Improving Family History Collection

References

• Aickin, M. & Gensler, H. (1996). Adjusting for multiple testing when reporting research results: The Bonferroni vs. Holm methods. American Journal of Public Health, 86, 726–728.
   PubMed Web of Science ®Google Scholar
• Afifi, W. A. & Weiner, J. L. (2004). Toward a theory of motivated information management. Communication Theory, 14, 167–190.
   Web of Science ®Google Scholar
• Aitken, J., Bain, C., Ward, M., Siskind, V. & MacLennan, R. (1995). How accurate is self-reported family history of colorectal cancer? American Journal of Epidemiology, 141, 863–871.
   PubMed Web of Science ®Google Scholar
• American Society of Clinical Oncology. (2003). American Society of Clinical Oncology Policy Statement Update: Genetic testing for cancer susceptibility. Journal of Clinical Oncology, 21, 2397–2406.
   PubMed Web of Science ®Google Scholar
• Baer, H. J., Schneider, L. I., Colditz, G. A., Dart, H., Andry, A., Williams, D. H. & Bates, D. W. (2013). Use of a web-based risk appraisal tool for assessing family history and lifestyle factors in primary care. Journal of General Internal Medicine, 28, 817–824.
   PubMed Web of Science ®Google Scholar
• Baumann, L. J., Zimmerman, R. S. & Leventhal, H. (1989). An experiment in common sense: Education at blood pressure screening. Patient Education and Counseling, 14, 53–67.
   PubMed Web of Science ®Google Scholar
• Beavers, W. R., Hampson, R. B. & Hulgus, Y. F. (1990). Beavers Systems Model Manual: 1990 edition. Dallas, TX: Southwest Family Institute.
   Google Scholar
• Benjamin, C., Booth, K. & Ellis, I. (2003). A prospective comparison study of different methods of gathering self-reported family history information of breast cancer risk assessment. Journal of Genetic Counseling, 12, 151–170.
   PubMedGoogle Scholar
• Bennett, R. L. (1999). The practical guide to the genetic family history. New York, NY: Wiley-Liss.
   Google Scholar
• Bensen, J. T., Liese, A. D., Rushing, J. T., Province, M., Folsom, A. R., Rich, S. S. & Higgins, M. (1999). Accuracy of proband reported family history: The NHLBI Family Heart Study (FHS). Genetic Epidemiology, 17, 141–150.
   PubMed Web of Science ®Google Scholar
• Bluman, L. G., Rimer, B. K., Berry, D. A., Borstelmann, N., Iglehart, J. D., Regan, K. & Winer, E. P. (1999). Attitudes, knowledge, and risk perceptions of women with breast and/or ovarian cancer considering testing for BRCA1 and BRCA2. Journal of Clinical Oncology, 17, 1040–1046.
   PubMed Web of Science ®Google Scholar
• Braithwaite, D., Emery, J., Walter, F., Prevost, A. T. & Sutton, S. (2004). Psychological impact of genetic counseling for familial cancer: A systematic review and meta-analysis. Journal of the National Cancer Institute, 96, 122–133.
   PubMed Web of Science ®Google Scholar
• Bull, F. C., Holt, C. L., Kreuter, M. W., Clark, E. M. & Scharff, D. (2001). Understanding the effects of printed health education materials: Which features lead to which outcomes? Journal of Health Communication, 6, 265–279.
   PubMed Web of Science ®Google Scholar
• Douglas, F. S., O'Dair, L. C., Robinson, M., Evans, D. G. & Lynch, S. A. (1999). The accuracy of diagnoses as reported in families with cancer: A retrospective study. Journal of Medical Genetics, 36, 309–312.
   PubMed Web of Science ®Google Scholar
• Easton, D. F., Ford, D. & Bishop, T. (1995). Breast and ovarian cancer incidence in BRCA1-mutation carriers. Breast Cancer Linkage Consortium. American Journal of Human Genetics, 56, 265–271.
   PubMed Web of Science ®Google Scholar
• Forrest, K., Simpson, S. A., Wilson, B. J., van Teijlingen, E. R., McKee, L., Haites, N. & Matthews, E. (2003). To tell or not to tell: Barriers and facilitators in family communication about genetic risk. Clinical Genetics, 64, 317–326.
   PubMed Web of Science ®Google Scholar
• Glanz, K., Grove, J., Le Marchand, L. & Gotay, C. (1999). Underreporting of family history of colon cancer: Correlates and implications. Cancer Epidemiology Biomarkers and Prevention, 8, 635–639.
