A review of the biopsychosocial aspects of caregiving for aging family members

References

• Barbosa, A., Figueiredo, D., Sousa, L., & Demain, S. (2011). Coping with the caregiving role: Differences between primary and secondary caregivers of dependent elderly people. Aging & Mental Health, 15(4), 490–499. doi:10.1080/13607863.2010.543660
   PubMed Web of Science ®Google Scholar
• Beach, S., Schulz, R., Yee, J., & Jackson, S. (2000). Negative and positive health effects of caring for a disabled spouse: Longitudinal findings from the caregiver health effects study. Psychology and Aging, 15(2), 259–271. doi:10.1037/0882-7974.15.2.259
   PubMed Web of Science ®Google Scholar
• Bedini, L., & Phoenix, T. L. (1999). Addressing leisure barriers for caregivers of older adults: A model leisure wellness program. Therapeutic Recreation Journal, 33(3), 222–240.
   Google Scholar
• Beeson, R. (2003). Loneliness and depression in spousal caregivers of those with Alzheimer’s disease versus non-caregiving spouses. Archives of Psychiatric Nursing, 17, 135–143. doi:10.1016/S0883-9417(03)00057-8
   PubMed Web of Science ®Google Scholar
• Belle, S. H., Burgio, L., Burns, R., Coon, D., Czaja, S. J., Gallagher-Thompson, D., … Zhong, S. (2006). Enhancing the quality of life of dementia caregivers from different ethnic or racial groups: A randomized, controlled trial. Annals of Internal Medicine, 145(10), 727–738. doi:10.7326/0003-4819-145-10-200611210-00005
   PubMed Web of Science ®Google Scholar
• Betts-Adams, K. (2008). Specific effects of caring for a spouse with dementia: Differences in depression-symptoms between caregivers and non-caregiver spouses. International Psychogeriatric, 20, 508–520.
   PubMed Web of Science ®Google Scholar
• Blacher, J., & Baker, B. L. (2003). The best of AAMR: Families and mental retardation: A collection of notable AAMR journal articles across the 20th century. Washington, DC: American Association on Mental Retardation.
   Google Scholar
• Bookman, A., & Kimbrel, D. (2011). Families and elder care in the twenty-first century. The Future of Children, 21(2), 117–140. doi:10.1353/foc.2011.0018
   PubMed Web of Science ®Google Scholar
• Brink, S. (2004). Elder care: The nexus for family, work, and health policy. Ottawa, Canada: Caledon Institute of Social Policy.
   Google Scholar
• Brodaty, H., & Donkin, M. (2009). Family caregivers of people with dementia. Dialogues in Clinical Neuroscience, 11(2), 217–228.
   PubMedGoogle Scholar
• Brummett, B., Babyak, M., Siegler, I., Vitaliano, P., Ballard, E., Gwther, L., & Williams, R. (2006). Associations among perceptions of social support, negative affect, and quality of sleep in caregivers and noncaregivers. Health Psychology, 25(2), 220–225. doi:10.1037/0278-6133.25.2.220
   PubMed Web of Science ®Google Scholar
• Bucher, J. A., Loscalzo, M., Zabora, J., Houts, P. S., Hooker, C., & BrintzenhofeSzoc, K. (2001). Problem-solving cancer care education for patients and caregivers. Cancer Practice, 9(2), 66–70. doi:10.1046/j.1523-5394.2001.009002066.x
   PubMedGoogle Scholar
• Cadell, S., Karabanow, J., & Sanchez, M. (2001). Community, empowerment, and resilience: Paths to wellness. Canadian Journal of Community Mental Health, 20(1), 21–35. doi:10.7870/cjcmh-2001-0002
   PubMedGoogle Scholar
• Campbell, W. H., & Rohrbaugh, R. M. (2006). The biopsychosocial formulation manual: A guide for mental health professionals. New York, NY: Routledge.
