466
Views
14
CrossRef citations to date
0
Altmetric
Research Articles

Translating a spinal cord injury self-management intervention for online and telehealth delivery: A community-engaged research approach

, &

References

  • Lorig KR, Holman HR. Self-management education: history, definition, outcomes and mechanisms. Ann Behav Med 2003;26(1):1–7. doi: 10.1207/S15324796ABM2601_01
  • Molton IR, Jensen MP, Nielson W, Cardenas D, Ehde DM. A preliminary evaluation of the motivational model of pain self-management in persons with spinal cord injury–related pain. J Pain 2008;9(7):606–12. doi: 10.1016/j.jpain.2008.01.338
  • Koojimans H, Post M, van der Woude L, de Groot S, Stam H, Bussman JB. Randomized controlled trial of self-management intervention in persons with spinal cord injury: design of HABITS (healthy active behavioral intervention in SCI) study. Disabil Rehabil 2013;35(13):1111–8. doi: 10.3109/09638288.2012.718406
  • Hirshe RC, Williams B, Jones A, Manns P. Chronic disease self-management for individuals with stroke, multiple sclerosis and spinal cord injury. Disabil Rehabil 2011;33(13-14):1136–46. doi: 10.3109/09638288.2010.523103
  • Munce SEP, Fehlings MG, Straus SE, Nugaeva N, Jang E, Webster F, Jaglal SB. Views of people with traumatic spinal cord injury about the components of self-management programs and program delivery: a Canadian pilot study. BMC Neurol 2014;14:1397.
  • Munce SEP, Webster F, Fehlings MG, Straus SE, Jang E, Jaglal SB. Perceived facilitators and barriers to self-management in individuals with traumatic spinal cord injury: a qualitative descriptive study. BMC Neurol 2014;14:63. doi: 10.1186/1471-2377-14-63
  • Newman SD, Gillenwater G, Toatley S, Rodgers MD, Todd N, Epperly D, et al. A community-based participatory research approach to the development of a peer navigator health promotion intervention for people with spinal cord injury. Disabil Health J 2014;7(4):478–84. doi: 10.1016/j.dhjo.2014.04.006
  • Standal ØF, Jespersen E. Peers as resources for learning: a situated learning approach to adapted physical activity in rehabilitation. Adapt Phys Activ Q 2008;25:208–27. doi: 10.1123/apaq.25.3.208
  • Haas BM, Price L, Freeman JA. Qualitative evaluation of a community peer support service for people with spinal cord injury. Spinal Cord 2013;51:295–9. doi: 10.1038/sc.2012.143
  • Veith EM, Sherman JE, Pellino TA, Yasui NY. Qualitative analysis of the peer-mentoring relationship among individuals with spinal cord injury. Rehabil Psychol 2006;51:289–98. doi: 10.1037/0090-5550.51.4.289
  • Ljungberg I, Kroll T, Libin A, Gordon S. Using peer mentoring for people with spinal cord injury to enhance self-efficacy beliefs and prevent medical complications. J Clin Nurs 2011;20:351–8. doi: 10.1111/j.1365-2702.2010.03432.x
  • Rimmer JH, Wang E, Pellegrini CA, Lullo C, Gerber BS. Telehealth weight management intervention for adults with physical disabilities: a randomized controlled trial. Am J Phys Med Rehabil 2013;92(12):1084–94. doi: 10.1097/PHM.0b013e31829e780e
  • Houlihan BV, Jette A, Friedman RH, Paasche-Orlow M, Ni P, Wierbicky J, et al. A pilot study of a telehealth intervention for persons with spinal cord dysfunction. Spinal Cord 2013;51:715–20. doi: 10.1038/sc.2013.45
  • Woo C, Guihan M, Frick C, Gill CM, Ho CH. What’s happening now? Telehealth management of spinal cord injury/disorders. J Spinal Cord Med 2011;34(3):322–31 doi: 10.1179/2045772311Y.0000000003
  • Kairy D, Lehoux P, Vincent C, Visintin M. A systematic review of clinical outcomes, clinical process, healthcare utilization and costs associated with telerehabilitation. Disabil Rehabil 2009;31(6):427–47. doi: 10.1080/09638280802062553
  • Ahmed SM, Palermo AS. Community engagement in research: frameworks for education and peer review. Am J Public Health 2010;100(8):1380–7. doi: 10.2105/AJPH.2009.178137
  • Bandura A. Social cognitive theory: an agentic perspective. Annu Rev Psychol 2001;52:1–26. doi: 10.1146/annurev.psych.52.1.1
  • Bandura A. Human agency in social cognitive theory. Am Psychol 1989; 44:1175–84. doi: 10.1037/0003-066X.44.9.1175
  • Bandura A, Adams NE, Beyer J. Cognitive processes mediating behavioral change. J Pers Soc Psychol 1977;35:125–39. doi: 10.1037/0022-3514.35.3.125
  • Newman SD. Evidence-based advocacy: using photovoice to identify barriers and facilitators to community participation after spinal cord injury. Rehabil Nurs 2010;35(2):47–59. doi: 10.1002/j.2048-7940.2010.tb00031.x
  • Newman S, Maurer D, Jackson A, Saxon M, Jones R, Reese G. Gathering the evidence: photovoice as a tool for disability advocacy. Prog Comm Health Partnersh 2008;3(2):139–44. doi: 10.1353/cpr.0.0074
