References
- Ehrmann C, Reinhardt JD, Joseph C, Hasnan N, Perrouin-Verbe B, Tederko P, et al. Describing functioning in people living with spinal cord injury across 22 countries: a graphical modeling approach. Arch Phys Med Rehabil [Internet] 2020 Dec [cited 2020 Oct 17];101(12):2112–2143. Available from: https://pubmed.ncbi.nlm.nih.gov/32980339/
- Pacheco Barzallo D, Gross-Hemmi M, Bickenbach J, Juocevičius A, Popa D, Wahyuni LK, et al. Quality of life and the health system: a 22-country comparison of the situation of people with spinal cord injury. Arch Phys Med Rehabil [Internet] 2020 Dec 1 [cited 2021 Feb 5];101(12):2167–2176. Available from: https://pubmed.ncbi.nlm.nih.gov/32533934/
- Reinhardt JD, Middleton J, Bökel A, Kovindha A, Kyriakides A, Hajjioui A, et al. Environmental barriers experienced by people with spinal cord injury across 22 countries: results from a cross-sectional survey. Arch Phys Med Rehabil [Internet] 2020 Dec [cited 2020 Nov 12];101(12):2144–2156. Available from: https://linkinghub.elsevier.com/retrieve/pii/S0003999320303622
- Wannapakhe J, Arrayawichanon P, Saengsuwan J, Amatachaya S. Medical complications and falls in patients with spinal cord injury during the immediate phase after completing a rehabilitation program. J Spinal Cord Med [Internet] 2015 Jan 11;38(1):84–90. Available from: http://www.tandfonline.com/doi/full/10.11792045772313Y.0000000173
- Amatachaya S, Wannapakhe J, Arrayawichanon P, Siritarathiwat W, Wattanapun P. Functional abilities, incidences of complications and falls of patients with spinal cord injury 6 months after discharge. Spinal Cord [Internet] 2011 Apr 14;49(4):520–524. Available from: http://doi.org/10.1038/sc.2010.163
- van Leeuwen CMC, Kraaijeveld S, Lindeman E, Post MWM. Associations between psychological factors and quality of life ratings in persons with spinal cord injury: a systematic review. Spinal Cord [Internet] 2012 Mar 1 [cited 2020 Nov 15];50(3):174–187. Available from: https://pubmed.ncbi.nlm.nih.gov/22042298/
- Carrard V, Kunz S, Peter C. Mental health, quality of life, self-efficacy, and social support of individuals living with spinal cord injury in Switzerland compared to that of the general population. Spinal Cord [Internet] 2021 Apr 24 [cited 2021 Feb 5];59(4):398–409. Available from: http://www.nature.com/articles/s41393-020-00582-5
- Nightingale TE, Rouse PC, Walhin J-P, Thompson D, Bilzon JLJ. Home-Based exercise enhances health-related quality of life in persons with spinal cord injury: a randomized controlled trial. Arch Phys Med Rehabil [Internet] 2018 Oct [cited 2020 Aug 17];99(10):1998–2006.e1. Available from: https://doi.org/10.1016/j.apmr.2018.05.008
- Martin Ginis KA, van der Scheer JW, Latimer-Cheung AE, Barrow A, Bourne C, Carruthers P, et al. Evidence-based scientific exercise guidelines for adults with spinal cord injury: an update and a new guideline. Spinal Cord [Internet] 2018 Apr 25 [cited 2019 Sep 25];56(4):308–321. Available from: https://www.nature.com/articles/s41393-017-0017-3
- Sliwinski MM, Akselrad G, Alla V, Buan V, Kaemmerlen E. Community exercise programing and its potential influence on quality of life and functional reach for individuals with spinal cord injury. J Spinal Cord Med [Internet] 2020 May 3 [cited 2021 Feb 5];43(3):358–363. Available from: https://www.tandfonline.com/doi/full/10.108010790268.2018.1543104
- Alavinia SM, Hitzig SL, Farahani F, Flett H, Bayley M, Craven BC. Prioritization of rehabilitation domains for establishing spinal cord injury high performance indicators using a modification of the hanlon method: SCI-high project. J Spinal Cord Med [Internet] 2019 Sep 30 [cited 2021 Feb 5];42(sup1):43–50. Available from: https://www.tandfonline.com/doi/full/10.108010790268.2019.1616949
- Dijkers MP. Individualization in quality of life measurement: instruments and approaches. Arch Phys Med Rehabil [Internet] 2003 Apr [cited 2020 May 5];84(4 SUPPL. 2):S3–14. Available from: https://linkinghub.elsevier.com/retrieve/pii/S0003999303001904
- Wilson J, Hashimoto R, Dettori J, Fehlings M. Spinal cord injury and quality of life: a systematic review of outcome measures. Evid Based Spine Care J [Internet] 2011 Feb 10 [cited 2020 Apr 17];2(01):37–44. Available from: http://www.thieme-connect.de/DOI/DOI?10.1055s-0030-1267085
- Potter K, Fulk GD, Salem Y, Sullivan J. Outcome measures in neurological physical therapy practice: part I. making sound decisions. J Neurol Phys Ther [Internet] 2011 Jun [cited 2021 Jan 27];35(2):57–64. Available from: https://journals.lww.com/01253086-201106000-00002
- Hill MR, Noonan VK, Sakakibara BM, Miller WC. Quality of life instruments and definitions in individuals with spinal cord injury: a systematic review. Spinal Cord [Internet] 2010 Jun 22 [cited 2020 Apr 17];48(6):438–450. Available from: http://www.nature.com/articles/sc2009164
