Fears, Uncertainties, and Hopes: Patient-Initiated Actions and Doctors’ Responses During Oncology Interviews

References

• Albrecht, T. L., Blanchard, C., Ruckdeschel, J. C., Coovert, M., & Strongbow, R. (1999). Strategic physician communication and oncology clinical trials. Journal of Clinical Oncology, 17, 3324–3332.
   PubMed Web of Science ®Google Scholar
• Baile, W. F., Lenzi, R., Kudelka, A. P., Meyers, E. G., Novack, D., Goldstein, M., … Bast, R. C. (1997). Improving physician–patient communication in cancer care: Outcome of a workshop for oncologists. Journal of Cancer Education, 12, 166–173.
   PubMedGoogle Scholar
• Baile, W. F., & Aaron, J. (2005). Patient–physician communication in oncology: Past, present, and future. Current Opinions in Oncology, 17, 331–335.
   PubMed Web of Science ®Google Scholar
• Balint, M. (1952). The doctor, his patient, and the illness. Madison, CT: International University Press.
   Google Scholar
• Beach, W. A. (2001). Stability and ambiguity: Managing uncertain moments when updating news about mom's cancer. Text, 21, 221–250.
   Google Scholar
• Beach, W. A. (2009). A natural history of family cancer: Interactional resources for managing illness. Cresskill, NJ: Hampton Press.
   Google Scholar
• Beach, W. A. (2013a). Patients’ efforts to justify wellness in a comprehensive cancer clinic. Health Communication, 28, 577–591.
   PubMed Web of Science ®Google Scholar
• Beach, W. A. (2013b). Handbook of patient–provider relationships: Raising and responding to primary concerns about health, illness, and disease. New York, NY: Hampton Press.
   Google Scholar
• Beach, W. A. (2014). Managing hopeful moments: Initiating and responding to delicate concerns about illness and health. In H. E. Hamilton & W. S. Chou (Eds.), Handbook of language and health communication (pp. 459–476). New York, NY: Routledge.
   Google Scholar
• Beach, W. A. (in press). Doctor–patient interactions. In K. Tracy (Ed.), Encyclopedia of language and social interaction. Thousand Oaks, CA: Sage.
   Google Scholar
• Beach, W. A., & Anderson, J. K. (2003). Communication and cancer?: The noticeable absence of interactional research. Journal of Psychosocial Oncology, 21, 1–23.
   Web of Science ®Google Scholar
• Beach, W. A., Easter, D. W., Good, J. S., & Pigeron, E. (2004). Disclosing and responding to cancer “fears” during oncology interviews. Social Science & Medicine, 60, 893–910.
   Web of Science ®Google Scholar
• Beach, W. A., & Mandelbaum, J. (2005). “My mom had a stroke”: Understanding how patients raise and providers respond to psychosocial concerns. In L. H. Harter P. M. Japp & C. M. Beck (Eds.), Constructing our health: The implications of narrative for enacting illness and wellness (pp. 343–364). Mahwah, NJ: Erlbaum.
   Google Scholar
• Bensing, J. M. (1991). Doctor–patient communication and the quality of care. Social Science & Medicine, 32, 1301–1310.
   PubMed Web of Science ®Google Scholar
• Byrne, P. S., & Long, B. E. L. (1976). Doctors talking to patients: A study of the verbal behavior of general practitioners consulting in their surgeries. London, England: H.M. Stationary Office.
   Google Scholar
• Drew, P. (2013). The voice of the patient: Non-alignment between patients and doctors in the consultation. In W. Beach (Ed.), Handbook of patient–provider relationships: Raising and responding to primary concerns about health, illness, and disease (pp. 299–306). New York, NY: Hampton Press.
   Google Scholar
• Epstein, R. M., & Street, R. L. (2007). Patient-centered communication in cancer care: Promoting healing and reducing suffering (NIH Publication No. 07–6225). Bethesda, MD: National Cancer Institute.
   Google Scholar
• Facione, N. (1993). Delay verses help seeking for breast cancer symptoms: A critical review of the literature on patient and provider delay. Social Science & Medicine, 36, 1521–1534.