   PubMed Web of Science ®Google Scholar
• Green, M. J., Biesecker, B. B., McInerney, A. M., Mauger, D. & Fost, N. (2001). An interactive computer program can effectively educate patients about genetic testing for breast cancer susceptibility. American Journal of Medical Genetics, 103, 16–23.
   PubMed Web of Science ®Google Scholar
• Green, M. J., Peterson, S. K., Baker, M. W., Harper, G. R., Friedman, L. C., Rubinstein, W. S., … Mauger, D. T. (2004). Effect of a computer-based decision aid on knowledge, perceptions, and intentions about genetic testing for breast cancer susceptibility: A randomized controlled trial. Journal of the American Medical Association, 292, 442–452.
   PubMed Web of Science ®Google Scholar
• Hampel, H., Sweet, K., Westman, J. A., Offit, K. & Eng, C. (2004). Referral for cancer genetics consultation: A review and compilation of risk assessment criteria. Journal of Medical Genetics, 41, 81–91.
   PubMed Web of Science ®Google Scholar
• Harris, J. N., Hay, J., Kuniyuki, A., Asgari, M. M., Press, N. & Bowen, D. J. (2010). Using a family systems approach to investigate cancer risk communication within melanoma families. Psycho-Oncology, 19, 1102–1111.
   PubMed Web of Science ®Google Scholar
• Hilgart, J. S., Coles, B. & Iredale, R. (2012). Cancer genetic risk assessment for individuals at risk of familial breast cancer. Cochrane Database of Systematic Review, 2012(2), CD003721.
   Google Scholar
• Hughes, C., Lerman, C., Schwartz, M., Peshkin, B. N., Wenzel, L., Narod, S., … Main, D. (2002). All in the family: evaluation of the process and content of sisters' communication about BRCA1 and BRCA2 genetic test results. American Journal of Medical Genetics, 107, 143–150.
   PubMed Web of Science ®Google Scholar
• Ivanovich, J., Babb, S., Goodfellow, P., Mutch, D., Herzog, T., Rader, J. & Whelan, A. (2002). Evaluation of the family history collection process and the accuracy of cancer reporting among a series of women with endometrial cancer. Clinical Cancer Research, 8, 1849–1856.
   PubMed Web of Science ®Google Scholar
• Jarusriboonchai, P. & Väänänen-Vainio-Mattila, K. (2012). Using mobile technology to bring families together: The design of a family history concept to motivate face-to-face communication. Mobile Human Computer Interaction, 4.
   Google Scholar
• Kelly, K., Ferketich, A., Sturm, A., Koenig, C., Sweet, K., Kemp, K. & Westman, J. A. (2009). Cancer risk and risk communication in urban, lower-income neighborhoods. Preventive Medicine, 48, 392–396.
   PubMed Web of Science ®Google Scholar
• Kelly, K., Leventhal, H., Andrykowski, M., Toppmeyer, D., Much, J., Dermody, J. & Schwalb, M. (2004). The decision to test in women receiving genetic counseling for BRCA1 and BRCA2 mutations. Journal of Genetic Counseling, 13, 237–257.
   PubMedGoogle Scholar
• Kelly, K., Love, M., Pearce, K., Porter, K., Baron, M. & Andrykowski, M. (2009). Cancer risk assessment in rural and Appalachian family medicine physicians. Journal of Rural Health, 25, 372–377.
   PubMed Web of Science ®Google Scholar
• Koehly, L. M., Peterson, S. K., Watts, B. G., Kempf, K. K., Vernon, S. W. & Gritz, E. R. (2003). A social network analysis of communication about hereditary nonpolyposis colorectal cancer genetic testing and family functioning. Cancer Epidemiology Biomarkers and Prevention, 12, 304–313.
   PubMed Web of Science ®Google Scholar
• Lerman, C., Kash, K. & Stefanek, M. (1994). Younger women at increased risk for breast cancer: Perceived risk, psychological well-being, and surveillance behavior. Journal of the National Cancer Institute Monographs, 16, 171–176.
   PubMedGoogle Scholar
• Leventhal, H., Benyamini, Y., Brownlee, S., Diefenbach, M., Leventhal, E. A. & Patrick-Miller, L. (1997). Illness representation: Theoretical foundations. In J. Weinman & K. Petrie (Eds.), Perceptions of health and illness (pp. 19–45). London, England: Harwood.
   Google Scholar
• Leventhal, H., Brisette, I. & Leventhal, E. (2003). The common-sense model of self-regulation of health and illness. In L. D. Cameron & H. Leventhal (Eds.), The self-regulation of health and illness behaviour (pp. 42–65). London, England: Routledge.
