747
Views
1
CrossRef citations to date
0
Altmetric
Research Article

Capability, opportunity, motivation, and social participation after stroke

, , ORCID Icon & ORCID Icon
Pages 423-435 | Received 28 Jun 2021, Accepted 17 Apr 2022, Published online: 05 May 2022

References

  • Rajsic S, Gothe H, Borba HH, et al. Economic burden of stroke: a systematic review on post-stroke care. Eur J Health Econ. 2019;20(1):107–134. doi:10.1007/s10198-018-0984-0.
  • Hankey GJ. Stroke. Lancet (British Edition). 2017;389:641.
  • Schöttke H, Giabbiconi C. Post-stroke depression and post-stroke anxiety: prevalence and predictors. Int Psychogeriatr. 2015;27(11):1805–1812. doi:10.1017/S1041610215000988.
  • Lincoln NB, Brinkmann N, Cunningham S, et al. Anxiety and depression after stroke: a 5 year follow-up. Disabil Rehabil. 2013;35(2):140–145. doi:10.3109/09638288.2012.691939.
  • Law M. Participation in the occupations of everyday life. Am J Occup Ther. 2002;56(6):640–649. doi:10.5014/ajot.56.6.640.
  • Levasseur M, Richard L, Gauvin L, Raymond É. Inventory and analysis of definitions of social participation found in the aging literature: proposed taxonomy of social activities. Soc Sci Med. 2010;71(12):2141–2149. doi:10.1016/j.socscimed.2010.09.041.
  • Woodman P, Riazi A, Pereira C, Jones F. Social participation post stroke: a meta-ethnographic review of the experiences and views of community-dwelling stroke survivors. Disability Rehabil. 2014;36(24):2031–2043. doi:10.3109/09638288.2014.887796.
  • Mayo NE, Wood Dauphinee S, Ahmed S. Disablement following stroke. Disabil Rehabil. 1999;21(258–268. doi:10.1080/096382899297684.
  • Obembe AO, Eng JJ. Rehabilitation interventions for improving social participation after stroke: a systematic review and meta-analysis. Neurorehabil Neural Repair. 2016;30(4):384–392. doi:10.1177/1545968315597072.
  • Wood J, Connelly D, Maly M. ‘Getting back to real living’: a qualitative study of the process of community reintegration after stroke. Clin Rehabil. 2010;24(11):1045–1056. doi:10.1177/0269215510375901.
  • Dalemans RJP, de Witte L, Wade D, van den Heuvel W. Social participation through the eyes of people with aphasia. Int J Lang Commun Disord. 2010;45(5):537–550. doi:10.3109/13682820903223633.
  • Noreau L, Desrosiers J, Robichaud L, Fougeyrollas P, Rochette A, Viscogliosi C. Measuring social participation: reliability of the LIFE-H in older adults with disabilities. Disability Rehabil. 2004;26(6):346–352. doi:10.1080/09638280410001658649.
  • Redfern J, McKevitt C, Wolfe CDA. Development of complex interventions in stroke care: a systematic review. Stroke (1970). 2006;37(9):2410–2419. doi:10.1161/01.STR.0000237097.00342.a9.
  • Feng Z, Cramm J, Nieboer A. Social participation is an important health behaviour for health and quality of life among chronically ill older Chinese people. BMC Geriatr. 2020;20(1):299. doi:10.1186/s12877-020-01713-6.
  • D’Alisa S, Baudo S, Mauro A, Miscio G. How does stroke restrict participation in long-term post-stroke survivors? Acta Neurol Scand. 2005;112(3):157–162. doi:10.1111/j.1600-0404.2005.00466.x.
  • Michie S, Atkins L, West R. Behaviour Change Wheel: A Guide to Designing Interventions. UK: Silverback Publishing; 2014.
  • Connell L, McMahon N, Redfern J, Watkins C, Eng J. Development of a behaviour change intervention to increase upper limb exercise in stroke rehabilitation. Implementat Sci. 2015;10(1):34. doi:10.1186/s13012-015-0223-3.
