Discussions of Cancer Clinical Trials with the National Cancer Institute's Cancer Information Service

References

• Advani , A. S. , Atkeson , B. , Brown , C. L. , Peterson , B. L. , Fish , L. , Johnson , J. L. , … Gautier , M. ( 2003 ). Barriers to the participation of African-American patients with cancer in CTs: A pilot study . Cancer , 97 , 1499 – 1506 .
   PubMed Web of Science ®Google Scholar
• Benson , A. B. , Pregler , J. P. , Bean , J. A. , Rademaker , A. W. , Eshler , B. , & Anderson , K. ( 1991 ). Oncologists’ reluctance to accrue patients onto clinical trials: An Illinois Cancer Center study . Journal of Clinical Oncology , 9 , 2067 – 2075 .
   PubMed Web of Science ®Google Scholar
• Brown , D. R. , Fouad , M. N. , Basen-Engquist , K. , & Tortolero-Luna , G. ( 2000 ). Recruitment and retention of minority women in cancer screening, prevention, and treatment trials . Annals of Epidemiology , 10 , S13 – S21 .
   PubMed Web of Science ®Google Scholar
• Brown , R. F. , Shuk , E. , Butow , P. , Edgerson , S. , Tattersall , M. H. , & Ostroff , J. S. ( 2011a ). Identifying patient information needs about cancer clinical trials using a Question Prompt List . Patient Education and Counseling , 84 , 69 – 77 .
   PubMed Web of Science ®Google Scholar
• Brown , R. F. , Shuk , E. , Leighl , N. , Butow , P. , Ostroff , J. , Edgerson , S. , & Tattersall M. ( 2011b ). Enhancing decision making about participation in cancer clinical trials: Development of a question prompt list . Supportive Care in Cancer , 19 , 1227 – 1238 .
   PubMed Web of Science ®Google Scholar
• Comis , R. L. , Aldige , C. R. , Stovall , E. , Krebs , L. , Risher , P. , & Taylor , H. ( 2000 ). A quantitative survey of public attitudes towards cancer clinical trials. 2000. Retrieved from http://www.cancertrialshelp.org/CTHpdf/308-9.pdf
   Google Scholar
• Du , W. , Mood , D. , Gadgeel , S. , & Simon , M. S. ( 2008 ). An educational video to increase clinical trials enrollment among lung cancer patients . Journal of Thoracic Oncology , 3 ( 1 ), 23 – 29 .
   PubMed Web of Science ®Google Scholar
• Du , W. , Mood , D. , Gadgeel , S. , & Simon , M. S. (2009). An educational video to increase clinical trials enrollment among breast cancer patients. Breast Cancer Research and Treatment , 117, 339–347.
   PubMed Web of Science ®Google Scholar
• Ellis , P. M. , Butow , P. N. , Simes , R. J. , Tattersall , M. H. , & Dunn , S. M. ( 1999 ). Barriers to participation in randomized clinical trials for early breast cancer among Australian cancer specialists . Australian & New Zealand Journal of Surgery , 69 , 486 – 491 .
   PubMedGoogle Scholar
• Emanuel , E. J. , Wendler , D. , & Grady , C. ( 2000 ). What makes clinical research ethical? JAMA , 83 , 2701 – 2711 .
   Web of Science ®Google Scholar
• Fleming , I. D. ( 1994 ). Barriers to clinical trials. Part I: Reimbursement problems . Cancer , 74 , 2662 – 2665 .
   PubMed Web of Science ®Google Scholar
• Ford , J. G. , Howerton , M. W. , Lai , G. Y. , Gary , T. L. , Bolen , S. , Gibbons , M. C. , …  Bass , E. B. ( 2008 ). Barriers to recruiting underrepresented populations to cancer clinical trials: A systematic review . Cancer , 112 , 228 – 242 .
   PubMed Web of Science ®Google Scholar
• Fouad , M. N. , Partridge , E. , Wynn , T. , Green , B. L. , Kohler , C. , & Nagy , S. ( 2001 ). Statewide Tuskegee Alliance for clinical trials. A community coalition to enhance minority participation in medical research . Cancer , 91 , 237 – 241 .