   Google Scholar
• Cannuscio, C. C., Jones, J., Kawachi, I., Colditz, G. A., Berkman, L., & Rimm, E. (2002). Reverberations of family illness: A longitudinal assessment of informal caregiving and mental health status in the nurses’ health study. American Journal of Public Health, 92, 1305–1311. doi:10.2105/AJPH.92.8.1305
   PubMed Web of Science ®Google Scholar
• Carter, P. (2002). Caregivers’ descriptions of sleep changes and depressive symptoms. Oncology Nursing Forum, 29(9), 1277–1283. doi:10.1188/02.ONF.1277-1283
   PubMedGoogle Scholar
• Cavanaugh, J. C., & Cavanaugh, C. K. (2009). Aging in America. Santa Barbara, CA: ABC-CLIO.
   Google Scholar
• Cavaye, J. (2006). Hidden careers. Edinburgh, Scotland: Dunedin Academic Press.
   Google Scholar
• Chan, M., Estève, D., Escriba, C., & Campo, E. (2008). A review of smart homes—Present state and future challenges. Computer Methods and Programs in Biomedicine, 91(1), 55–81. doi:10.1016/j.cmpb.2008.02.001
   PubMed Web of Science ®Google Scholar
• Chapin, R., & Cox, E. O. (2002). Changing the paradigm: Strengths-based and empowerment oriented social work with frail elders. Journal of Gerontological Social Work, 36, 165–179. doi:10.1300/J083v36n03_13
   Google Scholar
• Chung, E., McLarney, C., & Gillen, M. C. (2008). Social policy recommendations to alleviate stress among informal providers of elder care. International Journal of Sociology and Social Policy, 28, 340–350. doi:10.1108/01443330810900185
   Google Scholar
• Clyburn, L., Stones, M., Hadjistavropoulos, T., & Tuokko, H. (2000). Predicting caregiver burden and depression in Alzheimer’s disease. Journal of Gerontology Series B Psychological Sciences & Social Sciences, 55, 2–13. doi:10.1093/geronb/55.1.S2
   PubMed Web of Science ®Google Scholar
• Dassel, K. B., & Carr, D. C. (2008). Does dementia caregiving accelerate frailty? Findings from the health and retirement study. The Gerontologist, 56(3), 444–450.
   Google Scholar
• Davis, T. S. (2009). Diversity practice in social work: Examining theory in practice. Journal of Ethnic & Cultural Diversity in Social Work, 18, 40–69. doi:10.1080/15313200902874961
   Google Scholar
• Department of Health and Human Services & Assistant Secretary for Planning and Evaluation. (2003). The future supply of long-term care workers in relation to the aging baby boom generation. Report to Congress. Retrieved from https://aspe.hhs.gov/basic-report/future-supply-long-term-care-workers-relation-aging-baby-boom-generation
   Google Scholar
• DiMatteo, M. R., Haskard, K. B., & Williams, S. L. (2007). Health beliefs, disease severity, and patient adherence: A meta-analysis. Medical Care, 45(6), 521–528. doi:10.1097/MLR.0b013e318032937e
   PubMed Web of Science ®Google Scholar
• Eisdorfer, C., Czaja, S. J., Loewenstein, D. A., Rubert, M. P., Argüelles, S., Mitrani, V. B., & Szapocznik, J. (2003). The effect of a family therapy and technology-based intervention on caregiver depression. The Gerontologist, 43(4), 521–531. doi:10.1093/geront/43.4.521
   PubMed Web of Science ®Google Scholar
• Elliott, A. F., Burgio, L. D., & DeCoster, J. (2010). Enhancing caregiver health: Findings from the resources for enhancing Alzheimer’s caregiver health II intervention. Journal of the American Geriatrics Society, 58(1), 30–37. doi:10.1111/j.1532-5415.2009.02631.x
   PubMed Web of Science ®Google Scholar
• Engel, G. L. (1977). The need for a new medical model: A challenge for biomedicine. Science, 196, 129–136.
   PubMed Web of Science ®Google Scholar
• Family Caregiver Alliance. (2012). Selected caregiver statistics. Retrieved from https://www.caregiver.org/selected-caregiver-statistics
   Google Scholar
• Fast, B., & Chapin, R. (2000). Strengths-based case management for older adults. Baltimore, MD: Health Professions Press.
   Google Scholar
• Feinberg, L., Newman, S. L., Gray, L., & Kolb, K. N. (2004). The state of the states in family caregiver support: A 50 state study. San Francisco, CA: Family Caregiver Alliance.
