Participation in daily life activities at two months after stroke predicts long-term health-related quality of life

References

• GBD. Stroke collaborators. global, regional, and national burden of stroke, 1990-2016: a systematic analysis for the global burden of disease study 2016. Lancet Neurol. 2015;18(5): 439–458. 2019.
   Google Scholar
• Katzan IL, Thompson NR, Uchino K, Lapin B. The most affected health domains after ischemic stroke. Neurology. 2018;90(16):e1364–71. doi:10.1212/WNL.0000000000005327.
   PubMed Web of Science ®Google Scholar
• Slenders JPL, Verberne DPJ, Visser-Meily JMA, Van den Berg-Vos RM, Kwa VIH, van Heugten CM. Early cognitive and emotional outcome after stroke is independent of discharge destination. J Neurol. 2020;267(11):3354–3361. doi:10.1007/s00415-020-09999-7.
   PubMed Web of Science ®Google Scholar
• Sexton E, McLoughlin A, Williams DJ, et al. Systematic review and meta-analysis of the prevalence of cognitive impairment no dementia in the first year post-stroke. Eur Stroke J. 2019;4(2):160–171. doi:10.1177/2396987318825484.
   PubMed Web of Science ®Google Scholar
• World Health Organization. Towards a common language for functioning, disability, and health: ICF. Int Classification Functioning Disabil Health. 2002;10. https://cdn.who.int/media/docs/default-source/classification/icf/icfbeginnersguide.pdf
   Google Scholar
• Schnitzler A, Jourdan C, Josseran L, Azouvi P, Jacob L, Genet F. Participation in work and leisure activities after stroke: a national study. Ann Phys Rehabil Med. 2019;62(5):351–355. doi:10.1016/j.rehab.2019.04.005.
   PubMed Web of Science ®Google Scholar
• Palstam A, Sjodin A, Sunnerhagen KS, Katsanos AH. Participation and autonomy five years after stroke: a longitudinal observational study. PLoS One. 2019;14(7):e0219513. doi:10.1371/journal.pone.0219513.
   PubMed Web of Science ®Google Scholar
• Engel-Yeger B, Tse T, Josman N, Baum C, Carey LM. Scoping review: the trajectory of recovery of participation outcomes following stroke. Behav Neurol. 2018;2018:5472018. doi:10.1155/2018/5472018.
   PubMed Web of Science ®Google Scholar
• Verberne DPJ, Post MWM, Kohler S, Carey LM, Visser-Meily JMA, van Heugten CM. Course of social participation in the first 2 years after stroke and its associations with demographic and stroke-related factors. Neurorehabil Neural Repair. 2018;32(9):821–833. doi:10.1177/1545968318796341.
   PubMed Web of Science ®Google Scholar
• Lee Y, Nicholas ML, Connor LT. Identifying emotional contributors to participation post-stroke. Top Stroke Rehabil. 2021;30(2):1–13. doi:10.1080/10749357.2021.2008597.
   Web of Science ®Google Scholar
• de Graaf JA, Schepers VPM, Nijsse B, et al. The influence of psychological factors and mood on the course of participation up to four years after stroke. Disabil Rehabil. 2022;44(10):1855–1862. doi:10.1080/09638288.2020.1808089.
   PubMed Web of Science ®Google Scholar
• Ezekiel L, Collett J, Mayo NE, Pang L, Field L, Dawes H. Factors associated with participation in life situations for adults with stroke: a systematic review. Arch Phys Med Rehabil. 2019;100(5):945–955. doi:10.1016/j.apmr.2018.06.017.
   PubMed Web of Science ®Google Scholar
• Della Vecchia C, Viprey M, Haesebaert J, et al. Contextual determinants of participation after stroke: a systematic review of quantitative and qualitative studies. Disabil Rehabil. 2019;43(13):1–13. doi:10.1080/09638288.2019.1679897.
   PubMed Web of Science ®Google Scholar
• Ianni C, Magee L, Dagli C, Nicholas ML, Connor LT. Self-reported emotional health and social support but not executive function are associated with participation after stroke. Top Stroke Rehabil. 2022:1–10. doi:10.1080/10749357.2022.2110192.
   PubMed Web of Science ®Google Scholar
• Winstein CJ, Stein J, Arena R, et al. Guidelines for adult stroke rehabilitation and recovery: a guideline for healthcare professionals from the American heart association/American stroke association. Stroke. 2016;47(6):e98–169. doi:10.1161/STR.0000000000000098.