   PubMed Web of Science ®Google Scholar
• Gross , C. P. , Filardo , G. , Mayne , S. T. , & Krumholz , H. M. ( 2005 ). The impact of socioeconomics status and race on trial participation for older women with breast cancer . Cancer , 103 , 483 – 491 .
   PubMed Web of Science ®Google Scholar
• Hazen , R. A. , Eder , M. , Drotar , D. , Zyzanski , S. , Reynolds , A. E. , Kodish , E. , …  Multi-Site Intervention Study to Improve Consent Research Team . ( 2010 ). A feasibility trial of a video intervention to improve informed consent for parents of children with leukemia . Pediatric Blood and Cancer , 55 ( 1 ), 113 – 118 .
   PubMed Web of Science ®Google Scholar
• Jones , J. M. , Nyhof-Young , J. , Moric , J. , Friedman , A. , Wells , W. , & Catton , P. ( 2006 ). Identifying motivations and barriers to patient participation in clinical trials . Journal of Cancer Education , 21 , 237 – 242 .
   PubMed Web of Science ®Google Scholar
• Karunaratne , A. S. , Korenman , S. G. , Thomas , S. L. , Myles , P. S. , & Komesaroff , P. A. ( 2010 ). Improving communication when seeking informed consent: A randomised controlled study of a computer-based method for providing information to prospective clinical trial participants . Medical Journal of Australia , 192 , 388 – 392 .
   PubMed Web of Science ®Google Scholar
• Lara, Jr. , P. N. , Higdon , R. , Lim , N. , Kwan , K. , Tanaka , M. , Lau , D. H. , … Lam , K. S. ( 2001 ). Prospective evaluation of cancer clinical trial accrual patterns: Identifying potential barriers to enrollment . Journal of Clinical Oncology , 19 , 1728 – 1733 .
   PubMed Web of Science ®Google Scholar
• Lara, Jr. , P. N. , Paterniti , D. A. , Chiechi , C. , Turrell , C. , Morain , C. , Horan , N. , … Chen, Jr. , M. S. ( 2005 ). Evaluation of factors affecting awareness of and willingness to participate in cancer clinical trials . Journal of Clinical Oncology , 23 , 9282 – 9289 .
   PubMed Web of Science ®Google Scholar
• McComas , K. A. , Yang , Z. , Gay , G. K. , Leonard , J. P. , Dannenberg , A. J. , & Dillon , H. ( 2010 ). Individuals’ willingness to talk to their doctors about clinical trial enrollment . Journal of Health Communication , 15 , 189 – 204 .
   PubMed Web of Science ®Google Scholar
• Murthy , V. H. , Krumholz , H. M. , & Gross , C. P. ( 2004 ). Participation in cancer clinical trials: Race-, sex-, and age-based disparities . JAMA , 291 , 2720 – 2726 .
   PubMed Web of Science ®Google Scholar
• Ridda , I. , MacIntyre , C. R. , Lindley , R. I. , & Tan , T. C. ( 2010 ). Difficulties in recruiting older people in clinical trials: An examination of barriers and solutions . Vaccine , 28 , 901 – 906 .
   PubMed Web of Science ®Google Scholar
• Sateren , W. B. , Trimble , E. L. , Abrams , J. , Brawley , O. , Breen , N. , Ford , L. , … Christian , M. C. ( 2002 ). How sociodemographics, presence of oncology specialists, and hospital cancer programs affect accrual to cancer treatment trials . Journal of Clinical Oncology , 20 , 2109 – 2117 .
   PubMed Web of Science ®Google Scholar
• Schain , W. S. ( 1994 ). Barriers to clinical trials. Part II: Knowledge and attitudes of potential participants . Cancer , 74 , 2666 – 2671 .
   PubMed Web of Science ®Google Scholar
• Schoenberg , N. E. , Hatcher , J. , & Dignan , M. B. ( 2008 ). Appalachian women's perceptions of their community's health threats . Journal of Rural Health , 24 ( 1 ), 75 – 83 .
   PubMed Web of Science ®Google Scholar
• Simon , M. S. , Brown , D. R. , Du , W. , LoRusso , P. , & Kellogg , C. M. ( 1999 ). Accrual to breast cancer clinical trials at a university-affiliated hospital in metropolitan Detroit . American Journal of Clinical Oncology , 22 , 42 – 46 .