   Google Scholar
• Feinberg, L., Reinhard, S. C., Houser, A., & Choula, R. (2011). Valuing the invaluable: 2011 update on the growing contributions and costs of family caregiving. American Association of Retired Persons Public Policy Institute Washington, DC: AARP Public Policy Institute.
   Google Scholar
• Fox, S., & Brenner, J. (2012). Family caregivers online. Washington, DC: Pew Research Center. Retrieved from http://www.pewinternet.org/2012/07/12/family-caregivers-online/
   Google Scholar
• Franklin, S., Ames, B., & King, S. (1994). Acquiring the family elder care role: Influence on female employment adaptation. Research on Aging, 16, 27–42. doi:10.1177/0164027594161003
   Web of Science ®Google Scholar
• Fredman, L., Bertrand, R. M., Martire, L. M., Hochberg, M., & Harris, E. L. (2006). Leisure-time exercise and overall physical activity in older women caregivers and non-caregivers from the Caregiver-SOF Study. Preventive Medicine, 43(3), 226–229. doi:10.1016/j.ypmed.2006.04.009
   PubMed Web of Science ®Google Scholar
• Fredriksen-Goldsen, K. I., & Muraco, A. (2010). Aging and sexual orientation: A 25 year review of the literature. Research on Aging, 32(3), 372–413. doi:10.1177/0164027509360355
   PubMed Web of Science ®Google Scholar
• Frémontier, M. (2003). L’aidant non professionnel: Premier soignant au domicile [The nonprofessional caregiver: First nursing home to home]. Gerontology, 125, 24–26.
   Google Scholar
• Given, B., Given, C. W., Stommel, M., & Lin, S. C. (1994). Predictors of use of secondary carers used by the elderly following hospital discharge. Journal of Aging and Health, 6(3), 353–376. doi:10.1177/089826439400600305
   PubMedGoogle Scholar
• Given, C., Stommel, M., Given, B., Osuch, J., Kurtz, M. E., & Kurtz, J. C. (1993). The influence of the cancer patient’s symptoms, functional states on patient’s depression and family caregiver’s reaction and depression. Health Psychology, 12(4), 277–285. doi:10.1037/0278-6133.12.4.277
   PubMed Web of Science ®Google Scholar
• Grundy, E., & Henretta, J. C. (2006). Between elderly parents and adult children: A new look at the intergenerational care provided by the “sandwich generation.” Ageing & Society, 26(05), 707–722. doi:10.1017/S0144686X06004934
   Web of Science ®Google Scholar
• Haigler, D. H., Bauer, L. J., & Travis, S. S. (2006). Caring for you, caring for me: A ten-year caregiver educational initiative of the Rosalynn Carter Institute for Human Development. Health & Social Work, 31(2), 149.
   PubMed Web of Science ®Google Scholar
• Haley, W. E., Roth, D. L., Howard, G., & Safford, M. M. (2010). Caregiving strain and estimated risk for stroke and coronary heart disease among spouse caregivers: Differential effects by race and sex. Stroke, 41(2), 331–336. doi:10.1161/STROKEAHA.109.568279
   PubMed Web of Science ®Google Scholar
• Halligan, P., & Aylward, M. (2006). The power of belief: Psychosocial influences on illness, disability and medicine. Oxford, England: Oxford University Press.
   Google Scholar
• Hawkins, B. A., & Kultgen, P. B. (1990). Activities and adaptation: A call for innovations to serve aging adults with developmental disabilities. Activities, Adaptation, and Aging, 15(1/2), 5–18. doi:10.1300/J016v15n01_02
   Google Scholar
• Hirst, S. P., Lane, A. M., & LeNavenec, C. L. (2011). Strengths-based Approaches for Mental Wellness in Seniors and Adults with Disabilities: A Report submitted to Albert Health Services. Addiction and Mental Health.
