234
Views
0
CrossRef citations to date
0
Altmetric
Research Article

Expert consensus for a digital peer-led approach to improving physical activity among individuals with spinal cord injury who use manual wheelchairs

ORCID Icon, , ORCID Icon & ORCID Icon

References

  • Gibbs JC, Gagnon DH, Bergquist AJ, Arel J, Cervinka T, El-Kotob R, et al. Rehabilitation interventions to modify endocrine-metabolic disease risk in individuals with chronic spinal cord injury living in the community (RIISC): a systematic review and scoping perspective. J Spinal Cord Med 2017;40(6):733–47. doi:10.1080/10790268.2017.1350341.
  • Anderson LS, Heyne LA. Physical activity for children and adults with disabilities: an issue of “amplified” importance. Disabil Health J 2010;3(2):71–3. doi:10.1016/j.dhjo.2009.11.004.
  • Williams TL, Smith B, Papathomas A. The barriers, benefits and facilitators of leisure time physical activity among people with spinal cord injury: a meta-synthesis of qualitative findings. Health Psychol Rev 2014;8(4):404–25. doi:10.1080/17437199.2014.898406.
  • Ginis KAM, Nigg CR, Smith AL. Peer-delivered physical activity interventions: an overlooked opportunity for physical activity promotion. Transl Behav Med 2013;3(4):434–43. doi:10.1007/s13142-013-0215-2.
  • Rocchi M, Routhier F, Latimer-Cheung AE, Martin Ginis K, Noreau L, Sweet SN. Are adults with spinal cord injury meeting the spinal cord injury-specific physical activity guidelines? A look at a sample from a Canadian province. Spinal Cord 2017;55(5):454–9. doi:10.1038/sc.2016.181.
  • Best KL, Arbour-Nicitopoulos KP, Sweet SN. Community-based physical activity and wheelchair mobility programs for individuals with spinal cord injury in Canada: current reflections and future directions. J Spinal Cord Med 2017;40(6):777–82. doi:10.1080/10790268.2017.1367363.
  • Cardenas DD, Yilmaz B. Recruitment of spinal cord injury patients to clinical trials: challenges and solutions. Top Spinal Cord Inj Rehabil 2006;11(3):12–23. doi:10.1310/FAEH-YGYJ-Q4LF-0X6W.
  • Gorgey AS. Exercise awareness and barriers after spinal cord injury. World J Orthop 2014;5(3):158. doi:10.5312/wjo.v5.i3.158.
  • Kehn M, Kroll T. Staying physically active after spinal cord injury: a qualitative exploration of barriers and facilitators to exercise participation. BMC Public Health 2009;9. doi:10.1186/1471-2458-9-168.
  • Vissers M, van den Berg-Emons R, Sluis T, Bergen M, Stam H, Bussmann H. Barriers to and facilitators of everyday physical activity in persons with a spinal cord injury after discharge from the rehabilitation centre. J Rehabil Med 2008;40(6):461–7. doi:10.2340/16501977-0191.
  • Martin Ginis KA, Ma JK, Latimer-Cheung AE, Rimmer JH. A systematic review of review articles addressing factors related to physical activity participation among children and adults with physical disabilities. Health Psychol Rev 2016. doi:10.1080/17437199.2016.1198240.
  • Craig P, Dieppe P, Macintyre S, Michie S, Nazareth I, Petticrew M. Developing and evaluating complex interventions: the new Medical Research Council guidance. Br Med J 2008;337(Sep 29 1):a1655. doi:10.1136/bmj.a1655.
  • Best KL, Routhier F, Sweet SN, Lacroix E, Arbour-Nicitopoulos KP, Borisoff JF. Smartphone-delivered peer physical activity counseling program for individuals with spinal cord injury: protocol for development and pilot evaluation. JMIR Res Protoc 2019;8(3):e10798. Published 2019 Mar 22. doi:10.2196/10798.
  • Fortier MS, Hogg W, O’Sullivan TL, Blanchard C, Reid RD, Sigal RJ, et al. The physical activity counselling (PAC) randomized controlled trial: rationale, methods, and interventions. Appl Physiol Nutr Metab 2007;32(6):1170–85. doi:10.1139/H07-075.
  • Beaudoin M, Best K, Routhier F. Systematic review of peer-led rehabilitation interventions for improving mobility and participation outcomes among adults with mobility impairments. Disabil Rehabil 2020;42(13):1785–96. doi:10.1080/09638288.2018.1537380.
  • Miller WC, Best KL, Eng JJ, Routhier F. Influence of peer-led wheelchair training on wheelchair skills and participation in older adults: clinical outcomes of a randomized controlled feasibility trial. Arch Phys Med Rehabil 2019;100(6):1023–31.
