106
Views
0
CrossRef citations to date
0
Altmetric
Articles

Informed Assent Recall Among Adolescents in Substance Use Disorder Treatment Research

, , &

References

  • Allison, P. (1999). Logistic regression using SAS®: Theory and application. Cary, NC: SAS Publishing.
  • Allison, P. D. (2002). Missing data: Quantitative applications in the social sciences. British Journal of Mathematical and Statistical Psychology, 55(1), 193–196.
  • American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders: DSM-IV-TR®. Washington, DC: American Psychiatric Publishing.
  • Anderson, E. E., & DuBois, J. M. (2007). The need for evidence-based research ethics: A review of the substance abuse literature. Drug and Alcohol Dependence, 86(2), 95–105.
  • Appelbaum, P. S., & Roth, L. H. (1982). Competency to consent to research: A psychiatric overview. Archives of General Psychiatry, 39(8), 951–958.
  • Bates, M. E., & Convit, A. (1999). Assessment of neuropsychological functions in psychiatric disorders. In C. Avraham (Eds.), Neuropsychology and neuroimaging of alcohol and illicit drug abuse (pp. 373–445). Arlington, VA: American Psychiatric Association.
  • Bechara, A. (2003). Risky business: Emotion, decision-making, and addiction. Journal of Gambling Studies, 19(1), 23–51.
  • Belsley, D. A. (2006). Conditioning diagnostics. encyclopedia of statistical sciences (2nd ed.). Hoboken, NJ: Wiley Online Library.
  • Belsley, D. A., Kuh, E., & Welsch, R. E. (2005). Regression diagnostics: Identifying influential data and sources of collinearity. Hoboken, NJ: John Wiley & Sons.
  • Benson, P. R., Roth, L. H., Appelbaum, P. S., Lidz, C. W., & Winslade, W. J. (1988). Information disclosure, subject understanding, and informed consent in psychiatric research. Law and Human Behavior, 12(4), 455–475.
  • Bolla, K., Eldreth, D., London, E., Kiehl, K., Mouratidis, M., Contoreggi, C., & Kimes, A. (2003). Orbitofrontal cortex dysfunction in abstinent cocaine abusers performing a decision-making task. NeuroImage, 19(3), 1085–1094.
  • Brody, J. L., & Waldron, H. B. (2000). Ethical issues in research on the treatment of adolescent substance abuse disorders. Addictive Behaviors, 25(2), 217–228.
  • Cassileth, B. R., Zupkis, R. V., Sutton-Smith, K., & March, V. (1980). Informed consent: Why are its goals imperfectly realized? The New England Journal of Medicine, 302(16), 896–900. doi:10.1056/NEJM198004173021605
  • Code of federal regulations title 45, part 46;subpart D. Protection of human subjects. (OPRR reports). (1994). Washington, DC: U.S. Government Printing Office.
  • de Wit, H. (2009). Impulsivity as a determinant and consequence of drug use: A review of underlying processes. Addiction Biology, 14(1), 22–31.
  • Dennis, M. L., Chan, Y., & Funk, R. R. (2006). Development and validation of the GAIN short screener (GSS) for internalizing, externalizing and substance use disorders and crime/violence problems among adolescents and adults. The American Journal on Addictions, 15(s1), s80–s91.
  • Dennis, M. L., Funk, R., Godley, S. H., Godley, M. D., & Waldron, H. (2004). Cross-validation of the alcohol and cannabis use measures in the global appraisal of individual needs (GAIN) and timeline followback (TLFB; form 90) among adolescents in substance abuse treatment. Addiction, 99, 120–128. doi:10.1111/j.1360-0443.2004.00859.x
  • Dennis, M. L., Titus, J. C., White, M. K., Unsicker, J. I., & Hodgkins, D. (2003). Global appraisal of individual needs: Administration guide for the GAIN and related measures. Bloomington, IL: Chestnut Health Systems.