   Google Scholar
• Ho, A., Collins, S., Davis, K., & Doty, M. (2005). A look at working-age caregivers roles, health concerns, and need for support (Issue Brief No. 854). New York, NY: Commonwealth Fund. Retrieved from http://www.commonwealthfund.org/~/media/files/publications/issue-brief/2005/aug/a-look-at-working-age-caregivers-roles–health-concerns–and-need-for-support/854_ho_lookatworkingcaregiversroles_ib-pdf.pdf
   Google Scholar
• Hooker, K., Bowman, S., Coehlo, D. P., Lim, S. R., Kaye, J., Guariglia, R., & Li, F. (2002). Behavioral change in persons with dementia: Relationships with mental and physical health of caregivers. Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 57, P453–P460. doi:10.1093/geronb/57.5.P453
   PubMed Web of Science ®Google Scholar
• Hooyman, N., Kawamoto, K., & Kiyak, H. A. (2014). Aging matters: An introduction to social gerontology. Boston, MA: Pearson Higher Ed.
   Google Scholar
• Hooyman, N. R., & Kiyak, H. A. (2011). Social gerontology: A multidisciplinary perspective. Boston, MA: Allyn & Bacon.
   Google Scholar
• Hunt, G. G., & Reinhard, S. C. (2015). The impact of Americas’ changing family upon federal and state family caregiving policy. Journal of American Society on Aging, 39(4), 73–79.
   Web of Science ®Google Scholar
• Ilham, D. (2000). Psychology and human behavior. Is there a limit to psychological explanation? New York, NY: Cambridge University Press.
   Google Scholar
• Institute of Medicine. (2008). Retooling for an aging America: Building the health care workforce. Washington, DC: National Academies Press.
   Google Scholar
• Jepson, C., McCorkle, R., Adler, D., Nuamah, I., & Lusk, E. (1999). Effects of home care on caregivers’ psychological status. Journal of Nursing Scholarship, 31(2), 115–120. doi:10.1111/j.1547-5069.1999.tb00444.x
   Google Scholar
• Kang, S. (2006). Predictors of emotional strain among spouse and adult child caregivers. Journal of Gerontological Social Work, 47, 107–131. doi:10.1300/J083v47n01_08
   PubMedGoogle Scholar
• Kaplan, B. J., & Sadock, V. A. (2003). Synopsis of psychiatry: Behavioral sciences/clinical psychiatry (9th ed.). Philadelphia, PA: Lippincott Williams & Wilkins.
   Google Scholar
• Künemund, H. (2006). Changing welfare states and the “sandwich generation”: Increasing burden for the next generation? International Journal of Ageing and Later Life, 1(2), 11–30. doi:10.3384/ijal.1652-8670.061211
   Google Scholar
• Kurylo, M. F., Elliott, T. R., & Shewchuk, R. M. (2001). FOCUS on the family caregiver: A problem-solving, training intervention. Journal of Counseling & Development, 79(3), 275–281. doi:10.1002/j.1556-6676.2001.tb01972.x
   Web of Science ®Google Scholar
• Lai, D., & Thompson, C. (2011). The impact of perceived adequacy of social support on caregiving burden of family caregivers. Families in Society: The Journal of Contemporary Social Services, 92(1), 99–106. doi:10.1606/1044-3894.4063
   Web of Science ®Google Scholar
• Lee, H., & Singh, J. (2010). Appraisals, burnout and outcomes in informal caregiving. Asian Nursing Research, 4(1), 32–44. doi:10.1016/S1976-1317(10)60004-7
   PubMed Web of Science ®Google Scholar
• Lee, S., Colditz, G. A., Berkman, L., & Kawachi, I. (2003). Caregiving and risk of coronary heart disease in U.S. women: A prospective study. American Journal of Preventive Medicine, 24, 113–119. doi:10.1016/S0749-3797(02)00582-2
   PubMed Web of Science ®Google Scholar
• Levine, C. (2003). Depression in caregivers of patients with dementia: A greater role for physicians. Journal of General Internal Medicine, 18, 1058–1059. doi:10.1111/j.1525-1497.2003.31003.x
   PubMed Web of Science ®Google Scholar
• Levine, C., & Murray, T. H. (2004). The cultures of caregiving: Conflict and common ground among families, health professionals and policy makers. Baltimore, MA: Johns Hopkins University Press.