  • Barker F, de Lusignan S, Cooke D. Improving collaborative behaviour planning in adult auditory rehabilitation: development of the I-PLAN intervention using the behaviour change wheel. Ann Behav Med. 2018;52(6):489–500. doi:10.1007/s12160-016-9843-3.
  • Avery N, Patterson S. Physical health in public mental health care: a qualitative study employing the COM‐B model of behaviour to describe views and practices of australian psychologists. Aust Psychologist. 2018;53(4):302–312. doi:10.1111/ap.12302.
  • Penn C, Frankel T, Watermeyer J, Müller M. Informed consent and aphasia: evidence of pitfalls in the process. Aphasiology. 2009;23(1):3–32. doi:10.1080/02687030701521786.
  • Gloster AT, Rhoades HM, Novy D, et al. Psychometric properties of the depression anxiety and stress scale-21 in older primary care patients. J Affect Disord. 2008;110(3):248–259. doi:10.1016/j.jad.2008.01.023.
  • Jette AM, Haley SM, Coster WJ, et al. Late life function and disability instrument: i. development and evaluation of the disability component. J Gerontol A Biol Sci Med Sci. 2002;57(4):M209–M216. doi:10.1093/gerona/57.4.m209.
  • LeBrasseur NK, Sayers SP, Ouellette MM, Fielding RA. Muscle impairments and behavioral factors mediate functional limitations and disability following stroke. Phys Ther. 2006;86(10):1342–1350. doi:10.2522/ptj.20050162.
  • Ouellette MM, Lebrasseur NK, Bean JF, et al. High-intensity resistance training improves muscle strength, self-reported function, and disability in long-term stroke survivors. Stroke (1970). 2004;35(6):1404–1409. doi:10.1161/01.STR.0000127785.73065.34.
  • Chumbler NR, Quigley P, LI X, et al. Effects of telerehabilitation on physical function and disability for stroke patients A randomized, controlled trial. Stroke (1970). 2012;43(8):2168–2174. doi:10.1161/STROKEAHA.111.646943.
  • Wondergem R, Pisters MF, Wouters EM, de Bie RA, Visser-Meily JM, Veenhof C. Validation and responsiveness of the late-life function and disability instrument computerized adaptive test in community-dwelling stroke survivors. Eur J Phys Rehabil Med. 2019;55(4):424–432. doi:10.23736/S1973-9087.18.05359-5.
  • Beauchamp MK, Schmidt CT, Pedersen MM, Bean JF, Jette AM. Psychometric properties of the late-life function and disability instrument: a systematic review. BMC Geriatr. 2014;14(1):12. doi:10.1186/1471-2318-14-12.
  • van Genderen S, Plasqui G, van der Heijde D, et al. Social role participation and satisfaction with life: a study among patients with ankylosing spondylitis and population controls. Arthritis Care Res (2010). 2018;70(4):600–607. doi:10.1002/acr.23304.
  • Davis AM, Palaganas MP, Badley EM, Gladman DD, Inman RD, Gignac MA. Measuring participation in people with spondyloarthritis using the social role participation questionnaire. Ann Rheum Dis. 2011;70(10):1765–1769. doi:10.1136/ard.2010.149211.
  • Kraiss JT, Ten Klooster PM, Chrispijn M, Stevens AWMM, Kupka RW, Bohlmeijer ET. Measuring personal recovery in people with bipolar disorder and exploring its relationship with well-being and social-role participation. Clin Psychol Psychother. 2019;26(5):540–549. doi:10.1002/cpp.2371.
  • Gignac MAM, Backman CL, Davis AM, et al. Understanding social role participation: what matters to people with arthritis? J Rheumatol. 2008;35:1655–1663.
  • Hsueh I, Lin J, Jeng J, Hsieh C. Comparison of the psychometric characteristics of the functional Independence measure, 5 item barthel index, and 10 item barthel index in patients with stroke. J Neurol Neurosurg Psychiatry. 2002;73(2):188–190. doi:10.1136/jnnp.73.2.188.
  • Wu C, Hung S, Lin K, Chen K, Chen P, Tsay P. Responsiveness, minimal clinically important difference, and validity of the MoCA in stroke rehabilitation. Occup Ther Int. 2019;2019:7–2517658. doi:10.1155/2019/2517658.