  • Dennis, M.L., White, M.K., & Ives, M.L. (2009). Individual characteristics and needs associated with substance misuse of adolescents and young adults in addiction treatment. In: C.G. Leukefeld, T.P. Gullotta, & M. Staton-Tindal (Eds.), Adolescents Substance Abuse: Evidence-based approaches to prevention and treatment (pp. 45–72). New York, NY: Springer.
  • DeRenzo, E. G. (1994). The ethics of involving psychiatrically impaired persons in research. IRB: Ethics and Human Research, 16(6), 7–11.
  • Dugosh, K. L., Festinger, D. S., Croft, J. R., & Marlowe, D. B. (2010). Measuring coercion to participate in research within a doubly vulnerable population: Initial development of the coercion assessment scale. Journal of Empirical Research on Human Research Ethics, 5(1), 93–102.
  • DuVal, G., & Salmon, C. (2004). Research note: Ethics of drug treatment research with court-supervised subjects. Journal of Drug Issues, 34(4), 991–1006.
  • Edwards, S. J., Lilford, R. J., Thornton, J., & Hewison, J. (1998). Informed consent for clinical trials: In search of the “best” method. Social Science & Medicine, 47(11), 1825–1840.
  • Ersche, K. D., Clark, L., London, M., Robbins, T. W., & Sahakian, B. J. (2006). Profile of executive and memory function associated with amphetamine and opiate dependence. Neuropsychopharmacology, 31(5), 1036–1047.
  • Ersche, K. D., & Sahakian, B. J. (2007). The neuropsychology of amphetamine and opiate dependence: Implications for treatment. Neuropsychology Review, 17(3), 317–336.
  • Fals-Stewart, W., O'Farrell, T. J., Freitas, T. T., McFarlin, S. K., & Rutigliano, P. (2000). The timeline followback reports of psychoactive substance use by drug-abusing patients: Psychometric properties. Journal of Consulting and Clinical Psychology, 68(1), 134.
  • Festinger, D. S., Dugosh, K. L., Croft, J. R., Arabia, P. L., & Marlowe, D. B. (2011). Do research intermediaries reduce perceived coercion to enter research trials among criminally involved substance abusers? Ethics & Behavior, 21(3), 252–259.
  • Festinger, D. S., Dugosh, K. L., Marlowe, D. B., & Clements, N. T. (2014). Achieving new levels of recall in consent to research by combining remedial and motivational techniques. Journal of Medical Ethics, 40(4), 264–268. doi:10.1136/medethics-2012-101124
  • Festinger, D. S., Marlowe, D. B., Croft, J. R., Dugosh, K. L., Arabia, P. L., & Benasutti, K. M. (2009). Monetary incentives improve recall of research consent information: It pays to remember. Experimental and Clinical Psychopharmacology, 17(2), 99.
  • Festinger, D. S., Ratanadilok, K., Marlowe, D. B., Dugosh, K. L., Patapis, N. S., & DeMatteo, D. S. (2007). Neuropsychological functioning and recall of research consent information among drug court clients. Ethics & Behavior, 17(2), 163–186.
  • Flory, J., & Emanuel, E. (2004). Interventions to improve research participants' understanding in informed consent for research: A systematic review. Journal of the American Medical Association, 292(13), 1593–1601.
  • Forehand, L., Jr., & Ciccone, J. R. (2004). The competence of adolescents to consent to treatment. Adolescent Psychiatry: Developmental and Clinical Studies, 28, 5–27.
  • Godley, S. H., Meyers, R. J., Smith, J. E., Karvinen, T., Titus, J. C., Godley, M. D., & Kelberg, P. (2001). The adolescent community reinforcement approach for adolescent cannabis users, cannabis youth treatment (CYT) series (vol. 4). Rockville, MD: Center for Substance Abuse Treatment.
  • Goldstein, R. Z., & Volkow, N. D. (2002). Drug addiction and its underlying neurobiological basis: Neuroimaging evidence for the involvement of the frontal cortex. American Journal of Psychiatry, 159(10), 1642–1652.
  • Hosmer Jr, D. W., & Lemeshow, S., (2013). Applied logistic regression. (Vol. 398). Hoboken, NJ: John Wiley & Sons.
