361
Views
8
CrossRef citations to date
0
Altmetric
Articles

Observations from the field: interviewers’ experiences interviewing and retaining homeless and vulnerably housed participants in longitudinal health research

, , , ORCID Icon, , & show all
Pages 128-137 | Received 15 Mar 2017, Accepted 28 Jun 2017, Published online: 11 Jul 2017

References

  • Aldridge, J., & Charles, V. (2008). Researching the intoxicated: Informed consent implications for alcohol and drug research. Drug and Alcohol Dependence, 93, 191–196. doi: 10.1016/j.drugalcdep.2007.09.001
  • Anderson, E. E., & DuBois, J. M. (2007). The need for evidence-based research ethics: A review of the substance abuse literature. Drug and Alcohol Dependence, 86, 95–105. doi: 10.1016/j.drugalcdep.2006.06.011
  • Asbury, J. (1995). Overview of focus group research. Qualitative Health Research, 5, 414–420. doi: 10.1177/104973239500500402
  • Becker, K., Berry, S., Orr, N., & Perlman, J. (2014). Finding the hard to reach and keeping them engaged in research. In R. Tourangeau, B. Edwards, T. Johnson, K. Wolter, & N. Bates (Eds.), Hard-to-survey populations (pp. 619–641). Cambridge: Cambridge University Press. doi: 10.1017/CBO9781139381635.036
  • Bell, K., & Salmon, A. (2011). What women who use drugs have to say about ethical research: Findings of an exploratory qualitative study. Journal of Empirical Research on Human Research Ethics, 6, 84–98. doi: 10.1525/jer.2011.6.4.84
  • Bell, K., & Salmon, A. (2012). Good intentions and dangerous assumptions: Research ethics committees and illicit drug use research. Research Ethics, 8, 191–199. doi: 10.1177/1747016112461731
  • Bender, K. A., Begun, S., DePrince, A., Haffejee, B., & Kaufmann, S. (2014). Utilizing technology for longitudinal communication with homeless youth. Social Work in Health Care, 53, 865–882. doi: 10.1080/00981389.2014.925532
  • Berg, B. L. (2004). Qualitative research methods for the social sciences (5th ed.). Boston, MA: Pearson Education.
  • Cohen, E. H., Mowbray, C. T., Bybee, D., Yeich, S., Ribisl, K., & Freddolino, P. P. (1993). Tracking and follow-up methods for research on homelessness. Evaluation Review, 17, 331–352. doi: 10.1177/0193841X9301700305
  • Conover, S., Berkman, A., Gheith, A., Jahiel, R., Stanley, D., Geller, P. A., … Susser, E. (1997). Methods for successful follow-up of elusive urban populations: An ethnographic approach with homeless men. Bulletin of the New York Academy of Medicine, 74, 90–108.
  • Cottler, L. B., Compton, W. M., Ben-Abdallah, A., Horne, M., & Claverie, D. (1996). Achieving a 96.6 percent follow-up rate in a longitudinal study of drug abusers. Drug and Alcohol Dependence, 41, 209–217. doi: 10.1016/0376-8716(96)01254-9
  • Ensign, J., & Ammerman, S. (2008). Ethical issues in research with homeless youths. Journal of Advanced Nursing, 62, 365–372. doi: 10.1111/j.1365-2648.2008.04599.x
  • Eyrich-Garg, K. (2011). Sheltered in cyberspace? Computer use among the unsheltered “street” homeless. Computers in Human Behavior, 27, 296–303. doi: 10.1016/j.chb.2010.08.007
  • Fowler, H. S., Aubry, T., & Smith, M. (2004). Conducting evaluation research with hard-to-follow populations: Adopting a participant-centred approach to maximize participant retention. The Canadian Journal of Program Evaluation, 19, 89–108.
  • Henwood, B. F., Byrne, T., & Scriber, B. (2015). Examining mortality among formerly homeless adults enrolled in housing first: An observational study. BMC Public Health, 15, 877. doi: 10.1186/s12889-015-2552-1
  • Hobden, K., Curtis Forney, J., Wyszacki Durham, K., & Toro, P. (2011). Limiting attrition in longitudinal research on homeless adolescents: What works best? Journal of Community Psychology, 39, 443–451. doi: 10.1002/jcop.20445
  • Hough, R. L., Tarke, H., Renker, V., Shields, P., & Glatstein, J. (1996). Recruitment and retention of homeless mentally ill participants in research. Journal of Consulting & Clinical Psychology, 64, 881–891. doi: 10.1037/0022-006X.64.5.881
  • Hsieh, H. F., & Shannon, S. E. (2005). Three approaches to qualitative content analysis. Qualitative Health Research, 15, 1277–1288. doi: 10.1177/1049732305276687
  • Hwang, S., Aubry, T., Palepu, A., Farrell, S., Nisenbaum, R., Hubley, A., … Chambers, C. (2011). The Health and Housing in Transition study: A longitudinal study of the health of homeless and vulnerably housed adults in three Canadian cities. International Journal of Public Health, 56, 609–623. doi: 10.1007/s00038-011-0283-3
  • Kidder, D., Wolitski, R., Royal, S., Aidala, A., Courtenay-Quirk, C., Holtgrave, D. R., … Stall, R. (2007). Access to housing as a structural intervention for homeless and unstably housed people living with HIV: Rationale, methods, and implementation of the housing and health study. AIDS and Behavior, 11, 149–161. doi: 10.1007/s10461-007-9249-0