   PubMed Web of Science ®Google Scholar
• Fallowfield, L., & Jenkins, V. (1999). Effective communication skills are the key to good cancer care. European Journal of Cancer, 35, 1592–1597.
   PubMed Web of Science ®Google Scholar
• Ford, S., Fallowfield, L., & Lewis, S. (1995). Doctor– patient interaction in oncology. Social Science & Medicine, 42, 1511–1519.
   Web of Science ®Google Scholar
• Frankel, R. M., Quill, T. E., & McDaniel, S. H. (2003). The biopsychosocial approach: Past, present, and future. Rochester, NY: University of Rochester Press.
   Google Scholar
• Gill, V. T. (1998). Doing attributions in medical interactions: Patients’ explanations for illness and doctor's responses. Social Psychological Quarterly, 61, 342–360.
   Web of Science ®Google Scholar
• Gill, V. T., Halkowski, T., & Roberts, F. (2001). Accomplishing a request without making one:A single case analysis of a primary care visit. Text, 21(1/2), 55–82.
   Google Scholar
• Gill, V. T., & Maynard, D. W. (2006). Explaining illness: Patients’ proposals and physicians’ responses. In J. Heritage & D. Maynard (Eds.), Communication and medicine: Talk and action in primary care consultations (pp. 115–150). Cambridge, England: Cambridge University Press.
   Google Scholar
• Gill, V. T., Pomerantz, A., & Denvir, P. (2010). Preemptive resistance: Patients’ participation in diagnostic sense-making activities. Sociology of Health & Illness, 32, 1–20.
   PubMed Web of Science ®Google Scholar
• Groopman, J. (2006). The anatomy of hope: How people prevail in the face of illness. New York, NY: Random House.
   Google Scholar
• Halkowski, T. (2013). ‘Occasional’ drinking: Some uses of a non-standard temporal metric in primary care assessment of alcohol use. In W. Beach (Ed.), Handbook of patient–provider relationships: Raising and responding to primary concerns about health, illness, and disease (321–329). New York, NY: Hampton Press.
   Google Scholar
• Heritage, J. (2005). Revisiting authority in physician–patient interaction. In J. F. Duchan & D. Kovarsky (Eds.), Diagnosis in cultural practice (pp. 83–102). New York, NY: Mouton De Gruyter.
   Google Scholar
• Heritage, J., & Maynard, D. (Eds.). (2006). Communication and medicine: Talk and action in primary care consultations. Cambridge, England: Cambridge University Press.
   Google Scholar
• Institute of Medicine. (2014). Partnering with patients to drive shared decisions, better value, and care improvement. Washington, DC: National Academies Press.
   Google Scholar
• Herth, K. (1992). Abbreviated instrument to measure hope: Development and psychometric evaluation. Journal of Advanced Nursing, 17, 1251–1259.
   PubMed Web of Science ®Google Scholar
• Inui, T. S., Carter, W. B., Kukull, W. A., & Haigh, V. H. (1982). Outcome-based doctor–patient interaction analysis I. Comparison of techniques. Medical Care, 20, 535–549.
   PubMed Web of Science ®Google Scholar
• Jones, C. M., & Beach, W. A. (2005). “I just wanna know why”: Patients’ attempts and physicians’ responses to premature solicitation of diagnostic information. In J. F. Duchan & D. Kovarsky (Eds.), Diagnosis as cultural practice (pp. 103–136). New York, NY: de Gruyter.
   Google Scholar
• Kennifer, S. L., Alexander, S. C., Pollak, K. I., Jeffreys, A. S., Olsen, M. K., Rodriguez, K. L., … Tulsky, J. A. (2009). Negative emotions in cancer care: Do oncologists’ responses depend on severity and type of emotion? Patient Education and Counseling, 76, 51–56.
   PubMed Web of Science ®Google Scholar
• Korsch, B. M., & Negrete, V. F. (1972). Doctor-patient communication. Scientific American, 227, 66–74.
   PubMed Web of Science ®Google Scholar
• Krippendorff, K. (1980). Content analysis: An introduction to its methodology. Beverly Hills, CA: Sage.
