Cancer Patient and Survivor Research From the Cancer Information Service Research Consortium: A Preview of Three Large Randomized Trials and Initial Lessons Learned

References

• Allen , J. D. , Othus , M. K. , Hart , A. , Jr. , Tom , L. , Li , Y. , Berry , D. , & Bowen , D. ( 2010 ). A randomized trial of a computer-tailored decision aid to improve prostate cancer screening decisions: Results from the take the wheel trial . Cancer Epidemiology, Biomarkers & Prevention , 19 , 2172 – 2186 .
   PubMed Web of Science ®Google Scholar
• Antoni , M. H. , Lehman , J. M. , Kilbourn , K. M. , Boyers , A. E. , Culver , J. L. , Alferi , S. M. , … Carver , C. S. ( 2001 ). Cognitive-behavioral stress management intervention decreases the prevalence of depression and enhances benefit finding among women under treatment for early-stage breast cancer . Health Psychology , 20 , 20 – 32 .
   PubMed Web of Science ®Google Scholar
• Arora , N. K. , Johnson , P. , Gustafson , D. H. , McTavish , F. , Hawkins , R. P. , & Pingree , S. ( 2002 ). Barriers to information access, perceived health competence, and psychosocial health outcomes: Test of a mediation model in a breast cancer sample . Patient Education and Counseling , 47 , 37 – 46 .
   PubMed Web of Science ®Google Scholar
• Bandura , A. ( 1977 ). Self-efficacy: Toward a unifying theory of behavioral change . Psychological Review , 84 , 191 – 215 .
   PubMed Web of Science ®Google Scholar
• Bandura , A. ( 1981 ). The assessment and predictive generality of self-percepts of efficacy . Journal of Behavioral Therapy and Experimental Psychiatry , 13 , 195 – 199 .
   Web of Science ®Google Scholar
• Bandura , A. ( 1989 ). Human agency in social cognitive theory . American Psychologist , 44 , 1175 – 1184 .
   PubMed Web of Science ®Google Scholar
• Bandura , A. ( 1997 ). Self-efficacy: The exercise of control . New York , NY : W. H. Freeman .
   Google Scholar
• Bandura , A. , Adams , N. E. , & Beyer , J. ( 1977 ). Cognitive processes mediating behavioral change . Journal of Personality and Social Psychology , 35 , 125 – 139 .
   PubMed Web of Science ®Google Scholar
• Bjelland , I. , Dahl , A. A. , Haug , T. T. , & Neckelmann , D. ( 2002 ). The validity of the Hospital Anxiety and Depression Scale: An updated literature review . Journal of Psychosomatic Research , 52 , 69 – 77 .
   PubMed Web of Science ®Google Scholar
• Brady , M. J. , Cella , D. F. , Mo , F. , Bonomi , A. E. , Tulsky , D. S. , Lloyd , S. R. , … Shiomoto , G. (1997). Reliability and validity of the Functional Assessment of Cancer Therapy—Breast quality-of-life instrument. Journal of Clinical Oncology , 15, 974–986.
   PubMed Web of Science ®Google Scholar
• Brehaut , J. C. , O'Connor , A. M. , Wood , T. J. , Hack , T. F. , Siminoff , L. , Gordon , E. , & Feidman-Steward , D. ( 2003 ). Validation of a decision regret scale . Medical Decision Making , 23 , 282 – 292 .
   Google Scholar
• Bright , M. A. ( 2007 ). The National Cancer Institute's Cancer Information Service: A premiere cancer information and education resource for the nation . Journal of Cancer Education , 22 , S2 – S7 .
   PubMed Web of Science ®Google Scholar
• Broadbent , E. , Petrie , K. J. , Main , J. , & Weinman , J. ( 2006 ). The Brief Illness Perception Questionnaire . Journal of Psychosomatic Research , 60 , 631 – 637 .
   PubMed Web of Science ®Google Scholar
• Bryce , C. L. , Angus , D. C. , Switala , J. , Roberts , M. S. , & Tsevat , J. ( 2004 ). Health status vs. utilities of patients with end-stage liver disease . Quality of Life Research , 13 , 773 – 782 .