   Google Scholar
• Leventhal, H., Singer, R. & Jones, S. (1965). Effects of fear and specificity of recommendations upon attitudes and behavior. Journal of Personality and Social Psychology, 2, 20–29.
   PubMed Web of Science ®Google Scholar
• Leventhal, H. & Watts, J. C. (1966). Sources of resistance to fear-arousing communications on smoking and lung cancer. Journal of Personality, 34, 155–175.
   PubMed Web of Science ®Google Scholar
• Mai, P. L., Garceau, A. O., Graubard, B. I., Dunn, M., McNeel, T. S., Gonsalves, L., … Wideroff, L. (2011). Confirmation of family cancer history reported in a population-based survey. Journal of the National Cancer Institute, 103, 788–797.
   PubMed Web of Science ®Google Scholar
• McGuire, W. J. (1974). Psychological motives and communication gratification. Beverly Hills, CA: Sage.
   Google Scholar
• McGuire, W. J. (1976). Psychological factors influencing consumer choice. In R. Ferber (Ed.), A synthesis of select aspects of consumer behavior. Washington, DC: National Science Foundation.
   Google Scholar
• McGuire, W. J. (1989). Theoretical foundations of campaigns. In R. E. Rice & C. K. Atkin (Eds.), Public communication campaigns (2nd ed.). Newbury Park, CA: Sage.
   Google Scholar
• Mitchell, R. J., Brewster, D., Campbell, H., Porteous, M. E., Wyllie, A. H., Bird, C. C. & Dunlop, M. G. (2004). Accuracy of reporting of family history of colorectal cancer. Gut, 53, 291–295.
   PubMed Web of Science ®Google Scholar
• Richards, M. P. (1999). Genetic counselling for those with a family history of breast or ovarian cancer—Current practice and ethical issues. Acta Oncologica, 38, 559–565.
   PubMed Web of Science ®Google Scholar
• Ries, L. A. G., Melbert, D., Krapcho, M., Stinchcomb, D. G., Howlader, N., Horner, M. J., … Edwards, B. K. (2008). SEER cancer statistics review, 1975–2005. National Cancer Institute. Retrieved from http://seer.cancer.gov/csr/1975_2005
   Google Scholar
• Schuette, J. L. & Bennett, R. L. (1998). Lessons in history: Obtaining the family history and constructing a pedigree. In D. L. Baker J. L. Schuette & R. L. Bennett (Eds.), A guide to genetic counseling (pp. 28–54). New York, NY: Wiley-Liss.
   Google Scholar
• Smith, R. A., Cokkinides, V. & Brawley, O. W. (2009). Cancer screening in the United States, 2009: A review of current American Cancer Society guidelines and issues in cancer screening. CA Cancer Journal for Clinicians, 59, 27–41.
   PubMed Web of Science ®Google Scholar
• Trepanier, A., Ahrens, M., McKinnon, W., Peters, J., Stopfer, J., Grumet, S. C. & Vockley, C. W. (2004). Genetic cancer risk assessment and counseling: recommendations of the national society of genetic counselors. Journal of Genetic Counseling, 13, 83–114.
   PubMedGoogle Scholar
• U.S. Department of Commerce Bureau of the Census. (2013). 2010 Census demographic profile summary file: 2010 Census of population and housing. Retrieved from http://www.census.gov/prod/cen2010/doc/dpsf.pdf
   Google Scholar
• Valdez, R., Yoon, P. W., Qureshi, N., Green, R. F. & Khoury, M. J. (2010). Family history in public health practice: A genomic tool for disease prevention and health promotion. Annual Review of Public Health, 31, 69–87.
   PubMed Web of Science ®Google Scholar
• Verkooijen, H. M., Fioretta, G., Chappuis, P. O., Vlastos, G., Sappino, A. P., Benhamou, S. & Bouchardy, C. (2004). Set-up of a population-based familial breast cancer registry in Geneva, Switzerland: Validation of first results. Annals of Oncology, 15, 350–353.
   PubMed Web of Science ®Google Scholar
• Weinstein, N. D. (1980). Unrealistic optimism about future life events. Journal of Personality and Social Psychology, 39, 806–820.
   Web of Science ®Google Scholar
• Yoon, P. W., Scheuner, M. T., Jorgensen, C. & Khoury, M. J. (2009). Developing Family Healthware, a family history screening tool to prevent common chronic diseases. Preventing Chronic Disease, 6, A33.
   PubMed Web of Science ®Google Scholar