.org/10.1075/fol.00031.dep
   Web of Science ®Google Scholar
• Drew, P. (2022). The micro-politics of social actions. In A. Deppermann & M. Haugh (Eds.), Action ascription in interaction (pp. 57–82). Cambridge University Press.
   Google Scholar
• Ekberg, S., Danby, S., Herbert, A., Bradford, N. K., & Yates, P. (2017). Affording opportunities to discuss deterioration in paediatric palliative care consultations: A conversation analytic study. BMJ Supportive & Palliative Care, 10(2), e13. https://doi.org/10.1136/bmjspcare-2016-001130
   PubMedGoogle Scholar
• Ekberg, S., Danby, S., Rendle-Short, J., Herbert, A., Bradford, N. K., & Yates, P. (2019). Discussing death: Making end of life implicit or explicit in paediatric palliative care consultations. Patient Education and Counseling, 102(2), 198–206. https://doi.org/10.1016/j.pec.2018.08.014
   PubMed Web of Science ®Google Scholar
• Ekberg, S., Parry, R., Land, V., Ekberg, K., Pino, M., Antaki, C., Jenkins, L., & Whittaker, B. (2021). Communicating with patients and families about illness progression and end of life: A review of studies using direct observation of clinical practice. BMC Palliative Care, 20(186), 1–12. https://doi.org/10.1186/s12904-021-00876-2
   PubMedGoogle Scholar
• Ghandourh, W. A. (2016). Palliative care in cancer: Managing patients’ expectations. Journal of Medical Radiation Sciences, 63(4), 242–257. https://doi.org/10.1002/jmrs.188
   PubMed Web of Science ®Google Scholar
• Gill, V. T., & Maynard, D. W. (1995). On “labelling” in actual interaction: Delivering and receiving diagnoses of developmental disabilities. Social Problems, 42(1), 11–37. https://doi.org/10.2307/3097003
   Web of Science ®Google Scholar
• Glaser, B. G., & Strauss, A. L. (1964). Awareness contexts and social interaction. American Sociological Review, 29(5), 669–679. https://doi.org/10.2307/2091417
   Web of Science ®Google Scholar
• Hancock, K., Clayton, J. M., Parker, S. M., Wal der, S., Butow, P. N., Carrick, S., Currow, D., Ghersi, D., Glare, P., Hagerty, R., & Tattersall, M. H. N. (2007). Truth-telling in discussing prognosis in advanced life-limiting illnesses: A systematic review. Palliative Medicine, 21(6), 507–517. https://doi.org/10.1177/0269216307080823
   PubMed Web of Science ®Google Scholar
• Heritage, J. (1984). Garfinkel and ethnometodology. Polity Press.
   Google Scholar
• Heritage, J. (1998). Oh-prefaced responses to inquiry. Language in Society, 27(3), 291–334. https://doi.org/10.1017/S0047404500019990
   Web of Science ®Google Scholar
• Heritage, J. (2013). Epistemics in conversation. In J. Sidnell & T. Stivers (Eds.), Handbook of conversation analysis (pp. 659–673). Wiley-Blackwell. https://doi.org/10.1002/9781118325001.ch18
   Google Scholar
• Heritage, J., & Watson, D. R. (1979). Formulations as conversational objects. In G. Psathas (Ed.), Everyday language: Studies in ethnomethodology (pp. 123–162). Irvington Press.
