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ARTICLES

Health Literacy INDEX: Development, Reliability, and Validity of a New Tool for Evaluating the Health Literacy Demands of Health Information Materials

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Pages 203-221 | Published online: 03 Oct 2012

References

  • Baker , D. W. , Parker , R. M. , Williams , M. V. , Pitkin , K. , Parikh , N. S. , Coates , W. , & Imara , M. ( 1996 ). The health care experiences of patients with low literacy . Archives of Family Medicine , 5 , 329 – 334 .
  • Bechtel , G. , & Davidhizar , R. ( 2000 ). Integrating cultural diversity in patient education . Seminars in Nurse Management , 7 , 193 – 197 .
  • Berkman , N. , Pignone , M. P. , DeWalt , D. , & Sheridan , S. ( 2004 ). Health Literacy: Impact on Health Outcomes . Rockville , MD : Agency for Healthcare Research and Quality .
  • Brach , C. , & Fraser , I. ( 2000 ). Can cultural competency reduce racial and ethnic health disparities? A review and conceptual model . Medical Care Research and Review , 57 , 181 – 217 .
  • Brownson , R. C. , Baker , E. A. , Leet , T. L. , Gilliespie , K. N. , & True , W. R. ( 2010 ). Evidence-based public health () , 2nd ed. . New York , NY : Oxford University Press .
  • Center for Plain Language. (n. d.). Falls Church, VA: Author. Retrieved from http://www.centerforplainlanguage.org/index.html
  • Centers for Disease Control, & Prevention. ( 1999 ). Scientific and technical information: Simply put . Atlanta , GA : Author .
  • Centers for Disease Control, & Prevention. ( 2000 ). Beyond the Brochure: Alternative Approaches to Health Education . Atlanta , GA : Author .
  • Charnock , D. , Shepperd , S. , Needham , G. , & Gann , R. ( 1999 ). DISCERN: An instrument for judging the quality of written consumer health information on treatment choices . Journal of Epidemiology and Community Health , 53 , 105 – 111 .
  • Clayton , L. ( 2009 ). TEMPtEd: Development and psychometric properties of a tool to evaluate material used in patient education . Journal of Advanced Nursing , 65 , 2229 – 2238 .
  • Cohen , J. ( 1960 ). A coefficient of agreement for nominal scales . Educational and Psychological Measurement , 20 , 37 – 46 .
  • Davis , T. , Fredrickson , D. D. , Arnold , C. , Murphy , P. W. , Herbst , M. , & Bocchini , J. A. , Jr. ( 1998 ). A polio immunization pamphlet with increased appeal and simplified language does not improve comprehension to an acceptable level . Patient Education and Counseling , 33 , 25 – 37 .
  • Davis , T. , Williams , M. V. , Marin , E. , Parker , R. M. , & Glass , J. ( 2002 ). Health literacy and cancer communication . CA: A Cancer Journal for Clinicians , 52 , 134 – 149 .
  • Doak , C. C. , Doak , L. G. , & Root , J. H. ( 1996 ). Teaching patients with low literacy skills () , 2nd ed. . Philadelphia , PA : Lippincott .
  • Doyle , G. , Cafferkey , K. , & Fullam , J. ( 2012 ). The European Health Literacy Survey: Results from Ireland . Dublin , Ireland : University College Dublin .
  • DuBay , W. ( 2004 ). The principles of readability . Costa Mesa , CA : Impact Information .
  • Everitt , B. S. , & Hay , D. F. ( 1992 ). Talking about statistics: A psychologist's guide to data analysis . New York , NY : Halsted Press .
  • Flesch , R. ( 1948 ). A new readability yardstick . Journal of Applied Psychology , 32 , 221 – 223 .
  • Fry , E. ( 1977 ). Fry's readability graph: Clarifications, validity, and extensions to level 17 . Journal of Reading , 21 , 242 – 252 .
  • Gazmararian , J. A. , Williams , M. , Peel , J. , & Baker , D. ( 2003 ). Health literacy and knowledge of chronic disease . Patient Education and Counseling , 51 , 267 – 275 .
  • Gray , W. , & Leary , B. ( 1972 ). What makes a book readable . Chicago , IL : Chicago University Press .
  • Grier , S. , & Bryant , C. ( 2005 ). Social marketing in public health . Annual Review of Public Health , 26 , 319 – 339 .
  • Guidry , J. J. , & Walker , V. D. ( 1999 ). Assessing cultural sensitivity in printed cancer materials . Cancer Practice , 7 , 291 – 296 .