  • Drum CE, Peterson JJ, Culley C, Krahn G, Heller T, Kimpton T, et al. Guidelines and criteria for the implementation of community-based health promotion programs for individuals with disabilities. Am J Health Prom 2009;24(2):93–101. doi: 10.4278/ajhp.090303-CIT-94
  • Newman SD, Andrews JO, Magwood GS, Jenkins C, Cox MJ, Williamson DC. Community advisory boards in community-based participatory research: a synthesis of best processes. Prev Chronic Dis 2011;8(3):A70.
  • National Spinal Cord Injury Statistical Center. Facts and figures at a glance. 2016 [accessed 29 September 2017]. Available from https://www.nscisc.uab.edu/Public/Facts%202016.pdf.
  • Model Systems Knowledge Translation Center. Spinal cord injury factsheets. 2017 [accessed 29 September 2017]. Available from http://www.msktc.org/sci/factsheets.
  • MedStar National Rehabilitation Hospital. Healthy tomorrow video library. 2017 [accessed 29 September 2017]. Available from https://www.youtube.com/user/HealthyTomorrow/videos.
  • Parmanto B, Pramana G, Yu DX, Fairman AD, Dicianno BE, McCue MP. iMHere: a novel mHealth system for supporting self-care in management of complex and chronic conditions. JMIR Mhealth Uhealth 2013;1(2):e10. doi: 10.2196/mhealth.2391
  • Virzi RA. Refining the test phase usability evaluation: how many subjects is enough? Hum Factors 1992;34(4):457–68. doi: 10.1177/001872089203400407
  • Waltz CF. Interviewing. In: Waltz CF, Strickland OL, Lenz ER, (eds.). Measurement in Nursing Health and Research, 3rd edition. New York: Springer Publishing Company; 2005. p. 246–58.
  • Brooke J. SUS: A “quick and dirty” usability scale. In: Jordan PW, Thomas B, Weerdmeester BA, & McClelland AL, (eds.), Usability Evaluation in Industry. London: Taylor and Francis, 1996. p. 189–94.
  • Sauro J. SUPR-Q: A comprehensive measure of the quality of the website user experience. J Usability Stud 2015;10(2):68–86.
  • Luxton D, Mishkind M, Crumpton R, Ayers T, Mysliwiec V. (2012). Usability and feasibility of smartphone video capabilities for telehealth care in the U.S. military. Telemed J E Health 2012;18(6):409–12. doi: 10.1089/tmj.2011.0219
  • Sandelowski M. (2000). Whatever happened to qualitative description? Res Nurs Health 2000;23(4):334–40. doi: 10.1002/1098-240X(200008)23:4<334::AID-NUR9>3.0.CO;2-G
  • Sandelowski M. What’s in a name? Qualitative description revisited. Res Nurs Health 2010;33(1):77–84.
  • Bradshaw C, Atkinson S, Doody O. Employing a qualitative descriptive approach in health care research. Glob Qual Nurs Res 2017;4:1–8.
  • Wilde MH, McMahon JM, Fairbanks E, Brasch J, Parshall R, Zhang F, et al. Feasibility of a web-based self-management intervention for intermittent urinary catheter users with spinal cord injury. J Wound Ostomy Continence Nurs 2016;43(5):529–38. doi: 10.1097/WON.0000000000000256
  • Houlihan BV, Everhart-Skeels S, Gutnick D, Pernigotti D, Zazula J, Brody M, et al. Empowering adults with chronic spinal cord injury to prevent secondary conditions. Arch Phys Med Rehab 2016;97:1687–95. doi: 10.1016/j.apmr.2016.04.005
  • Houlihan BV, Brody M, Everhart-Skeels S, Pernigotti D, Burnett S., Zazula J, et al. Randomized trial of a peer-led, telephone-based empowerment intervention for persons with chronic spinal cord injury improves health self-management. Arch Phys Med Rehabil 2017;98(6):1067–76. doi: 10.1016/j.apmr.2017.02.005
  • Gassaway J, Jones ML, Sweatman WM, Hong M, Anziano P, DeVault K. Effects of peer mentoring on self-efficacy and hospital readmission after inpatient rehabilitation of individuals with spinal cord injury: a randomized controlled trial. Arch Phys Med Rehab 2017;98(8):1526–34. doi: 10.1016/j.apmr.2017.02.018
  • Cyril S, Smith BJ, Possamai-Inesedy A, Renzaho, AMN. Exploring the role of community engagement in improving the health of disadvantaged populations: a systematic review. Glob Health Action 2015;8:29842. doi: 10.3402/gha.v8.29842
  • Allin S, Shepherd J, Tomasone J, Munce S, Linassi G, Hossain SN, Jaglal S. Participatory design of an online self-management tool for users with spinal cord injury: qualitative study. JMIR Rehabil Assist Technol 2018;5(1):e6. doi: 10.2196/rehab.8158
  • Wright D, Wimbush E, Jepson R, Doi, L. Six steps in quality intervention development (6SQuID). J Epidemiol Community Health 2016;70:520–5. doi: 10.1136/jech-2015-205952
  • Luxton DD, Kayl RA, Mishkind MC. Mhealth data security: The need for HIPAA-compliant standardization. Telemed J E Health 2012;18:284–8. doi: 10.1089/tmj.2011.0180

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.