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ARTICLES

Sharing the Load: An Exploratory Analysis of the Challenges Experienced by Parent Caregivers of Children With Disabilities

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References

  • Albrecht, T. L. & Adelman, M. B. (1987). Communicating social support. Newbury Park, CA: Sage.
  • Amato, P. R. & Afifi, T. D. (2006). Feeling caught between parents: Adult children's relations with parents and subjective well-being. Journal of Marriage and Family, 68(1), 222–235. doi:10.1111/j.1741-3737.2006.00243.x
  • Braddock, D., Hemp, G. & Rizzolo, M. C. (2008). The state of the states in developmental disabilities (5th ed.). Washington, DC: American Association on Mental Retardation.
  • Brashers, D. E. (2007). A theory of communication and uncertainty management. In W. Samter & B. B. Whaley (Eds.), Explaining communication: Contemporary theories and exemplars (pp. 201–218). Mahwah, NJ: Lawrence Erlbaum Associates.
  • Brashers, D. E., Neidig, J. L. & Goldsmith, D. J. (2004). Social support and the management of uncertainty for people living with HIV or AIDS. Health Communication, 16(3), 305–331. doi:10.1207/S15327027HC1603_3
  • Brashers, D. E., Neidig, J. L., Haas, S. M., Dobbs, L. K., Cardillo, L. W. & Russell, J. A. (2000). Communication in the management of uncertainty: The case of persons living with HIV or AIDS. Communication Monographs, 67(1), 63–84. doi:10.1080/03637750009376495
  • Carretero, S., Garcés, J., Ródenas, R. & Sanjosé, V. (2009). The informal caregiver's burden of dependent people: Theory and empirical review. Archives of Gerontology and Geriatrics, 49, 74–79. doi:10.1016/j.archger.2008.05.004
  • Centers for Disease Control and Prevention. (2012). Key findings: Trends in the prevalence of developmental disabilities in U.S. children, 1997–2008. Retrieved from http://www.cdc.gov/ncbddd/features/birthdefects-dd-keyfindings.html
  • Corbin, J. & Strauss, A. (2008). Basics of qualitative research: Techniques and procedures for developing grounded theory (3rd ed.). Thousand Oaks, CA: Sage.
  • De Andrés-García, S., Moya-Albiol, L. & González-Bono, E. (2012). Salivary cortisol and Immunoglobulin A: Responses to stress as predictors of health complaints reported by caregivers of offspring with autistic spectrum disorder. Hormones and Behavior, 62, 464–474. doi:10.1016/j.yhbeh.2012.08.003
  • Emerson, E. (2003). Mothers of children and adolescents with intellectual disability: Social and economic situation, mental health status, and the self-assessed social and psychological impact of the child's difficulties. Journal of Intellectual Disability Research, 47, 385–399.
  • Greeff, A. P. & Nolting, C. (2013). Resilience in families of children with developmental disabilities. Families, Systems, & Health, 31, 396–405. doi:10.1037/a0035059
  • Green, S. E., Darling, R. B. & Wilbers, L. (2013). Has the parent experience changed over time?: A meta-analysis of qualitative studies of parents of children with disabilities from 1960 to 2012. In S. N. Barnartt & B. M. Altman (Eds.), Disability and intersecting statuses (pp. 97–168). Bingly, UK: Emerald Group.
  • Hogan, T. P. & Brashers, D. E. (2009). The theory of communication and uncertainty management: Implications from the wider realm of information behavior. In T. D. Afifi & W. A. Afifi (Eds.), Uncertainty, information management, and disclosure decisions: Theories and applications (pp. 258–271). New York, NY: Routledge.
  • Knobloch, L. K. & McAninch, K. G. (2014). Uncertainty management. In C. R. Berger (Ed.), Narrowcasting: Interpersonal communication (pp. 297–320). Berlin, Germany: Mouton de Gruyter.
  • Lee, G. K. (2009). Parents of children with high functioning autism: How well do they cope and adjust? Journal of Development Psychological Disabilities, 21, 93–114. doi:10.1007/s10882-008-9128-2
  • Leon, A. M. (2014). Research on the challenges faced by families with children experiencing health or mental health problems. Journal of Social Service Research, 40, 587–590. doi:10.1080/01488376.2014.955781
  • MacGeorge, E. L., Feng, B. & Burleson, B. R. (2011). Supportive communication. In M. L. Knapp & J. A. Daly (Eds.), The Sage handbook of interpersonal communication (pp. 317–354). Thousand Oaks, CA: Sage.
  • Murphy, N. A., Christian, B., Caplin, D. A. & Young, P. C. (2006). The health of caregivers for children with disabilities: Caregiver perspectives. Child: Care, Health, and Development, 33, 180–187.
  • National Alliance for Caregiving (NAC). (2006). Evercare study of caregivers in decline: Findings from a national survey. Retrieved from http://www.caregiving.org/data/Caregivers%20in%20Decline%20Study-FINAL-lowres.pdf
  • Prezant, F. P. & Marshak, L. (2006). Helpful actions seen through the eyes of parents of children with disabilities. Disability & Society, 21, 31–45. doi:10.1080/09687590500373767
  • Raina, P., O'Donnell, M., Rosenbaum, P., Brehaut, J., Walter, S. D., Russell, D. & Wood, E. (2005). The health and well-being of caregivers of children with cerebral palsy. Pediatrics, 115, e626–e636. doi:10.1542/peds.2004-1689
  • Resch, A., Mireles, G., Benz, M. R., Grenwelge, C., Peterson, R. & Zhang, D. (2010). Giving parents a voice: A qualitative study of the challenges experienced by parents of children with disabilities. Rehabilitation Psychology, 55, 139–150.
  • Ruiz-Robledillo, N., De Andrés-García, S., Pérez-Blasco, J., González-Bono, E. & Moya-Albiol, L. (2014). Highly resilient coping entails better perceived health, high social support and low morning cortisol levels in parents of children with autism spectrum disorder. Research in Developmental Disabilities, 35, 686–695. doi:10.1016/j.ridd.2013.12.007
  • Saldaña, J. (2013). The coding manual for qualitative researchers (2nd ed.). Thousand Oaks, CA: Sage.
  • Schulz, R. & Beach, S. R. (1999). Caregiving as a risk factor for mortality: The Caregiver Health Effects Study. JAMA, 282, 2215–2219.
  • Strauss, A. & Corbin, J. (1990). Basics of qualitative research: Grounded theory procedures and techniques. Newbury Park, CA: Sage.
  • Truitt, M., Biesecker, B., Capone, G., Bailey, T. & Erby, L. (2011). The role of hope in adaptation to uncertainty: The experience of caregivers of children with Down syndrome. Patient Education and Counseling, 87, 233–238. doi:10.1016/j.pec.2011.08.15
  • U.S. Department of Health and Human Services. (2010). Healthy people 2020: Disability and health. Retrieved from: https://www.healthypeople.gov/2020/topics-objectives/topic/disability-and-health

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