   Google Scholar
• Kristjanson, L. J., & Ashcroft, T. (1994). The family's cancer journey: A literature review. Cancer Nursing, 17, 1–17.
   PubMed Web of Science ®Google Scholar
• Levinson, W., Gorawara-Bhat, & Lamb, J. (2000). A study of patient clues and physician responses in primary care and surgical settings. JAMA, 284, 1021–1027.
   PubMed Web of Science ®Google Scholar
• Lutfey, K., & Maynard, D. W. (1998). Bad news in oncology: How physician and patient talk about death and dying without using those words. Social Psychology Quarterly, 61, 321–341.
   Web of Science ®Google Scholar
• Maguire, P., Booth, K., Elliott, C., & Jones, B. (1996). Helping health professionals involved in cancer care acquire key interviewing skills—The impact of workshops. European Journal of Cancer, 32A, 1486–1489.
   PubMed Web of Science ®Google Scholar
• Marvel, M. K., Epstein, R. M., Flowers, K., & Beckman, H. B. (1999). Soliciting the patient's agenda: Have we improved? JAMA, 281, 283–287.
   PubMed Web of Science ®Google Scholar
• Maynard, D. W. (2003). Good news, bad news: Conversational order in everyday talk and clinical settings. Chicago, IL: The University of Chicago Press.
   Google Scholar
• Maynard, D. W., & Frankel, R. M. (2006). On the edge of rationality in primary care medicine: Bad news, good news, and uncertainty. In J. Heritage & D. W. Maynard (Eds.), Communication and medicine: Talk and action in primary care consultations (pp. 248–278). Cambridge, England: Cambridge University Press.
   Google Scholar
• Mishel, M. (1997). Uncertainty in illness scales manual. Chapel Hill: University of North Carolina Press.
   Google Scholar
• Mishler, E. (1984). The discourse of medicine: Dialectics of medical interviews. Norwood, NJ: Ablex.
   Google Scholar
• Nylenna, M. (1984). Fear of cancer among patients in general practice. Scandinavian Journal of Primary Health Care, 2(Suppl. 1), 24–26.
   PubMedGoogle Scholar
• Ong, L. M. L., Visser, M. R. M., Kruyver, I. P. M., & Bensing, J. M. (1998). The Roter Interaction Analysis System (RIAS) in oncological consultations: Psychometric properties. Psycho-Oncology, 7, 387–401.
   PubMed Web of Science ®Google Scholar
• Peräkylä, A. (2002). Agency and authority: Extended responses to diagnostic statements in primary care encounters. Research on Language and Social Interaction, 35, 219–247.
   Web of Science ®Google Scholar
• Peräkylä, A., & Sorjonen, M. L. (2012). Emotion in interaction. New York, NY: Oxford University Press.
   Google Scholar
• Pollak, K. I., Arnold, R. M., Jeffreys, A. S., Alexander, S. C., Olsen, M. K., Abermethy, A. P., … Tulsky, J. A. (2007). Oncologist communication about emotion during visits with patients with advanced cancer. Journal of Clinical Oncology, 25, 5748–5752.
   PubMed Web of Science ®Google Scholar
• Pomerantz, E., & Rintel, S. (2004). Practices for reporting and responding to test results during medical consultations: Enacting the roles of paternalism and independent expertise. Discourse Studies, 6, 9–26.
   Web of Science ®Google Scholar
• Roberts, F. (2000). The interactional construction of asymmetry: The medical agenda as a resource for delaying response to patients’ questions. Sociological Quarterly, 41, 151–170.
   Web of Science ®Google Scholar
• Roberts, S. R., Early, G. L., & Lamb, J. (1990). Anxiety levels and cancer fear in patients admitted for elective operations. Southern Medical Journal, 83, 1128–1130.
   PubMed Web of Science ®Google Scholar
• Robinson, J. D. (2001). Asymmetry in action: Sequential resources in the negotiation of a prescription request. Text, 21(1/2), 19–54.
   Google Scholar
• Robinson, J. D. (2003). An interactional structure of medical activities during acute visits and its implications for patients’ participation. Health Communication, 15, 27–59.