  • Harvard School of Public Health. (n. d.). Health Literacy Studies. Boston, MA: Harvard University. Retrieved from http://www.hsph.harvard.edu/healthliteracy
  • Kaphingst , K. A. , Rudd , R. E. , DeJong , W. , & Daltroy , L. H. ( 2004 ). Literacy demands of product information intended to supplement television direct-to-consumer prescription drug advertisements . Patient Education and Counseling , 55 , 293 – 300 .
  • Kaphingst , K. A. , Zanfini , C. , & Emmons , K. M. (2006). Accessibility of web sites containing colorectal cancer information to adults with limited literacy. Cancer Causes and Control , 17, 147–151.
  • Khazaal , Y. , Chatton , A. , Cochand , S. , Coquard , O. , Fernandez , S. , Khan , R. , … Zullino , D. ( 2009 ). Brief DISCERN, six questions for the evaluation of evidence-based content of health-related websites . Patient Education and Counseling , 77 , 33 – 37 .
  • Klare , G. R. ( 1984 ). Readability . In P. D. Pearson , R. Barr , M. L. Kamil & P. Mosenthal (Eds.), Handbook of Reading Research (pp. 681 – 744 ). New York , NY : Longman .
  • Kreuter , M. , Lukwago , S. , Bucholtz , R. , Clark , E. M. , & Sanders Thompson , V. ( 2003 ). Achieving cultural appropriateness in health promotion programs: Targeted and tailored approaches . Health Education & Behavior , 30 , 133 – 146 .
  • Kreuter , M. , & McClure , S. M. ( 2004 ). The role of culture in health communication . Annual Review of Public Health , 25 , 439 – 455 .
  • Lefebvre , R. C. , Tada , Y. , Hilfiker , S. W. , & Baur , C. ( 2010 ). The assessment of user engagement with eHealth content: The eHealth Engagement Scale . Journal of Computer-Mediated Communication , 15 , 666 – 681 .
  • McLaughlin , G. ( 1969 ). SMOG grading: A new readability formula . Journal of Reading , 12 , 639 – 646 .
  • Meade , C. D. , & Byrd , J. C. ( 1989 ). Patient literacy and the readability of smoking education literature . American Journal of Public Health , 79 , 204 – 206 .
  • Meade , C. D. , Diekmann , J. , & Thornhill , D. G. ( 1992 ). Readability of American Cancer Society patient education literature . Oncology Nursing Forum , 19 , 51 – 55 .
  • Meyer , B. ( 1982 ). Reading research and the composition teacher: The importance of plans . College Composition and Communication , 33 , 37 – 49 .
  • Michielutte , R. , Bahnson , J. , & Beal , P. ( 1990 ). Readability of the public education literature on cancer prevention and detection . Journal of Cancer Education , 5 , 55 – 61 .
  • Michielutte , R. , Bahnson , J. , Dignan , M. B. , & Schroeder , E. M. ( 1992 ). The use of illustrations and narrative text style to improve readability of a health education brochure . Journal of Cancer Education , 7 , 251 – 260 .
  • Moriarty , S. ( 1995 ). Visual communication as primary system . Journal of Visual Literacy , 14 , 11 – 21 .
  • Mosenthal , P. B. , & Kirsch , I. S. ( 1998 ). A new measure for assessing document complexity: The PMOSE/IKIRSCH document readability formula . Journal of Adolescent and Adult Literacy , 41 , 638 – 657 .
  • Moult , B. , Franck , L. S. , & Brady , H. ( 2004 ). Ensuring quality information for patients: Development and preliminary validation of a new instrument to improve the quality of written health care information . Health Expectations , 7 , 165 – 175 .
  • National Cancer Institute. ( 2003 ). Clear & simple: Developing effective print materials for low-literate readers. Retrieved from http://www.cancer.gov/aboutnci/oc/clear-and-simple
  • Nielsen-Bohlman , L. , Panzer , A. M. , Kindig , D. A. ( Eds.). (2004 ). Health Literacy: A Prescription to End Confusion . Washington , DC : National Academies Press .
  • Office of Cancer Communications. ( 1989 ). Making health communication programs work: A planner's guide . Bethesda , MD : Office of Cancer Communications, National Cancer Institute .
  • Parker , R. M. , Baker , D. W. , Williams , M. V. , & Nurss , J. R. ( 1995 ). The Test of Functional Health Literacy in Adults: A new instrument for measuring patients' literacy skills . Journal of General Internal Medicine , 10 , 537 – 541 .