   PubMed Web of Science ®Google Scholar
• Simon , M. S. , Flaherty , L. , Philip , P. A. , Lorusso , P. , Miree , C. , Smith , D. , & Brown , D. R. (2004). Factors associated with breast cancer clinical trials participation and enrollment at a large academic medical center. Journal of Clinical Oncology , 22, 2046–2052.
   PubMed Web of Science ®Google Scholar
• Siminoff , L. A. , Zhang , A. , Colabianchi , N. , Sturm , C. M. , & Shen , Q. ( 2000 ). Factors that predict the referral of breast cancer patients onto clinical trials by their surgeons and medical oncologists . Journal of Clinical Oncology , 18 , 1203 – 1211 .
   PubMed Web of Science ®Google Scholar
• Spiro , S. G. , Gower , N. H. , Evans , M. T. , Facchini , P. M. , & Rudd , R. M. ( 2000 ). Recruitment of patients with lung cancer into a randomized clinical trial: Experience at two centres. On behalf of the Big Lung Trial Steering Committee . Thorax , 55 , 463 – 465 .
   PubMed Web of Science ®Google Scholar
• Squiers , L. , Bright , M. A. , Rutten , L. J. , Atienza , A. A. , Treiman , K. , Moser , R. P. , & Hesse , B. ( 2006 ). Awareness of the National Cancer Institute's Cancer Information Service: Results from the Health Information National Trends Survey (HINTS) . Journal of Health Communication , 11 , 117 – 133 .
   PubMed Web of Science ®Google Scholar
• Sutherland , H. J. , da Cunha , R. , Lockwood , G. A. , & Till , J. E. ( 1998 ). What attitudes and beliefs underlie patients’ decisions about participating in chemotherapy trials? Medical Decision Making , 18 , 61 – 69 .
   PubMed Web of Science ®Google Scholar
• Swanson , G. M. , & Bailar , J. C. III. ( 2002 ). Selection and description of cancer clinical trials participants—Science or happenstance? . Cancer , 95 , 950 – 959 .
   PubMed Web of Science ®Google Scholar
• Taylor , H. , & Leitman , R. ( 2001 ). Misconceptions and lack of awareness greatly reduce recruitment for cancer clinical trials . Health Care News , 1 ( 3 ), 1 – 3 .
   Google Scholar
• Trauth , J. M. , Jernigan , J. C. , Siminoff , L. A. , Musa , D. , Neal-Ferguson , D. , & Weissfeld , J. ( 2005 ). Factors affecting older African American women's decisions to join the PLCO Cancer Screening Trial . Journal of Clinical Oncology , 23 , 8730 – 8738 .
   PubMed Web of Science ®Google Scholar
• Udrea , G. , Dumitrescu , B. , Purcarea , M. , Balan , I. , Rezus , E. , & Deculescu , D. ( 2009 ). Patients’ perspectives and motivators to participate in clinical trials with novel therapies for rheumatoid arthritis . Journal of Medicine and Life , 2 , 227 – 231 .
   PubMedGoogle Scholar
• van Stujvenberg , M. , Suur , M. H. , de Vos , S. , Tjiang , G. C. , Steyerberg , E. W. , Derksen-Lubsen , G. , & Moll , H. A. ( 1998 ). Informed consent, parental awareness, and reasons for participating in a randomized controlled study . Archives of Disease in Childhood , 79 , 120 – 125 .
   PubMed Web of Science ®Google Scholar
• Yang , Z. J. , McComas , K. , Gay , G. , Leonard , J. P. , Dannenberg , A. J. , & Dillon , H. ( 2010a ). Motivation for health information seeking and processing about clinical trial enrollment . Health Communication , 25 , 423 – 436 .
   PubMed Web of Science ®Google Scholar
• Yang , Z. J. , McComas , K. , Gay , G. , Leonard , J. P. , Dannenberg , A. J. , & Dillon , H. ( 2010b ). From information processing to behavioral intentions: Exploring cancer patients’ motivations for clinical trial enrollment . Patient Education and Counseling , 79 , 231 – 238 .
   PubMed Web of Science ®Google Scholar