   PubMed Web of Science ®Google Scholar
• Buller , D. B. , Borland , R. , Woodall , W. G. , Hall , J. R. , Hines , J. M. , Burris-Woodall , P. , … Cutter , G. R. ( 2008 ). Randomized trials on Consider This, a tailored, Internet-delivered smoking prevention program for adolescents . Health Education and Behavior , 35 , 260 – 281 .
   PubMed Web of Science ®Google Scholar
• Buller , D. B. , Woodall , W. G. , Zimmerman , D. E. , Slater , M. D. , Heimendinger , J. , Waters , E. , … Cutter , G. R. ( 2008 ). Randomized trial on the 5-a-day, the Rio Grande Way website, a web-based program to improve fruit and vegetable consumption in rural communities . Journal of Health Communication , 13 , 230 – 249 .
   PubMed Web of Science ®Google Scholar
• Bunn , H. , & O'Connor , A. ( 1996 ). Validation of client decision-making instruments in the context of psychiatry . Canadian Journal of Nursing Research , 28 , 13 – 27 .
   PubMedGoogle Scholar
• Chen , X. , & Siu , L. L. ( 2001 ). Impact of the media and the Internet on oncology: Survey of cancer patients and oncologists in Canada . Journal of Clinical Oncology , 19 , 4291 – 4297 .
   PubMed Web of Science ®Google Scholar
• Christensen , H. , Griffiths , K. M. , & Jorm , A. F. ( 2004 ). Delivering interventions for depression by using the Internet: Randomized controlled trial . BMJ , 328 , 265 .
   PubMed Web of Science ®Google Scholar
• Christensen , H. , Griffiths , K. M. , Korten , A. E. , Brittliffe , K. , & Groves , C. ( 2004 ). A comparison of changes in anxiety and depression symptoms of spontaneous users and trial participants of a cognitive behavior therapy website . Journal of Medical Internet Research , 6 , e46 .
   PubMed Web of Science ®Google Scholar
• Cranney , A. , O'Connor , A. , Jacobsen , M. J. , Tugwell , P. , Adachi , J. D. , Ooi , D. S. , … Wells , G. A. ( 2002 ). Development and pilot testing of a decision aid for postmenopausal women with osteoporosis . Patient Education and Counseling , 47 , 245 – 255 .
   PubMed Web of Science ®Google Scholar
• Degner , L. F. , Kristjanson , L. J. , Bowman , D. , Sloan , J. A. , Carriere , K. C. , O'Neil , J. , … Mueller , B. ( 1997 ). Information needs and decisional preferences in women with breast cancer . JAMA , 177 , 1485 – 1492 .
   Google Scholar
• Diefenbach , M. A. , & Butz , B. P. ( 2004 ). A multimedia interactive education system for prostate cancer patients: Development and preliminary evaluation . Journal of Medical Internet Research , 6 ( 1 ), e3 .
   PubMed Web of Science ®Google Scholar
• Edwards , K. C. ( 1954 ). Pruritus in melancholia . British Medical Journal , 25 , 1527 – 1529 .
   Google Scholar
• Esper , P. , Mo , F. , Chodak , G. , Sinner , M. , Cella , D. , & Pienta , K. J. ( 1997 ). Measuring quality of life in men with prostate cancer using the Functional Assessment of Cancer Therapy-Prostate (FACT-P) instrument . Urology , 50 , 920 – 928 .
   PubMed Web of Science ®Google Scholar
• Eysenbach , G. ( 2005 ). The law of attrition . Journal of Medical Internet Research , 7 , e11 .
   PubMed Web of Science ®Google Scholar
• Fagerlin , A. , Rovner , A. , Stableford , S. , Jentoft , C. , Wei , J. , & Holmes-Rovner , M. ( 2004 ). Patient education materials about the treatment of early-stage prostate cancer: A critical review . Annals of Internal Medicine , 4 , 721 – 728 .