   Google Scholar
• Lewis, M., Hepburn, K., Narayan, S., Lally, R. M., Concoran-Perry, S., Maddox, M., … Haase, S. (2000). Decision making by family caregivers of elders experiencing dementia. American Journal of Alzheimer’s Disease and Other Dementias, 15(6), 361–366. doi:10.1177/153331750001500607
   Google Scholar
• Lundholm, E., & Malmberg, G. (2009). Between elderly parents and grandchildren—Geographic proximity and trends in four-generation families. Journal of Population Ageing, 2(3/4), 121–137. doi:10.1007/s12062-010-9022-4
   Google Scholar
• Luthar, S. S., & Cicchetti, D. (2000). The construct of resilience: Implications for interventions and social policies. Development and Psychopathology, 12(4), 857–885. doi:10.1017/S0954579400004156
   PubMed Web of Science ®Google Scholar
• Matthews, J. T. (1998). Adherence to preventive health practices among family caregivers of persons receiving home health services. Dissertation Abstracts International, Section B, the Sciences and Engineering, 59(6B), 2683.
   Google Scholar
• McCurry, S. M., Gibbons, L. E., Logsdon, R. G., Vitiello, M. V., & Teri, L. (2009). Insomnia in caregivers of persons with dementia: Who is at risk and what can be done about it? Sleep Medicine Clinics, 4(4), 519–526. doi:10.1016/j.jsmc.2009.07.005
   PubMedGoogle Scholar
• McPherson, C. J., Wilson, K. G., Chyurlia, L., & Leclerc, C. (2011). The caregiving relationship and quality of life among partners of stroke survivors: A cross sectional study. Health and Quality of Life Outcomes, 9(1), 29–38. doi:10.1186/1477-7525-9-29
   Google Scholar
• Melchert, T. (2013). Beyond theoretical orientations: The emergence of a unified scientific framework in professional psychology. Professional Psychology: Research and Practice, 44(1), 11–19. doi:10.1037/a0028311
   Web of Science ®Google Scholar
• Mendes, E. (2011). Most caregivers look after elderly parent; invest a lot of time. Retrieved from http://www.gallup.com/poll/148682/caregivers-look-elderly-parent-invest-lot-time.aspx
   Google Scholar
• Myers, J. E. (2003). Coping with caregiving stress: A wellness-oriented, strengths-based approach for family counselors. Family Journal: Counseling and Therapy for Couples and Families, 11(2), 153–161. doi:10.1177/1066480702250162
   Google Scholar
• National Alliance for Caregiving. (2004). Families care: Alzheimer’s caregiving in the United States 2004. Retrieved from https://www.alz.org/national/documents/report_familiescare.pdf
   Google Scholar
• National Alliance for Caregiving & American Association of Retired Persons. (2004). Caregiving in the U.S. Retrieved from http://www.caregiving.org/data/04finalreport.pdf
   Google Scholar
• National Alliance for Caregiving & American Association of Retired Persons. (2009). Caregiving in the U.S. Retrieved from http://www.caregiving.org/data/Caregiving_in_the_US_2009_full_report.pdf
   Google Scholar
• National Alliance for Caregiving & Evercare. (2006). Evercare study of caregivers in decline: A close-up look at the health risks of caring for a loved one. Retrieved from http://www.caregiving.org/data/Caregivers%20in%20Decline%20Study FINAL-lowres.pdf
   Google Scholar
• National Association of Social Workers. (2010). NASW standards for social work practice with family caregivers of older adults. Retrieved from http://www. socialworkers.org/practice/standards/naswfamilycaregiverstandards.pdf
   Google Scholar
• Navaie-Waliser, M., Feldman, P., Gould, D., Levine, C., Kuerbis, A., & Donelan, K. (2002). When the caregiver needs care: The plight of vulnerable caregivers. American Journal of Public Health, 92(3), 409–413. doi:10.2105/AJPH.92.3.409
   PubMed Web of Science ®Google Scholar
• Ortman, J. M., Velkoff, V. A., & Hogan, H. (2014). An aging nation: The older population in the United States. Washington, DC: US Census Bureau.