- Whitehurst DGT, Noonan VK, Dvorak MFS, Bryan S. A review of preference-based health-related quality of life questionnaires in spinal cord injury research. Spinal Cord [Internet] 2012 Sep 29 [cited 2020 Jun 3];50(9):646–654. Available from: http://www.nature.com/articles/sc201246
- Hallin P, Sullivan M, Kreuter M. Spinal cord injury and quality of life measures: a review of instrument psychometric quality. Spinal Cord [Internet] 2000 Sep 23 [cited 2020 Apr 17];38(9):509–523. Available from: http://www.nature.com/articles/3101054
- Prinsen CACC, Mokkink LB, Bouter LM, Alonso J, Patrick DL, de Vet HCWW, et al. COSMIN guideline for systematic reviews of patient-reported outcome measures. Qual Life Res [Internet] 2018 May 12 [cited 2021 Feb 6];27(5):1147–1157. Available from: https://link.springer.com/article/10.1007s11136-018-1798-3
- Mokkink L, Prinsen C, Donald P, Patrick L, Alonso J, Bouter LM, et al. COSMIN methodology for systematic reviews of patient-reported outcome measures (PROMs). User Manual [Internet] 2018;1:1–78. Amsterdam, NL. [cited 2020 Oct 23]. Available from: www.cosmin.nl
- Mokkink L, Terwee C, Knol DL, Stratford PW, Alonso J, Patrick DL, et al. Protocol of the COSMIN study: COnsensus-based standards for the selection of health measurement INstruments. BMC Med Res Methodol [Internet] 2006 Jan 24 [cited 2021 Feb 5];6(1):1–10. Available from: http://bmcmedresmethodol.biomedcentral.com/articles/10.11861471-2288-6-2
- Mokkink LB, Terwee CB, Patrick DL, Alonso J, Stratford PW, Knol DL, et al. The COSMIN study reached international consensus on taxonomy, terminology, and definitions of measurement properties for health-related patient-reported outcomes. J Clin Epidemiol [Internet] 2010 Jul 1 [cited 2021 Jan 27];63(7):737–745. Available from: https://linkinghub.elsevier.com/retrieve/pii/S0895435610000909
- Moher D, Liberati A, Tetzlaff J, Altman DG. Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement. BMJ [Internet] 2009 Jul 21;339(jul21 1):b2535–b2535. Available from: https://www.bmj.com/lookup/doi/10.1136bmj.b2535
- Ouzzani M, Hammady H, Fedorowicz Z, Elmagarmid A. Rayyan-a web and mobile app for systematic reviews. Syst Rev [Internet] 2016 Dec 5 [cited 2021 Jan 16];5(1):1–10. Available from: /pmc/articles/PMC5139140/?report=abstract
- Mokkink, LB, de Vet, HCW, Prinsen, CAC, et al. COSMIN Risk of Bias checklist for systematic reviews of Patient-Reported Outcome Measures. Qual Life Res [Internet] 2018;27, 1171–1179. Available from: https://doi.org/10.1007/s11136-017-1765-4
- Prinsen CAC, Vohra S, Rose MR, Boers M, Tugwell P, Clarke M, et al. How to select outcome measurement instruments for outcomes included in a “core outcome set” – A practical guideline. Trials [Internet] 2016 Dec 13 [cited 2020 Dec 8];17(1):1–10. Available from: http://trialsjournal.biomedcentral.com/articles/10.1186s13063-016-1555-2
- Lankhorst K, Oerbekke M, van den Berg-Emons R, Takken T, de Groot J. Instruments measuring physical activity in individuals who use a wheelchair: a systematic review of measurement properties. Arch Phys Med Rehabil [Internet] 2020 Mar 1 [cited 2020 Dec 8];101(3):535–552. Available from: https://doi.org/10.1016/j.apmr.2019.09.006
- Chiarotto A, Maxwell LJ, Ostelo RW, Boers M, Tugwell P, Terwee CB. Measurement properties of visual analogue scale, numeric rating scale, and pain severity subscale of the brief pain inventory in patients with low back pain: a systematic review. J Pain [Internet] 2019 Mar 1 [cited 2020 Dec 8];20(3):245–263. Available from: www.jpain.organdwww.sciencedirect.com.www.jpain.organdwww.sciencedirect.com
- Boswell-Ruys CL, Harvey LA, Barker JJ, Ben M, Middleton JW, Lord SR. Training unsupported sitting in people with chronic spinal cord injuries: a randomized controlled trial. Spinal Cord [Internet] 2010 Feb 14 [cited 2020 Oct 6];48(2):138–143. Available from: www.nature.com/sc
- Terwee CB, Prinsen CAC, Chiarotto A, Westerman MJ, Patrick DL, Alonso J, et al. COSMIN methodology for evaluating the content validity of patient-reported outcome measures: a Delphi study. Qual Life Res [Internet] 2018 May 17 [cited 2021 Jan 27];27(5):1159–1170. Available from: http://doi.org/10.1007/s11136-018-1829-0
- De Vet HCW, Terwee CB, Mokkink LB, Knol DL. Measurement in medicine: a practical guide [Internet]. measurement in medicine: a practical guide. New York: Cambridge University Press; 2011 [cited 2020 Jun 16]. p. 1–338. Available from: https://www.cambridge.org/core/product/identifier/9780511996214/type/book
- Nunnally JC, Bernstein IH. Psychometric theory. 3rd ed New York: McGraw-Hill; 1994. p. 736.
- Bonniaud V, Bryant D, Pilati C, Menarini M, Lamartina M, Guyatt G, et al. Italian version of qualiveen-30: cultural adaptation of a neurogenic urinary disorder-specific instrument. Neurourol Urodyn [Internet] 2011 Mar;30(3):354–359. Available from: http://doi.wiley.com/10.1002nau.20967