   Google Scholar
• Farvolden , P. , Denisoff , E. , Selby , P. , Bagby , R. M. , & Rudy , L. ( 2005 ). Usage and longitudinal effectiveness of a web-based self-help cognitive behavioral therapy program for panic disorder . Journal of Medical Internet Research , 7 ( 1 ), e7 .
   PubMedGoogle Scholar
• Fischhoff , B. , Goitein , B. , & Shapira , Z. ( 1982 ). The experienced utility of expected utility approaches . In N. Feather (Ed.), Expectancy, incentive and action (pp. 315 – 339 ). Hillsdale , NJ : Erlbaum .
   Google Scholar
• Fleisher , L. , Kandadai , V. , Keenan , E. , Miller , S. M. , Devarajan , K. , Ruth , K. L. , …. Weinberg , D. S. ( 2012 ). Build it, and will they come? Unexpected findings from a study on a web-based intervention to improve colorectal cancer screening . Journal of Health Communication , 17 , 41 – 53 .
   PubMed Web of Science ®Google Scholar
• Ganz , P. A. , Day , R. , Ware , J. E. , Redmond , C. , & Fisher , B. (1995). Baseline quality-of-life assessment in the National Surgical Adjuvant Breast and Bowel Project Breast Cancer Prevention Trial. Journal of the National Cancer Institute , 87, 1372–1382.
   PubMed Web of Science ®Google Scholar
• Ganz , P. A. , Schag , C. C. , & Cheng , H. ( 1990 ). Assessing the quality of life: A study in newly diagnosed breast cancer patients . Journal of Clinical Epidemiology , 43 , 75 – 86 .
   PubMed Web of Science ®Google Scholar
• Gritz , E. R. , & Bastani , R. ( 1993 ). Cancer prevention: Behavior changes: the short and the long of it . Preventive Medicine , 22 , 676 – 688 .
   PubMed Web of Science ®Google Scholar
• Hall , J. R. , Ax , B. , Brown , M. , Buller , D. B. , Woodall , W. G. , & Borland , R. ( 2001 ). Challenges to producing and implementing the Consider This web-based smoking prevention and cessation program . Electronic Journal of Communication , 11 , 3 – 4 . Retrieved from http://www.cios.org/www/ejc/v11n3.htm
   Google Scholar
• Halvorsen , P. A. ( 2010 ). What information do patients need to make a medical decision? Med Decis Making , 30 , 11S – 13S .
   PubMed Web of Science ®Google Scholar
• Henselmans , I. , Helgeson , V. S. , Seltman , H. , de Vries , J. , Sanderman , R. , & Ranchor , A. V. ( 2010 ). Identification and prediction of distress trajectories in the first year after a breast cancer diagnosis . Health Psychol , 29 , 160 – 168 .
   PubMed Web of Science ®Google Scholar
• Holmes-Rovner , M. ( 2007 ). International Patient Decision Aid Standards (IPDAS): Beyond decision aids to usual design of patient education materials . Health Expectations , 10 , 103 – 107 .
   PubMed Web of Science ®Google Scholar
• Horowitz , M. , Wilner , N. , & Alvarez , W. ( 1979 ). Impact of Event Scale: A measure of subjective distress . Psychosomatic Medicine , 41 , 209 – 218 .
   PubMed Web of Science ®Google Scholar
• Hou , W. K. , Law , C. C. , Yin , J. , & Fu , Y. T. ( 2010 ). Resource loss, resource gain, and psychological resilience and dysfunction following cancer diagnosis: A growth mixture modeling approach . Health Psychology , 29 , 484 – 495 .
   PubMed Web of Science ®Google Scholar
• Institute of Medicine . ( 2001 ). Crossing the quality chasm: A new health care system for the 21st century . Washington , DC : National Academy Press .
   Google Scholar
• Janz , N. K. , & Becker , M. H. ( 1984 ). The Health Belief Model: A decade later . Health Education Quarterly , 11 ( 1 ), 1 – 47 .