   Google Scholar
• Ory, M. G., Hoffman, R. R., Yee, J. L., Tennstedt, S., & Schulz, R. (1999). Prevalence and impact of caregiving: A detailed comparison between dementia and nondementia caregivers. The Gerontologist, 39(2), 177–186. doi:10.1093/geront/39.2.177
   PubMed Web of Science ®Google Scholar
• Perrin, P. B., Heesacker, M., Hinojosa, M. S., Uthe, C. E., & Rittman, M. R. (2009). Identifying at-risk, ethnically diverse stroke caregivers for counseling: A longitudinal study of mental health. Rehabilitation Psychology, 54(2), 138–149. doi:10.1037/a0015964
   PubMed Web of Science ®Google Scholar
• Perrin, P. B., Heesacker, M., Stidham, B. S., Rittman, M. R., & Gonzalez-Rothi, L. J. (2008). Structural equation modeling of the relationship between caregiver psychosocial variables and functioning of individuals with stroke. Rehabilitation Psychology, 53(1), 54–62. doi:10.1037/0090-5550.53.1.54
   Web of Science ®Google Scholar
• Pinquart, M., & Sörensen, S. (2003). Associations of stressors and uplifts of caregiving with caregiver burden and depressive mood: A meta-analysis. Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 58(2), P112–P128. doi:10.1093/geronb/58.2.P112
   PubMed Web of Science ®Google Scholar
• Pinquart, M., & Sörensen, S. (2007). Correlates of physical health of informal caregivers: A meta-analysis. Journals of Gerontology, Series B, Psychological Sciences and Social Sciences, 62(2), P126–P137. doi:10.1093/geronb/62.2.P126
   PubMed Web of Science ®Google Scholar
• Ponnuswami, I., Abraham, F., & Udhayakumar, P. (2012). Strengths-based approach to social work practice with older persons. In V. Pulla, L. Chenoweth, F. Abraham, & S. Bakaj (Eds.), Papers in strengths based practice (pp. 150–161). New Delhi, India: Allied Publishers.
   Google Scholar
• Redfoot, D., Feinberg, L., & Houser, A. (2013). The aging of the baby boom and the growing care gap: A look at future declines in the availability of family caregivers. Washington, DC: American Association of Retired Persons Public Policy Institute. Retrieved from http://www.aarp.org/content/dam/aarp/research/public_policy_institute/ltc/2013/ baby-boom-and-the-growing-care-gap-insight-AARP-ppi-ltc.pdf
   Google Scholar
• Reinhard, S., Fienberg, L., Choula, R., & Houser, A. (2015). Valuing the invaluable 2015 update: Undeniable progress, but big gaps remain. Washington, DC: AARP Public Policy Institute. Retrieved from http://www.aarp.org/content/dam/aarp/ppi/2015/valuing-the-invaluable-2015-update-new.pdf
   Google Scholar
• Reinhard, S., Given, B., Petlick, N., & Bemis, A. (2008). Supporting family caregivers in providing care. In G. Hughes (Ed.), Patient safety and quality: An evidence-based handbook for nurses (NIH Pub. No. 08-0043, pp. 1–64). Retrieved from http://www.ncbi.nlm.nih.gov/books/NBK2665/
   Google Scholar
• Reinhard, S., Levine, C., & Samis, S. (2012). Home alone: Family caregivers providing complex chronic care. Washington, DC: American Association of Retired Persons. Retrieved from www.aarp.org
   Google Scholar
• Rogers, N. B. (1999). Caring for those who care: Achieving family caregiver wellness through social support programs. Activities, Adaptation & Aging, 24(1), 1–12. doi:10.1300/J016v24n01_01
   Google Scholar
• Roth, D., Fredman, L., & Haley, W. (2015). Informal caregiving and its impact on health: A reappraisal from population-based studies. The Gerontologist, 55(2), 309–319. doi:10.1093/geront/gnu177
   PubMed Web of Science ®Google Scholar
• Roth, D., Perkins, M., Wadley, V., Temple, E., & Haley, W. (2009). Family caregiving and emotional strain: Associations with quality of life in a large national sample of middle-aged and older adults. Quality of Life Research, 18, 679–688. doi:10.1007/s11136-009-9482-2
   PubMed Web of Science ®Google Scholar
• Sadock, B. J., Sadock, V. A., & Levin, Z. (2007). Kaplan & Sadock’s study guide and self-examination review in psychiatry (8th ed.). Philadelphia, PA: Lippincott Williams & Wilkins.