  • Babulal GM, Tabor Connor L. The measure of stroke environment (MOSE): development and validation of the MOSE in post-stroke populations with and without aphasia. Top Stroke Rehabil. 2016;23(5):348–357. doi:10.1080/10749357.2016.1143697.
  • Eadie T, Kapsner‐Smith M, Bolt S, Sauder C, Yorkston K, Baylor C. Relationship between perceived social support and patient‐reported communication outcomes across communication disorders: a systematic review. Int J Lang Commun Disord. 2018;53(6):1059–1077. doi:10.1111/1460-6984.12417.
  • Sherbourne CD, Stewart AL. The MOS social support survey. Soc Sci Med. 1991;32(6):705–714. doi:10.1016/0277-9536(91)90150-B.
  • Fehnel SE, Bann CM, Hogue SL, Kwong WJ, Mahajan SS. The development and psychometric evaluation of the motivation and energy inventory (MEI). Qual Life Res. 2004;13(7):1321–1336. doi:10.1023/B:QURE.0000037502.64077.4d.
  • Khelif A, Saleh MN, Salama A, et al. Changes in health-related quality of life with long-term eltrombopag treatment in adults with persistent/chronic immune thrombocytopenia: findings from the EXTEND study. Am J Hematol. 2019;94(2):200–208. doi:10.1002/ajh.25348.
  • Alkozei A, Smith R, Kotzin MD, Waugaman DL, Killgore WDS. The association between trait gratitude and self-reported sleep quality is mediated by depressive mood state. Behav Sleep Med. 2019;17(1):41–48. doi:10.1080/15402002.2016.1276017.
  • von Elm E, Altman DG, Egger M, Pocock SJ, Gøtzsche PC, Vandenbroucke JP. Prof, for the STROBE initiative, & STROBE Initiative. The strengthening the reporting of observational studies in epidemiology (STROBE) statement: guidelines for reporting observational studies. Lancet (British Edition). 2007;370(9596):1453–1457. doi:10.1016/S0140-6736(07)61602-X.
  • Wilson Vanvoorhis CR, Morgan BL. Understanding power and rules of thumb for determining sample sizes. Tutorials Quant Methods Psychol. 2007;3(2):43–50. doi:10.20982/tqmp.03.2.p043.
  • Kleinbaum DG. Applied Regression Analysis and Other Multivariable Methods. 4th ed. Duxbury, Australia: Thomson Brooks/Cole; 2008.
  • Russell DW, Pang YC. Loneliness. In: Zeigler-Hill V, T.k S, eds. Encyclopedia of Personality and Individual Differences. Cham: Springer; 2020. h ttps://d oi-o rg.e zproxy.lib rary.ubc.ca/1 0.100 7/978-3-3 19-24612-3_1085
  • Ginis KAM, Arbour-Nicitopoulos KP, Latimer-Cheung AE, et al. Predictors of leisure time physical activity among people with spinal cord injury. Ann Behav Med. 2012;44(1):104–118. doi:10.1007/s12160-012-9370-9.
  • Musick MA, Herzog AR, House JS. Volunteering and mortality among older adults: findings from a national sample. J Gerontol B Psychol Sci Soc Sci. 1999;54B(3):S173–S180. doi:10.1093/geronb/54b.3.s173.
  • Tomioka K, Kurumatani N, Saeki K. The differential effects of type and frequency of social participation on IADL declines of older people. PloS One. 2018;13(11):e0207426. doi:10.1371/journal.pone.0207426.
  • Noreau L, Fougeyrollas P, Vincent C. The LIFE-H: assessment of the quality of social participation. Technol Disability. 2002;14(3):113–118. doi:10.3233/TAD-2002-14306.
  • Ryan RM, Deci EL. Self-determination Theory: Basic Psychological Needs in Motivation, Development, and Wellness. New York: Guilford Press; 2017.
  • Rapolienė J, Endzelytė E, Jasevičienė I, Savickas R. Stroke patients motivation influence on the effectiveness of occupational therapy. Rehabil Res Pract. 2018;2018:1–7. doi:10.1155/2018/9367942.