   PubMedGoogle Scholar
• Jibaja-Weiss , M. L. , Volk , R. , Fridman , L. C. , Granchi , T. S. , Neff , N. , Spann , S. J. , … Beck , R. ( 2006 ). Preliminary testing of a just-in-time, user-defined values clarification exercise to aid lower literate women in making informed breast cancer treatment decisions . Health Expectations , 9 , 218 – 231 .
   PubMed Web of Science ®Google Scholar
• Keating , N. L. , Guadagnoli , E. , Landrum , M. B. , Borbas , C. , & Weeks , J. C. ( 2002 ). Treatment decision making in early-stage breast cancer: Should surgeons match patients' desired level of involvement . Journal of Clinical Oncology , 20 , 1473 – 1479 .
   PubMed Web of Science ®Google Scholar
• Keating , N. L. , Landrum , M. B. , Arora , N. K. , Malin , J. L. , Ganz , P. A. , van Ryn , M. , & Weeks , J. C. ( 2010 ). Cancer patient's roles in treatment decisions: Do characteristics of the decision influence roles . Journal of Clinical Oncology , 28 , 4364 – 4370 .
   PubMed Web of Science ®Google Scholar
• Krishnan , L. , Stanton , A. L. , Collins , C. A. , Liston , V. E. , & Jewell , W. R. ( 2001 ). Form or function? 2. Objective cosmetic functional correlates of quality of life in women treated with breast-conserving surgical procedures and radiotherapy . Cancer , 91 , 2282 – 2287 .
   PubMed Web of Science ®Google Scholar
• Kreuter , M. W. , Green , M. D. , Cappella , J. N. , Slater , M. D. , Wise , M. E. , Storey , D. , … Woolley , S. ( 2007 ). Narrative communication in cancer prevention and control: A framework to guide research and application . Annals of Behavioral Medicine , 33 , 221 – 235 .
   PubMed Web of Science ®Google Scholar
• Leslie , E. , Marshall , A. L. , Owen , N. , & Bauman , A. ( 2005 ). Engagement and retention of participants in a physical activity website . Prev Med , 40 ( 1 ), 54 – 59 .
   PubMed Web of Science ®Google Scholar
• Leventhal , E. A. , Suls , J. , & Leventhal , H. ( 1993 ). Hierarchical analysis of coping: Evidence from life-span studies . In H. W. Krohne (Ed.), Attention and avoidance (pp. 71 – 98 ), Seattle , WA : Hogrefe & Huber .
   Google Scholar
• Leventhal , H. ( 1970 ). Findings and theory in the study of fear communications . Advances in Experimental Social Psychology , 5 , 119 – 186 .
   Google Scholar
• Leventhal , H. , Diefenbach , M. , & Levanthal , E. ( 1992 ). Illness cognition: Using common sense to understand treatment adherence and affect cognition interactions . Cognitive Therapy and Research , 16 , 143 – 163 .
   Web of Science ®Google Scholar
• Llewellyn-Thomas , H. A. (1995). Patients health-care decision making: A framework for descriptive and experimental investigations. Medical Decision Making , 15, 101–106.
   PubMed Web of Science ®Google Scholar
• Luker , K. A. , Beaver , K. , Leinster , S. J. , & Owens , R. G. ( 1996 ). Information needs and sources of information for women with breast cancer: A follow-up study . Journal of Advanced Nursing , 23 , 487 – 495 .
   PubMed Web of Science ®Google Scholar
• Marcus , A. C. , Garrett , K. M. , Cella , D. , Wenzel , L. , Brady , M. J. , Fairclough , D. , … Flynn , P. J. ( 2010 ). Can telephone counseling post-treatment improve psychosocial outcomes among early stage breast cancer patients? Psycho-Oncology , 19 , 923 – 932 .
   PubMed Web of Science ®Google Scholar
• Marcus , A. C. , Garrett , K. M. , Kulchak-Rahm , A. , Barnes , D. , Dortch , W. , & Juno , S. ( 2002 ). Telephone counseling in psychosocial oncology: A report from the Cancer Information and Counseling Line . Patient Education and Counseling , 46 , 267 – 275 .