  • Parks , S. , & Kreuter , M. ( 2007 ). Cultural appropriateness in interventions for racial and ethnic minorities . In L. Doll , S. Bonzo , D. Steet , J. Mercy & E. N. Haas (Eds.), Handbook of injury and violence prevention (pp. 449 – 462 ). New York , NY : Springer .
  • Petty , R. E. , & Cacioppo , J. T. ( 1981 ). Attitudes and Persuasion: Classic and Contemporary Approaches . Dubuque , IA : Brown .
  • Pfizer Clear Health Communication Initiative. ( 2004 ). Pfizer principles for clear health communication. New York, NY: Author. Retrieved from http://www.pfizerhealthliteracy.com/asset/pdf/PfizerPrinciples.pdf
  • Plain Language Action, & Information Network. (n. d.). Retrieved from http://www.plainlanguage.gov
  • Resnicow , K. , Baranowski , T. , Ahluwalia , J. , & Braithwaite , R. ( 1999 ). Cultural sensitivity in public health: Defined and demystified . Ethnicity and Disease , 9 , 10 – 21 .
  • Rudd , R. E. , Colton , T. , & Schacht , R. ( 2000 ). An overview of medical and public health literature addressing literacy issues: An annotated bibliography . Boston , MA : National Center for the Study of Adult Learning and Literacy .
  • Rudd , R. E. , Comings , J. P. , & Hyde , J. N. ( 2003 ). Leave no one behind: Improving health and risk communication through attention to literacy . Journal of Health Communication , 8 ( Suppl 1 ), 104 – 115 .
  • Rudd , R. E. , Kaphingst , K. , Colton , T. , Gregoire , J. , & Hyde , J. ( 2004 ). Rewriting public health information in plain language . Journal of Health Communication , 9 , 195 – 206 .
  • Sabogal , F. , Otero-Sabogal , E. , Pasick , R. , Jenkins , C. , & Perez-Stable , E. ( 1996 ). Printed health education materials for diverse communities: Suggestions learned from the field . Health Education Quarterly , 23 , S123 – S141 .
  • Sackett , D. L. , Rosenberg , W. M. , Gray , J. M. , Haynes , R. B. , & Richardson , W. S. ( 1996 ). Evidence based medicine: What it is and what it isn't . BMJ , 312 , 71 .
  • Shrank , W. H. , Gleason , P. P. , Canning , C. , Walters , C. , Heaton , A. H. , & Jan , S. , … Choudhry , N. K. ( 2009 ). Can improved prescription medication labeling influence adherence to chronic medications? An evaluation of the Target pharmacy label . Journal of General Internal Medicine , 24 , 570 – 578 .
  • Southern Institute on Children, & Families. ( 2005 ). Health literacy style manual. Reston, VA: Author. Retrieved from http://www.coveringkidsandfamilies.org/resources/docs/stylemanual.pdf
  • Stableford , S. , & Mettger , W. ( 2007 ). Plain language: A strategic response to the health literacy challenge . Journal of Public Health Policy , 28 , 71 – 93 .
  • U.S. Department of Health, & Human Services. ( 2011 ). Healthy people 2020. Retrieved from http://www.healthypeople.gov/2020/about/default.aspx
  • U.S. Securities, & Exchange Commission. ( 1998 ). A plain language handbook: How to create clear SEC disclosure documents . Washington , DC : Author .
  • Valente , T. W. ( 2002 ). Evaluating health promotion programs . New York , NY : Oxford University Press .
  • Victora , C. G. , Habicht , J.-P. , & Bryce , J. ( 2004 ). Evidence-based public health: Moving beyond randomized trials . American Journal of Public Health , 94 , 400 – 405 .
  • Weiss , B. D. , Hart , G. , McGee , D. L. , & D'Estelle , S. ( 1992 ). Health status of illiterate adults: Relation between literacy and health status among persons with low literacy skills . Journal of the American Board of Family Practice , 5 , 257 – 264 .
  • Weiss , B. D. , Mays , M. Z. , Martz , W. , Castro , K. M. , DeWalt , D. A. , Pignone , M. P. , … Hale , F. A. ( 2005 ). Quick assessment of literacy in primary care: The newest vital sign . Annals of Family Medicine , 3 , 514 – 522 .
  • Weiss , B. D. , & Palmer , R. ( 2004 ). Relationship between health care costs and very low literacy skills in a medically needy and indigent Medicaid population . Journal of the American Board of Family Medicine , 17 , 44 – 47 .
  • Wilson , F. L. ( 1995 ). Measuring patients' ability to read and comprehend: A first step in patient education . Nursing Connections , 8 , 17 – 25 .