  • Best KL, Miller WC, Huston G, Routhier F, Eng JJ. Pilot study of a peer-led wheelchair training program to improve self-efficacy using a manual wheelchair: a randomized controlled trial. Arch Phys Med Rehabil 2016;97(1):37–44. doi:10.1016/j.apmr.2015.08.425.
  • Chemtob K, Caron J, Fortier M, Latimer-Cheung A, Zelaya W, Sweet S. Exploring the peer mentorship experiences of adults with spinal cord injury. Rehabil Psychol 2018;63(4):542–52.
  • May L, Day R, Warren S. Perceptions of patient education in spinal cord injury rehabilitation. Disabil Rehabil 2006;28(17):1041–9. doi:10.1080/09638280500494744.
  • Sweet SN, Michalovic E, Latimer-Cheung AE, Fortier M, Noreau L, Zelaya W, et al. Spinal cord injury peer mentorship: applying self-determination theory to explain quality of life and participation. Arch Phys Med Rehabil 2018;99:468–76.e12. doi:10.1016/j.apmr.2017.08.487.
  • Divanoglou A, Tasiemski T, Augutis M, Trok K. Active rehabilitation – a community peer-based approach for persons with spinal cord injury: international utilisation of key elements. Spinal Cord 2017. doi:10.1038/sc.2017.28.
  • Arbour-Nicitopoulos KP, Tomasone JR, Latimer-Cheung AE, Martin Ginis KA. Get in motion: an evaluation of the reach and effectiveness of a physical activity telephone counseling service for canadians living with spinalcord injury. PM&R 2014;6(12):1088–96. doi:10.1016/j.pmrj.2014.05.018.
  • Nooijen CFJ, Stam HJ, Sluis T, Valent L, Twisk J, Van Den Berg-Emons RJG. A behavioral intervention promoting physical activity in people with subacute spinal cord injury: secondary effects on health, social participation and quality of life. Clin Rehabil 2017. doi:10.1177/0269215516657581.
  • Tomasone JR, Arbour-Nicitopoulos KP, Latimer-Cheung AE, Martin Ginis KA. The relationship between the implementation and effectiveness of a nationwide physical activity telephone counseling service for adults with spinal cord injury. Disabil Rehabil 2018;40(5):527–37. doi:10.1080/09638288.2016.1261415.
  • Taek Kim I, Hyun Mun J, Sung Jun P, Chan Kim G, Sim Y-J, Joong Jeong H. Leisure time physical activity of people with spinal cord injury: mainly with clubs of spinal cord injury patients in Busan-Kyeongnam, Korea. Ann Rehabil Med 2011;35:613–26. doi:10.5535/arm.2011.35.5.613.
  • Bock C, Jarczok MN, Litaker D. Community-based efforts to promote physical activity: a systematic review of interventions considering mode of delivery, study quality and population subgroups. J Sci Med Sport 2014;17(3):276–82. doi:10.1016/j.jsams.2013.04.009.
  • Martin Ginis KA, van der Scheer JW, Latimer-Cheung AE, et al. Evidence-based scientific exercise guidelines for adults with spinal cord injury: an update and a new guideline. Spinal Cord 2018;56(4):308–321.
  • Pelletier CA, Totosy De Zepetnek JO, Macdonald MJ, Hicks AL. A 16-week randomized controlled trial evaluating the physical activity guidelines for adults with spinal cord injury. Spinal Cord 2015;53(5):363–67. doi:10.1038/sc.2014.167.
  • Bandura A. Self-efficacy: the exercise of control. New York: W.H. Freeman and company. Am Psychol Assoc 1997;23:604.
  • Santarossa S, Kane D, Senn C, Woodruff SJ. Exploring the role of in-person components for online health behavior change interventions: can a digital person-to-person component suffice? J Med Internet Res 2018;20(4):e144.
  • Rosenberg DE, Bombardier CH, Hoffman JM, Belza B. Physical activity among persons aging with mobility disabilities: shaping a research agenda. J Aging Res 2011;2011:1–16. doi:10.4061/2011/708510.
  • Best KL, Routhier F, Sweet SN, Arbour-Nicitopoulos KP, Borisoff JF, Noreau L, et al. The smartphone peer physical activity counseling (SPPAC) program for manual wheelchair users: protocol of a pilot randomized controlled trial. JMIR Res Protoc 2017;6(4):e69. doi:10.2196/resprot.7280.
  • Kroll T, Morris J. Challenges and opportunities in using mixed method designs in rehabilitation research. Arch Phys Med Rehabil 2009;90(11 SUPPL. 1). doi:10.1016/j.apmr.2009.04.023.
  • Webber M, Reidy H, Ansari D, Stevens M, Morris D. Developing and modeling complex social interventions: introducing the connecting people intervention. Res Soc Work Pract 2016;26(1):14–19. doi:10.1177/1049731515578687.