   PubMed Web of Science ®Google Scholar
• Marcus , A. C. , Morra , M. E. , Bettinghaus , E. , Crane , L. A. , Cutter , G. , Davis , S. , … Warnecke , R. B. ( 1998 ). The Cancer Information Service Research Consortium: An emerging laboratory for cancer control research . Preventive Medicine , 27 , S3 – S15 .
   PubMed Web of Science ®Google Scholar
• Marcus , A. C. , Morra , M. E. , Bright , M. A. , Fleisher , L. , Kreps , G. , & Perocchia , R. ( 2005 ). The CIS model for collaborative research in health communications: A brief retrospective from the current generation of research . Journal of Health Communication , 10 , 235 – 245 .
   PubMed Web of Science ®Google Scholar
• Miller , S. M. , Bowen , D. J. , Croyle , R. T. , & Rowland , J. (Eds.). ( 2009 ). Handbook of cancer control and behavioral science: A resource for researchers, practitioners and policy makers . Washington , DC : American Psychological Association .
   Google Scholar
• Miller , S. M. , Shoda , Y. , & Hurley , K. ( 1996 ). Applying cognitive-social theory to health-protective behavior: Breast self-examination in cancer screening . Psychological Bulletin , 119 ( 1 ), 70 – 94 .
   PubMed Web of Science ®Google Scholar
• Mullan , F. ( 1985 ). Re-entry: The educational needs of the cancer survivor . Health Education Quarterly , 10 ( Suppl. ), 88 – 94 .
   Google Scholar
• National Cancer Institute . ( 2002 ). Facing forward series: Life after cancer treatment . NIH Publication No. 10–2424 . Bethesda , MD : Author .
   Google Scholar
• O'Connor , A. M. ( 1995 ). Validation of a decisional conflict scale . Medical Decision Making , 15 ( 1 ), 25 – 30 .
   PubMed Web of Science ®Google Scholar
• O'Connor , A. M. , Llewellyn-Thomas , H. A. , Sawka , C. , Pinfold , S. P. , To , T. , & Harrison , D. E. ( 1997 ). Physicians' opinions about decision aids for patients considering systemic adjuvant therapy for axillary-node negative breast cancer . Patient Education and Counseling , 30 , 143 – 153 .
   PubMed Web of Science ®Google Scholar
• O'Connor , A. M. , Fiset , V. , Degrasse , C. , Graham , I. D. , Evans , W. , Stacey , D. , … Tugwell , P. ( 1999 ). Decision aids for patients considering options affecting cancer outcomes: Evidence of efficacy and policy implications . Journal of the National Cancer Institute Monographs , 25 , 67 – 80 .
   PubMedGoogle Scholar
• O'Connor , A. M. , Legare , F. , & Stacy , D. ( 2003 ). Risk communication in practice: The contribution of decision aids . BMJ , 327 , 736 – 740 .
   PubMed Web of Science ®Google Scholar
• O'Connor , A. M. , Llewellyn-Thomas , H. A. , & Flood , B. A. ( 2004 ). Modifying unwarranted variations in health care: Shared decision making using patient decision aids (A review of the evidence base for shared decision making). Health Affairs, October 7, 2004. doi: 10.1377/hlthaff.var.63
   Google Scholar
• O'Connor , A. M. , Bennett , C. L. , Stacey , D. , Barry , M. , Col , N. F. , Eden , K. B. , … Rovner , D. ( 2009 ). Decision aids for people facing health treatment or screening decisions. Cochrane Database System Reviews,. July 8, (3) CD001431.
   Google Scholar
• Penedo , F. J. , Dahn , J. R. , Gonzalez , J. S. , Molton , I. , Carver , C. S. , Antoni , M. H. , … Schneiderman , N. ( 2003 ). Perceived stress management skill mediates the relationship between optimism and positive mood following radical prostatectomy . Health Psychology , 22 , 220 – 222 .