   Google Scholar
• Saleebey, D. (1997). Introduction: Power in the people. In D. Saleebey (Ed.), The strengths perspective in social work practice (2nd ed., pp. 3–19). White Plains, NY: Longman Publishers.
   Google Scholar
• Sanders, S. (2005). Is the glass half empty or half full? Reflections on strain and gain in caregivers of individuals with Alzheimer’s disease. Social Work in Health Care, 40, 57–73. doi:10.1300/J010v40n03_04
   PubMed Web of Science ®Google Scholar
• Santrock, J. W. (2014). A topical approach to human life-span development (37th ed.). New York, NY: McGraw-Hill.
   Google Scholar
• Scherbring, M. (2002). Effect of caregiver perception of preparedness on burden in an oncology population. Oncology Nursing Forum, 29(6), E70–E76. doi:10.1188/02.ONF.E70-E76
   PubMedGoogle Scholar
• Schmieding, L. (2006). Caregiving in America: At home there’s always hope. New York, NY: International Longevity Center and Schmieding Center for Senior Health and Education of Northwest Arkansas. Retrieved from http://www.ilcusa.org/_lib/pdf/Caregiving%20in%20America-%20Final.pdf
   Google Scholar
• Scholz, R. W., Blumer, Y. B., & Brand, F. S. (2012). Risk, vulnerability, robustness, and resilience from a decision-theoretic perspective. Journal of Risk Research, 15(3), 313–330. doi:10.1080/13669877.2011.634522
   Web of Science ®Google Scholar
• Schulz, R., & Beach, S. R. (1999). Caregiving as a risk factor for mortality: The caregiver health effects study. Journal of the American Medical Association, 282(23), 2215–2219. doi:10.1001/jama.282.23.2215
   PubMed Web of Science ®Google Scholar
• Schulz, R., Burgio, L., Burns, R., Eisdorfer, C., Gallagher-Thompson, D., Gitlin, L. N., & Mahoney, D. F. (2003). Resources for Enhancing Alzheimer’s Caregiver Health (REACH): Overview, site-specific outcomes, and future directions. The Gerontologist, 43(4), 514–520. doi:10.1093/geront/43.4.514
   PubMed Web of Science ®Google Scholar
• Schulz, R., O’Brien, A. T., Bookwala, J., & Fleissner, K. (1995). Psychiatric and physical morbidity effects of dementia caregiving: Prevalence, correlates, and causes. The Gerontologist, 35(6), 771–791. doi:10.1093/geront/35.6.771
   PubMed Web of Science ®Google Scholar
• Schulz, R., & Sherwood, P. (2008). Physical and mental health effects of family caregiving. American Journal of Nursing, 108(9 Suppl), 23–27. doi:10.1097/01.NAJ.0000336406.45248.4c
   PubMed Web of Science ®Google Scholar
• Schulz, R., Visintainer, P., & Williamson, G. M. (1990). Psychiatric and physical morbidity effects of caregiving. Journals of Gerontology, Series B, Psychological Sciences and Social Sciences, 45(5), 181–191.
   Web of Science ®Google Scholar
• Schumacher, K. L., Stewart, B. J., Archbold, P. G., Dodd, M. J., & Dibble, S. L. (2000). Family caregiving skill: Development of the concept. Research in Nursing & Health, 23(3), 191–203. doi:10.1002/1098-240X(200006)23:3<191::AID-NUR3>3.0.CO;2-B
   PubMed Web of Science ®Google Scholar
• Shabo, V. (2015). Advances in workplace protections for family caregivers. Journal of the American Society on Aging, 39(4), 89–95.