  • Castillo-Montoya M. Preparing for interview research: the interview protocol refinement framework. Qual Rep 2016;21(5):811–31. Retrieved from: http://nsuworks.nova.edu/cgi/viewcontent.cgi?article=2337&context=tqr.
  • Stewart AL, Grossman M, Bera N, Gillis DE., Sperber N, Castrillo M, et al. Multilevel perspectives on diffusing a physical activity promotion program to reach diverse older adults. J Aging Phys Act 2006;14(3):270–87. doi:10.1123/japa.14.3.270.
  • Krueger RA, Casey MA. Focus groups: a practical guide for applied research. Rev Lit Arts Am 2000;22:129–52. doi:10.1002/j.1556-6678.2007.tb00462.x.
  • Hsieh H-F, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res 2005;15(9):1277–88. doi:10.1177/1049732305276687.
  • Linstone HA, Turoff M. The delphi method – techniques and applications; 2002. doi:10.2307/1268751.
  • Kennedy HP. Enhancing delphi research: methods and results. J Adv Nurs 2004;45(5):504–11. doi:10.1046/j.1365-2648.2003.02933.x.
  • Wetzel AP. Internet, mail, and mixed-mode surveys: the tailored design method*. J Contin Educ Health Prof 2010. doi:10.1002/chp.20083.
  • Hsu C, Sandford B. The delphi technique: making sense of consensus. Pract Assessment, Res Eval 2007. doi:10.1016/S0169-2070(99)00018-7.
  • Sumsion T. The delphi technique: an adaptive research tool. Br J Occup Ther 1998;61(4):153–6. doi:10.1177/030802269806100403.
  • Staniszewska S, Herron-Marx S, Mockford C. Measuring the impact of patient and public involvement: the need for an evidence base. Int J Qual Heal Care 2008;20(6):373–4. doi:10.1093/intqhc/mzn044.
  • Lebrasseur A, Fortin-Bédard N, Lettre J, Bussières E-L, Best K, Boucher N, et al. Impact of COVID-19 on people with physical disabilities: a rapid review. Disabil Health J 2021 Jan;14(1):101014. doi:10.1016/j.dhjo.2020.101014.
  • Weman-Josefsson K, Lindwall M, Ivarsson A. Need satisfaction, motivational regulations and exercise: moderation and mediation effects. Int J Behav Nutr Phys Act 2015;12(1). doi:10.1186/s12966-015-0226-0.
  • Lamontagne ME, Best KL, Clarke T, Dumont FS, Noreau L. Implementation evaluation of an online peer-mentor training program for individuals with spinal cord injury. Top Spinal Cord Inj Rehabil 2019. doi:10.1310/sci19-00002.
  • Sweet SN, Michalovic E, Ginis KAm, et al. Peer mentorship and participation among adults with spinal cord injury: the moderating role of years since injury. J Exerc Movement, Sport 2016;48(1).
  • Skeels SE, Pernigotti D, Houlihan BV, et al. SCI peer health coach influence on self-management with peers: a qualitative analysis. Spinal Cord 2017. doi:10.1038/sc.2017.104.
  • Allin S, Shepherd J, Tomasone J, et al. Participatory design of an online self-management tool for users with spinal cord injury: qualitative study. J Med Internet Res 2018;20(3). doi:10.2196/rehab.8158.
  • Standal ØF, Jespersen E. Peers as resources for learning: a situated learning approach to adapted physical activity in rehabilitation. Adapt Phys Act Q 2008;25(3):208–27. doi:10.1123/apaq.25.3.208.
  • Letts L, Martin Ginis KA, Faulkner G, Colquhoun H, Levac D, Gorczynski P. Preferred methods and messengers for delivering physical activity information to people with spinal cord injury: a focus group study. Rehabil Psychol 2011;56(2):128–37. doi:10.1037/a0023624.
  • Allin S, Shepherd J, Thorson T, et al. Web-based health coaching for spinal cord injury: results from a mixed methods feasibility evaluation. JMIR Rehabil Assist Technol 2020. doi:10.2196/16351.
  • Partridge SR, Gallagher P, Freeman B, Gallagher R. Facebook groups for the management of chronic diseases. J Med Internet Res 2018;20(1):e21. doi:10.2196/jmir.7558.
  • Williams G, Hamm MP, Shulhan J, Vandermeer B, Hartling L. Social media interventions for diet and exercise behaviours: a systematic review and meta-analysis of randomised controlled trials. BMJ Open 2014;4(2). doi:10.1136/bmjopen-2013-003926.
  • Ferrer DA, Ellis R. A review of physical activity interventions delivered via facebook. J Phys Act Health 2017;14(10):823–33. doi:10.1123/jpah.2016-0534.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.