   PubMed Web of Science ®Google Scholar
• Penedo , F. J. , Dahn , J. R. , Molton , I. , Gonzalez , J. S. , Kinsinger , D. , Roos , B. A. , … Antoni , M. H. ( 2004 ). Cognitive-behavioral stress management improves stress-management skills and quality of life in men recovering from treatment of prostate carcinoma . Cancer , 100 , 192 – 200 .
   PubMed Web of Science ®Google Scholar
• Pew Internet. (2010). Generations 2010: A Project of the Pew Research Center. Retrieved from http://pewinternet.org/Reports/2010/Generations-2010.aspx
   Google Scholar
• Rees , C. E. , & Bath , P. A. ( 2000 ). The information needs and source preferences of women with breast cancer and their family members . Journal of Advanced Nursing , 31 , 833 – 841 .
   PubMed Web of Science ®Google Scholar
• Ronis , D. L. ( 1992 ). Conditional health threats: Health beliefs, decisions and behaviors among adults . Health Psychology , 11 , 127 – 134 .
   PubMed Web of Science ®Google Scholar
• Rotter , J. B. ( 1954 ). Social learning and clinical psychology . Englewood Cliffs , NJ : Prentice-Hall .
   Google Scholar
• Schag , C. , Ganz , P. A. , Polinsky , M. L. , Freol , C. , Hirji , K. , & Peterson , L. ( 1993 ). Characteristics of women at risk for psychosocial distress in the year after breast cancer . Journal of Clinical Oncology , 11 , 783 – 793 .
   PubMed Web of Science ®Google Scholar
• Schag , C. , Heinrich , R. L. , Aadland , R. , & Ganz , P. A. ( 1990 ). Assessing problems of cancer patients: Psychometric properties of the Cancer Inventory of Problem Situations . Health Psychology , 9 , 83 – 102 .
   PubMed Web of Science ®Google Scholar
• Scheier , M. F. , Helgeson , V. S. , Schulz , R. , Colvin , S. , Berga , S. , Bridges , M. W. , … Pappert , W. S. ( 2005 ). Interventions to enhance physical and psychological functioning among younger women who are ending nonhormonal adjuvant treatment for early-stage breast cancer . Journal of Clinical Oncology , 23 , 4298 – 4311 .
   PubMed Web of Science ®Google Scholar
• Shepherd , H. L. , Tattersall , M. H. , & Butow , P. N. ( 2008 ). Physician-identified factors affecting patient participation in reaching treatment decisions . Journal of Clinical Oncolology , 26 , 1724 – 1731 .
   PubMed Web of Science ®Google Scholar
• Squires , L. , Rutten , L. J. F. , Treiman , K. , Bright , M. A. , & Hesse , B. ( 2005 ). Cancer patient's information needs across the cancer care continuum: Evidence from the Cancer Information Service . Journal of Health Communication , 10 , 15 – 34 .
   PubMed Web of Science ®Google Scholar
• Stalmeier , P. F. , van Tol-Geerdink , J. J. , van Lin , N. J. , Schimmel , E. , Huizenga , H. , van Daal , W. A. , & Leer , J. W. ( 2007 ). Doctors' and patients' preferences for participation and treatment in curative prostate cancer radiotherapy . Journal of Clinical Oncolology , 25 , 3096 – 3100 .
   PubMed Web of Science ®Google Scholar
• Stanton , A. L. , Krishnan , L. , & Collins , C. A. ( 2001 ). Form or function? 1. Subjective cosmetic and functional correlates of quality of life in women treated with breast-conserving surgical procedures and radiotherapy . Cancer , 91 , 2273 – 2281 .
   PubMed Web of Science ®Google Scholar
• Stanton , A. L. , Danoff-Burg , S. , Sworowski , L. A. , Collins , C. A. , Branstetter , A. D. , Rodriguez-Hanley , A. , … Austenfeld , J. L. ( 2002 ). Randomized, controlled trial of written emotional expression and benefit-finding in breast cancer patients . Journal of Clinical Oncology , 20 , 4160 – 4168 .