  • Krueger, R. A. (1998). Developing questions for focus groups. Thousand Oaks, CA: Sage.
  • Krueger, R. A., & Casey, M. A. (2015). Focus groups: A practical guide for applied research (5th ed.). Thousand Oaks, CA: Sage.
  • McInnes, D. K., Sawh, L., Petrakis, B. A., Rao, S. R., Sowmya, R. R., Shimada, S. L., … Smelson, D. A. (2014). The potential for health-related uses of mobile phones and internet with homeless veterans: Results from amultisite survey. Telemedicine and e-Health, 20, 801–809. doi: 10.1089/tmj.2013.0329
  • McKenzie, M., Peterson Tulsky, J., Long, H., Chesney, M., & Moss, A. (1999). Tracking and follow-up of marginalized populations: A review. Journal of Health Care for the Poor and Underserved, 10, 409–429. doi: 10.1353/hpu.2010.0697
  • Morgan, D. L. (1996). Focus groups. Annual Review of Sociology, 22, 129–152. doi: 10.1146/annurev.soc.22.1.129
  • Morrison, D. S. (2009). Homelessness as an independent risk factor for mortality: Results from a retrospective cohort study. International Journal of Epidemiology, 38, 877–883. doi: 10.1093/ije/dyp160
  • Morrissey, J. P., & Dennis, D. L. (1990). Homelessness and mental illness: Toward the next generation of research studies. Rockville, MD: National Institute of Mental Health.
  • North, C., Black, M., & Pollio, D. (2012). Predictors of successful tracking over time in a homeless population. Social Work Research, 36, 153–159. doi: 10.1093/swr/svs005
  • Nusselder, W. J., Slockers, M. T., Krol, L., Slockers, C. T., Looman, C. W. N., van Beeck, E. F., & da Silva Nunes, M. (2013). Mortality and life expectancy in homeless men and women in Rotterdam: 2001–2010. PLoS ONE, 8(10), e73979. doi: 10.1371/journal.pone.0073979
  • Odierna, D. H., & Bero, L. A. (2014). Retaining participants in outpatient and community-based health studies: Researchers and participants in their own words. SAGE Open, 1–11. doi: 10.1177/2158244014554391
  • Palepu, A., Gadermann, A., Hubley, A. M., Farrell, S., Gogosis, E., Aubry, T., … Laks, J. (2013). Substance use and access to health care and addiction treatment among homeless and vulnerably housed persons in three Canadian cities. PLoS ONE, 8(10), e75133. doi: 10.1371/journal.pone.0075133
  • Perrier, C. P. K., Etchegary, H., Palarchio, N., & Snelgrove, P. (2009). The ethics of applied research with individuals with addictions. Journal of Ethics in Mental Health, 4, 1–6.
  • Reitzes, D. C., Parker, J., Crimmins, T., & Ruel, E. E. (2017). Digital communications among homeless people: Anomaly or necessity? Journal of Urban Affairs, 38, 145–159. doi: 10.1111/juaf.12310
  • Rice, E., Lee, A., & Taitt, S. (2011). Cell phone use among homeless youth: Potential for new health interventions and research. Journal of Urban Health, 88, 1175–1182. doi: 10.1007/s11524-011-9624-z
  • Schonfeld, T. L., Brown, J. S., Weniger, M., & Gordon, B. (2003). Research involving the homeless: Arguments against Payment-in-Kind (PinK). IRB: Ethics & Human Research, 25, 17–20. doi: 10.2307/3564602
  • Souleymanov, R., Kuzmanovic, D., Marshall, Z., Sheim, A. I., Mikiki, M., Worthington, C., & Millson, M. (2016). The ethics of community-based research with people who use drugs: Results of a scoping review. BCM Medical Ethics, 17(25), doi: 10.1186/s12910-016-0108-2
  • Strehlau, V., Torchalla, I., Patterson, M., Moniruzzaman, A., Laing, A., Addorisio, S., … Somers, J. (2017). Recruitment and retention of homeless individuals with mental illness in a housing first intervention study. Contemporary Clinical Trials Communications, 7, 48–56. doi: 10.1016/j.conctc.2017.05.001
  • To, M. J., O’Brien, K., Palepu, A., Hubley, A. M., Farrell, S., Aubry, T., … Hwang, S. W. (2014). Brain injury in homeless and vulnerably housed individuals: A prospective cohort study. Journal of Head Trauma Rehabilitation, 30, 270–276. doi: 10.1097/HTR.0000000000000044
  • Toro, P. A., Rabideau, J. M., Bellavia, C. W., Daeschler, C. V., Wall, D. D., Thomas, D. M., & Smith, S. J. (1997). Evaluating an intervention for homeless persons: Results of a field experiment. Journal of Consulting and Clinical Psychology, 65, 476–484. doi: 10.1037/0022-006X.65.3.476
  • Veldhuizen, S., Adair, C. E., Methot, C., Kopp, B. C., O’Campo, P., Bourque, J., … Goering, P. N. (2015). Patterns and predictors of attrition in a trial of a housing intervention for homeless people with mental illness. Social Psychiatry and Psychiatric Epidemiology, 50, 195–202. doi: 10.1007/s00127-014-0909-x
  • Wright, J. D., Allen, T. L., & Devine, J. A. (1995). Tracking non-traditional populations in longitudinal studies. Evaluation & Program Planning, 18, 267–277. doi: 10.1016/S0149-7189(95)00020-8

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.