Stroke survivors’ priorities for research related to life after stroke

References

• Jonsson AC , Delavaran H , Lovkvist H , et al. Secondary prevention and lifestyle indices after stroke in a long-term perspective. Acta Neurol Scand . 2018;138:227–234.
   PubMed Web of Science ®Google Scholar
• Norrving B , Barrick J , Davalos A , et al. Action plan for stroke in Europe 2018-2030. Eur Stroke J . 2018;3:309–336. doi:10.1177/2396987318808719.
   PubMed Web of Science ®Google Scholar
• Pollock A , St George B , Fenton M , Firkins L. Top 10 research priorities relating to life after stroke–consensus from stroke survivors, caregivers, and health professionals. Int J Stroke . 2014;9:313–320. doi:10.1111/j.1747-4949.2012.00942.x.
   PubMed Web of Science ®Google Scholar
• Hirst E , Irving A , Goodacre S. Patient and public involvement in emergency care research. Emergency Med J . 2016;33:665–670. doi:10.1136/emermed-2016-205700.
   PubMed Web of Science ®Google Scholar
• Gradinger F , Britten N , Wyatt K , et al. Values associated with public involvement in health and social care research: a narrative review. Health Expectations . 2015;18:661–675. doi:10.1111/hex.12158.
   PubMed Web of Science ®Google Scholar
• Brett J , Staniszewska S , Mockford C , et al. Mapping the impact of patient and public involvement on health and social care research: a systematic review. Health Expectations . 2014;17:637–650. doi:10.1111/j.1369-7625.2012.00795.x.
   PubMed Web of Science ®Google Scholar
• Hoddinott P , Pollock A , O’Cathain A , et al. How to incorporate patient and public perspectives into the design and conduct of research. F1000Res . 2018;7:752. doi:10.12688/f1000research.15162.1.
   PubMedGoogle Scholar
• Dalton J , Chambers D , Harden M , Street A , Parker G , Eastwood A . Service user engagement in health service reconfiguration: a rapid evidence synthesis. J Health Serv Res Policy . 2016;21:195–205. doi:10.1177/1355819615623305.
   PubMed Web of Science ®Google Scholar
• Mead G , Hackett ML , Lundstrom E , Murray V , Hankey GJ , Dennis M . The FOCUS, AFFINITY and EFFECTS trials studying the effect(s) of fluoxetine in patients with a recent stroke: a study protocol for three multicentre randomised controlled trials. Trials . 2015;16:369. doi:10.1186/s13063-015-0864-1.
   PubMedGoogle Scholar
• Brott T , Adams HP , Olinger CP , et al. Measurements of acute cerebral infarction: a clinical examination scale. Stroke . 1989;20:864–870. doi:10.1161/01.STR.20.7.864.
   PubMed Web of Science ®Google Scholar
• Nasreddine ZS , Phillips NA , Bédirian V , et al. The montreal cognitive assessment, MoCA: a brief screening tool for mild cognitive impairment. J Am Geriatr Soc . 2005;53:695–699. doi:10.1111/j.1532-5415.2005.53221.x.
   PubMed Web of Science ®Google Scholar
• Riksstroke . Riksstroke. Fem Och Tre År Efter Stroke [Internet] . Umeå: Riksstroke; 2018.
   Google Scholar
• Blomgren C , Samuelsson H , Blomstrand C , Jern C , Jood K , Claesson L . Long-term performance of instrumental activities of daily living in young and middle-aged stroke survivors-impact of cognitive dysfunction, emotional problems and fatigue. PloS One . 2019;14:e0216822. doi:10.1371/journal.pone.0216822.
   PubMed Web of Science ®Google Scholar
• Broussy S , Saillour-Glenisson F , Garcia-Lorenzo B , et al. Sequelae and quality of life in patients living at home 1 year after a stroke managed in stroke units. Front Neurol . 2019;10:907. doi:10.3389/fneur.2019.00907.
   PubMed Web of Science ®Google Scholar
• Westerlind E , Persson HC , Eriksson M , Norrving B , Sunnerhagen KS . Return to work after stroke: a Swedish nationwide registry-based study. Acta Neurol Scand . 2020 Jan; 141 (1):56-64.
   PubMed Web of Science ®Google Scholar
• Ullberg T , Zia E , Petersson J , Norrving B . Perceived unmet rehabilitation needs 1 year after stroke: an observational study from the Swedish stroke register. Stroke . 2016;47:539–541. doi:10.1161/STROKEAHA.115.011670.
   PubMed Web of Science ®Google Scholar
• Wu S , Kutlubaev MA , Chun HY , et al. Interventions for post-stroke fatigue. Cochrane Database Syst Rev . 2015 Jul 2; (7): Cd007030.
   PubMed Web of Science ®Google Scholar
• Chen K , Marsh EB . Chronic post-stroke fatigue: it may no longer be about the stroke itself. Clin Neurol Neurosurg . 2018;174:192–197. doi:10.1016/j.clineuro.2018.09.027.
   PubMed Web of Science ®Google Scholar
• Kjork EK , Gunnel C , Lundgren-Nilsson A , Sunnerhagen KS . Experiences, needs, and preferences for follow-up after stroke perceived by people with stroke and healthcare professionals: A focus group study. PloS One . 2019;14:e0223338. doi:10.1371/journal.pone.0223338.
   PubMed Web of Science ®Google Scholar