615
Views
13
CrossRef citations to date
0
Altmetric
ARTICLES

Health Literacy and Usability of Clinical Trial Search Engines

, , &

References

  • Atkinson , N. , Saperstein , S. , Massett , H. , Leonard , C. , Grama , L. , & Manrow , R. ( 2008 ). Using the Internet to search for cancer clinical trials: A comparative audit of clinical trial search tools . Contemporary Clinical Trials , 29 , 555 – 564 .
  • Aula , A. ( 2003 ). Query formulation in web information search. In Proceedings of the IADIS International Conference WWW/Internet (ICWI), Algarve, Portugal, November 5–8.
  • Aula , A. ( 2005 ). User study on older adults’ use of the web and search engines . Universal Access in the Information Society , 4 , 67 – 81 .
  • Bennett , C. L. , Ferreira , M. R. , Davis , T. C. , Kaplan , J. , Weinberger , M. , Kuzel , T. , … Sartor , O. ( 1998 ). Relation between literacy, race, and stage of presentation among low-income patients with prostate cancer . Journal of Clinical Oncology , 16 , 3101 – 3104 .
  • Bickmore , T. , Pfeifer , L. , Byron , D. , Forsythe , S. , Henault , L. , Jack , B. , … Paasche-Orlow , M. ( 2010 ). Usability of conversational agents by patients with inadequate health literacy: Evidence from two clinical trials . Journal of Health Communication , 15 ( Suppl 2 ), 197 – 210 .
  • Bickmore , T. , Pfeifer , L. , & Paasche-Orlow , M. ( 2009 ). Using computer agents to explain medical documents to patients with low health literacy . Patient Education and Counseling , 75 , 315 – 320 .
  • Brown , H. , Prisuta , R. , Jacobs , B. , & Campbell , A. ( 1996 ). Literacy of older adults in America: Results from the National Adult Literacy Survey . Washington , DC : U.S. Department of Education. National Center for Education Statistics .
  • Davis , T. C. , Long , S. W. , Jackson , R. H. , Mayeaux , E. J. , George , R. B. , Murphy , P. W. , & Crouch , M. A. ( 1993 ). Rapid Estimate of Adult Literacy in Medicine: A shortened screening instrument . Family Medicine , 25 , 391 – 395 .
  • Gifford , A. L. , Cunningham , W. E. , Heslin , K. C. , Andersen , R. M. , Nakazono , T. , Lieu , D. K. , … HIV Cost, and Services Utilization Study Consortium . ( 2002 ). Participation in research and access to experimental treatments by HIVinfected patients . New England Journal of Medicine , 346 , 1373 – 1382 .
  • Guyatt , G. , & Rennie , D. ( 2002 ). User's guides to the medical literature . Chicago , IL : AMA Press .
  • Harris Interactive . ( 2001 ). Misconceptions and lack of awareness greatly reduce recruitment for cancer clinical trials . Health Care News , 1 , 1 – 3 .
  • Hoel , A. , Kayssi , A. , Brahmanandam , A. , Belkin , M. , Conte , M. , & Nguyen , L. ( 2009 ). Under-representation of women and ethnic minorities in vascular surgery randomized controlled trials . Journal of Vascular Surgery , 50 , 349 – 354 .
  • Hölscher , C. , & Strube , G. ( 2000 ). Web search behavior of Internet experts and newbies . Computer Networks , 33 , 337 – 346 .
  • Jansen , B. , Spink , A. , & Saracevic , T. ( 2000 ). Real life, real users, and real needs: a study and analysis of user queries on the web . Information Processing & Management , 36 , 207 – 227 .
  • Lincoln , A. , Paasche-Orlow , M. K. , Cheng , D. M. , Lloyd-Travaglini , C. , Caruso , C. , Saitz , R. , & Samet , J. H. (2006). Impact of health literacy on depressive symptoms and mental health-related quality of life among adults with addiction. Journal of General Internal Medicine , 21, 818–822.
  • Lindau , S. , Basu , A. , & Leitsch , S. ( 2006 ). Health literacy as a predictor of follow-up after an abnormal Pap smear: A prospective study . Journal of General Internal Medicine , 21 , 829 – 834 .
  • Mancuso , C. , & Rincon , M. ( 2006 ). Impact of health literacy on longitudinal asthma outcomes . Journal of General Internal Medicine , 21 , 813 – 817 .
  • Meinert , C. , & Gilpin , A. ( 2001 ). Estimation of gender bias in clinical trials . Statistics in Medicine , 20 , 1153 – 1154 .
  • Murthy , V. , Krumholz , H. , & Gros , C. ( 2004 ). Participation in cancer clinical trials race-, sex-, and age-based disparities . JAMA , 291 , 2720 – 2726 .
  • National Institutes of Health . ( 1994 ). NIH guidelines on the inclusion of women and minorities as subjects in clinical research . Federal Register , 59 , 14508 – 14513 .
  • NIH Revitalization Act of 1993, Pub. L. No. 103-43 (1993) .
  • Oddone , E. , Olsen , M. , Lindquist , J. , Orr , M. , Horner , R. , Reda , D. , … Feussner , J. ( 2004 ). Enrollment in clinical trials according to patients race: Experience from the VA Cooperative Studies Program (1975–2000) . Controlled Clinical Trials , 25 , 378 – 387 .
  • Paasche-Orlow , M. , Parker , R. , Gazmararian , J. , Nielsen-Bohlman , L. , & Rudd , R. ( 2005 ). The prevalence of limited health literacy . Journal of General Internal Medicine , 20 , 175 – 184 .
  • Paasche-Orlow , M. , & Wolf , M. ( 2007 ). The causal pathways linking health literacy to health outcomes . American Journal of Health Behavior , 31 ( Suppl. 1 ), S19 – 26 .
  • Ross , S. , Grant , A. , Counsell , C. , Gillespie , W. , Russell , I. , & Prescott , R. ( 1999 ). Barriers to participation in randomised controlled trials: A systematic review . J Clinical Epidemiology , 52 , 1143 – 1156 .
  • Schwartz , L. M. , Woloshin , S. , Black , W. C. , & Welch , H. G. ( 1997 ). The role of numeracy in understanding the benefit of screening mammography . Annals of Internal Medicine , 11 , 966 – 972 .
  • Strauss , A. ( 1987 ). Qualitative analysis for social scientists . Cambridge , England : University of Cambridge Press .
  • Sudore , R. , Yaffe , K. , Satterfield , S. , Harris , T. , Mehta , K. , Simonsick , E. , … Schillinger , D. ( 2006 ). Limited literacy and mortality in the elderly: The health, aging, and body composition study . Journal of General Internal Medicine , 21 , 806 – 812 .
  • Utami , D. , Barry , B. , Bickmore , T. , & Paasche-Orlow , M. ( 2013 ). A conversational agent-based clinical trial search engine. In Proceedings of the Annual Symposium on Human-Computer Interaction and Information Retrieval (HCIR), Vancouver, BC, Canada, October 3–4.
  • Volandes , A. E. , Paasche-Orlow , M. , Gillick , M. R. , Cook , E. F. , Shaykevich , S. , Abbo , E. D. , & Lehmann , L. ( 2008 ). Health literacy not race predicts end-of-life care preferences . Journal of Palliative Medicine , 11 , 754 – 762 .

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.