   Google Scholar
• Jefferson, G. (1980). On “trouble-premonitory” response to inquiry. Sociological Inquiry, 50(3–4), 153–185. https://doi.org/10.1111/j.1475-682X.1980.tb00019.x
   Web of Science ®Google Scholar
• Jefferson, G. (1988). On the sequential organization of troubles-talk in ordinary conversation. Social Problems, 4(4), 418–441. https://doi.org/10.2307/800595
   Google Scholar
• Jefferson, G. (2004). Glossary of transcript symbols with an introduction. In G. H. Lerner (Ed.), Conversation analysis: Studies from the first generation (pp. 13–23). John Benjamins. https://doi.org/10.1075/pbns.125.02jef
   Google Scholar
• Jimenez, G., Tan, W. S., Virk, A. K., Low, C. K., Car, J., & Ho, A. H. Y. (2018). Overview of systematic reviews of advance care planning: Summary of evidence and global lessons. Journal of Pain and Symptom Management, 56(3), 436–459. https://doi.org/10.1016/j.jpainsymman.2018.05.016
   PubMed Web of Science ®Google Scholar
• Lerner, G. H. (2013). On the place of hesitating in delicate formulations: A turn-constructional infrastructure for collaborative indiscretion. In J. Sidnell, M. Hayashi & G. Raymond (Eds.), Conversational repair and human understanding (pp. 95–134). Cambridge University Press. https://doi.org/10.1017/CBO9780511757464.004
   Google Scholar
• Lutfey, K., & Maynard, D. W. (1998). Bad news in oncology: How physician and patient talk about death and dying without using those words. Social Psychology Quarterly, 61(4), 321–341. https://doi.org/10.2307/2787033
   Web of Science ®Google Scholar
• Maynard, D. W. (1992). On clinicians co-implicating recipients’ perspective in the delivery of diagnostic news. In P. Drew & J. Heritage (Eds.), Talk at work: Interaction in institutional settings (pp. 331–358). Cambridge University Press.
   Google Scholar
• Maynard, D. W. (1996). On ’‘realization’’ in everyday life: The forecasting of bad news as a social relation. American Sociological Review, 61(1), 109–131. https://doi.org/10.2307/2096409
   Web of Science ®Google Scholar
• Maynard, D. W., Cortez, D., & Campbell, T. C. (2016). ‘End of life’ conversations, appreciation sequences, and the interaction order in cancer clinics. Patient Education and Counseling, 99(1), 92–100. https://doi.org/10.1016/j.pec.2015.07.015
   PubMed Web of Science ®Google Scholar
• Mondada, L. (2018). Multiple temporalities of language and body in interaction: Challenges for transcribing multimodality. Research on Language and Social Interaction, 51(1), 85–106. https://doi.org/10.1080/08351813.2018.1413878
   Web of Science ®Google Scholar
• Parry, R., Land, V., & Seymour, J. (2014). How to communicate with patients about future illness progression and end of life: A systematic review. BMJ Supportive & Palliative Care, 4(4), 331–341. https://doi.org/10.1136/bmjspcare-2014-000649
   PubMedGoogle Scholar
• Peräkylä, A. (1991). Hope work in the care of seriously ill patients. Qualitative Health Research, 1(4), 407–433. https://doi.org/10.1177/104973239100100402
   Google Scholar
• Peräkylä, A. (1995). AIDS counselling: Institutional interaction and clinical practice. Cambridge University Press.
   Google Scholar
• Pino, M. (2016). Knowledge displays: Soliciting clients to fill knowledge gaps and to reconcile knowledge discrepancies in therapeutic interaction. Patient Education and Counseling, 99(6), 897–904. https://doi.org/10.1016/j.pec.2015.10.006
   PubMed Web of Science ®Google Scholar
• Pino, M., & Land, V. (2022). How companions speak on patients’ behalf without undermining their autonomy: Findings from a conversation analytic study of palliative care consultations. Sociology of Health & Illness, 44(2), 395–415. https://doi.org/10.1111/1467-9566.13427
   PubMed Web of Science ®Google Scholar
• Pino, M., & Parry, R. (2019). How and when do patients request life-expectancy estimates? Evidence from hospice medical consultations and insights for practice. Patient Education and Counseling, 102(2), 223–237. https://doi.org/10.1016/j.pec.2018.03.026
   PubMed Web of Science ®Google Scholar
• Pino, M., Parry, R., Land, V., Faull, C., Feathers, L., Seymour, J., & Ward, L. M. (2016). Engaging terminally ill patients in end of life talk: How experienced palliative medicine doctors navigate the dilemma of promoting discussions about dying. Plos One, 11(5), e0156174. https://doi.org/10.1371/journal.pone.01561744
   PubMed Web of Science ®Google Scholar
• Pomerantz, A. (1980). Telling my side: “Limited access” as a “fishing” device. Sociological Inquiry, 50(3–4), 186–198. https://doi.org/10.1111/j.1475-682X.1980.tb00020.x
   Web of Science ®Google Scholar
• Pomerantz, A. (1984). Pursuing a response. In J. M. Atkinson & J. Heritage (Eds.), Structures of social action (pp. 152–163). Cambridge University Press.