   Web of Science ®Google Scholar
• Shaffer, D. R., Dooley, W. K., & Williamson, G. M. (2007). Endorsement of proactively aggressive caregiving strategies moderates the relation between caregiver mental health and potentially harmful caregiving behavior. Psychology and Aging, 22(3), 494–504. doi:10.1037/0882-7974.22.3.494
   PubMed Web of Science ®Google Scholar
• Sörensen, S., Pinquart, M., & Duberstein, P. (2002). How effective are interventions with caregivers? An updated meta-analysis. The Gerontologist, 42(3), 356–372. doi:10.1093/geront/42.3.356
   PubMed Web of Science ®Google Scholar
• U.S. Census Bureau. (2014). An aging nation: The older population in the United States. Retrieved from https://www.census.gov/prod/2014pubs/p25-1140.pdf
   Google Scholar
• U.S. Department of Health and Human Services, Assistant Secretary for Planning and Evaluation, Office of Disability, Aging and Long-Term Care Policy. (2006). The supply and demand of professional social workers providing long-term care services: Report to Congress. Retrieved from http://aspe.hhs.gov/daltcp/reports/2006/SWsupply.htm
   Google Scholar
• U.S. Department of Labor. (2016). FMLA (family & medical leave). Retrieved from https://www.dol.gov/general/topic/benefits-leave/fmla
   Google Scholar
• Verbakel, E. (2014). Informal caregiving and well-being in Europe: What can ease the negative consequences for caregivers? Journal of European Social Policy, 24(5), 424–441. doi:10.1177/0958928714543902
   Web of Science ®Google Scholar
• Vitaliano, P. P., Zhang, J., & Scanlan, J. M. (2003). Is caregiving hazardous to one’s physical health? A meta-analysis. Psychological Bulletin, 129(6), 946–972. doi:10.1037/0033-2909.129.6.946
   PubMed Web of Science ®Google Scholar
• Von Känel, R., Mausbach, B., Patterson, T., Dimsdale, J., Aschbacher, K., Mills, P., … Grant, I. (2015). Increased Framingham coronary heart disease risk score in dementia caregivers relative to non-caregiving controls. Gerontology, 54, 131–137. doi:10.1159/000113649
   Web of Science ®Google Scholar
• Wakabayashi, C., & Donato, K. M. (2006). Does caregiving increase poverty among women in later life? Evidence from the health and retirement survey. Journal of Health and Social Behavior, 47, 258–274. doi:10.1177/002214650604700305
   PubMed Web of Science ®Google Scholar
• Westland, N. (2008, August 26). Meet the supergrandparents. The Times. Retrieved from http://www.thetimes.co.uk/tto/life/families/article1758030.ece
   Google Scholar
• Whitaker, T., Weismiller, T., & Clark, E. (2006). Assuring the sufficiency of a frontline workforce: A national study of licensed social workers. Executive summary. Washington, DC: National Association of Social Workers. Retrieved from http://workforce.socialworkers.org/studies/nasw_06_execsummary.pdf
   Google Scholar
• Wolff, J. L., & Kasper, J. D. (2006). Caregivers of frail elders: Updating a national profile. The Gerontologist, 46, 344–356. doi:10.1093/geront/46.3.344
   PubMed Web of Science ®Google Scholar
• Yang, Y. T., & Gimm, G. W. (2013). Caring for elder parents: A comparative evaluation of family leave laws. Journal of Law, Medicine and Ethics, 41(2), 501–513. doi:10.1111/jlme.12058
   PubMed Web of Science ®Google Scholar
• Zarit, S. (2006). Assessment of family caregivers: A research perspective. In Family Caregiver Alliance (Eds.), Caregiver assessment: Voices and views from the field. Report from a National Consensus Development Conference (Vol. II, pp. 12–37). San Francisco, CA: Family Caregiver Alliance.
   Google Scholar
• Zastrow, C., & Kirst-Ashman, K. (2013). Understanding human behavior and the social environment (9th ed.). Belmont, CA: Brooks/Cole, Cengage Learning.
   Google Scholar
• Zulman, D., Piette, J., Jenchura, E., Asch, S., & Rosland, A. (2013). Facilitating out of home caregiving through health information technology: Survey of informal caregivers’ current practices, interests, and perceived barriers. Journal of Medical Internet Research, 15, 1–8. doi:10.2196/jmir.2472
   Web of Science ®Google Scholar