   PubMed Web of Science ®Google Scholar
• Stanton , A. L. , Ganz , P. A. , Kwan , L. , Meyerowitz , B. E. , Bower , J. E. , Krupnick , J. L. , … Belin , T. R. ( 2005 ). Outcomes from the Moving Beyond Cancer psychoeducational, randomized, controlled trial with breast cancer patients . Journal of Clinical Oncology , 23 , 6009 – 6018 .
   PubMed Web of Science ®Google Scholar
• Stanton , A. L. , Ganz , P. A. , Rowland , J. H. , Meyerowitz , B. E. , Krupnick , J. L. , & Sears , S. R. ( 2005 ). Promoting adjustment following treatment for cancer . Cancer , 104 ( 11 Suppl. ), 2608 – 2613 .
   PubMed Web of Science ®Google Scholar
• Stewart , M. A. ( 1995 ). Effective physician–patient communication and health outcomes: A review . Canadian Medical Association Journal , 152 , 1423 – 1433 .
   PubMed Web of Science ®Google Scholar
• Sundin , E. C. , & Horowitz , M. J. ( 2002 ). Impact of Event Scale: Psychometric properties . British Journal of Psychiatry , 180 , 205 – 209 .
   PubMed Web of Science ®Google Scholar
• Sutton , R. L. ( 1982 ). Adjuvant care . Cutis , 29 , 591 .
   PubMed Web of Science ®Google Scholar
• Ward , J. A. D. , Baum , S. , Ter Maat , J. , Thomsen , C. A. , & Maibach , E. W. ( 1998 ). The value and impact of the Cancer Information Service Telephone Service. Part 4 . Journal of Health Communication , 3 ( Suppl ), 50 – 70 .
   PubMed Web of Science ®Google Scholar
• Ware , J. E. , Kosinski , M. , & Keller , S. ( 1996 ). A 12-item short-form health survey (SF-12): Construction of scales and preliminary tests of reliability and validity . Medical Care , 34 , 220 – 233 .
   PubMed Web of Science ®Google Scholar
• Whelan , T. , Levine , M. , Willan , A. , Gafni , A. , Sanders , K. , Mirsky , D. , … Dubois , S. ( 2004 ). Effect of a decision aid on knowledge and treatment decision making for breast cancer surgery: A randomized trial . JAMA , 435 – 441 .
   PubMed Web of Science ®Google Scholar
• Wilson , S. E. , Andersen , M. R. , & Meischke , H. (2000). Meeting the needs of rural breast cancer survivors: What still needs to be done. Journal of Women's Health and Gender-Based Medicine , 9, 667–677.
   PubMedGoogle Scholar
• Wise , M. , Han , J. Y. , Shaw , B. , McTavish , F. , & Gustafson , D. H. ( 2008 ). Effects of using online narrative and didactic information on healthcare participation for breast cancer patients . Patient Education and Counseling , 70 , 348 – 356 .
   PubMed Web of Science ®Google Scholar
• Woolf , S. H. ( 1997 ). Shared decision-making: The case for letting patients decide which choice is best . Journal of Family Practice , 45 , 205 – 208 .
   PubMed Web of Science ®Google Scholar
• Woolf , S. H. , Chan , E. C. , Harris , R. , Sheridan , S. L. , Braddock , C. H. , Kaplan , R. M. , … Tunis , S. ( 2005 ). Promoting informed choice: Transforming health care to dispense knowledge for decision making . Annals of Internal Medicine , 143 , 293 – 300 .
   PubMed Web of Science ®Google Scholar
• Yellen , S. B. , Cella , D. F. , Webster , K. , Blendowski , C. , & Kaplan , E. ( 1997 ). Measuring fatigue and other anemia-related symptoms with the Functional Assessment of Cancer Therapy (FACT) measurement systems . Journal of Pain Symptom Management , 13 , 63 – 74 .
   PubMed Web of Science ®Google Scholar
• Zigmond , A. S. , & Snaith , R. P. ( 1983 ). The Hospital Anxiety and Depression Scale . Acta Psychiatrica Scandinavica , 67 , 361 – 370 .
   PubMed Web of Science ®Google Scholar