   Google Scholar
• Raymond, G., & Heritage, J. (2013). One question after another: Same-turn repair in the formation of yes/no type initiating actions. In M. Hayashi, G. Raymond & J. Sidnell (Eds.), Conversational Repair and Human Understanding (pp. 135–171). Cambridge University Press. doi:10.1017/CBO9780511757464.005
   Google Scholar
• Robinson, J. D. (2009). Managing counterinformings: An interactional practice for soliciting information that facilitates reconciliation of speakers’ incompatible positions. Human Communication Research, 35(4), 561–587. https://doi.org/10.1111/j.1468-2958.2009.01363.x
   Web of Science ®Google Scholar
• Robinson, J. D. (2016). Accountability in social interaction. Oxford University Press.
   Google Scholar
• Schegloff, E. A., Jefferson, G., & Sacks, H. (1977). The preference for self-correction in the organization of repair in conversation. Language, 53(2), 361–382. https://doi.org/10.1093/acprof:oso/9780190210557.001.0001
   Web of Science ®Google Scholar
• Seale, C., Addington-Hall, J., & McCarthy, M. (1997). Awareness of dying: Prevalence, causes and consequences. Social Science & Medicine, 45(3), 477–484. https://doi.org/10.1016/s0277-9536(96)00379-6
   PubMed Web of Science ®Google Scholar
• Shaw, C., Chrysikou, V., Davis, S., Gessler, S., Rodin, G., & Lanceley, A. (2017). Inviting end-of-life talk in initial CALM therapy sessions: A conversation analytic study. Patient Education and Counseling, 100(2), 259–266. https://doi.org/10.1016/j.pec.2016.08.024
   PubMed Web of Science ®Google Scholar
• Shaw, C., Chrysikou, V., Lanceley, A., Lo, C., Hales, S., & Rodin, G. (2019). Mentalization in CALM psychotherapy sessions: Helping patients engage with alternative perspectives at the end of life. Patient Education and Counseling, 102(2), 188–197. https://doi.org/10.1016/j.pec.2018.10.001
   PubMed Web of Science ®Google Scholar
• Shaw, C., Stokoe, E., Gallagher, K., Aladangady, N., & Marlow, N. (2016). Parental involvement in neonatal critical care decision-making. Sociology of Health & Illness, 38(8), 1217–1242. https://doi.org/10.1111/1467-9566.12455
   PubMed Web of Science ®Google Scholar
• Sidnell, J. (2013). Basic conversation analytic methods. In J. Sidnell & T. Stivers (Eds.), The handbook of conversation analysis (pp. 77–99). Wiley-Blackwell. https://doi.org/10.1002/9781118325001.ch5
   Google Scholar
• Sidnell, J., & Stivers, T. (2013). Handbook of conversation analysis. Wiley-Blackwell. https://doi.org/10.1002/9781118325001
   Google Scholar
• Singh, S., Cortez, D., Maynard, D., Cleary, J. F., DuBenske, L., & Campbell, T. C. (2017). Characterizing the nature of scan results discussions: Insights into why patients misunderstand their prognosis. Journal of Oncology Practice, 13(3), E231–239. https://doi.org/10.1200/jop.2016.014621
   PubMed Web of Science ®Google Scholar
• Smith, M. S. (2013). “I thought” initiated turns: Addressing discrepancies in first-hand and second-hand knowledge. Journal of Pragmatics, 57, 318–330. https://doi.org/10.1016/j.pragma.2013.09.006
   Web of Science ®Google Scholar