  • Törnbom K, Lundälv J, Sunnerhagen KS. Long-term participation 7-8 years after stroke: experiences of people in working-age. PloS One. 2019;14(3):e0213447. doi:10.1371/journal.pone.0213447.
  • Allen J, Farber S. Planning transport for social inclusion: an accessibility-activity participation approach. Trans Res Part D. 2020;78:102212. doi:10.1016/j.trd.2019.102212.
  • Jellema S, van der Sande R, van Hees S, Zajec J, Steultjens EM, Nijhuis-van der Sanden MW. Role of environmental factors on resuming valued activities poststroke: a systematic review of qualitative and quantitative findings. Arch Phys Med Rehabil. 2016;97(6):991–1002.e1. doi:10.1016/j.apmr.2016.01.015.
  • Erler KS, Sullivan V, Mckinnon S, Inzana R. Social support as a predictor of community participation after stroke. Front Neurol. 2019;10. doi:10.3389/fneur.2019.01013.
  • Amirkhosravi N, Adib-Hajbaghery M, Lotfi M, Hosseinian M. The correlation of social support and social participation of older adults in Bandar Abbas, Iran. J Gerontol Nurs. 2015;41(6):39–47. doi:10.3928/00989134-20150325-02.
  • Desrosiers J, Noreau L, Rochette A, Bourbonnais D, Bravo G, Bourget A. Predictors of long-term participation after stroke. Disabil Rehabil. 2006;28(4):221–230. doi:10.1080/09638280500158372.
  • Morris JH, MacGillivray S, Mcfarlane S. Interventions to promote long-term participation in physical activity after stroke: a systematic review of the literature. Arch Phys Med Rehabil. 2014;95(5):956–967. doi:10.1016/j.apmr.2013.12.016.
  • Viscogliosi C, Belleville S, Desrosiers J, Caron CD, Ska B. Participation after a stroke: changes over time as a function of cognitive deficits. Arch Gerontol Geriatr. 2011;52(3):336–343. doi:10.1016/j.archger.2010.04.020.
  • Perlmutter MS, Bhorade A, Gordon M, Hollingsworth HH, Baum MC. Cognitive, visual, auditory, and emotional factors that affect participation in older adults. Am J Occup Ther. 2010;64(4):570–579. doi:10.5014/ajot.2010.09089.
  • Ho A, Nicholas ML, Dagli C, Connor LT. Apathy, cognitive impairment, and social support contribute to participation in cognitively demanding activities poststroke. Behav Neurol. 2021;2021:8810632–8810638. doi:10.1155/2021/8810632.
  • Olgiati E, Russell C, Soto D, Malhotra P. Motivation and attention following hemispheric stroke. Prog Brain Res. 2016;229:343–366. doi:10.1016/bs.pbr.2016.06.011.
  • Miller WR, Rollnick S, Ebooks Corporation. Motivational Interviewing: Helping People Change. 3rd. New York, NY: Guilford Press; 2013.
  • Wu C. Facilitating intrinsic motivation in individuals with psychiatric illness: a study on the effectiveness of an occupational therapy intervention. Occup Ther J Res. 2001;21(3):142–167. doi:10.1177/153944920102100301.
  • Wolf TJ, Chuh A, Floyd T, McInnis K, Williams E. Effectiveness of occupation-based interventions to improve areas of occupation and social participation after stroke: an evidence-based review. Am J Occup Ther. 2015;69(1):69011800601–690118006011. doi:10.5014/ajot.2015.012195.
  • Logan PA, Gladman JRF, Avery A, Walker MF, Dyas J, Groom L. Randomised controlled trial of an occupational therapy intervention to increase outdoor mobility after stroke. BMJ. 2004;329(7479):1372–1374. doi:10.1136/bmj.38264.679560.8F.
  • Howe T. Found opportunities for social participation: facilitating inclusion of adults with aphasia. Topics Lang Disorder. 2017;37(1):38–51. doi:10.1097/TLD.0000000000000113.
  • Vanbellingen T, Ottiger B, Pflugshaupt T, et al. The responsiveness of the lucerne ICF-based multidisciplinary observation scale: a comparison with the functional Independence measure and the barthel index. Front Neurol. 2016;7:152. doi:10.3389/fneur.2016.00152.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.