   PubMed Web of Science ®Google Scholar
• Obembe AO, Eng JJ. Rehabilitation interventions for improving social participation after stroke: a systematic review and meta-analysis. Neurorehabil Neural Repair. 2016;30(4):384–392. doi:10.1177/1545968315597072.
   PubMed Web of Science ®Google Scholar
• Miller KK, Lin SH, Neville M. From hospital to home to participation: a position paper on transition planning poststroke. Arch Phys Med Rehabil. 2019;100(6):1162–1175. doi:10.1016/j.apmr.2018.10.017.
   PubMed Web of Science ®Google Scholar
• Wang R, Langhammer B. Predictors of quality of life for chronic stroke survivors in relation to cultural differences: a literature review. Scand J Caring Sci. 2018;32(2):502–514. doi:10.1111/scs.12533.
   PubMed Web of Science ®Google Scholar
• Ekstrand E, Brogårdh C. Life satisfaction after stroke and the association with upper extremity disability, sociodemographics, and participation. PM&R. 2022;14(8):922–930. doi:10.1002/pmrj.12712.
   Web of Science ®Google Scholar
• Vincent-Onabajo GO, Hamzat TK, Owolabi MO. Consistent determinants of health-related quality of life in the first 12 months after stroke: a prospective study in Nigeria. Top Stroke Rehabil. 2015;22(2):127–133. doi:10.1179/1074935714Z.0000000033.
   PubMed Web of Science ®Google Scholar
• Kwok T, Pan JH, Lo R, Song X. The influence of participation on health-related quality of life in stroke patients. Disab and Rehabil. 2011;33(21–22):1990–1996. doi:10.3109/09638288.2011.553709.
   PubMed Web of Science ®Google Scholar
• White J, Magin P, Attia J, Sturm J, McElduff P, Carter G. Predictors of health-related quality of life in community-dwelling stroke survivors: a cohort study. Fam Pract. 2016;33(4):382–387. doi:10.1093/fampra/cmw011.
   PubMed Web of Science ®Google Scholar
• van Mierlo ML, van Heugten CM, Post MWM, et al. A longitudinal cohort study on quality of life in stroke patients and their partners: restore4Stroke Cohort. Int J Stroke. 2014;9(1):148–154. doi:10.1111/j.1747-4949.2012.00882.x.
   PubMed Web of Science ®Google Scholar
• Meijer R, van Limbeek J, de Haan R. Development of the stroke-unit discharge guideline: choice of assessment instruments for prediction in the subacute phase post-stroke. Int J Rehabil Res. 2006;29(1):1–8. doi:10.1097/01.mrr.0000175269.59788.41.
   PubMed Web of Science ®Google Scholar
• Brott T, Adams HP, Olinger CP, et al. Measurements of acute cerebral infarction: a clinical examination scale. Stroke. 1989;20(7):864–870. doi:https://doi.org/10.1161/01.STR.20.7.864.
   PubMed Web of Science ®Google Scholar
• Collin C, Wade DT, Davies S, Horne V. The Barthel ADL Index: a reliability study. Int Disabil Stud. 1988;10(2):61–63. doi:10.3109/09638288809164103.
   PubMedGoogle Scholar
• Nasreddine ZS, Phillips NA, Bé Dirian V, et al. The Montreal Cognitive Assessment, MoCA: a brief screening tool for mild cognitive impairment. J Am Geriatr Soc. 2005;53(4):695–699. doi:10.1111/j.1532-5415.2005.53221.x.
   PubMed Web of Science ®Google Scholar
• Post MW, van der Zee CH, Hennink J, et al. Validity of the Utrecht scale for evaluation of rehabilitation-participation. Disabil Rehabil. 2012;34(6):478–485. doi:10.3109/09638288.2011.608148.
   PubMed Web of Science ®Google Scholar
• Post, van der Zee CH, Kap A, Rambaran Mishre R, Schouten EJ, Post M. Responsiveness of four participation measures to changes during and after outpatient rehabilitation. J Rehabil Med. 2011;43(11):1003–1009. doi:10.2340/16501977-0879.
   PubMed Web of Science ®Google Scholar
• de Graaf JA, Volkers EJ, Schepers VPM, Visser-Meily VPM, Post JMA, de Graaf MWM. Validity of the Utrecht scale for evaluation of rehabilitation-participation restrictions scale in a hospital-based stroke population 3 months after stroke. Top Stroke Rehabil. 2022;29(7):516–525. doi:10.1080/10749357.2021.1956047.