  • Hosmer, D. W., Lemeshow, S., & Sturdivant, R. X. (2004). Assessing the fit of the model. In D. W. Hosmer & S. Lemeshow (Eds.), Applied Logistic Regression, Second edition, (pp. 143–202). Hoboken, NJ: John Wiley & Sons.
  • Kiluk, B. D., Nich, C., & Carroll, K. M. (2010). Neurocognitive indicators predict results of an informed-consent quiz among substance-dependent treatment seekers entering a randomized clinical trial. Journal of Studies on Alcohol and Drugs, 71(5), 704–712.
  • Knight, K., Holcom, M., & Simpson, D. D. (1994). TCU psychosocial functioning and motivation scales: Manual on psychometric properties. Fort Worth, TX: Texas Christian University, Institute of Behavioral Research.
  • Lejuez, C., Aklin, W. M., Zvolensky, M. J., & Pedulla, C. M. (2003). Evaluation of the balloon analogue risk task (BART) as a predictor of adolescent real-world risk-taking behaviours. Journal of Adolescence, 26(4), 475–479.
  • McCrady, B. S., & Bux, D. A., Jr. (1999). Ethical issues in informed consent with substance abusers. Journal of Consulting and Clinical Psychology, 67(2), 186.
  • McLachlan, G. J., Krishnan, T., & Ng, S. K. (Eds.). (2008). The EM algorithm and extensions. Hoboken, NJ: John Wiley & Sons.
  • Morral, A. R., McCaffrey, D. F., & Ridgeway, G. (2004). Effectiveness of community-based treatment for substance-abusing adolescents: 12-month outcomes of youths entering Phoenix Academy or alternative probation dispositions. Psychology of Addictive Behaviors, 18(3), 257.
  • Moser, D. J., Arndt, S., Kanz, J. E., Benjamin, M. L., Bayless, J. D., Reese, R. L., & Flaum, M. A. (2004). Coercion and informed consent in research involving prisoners. Comprehensive Psychiatry, 45(1), 1–9.
  • Munro, C. A., Saxton, J., & Butters, M. A. (2000). The neuropsychological consequences of abstinence among older alcoholics: A cross-sectional study. Alcoholism: Clinical and Experimental Research, 24(10), 1510–1516.
  • O'Neill, O. (2003). Some limits of informed consent. Journal of Medical Ethics, 29(1), 4.
  • Pagliaro, A. M., & Pagliaro, L. A. (1996). Substance use among children and adolescents: Its nature, extent, and effects from conception to adulthood. New York, NY: John Wiley.
  • Potenza, M. (2007). To do or not to do? The complexities of addiction, motivation, self-control, and impulsivity. American Journal of Psychiatry, 164(1), 4–6.
  • Reiser, S. J., & Knudson, P. (1993). Protecting research subjects after consent: The case for the “research intermediary”. IRB: A Review of Human Subjects Research, 15(2), 10–11.
  • Roberts, L., & Indermaur, D. (2003). Signed consent forms in criminological research: Protection for researchers and ethics committees but a threat to research participants? Psychiatry, Psychology and Law, 10(2), 289–299.
  • Rounsaville, D. B., Hunkele, K., Easton, C. J., Nich, C., & Carroll, K. M. (2008). Making consent more informed: Preliminary results from a multiple-choice test among probation-referred marijuana users entering a randomized clinical trial. The Journal of the American Academy of Psychiatry and the Law, 36(3), 354–359. doi:36/3/354
  • Rourke, S. B., & Grant, I. (2009). The neurobehavioral correlates of alcoholism. In I. Grant & K. M. Adams (Eds.), Neuropsychological assessment of neuropsychiatric and neruomedical disorders (3rd ed., pp. 398–454). New York, NY: Oxford University Press.
  • SAS Institute Inc. (2011). Base SAS® 9.3 procedures guide, version 9.3. Cary, NC: SAS Institute Inc.
  • Schafer, J. L., & Graham, J. W. (2002). Missing data: Our view of the state of the art. Psychological Methods, 7(2), 147.
  • Scott, C. K., & White, W. L. (2005). Ethical issues in the conduct of longitudinal studies of addiction treatment. Journal of Substance Abuse Treatment, 28(2), S91–S101.
  • Simpson, D. D., & Joe, G. W. (1993). Motivation as a predictor of early dropout from drug abuse treatment. Psychotherapy: Theory, Research, Practice, Training, 30(2), 357.
  • Smith, D. C., Boel-Studt, S., & Cleeland, L. (2009). Parental consent in adolescent substance abuse treatment outcome studies. Journal of Substance Abuse Treatment, 37(3), 298–306.
  • Smith, D. C., Cleeland, L., & Dennis, M. L. (2010). Reasons for quitting among emerging adults and adolescents in substance-use-disorder treatment. Journal of Studies on Alcohol and Drugs, 71(3), 400–409.
  • Smith, D. C., Godley, S. H., Godley, M. D., & Dennis, M. L. (2011). Adolescent community reinforcement approach outcomes differ among emerging adults and adolescents. Journal of Substance Abuse Treatment, 41(4), 422–430. doi: http://dx.doi.org/10.1016/j.jsat.2011.06.003
  • Sobell, L. C., & Sobell, M. B. (1992). Timeline follow-back. In R. Z. Litten & J. P. Allen, (Eds.), Measuring alcohol consumption: Psychosocial and biochemical methods (pp. 41–72). New York, NY: Springer.
  • Stephens, R. S., Curtin, L., Simpson, E. E., & Roffman, R. A. (1994). Testing the abstinence violation effect construct with marijuana cessation. Addictive Behaviors, 19(1), 23–32.
  • Stiles, P. G., Poythress, N. G., Hall, A., Falkenbach, D., & Williams, R. (2001). Improving understanding of research consent disclosures among persons with mental illness. Psychiatric Services, 52(6), 780–785.
  • Substance Abuse and Mental Health Services Administration (SAMHSA). (2014). Center for behavioral health statistics and quality treatment episode data set (TEDS): 2002–2012. National admissions to substance abuse treatment services. BHSIS Series S-71, HHS publication no. (SMA) 14-4850. Rockville, MD: Author.
  • Tapert, S. F., & Brown, S. A. (2000). Substance dependence, family history of alcohol dependence and neuropsychological functioning in adolescence. Addiction, 95(7), 1043–1053.
  • Tarter, R. E., Mezzich, A. C., Hsieh, Y., & Parks, S. M. (1995). Cognitive capacity in female adolescent substance abusers. Drug and Alcohol Dependence, 39(1), 15–21.
  • Taub, H. A., & Baker, M. T. (1983). The effect of repeated testing upon comprehension of informed consent materials by elderly volunteers. Experimental Aging Research, 9(3), 135–138.
  • Taub, H. A., Baker, M. T., Kline, G. E., & Sturr, J. F. (1987). Comprehension of informed consent information by young-old through old-old volunteers. Experimental Aging Research, 13(4), 173–178.
  • Taub, H. A., Baker, M. T., & Sturr, J. F. (1986). Informed consent for research: Effects of readability, patient age, and education. Journal of the American Geriatrics Society, 38(8), 601–606.
  • Taub, H. A., Kline, G. E., & Baker, M. T. (1981). The elderly and informed consent: Effects of vocabulary level and corrected feedback. Experimental Aging Research, 7(2), 137–146.
  • Titus, J. C., Smith, D. C., Dennis, M. L., Ives, M., Twanow, L., & White, M. K. (2012). Impact of a training and certification program on the quality of interviewer-collected self-report assessment data. Journal of Substance Abuse Treatment, 42(2), 201–212.
  • Verheggen, F. W., & van Wijmen, F. C. (1996). Informed consent in clinical trials. Health Policy, 36(2), 131–153.
  • Weisner, C., & Schmidt, L. A. (1995). Expanding the frame of health services research in the drug abuse field. Health Services Research, 30(5), 707–726.
  • Young, D. R., Hooker, D. T., & Freeberg, F. E. (1990). Informed consent documents: Increasing comprehension by reducing reading level. IRB: Ethics and Human Research, 12(3), 1–5.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.