   PubMed Web of Science ®Google Scholar
• van der Zee CH, Baars-Elsinga A, Visser-Meily JMA, Post JM, van der Zee MW. Responsiveness of two participation measures in an outpatient rehabilitation setting. Scand J Occup Ther. 2013;20(3):201–208. doi:10.3109/11038128.2012.754491.
   PubMed Web of Science ®Google Scholar
• Versteegh M, Vermeulen M, Evers MAA, GAd W, Prenger R, Stolk A. Dutch tariff for the five-level version of EQ-5D. Value Health. 2016;19(4):343–352. doi:10.1016/j.jval.2016.01.003.
   PubMed Web of Science ®Google Scholar
• Hunger M, Sabariego C, Stollenwerk B, Cieza A, Leidl R. Validity, reliability and responsiveness of the EQ-5D in German stroke patients undergoing rehabilitation. Qual Life Res. 2012;21(7):1205–1216. doi:10.1007/s11136-011-0024-3.
   PubMed Web of Science ®Google Scholar
• Verhage F. Intelligence and Age: Study with Dutch People Aged. Assen: Van Gorcum; 1964.
   Google Scholar
• Ebrahim S. Clinical and public health perspectives and applications of health-related quality of life measurement. Social Sci Med. 1995;41(10):1383–1394. doi:10.1016/0277-9536(95)00116-o.
   PubMed Web of Science ®Google Scholar
• Haraldstad K, Wahl A, Andenæs R, et al. A systematic review of quality of life research in medicine and health sciences. Qual Life Res. 2019;28(10):2641–2650. doi:10.1007/s11136-019-02214-9.
   PubMed Web of Science ®Google Scholar
• Zhang Q, Schwade M, Smith Y, Wood R, Young L. Exercise-based interventions for post-stroke social participation: a systematic review and network meta-analysis. Int J Nurs Stud. 2020;111:103738. doi:10.1016/j.ijnurstu.2020.103738.
   PubMed Web of Science ®Google Scholar
• van Uem JM, van Uem JMT, Marinus J, et al. Health-related quality of life in patients with Parkinson’s disease—A systematic review based on the ICF model. Neurosci Biobehav Rev. 2016;61:26–34. doi:10.1016/j.neubiorev.2015.11.014.
   PubMed Web of Science ®Google Scholar
• Dijkers M. Quality of life after spinal cord injury: a meta analysis of the effects of disablement components. Spinal Cord. 1997;35(12):829–840. doi:10.1038/sj.sc.3100571.
   PubMed Web of Science ®Google Scholar
• Gittler M, Davis AM. Guidelines for adult stroke rehabilitation and recovery. JAMA. 2018;319(8):820–821. doi:10.1001/jama.2017.22036.
   PubMed Web of Science ®Google Scholar
• Teasell R, Salbach NM, Foley N, et al. Canadian stroke best practice recommendations: rehabilitation, recovery, and community participation following stroke. part one: rehabilitation and recovery following stroke; 6th edition update 2019. Int J Stroke. 2020;15(7):763–788. doi:10.1177/1747493019897847.
   PubMed Web of Science ®Google Scholar
• Chen T, Zhang B, Deng Y, Fan JC, Zhang L, Song F. Long-term unmet needs after stroke: systematic review of evidence from survey studies. BMJ Open. 2019;9(5):e028137. doi:10.1136/bmjopen-2018-028137.
   PubMed Web of Science ®Google Scholar
• Lee D, Heffron JL, Mirza M. Content and effectiveness of interventions focusing on community participation poststroke: a systematic review. Arch Phys Med Rehabilit. 2019;100(11):2179–92.e1. doi:10.1016/j.apmr.2019.06.008.
   PubMed Web of Science ®Google Scholar
• Chen P, Lin KC, Liing RJ, Wu CY, Chen CL, Chang KC. Validity, responsiveness, and minimal clinically important difference of EQ-5D-5L in stroke patients undergoing rehabilitation. Qual Life Res. 2016;25(6):1585–1596. doi:10.1007/s11136-015-1196-z.
   PubMed Web of Science ®Google Scholar
• Coretti S, Ruggeri M, McNamee P. The minimum clinically important difference for EQ-5D index: a critical review. Expert Rev Pharmacoecon Outcomes Res. 2014;14(2):221–233. doi:10.1586/14737167.2014.894462.
   PubMed Web of Science ®Google Scholar