   PubMed Web of Science ®Google Scholar
• Robinson, J. D., & Heritage, J. (2006). Physician's opening questions and patient. Patient Education and Counseling, 60, 279–285.
   PubMed Web of Science ®Google Scholar
• Robinson, J. D., Hoover, D. R., Venetis, M. K., Kearney, T. J., & Street, R. L. (2013). Consultations between breast-cancer patients and surgeons: A pathway from patient- centered communication to reduced hopelessness. Journal of Clinical Oncology, 31, 351–358.
   PubMed Web of Science ®Google Scholar
• Roter, D. L. (2000). The enduring and evolving nature of the patient–physician relationship. Patient Education and Counseling, 39, 5–15.
   PubMed Web of Science ®Google Scholar
• Roter, D. L., Hall, J. A., & Katz, N. R. (1987). Relations between physicians’ behaviors and analogue patients’ satisfaction, recall, and impressions. Medical Care, 25, 437–451.
   PubMed Web of Science ®Google Scholar
• Roter, D. L., Hall, J. A., & Katz, N. R. (1988). Patient–physician communication: A descriptive summary of the literature. Patient Education and Counseling, 12, 99–119.
   Web of Science ®Google Scholar
• Roter, D. L., Frankel, R. M., Hall, J. A., & Sluyter, D. (2006). The expression of emotion through nonverbal behavior in medical visits. Journal of General Internal Medicine, 21, 28–34.
   PubMed Web of Science ®Google Scholar
• Roter, D. L., & Larson, S. (2002). The Roter interaction analysis system (RIAS): Utility and flexibility for analysis of medical interactions. Patient Education and Counseling, 46(4), 243–251.
   PubMed Web of Science ®Google Scholar
• Ruusuvuori, J. (2013). Emotion, affect, and conversation. In J. Sidnell & T. Stivers (Eds.), Handbook of conversation analysis (pp. 330–349). Cambridge, England: Cambridge University Press.
   Google Scholar
• Schofield, P. E., Butow, P. N., Thompson, J. F., Tattersall, M. H. N., Beeney, L. J., & Dunn, S. M. (2002). Psychological responses of patients receiving a diagnosis of cancer. Annals of Oncology, 14, 48–56.
   Web of Science ®Google Scholar
• Scholmerich, J., Sedlak, P., Hoppe-Seyler, P., & Garok, W. (1987). The information needs and fears of patients with inflammatory bowel disease. Hepatogastroenterology, 34, 182–185.
   PubMed Web of Science ®Google Scholar
• Sidnell, J., & Stivers, T. (2013). Handbook of conversation analysis. Cambridge, England: Cambridge University Press.
   Google Scholar
• Siminoff, L. A., & Step, M. M. (2011). A comprehensive observational coding scheme for analyzing instrumental, affective, and relational communication in health care contexts. Journal of Health Communication, 16, 178–197.
   PubMed Web of Science ®Google Scholar
• Stiles, W. B., Putnam, S. M., Wolf, M. H., & James, S. A. (1979). Interaction exchange structure and patient satisfaction with medical interviews. Medical Care, 27, 667–681.
   Web of Science ®Google Scholar
• Stivers, T., & Heritage, J. (2001). Breaking the sequential mold: Answering ‘more than the question’ during comprehensive history taking. Text, 21, 151–185.
   Google Scholar
• Street, R. L., Gordan, H. S., Ward, M. M., Krupat, E., & Kravitz, R. L. (2005). Patient participation in medical consultations: Why some patients are more involved than others. Medical Care, 43, 960–969.
   PubMed Web of Science ®Google Scholar
• Street, R. L., Krupat, E., Bell, R. A., Kravitz, R. L., & Haidet, P. (2003). Journal of General Internal Medicine, 18, 609–616.
   PubMed Web of Science ®Google Scholar
• Street, R. L., & Millay, B. (2001). Analyzing patient participation in medical encounters. Health Communication, 13, 61–73.
   PubMed Web of Science ®Google Scholar
• Suchman, A., Markakis, K., Beckman, H. B., & Frankel, R. (1997). A model of empathic communication in the medical interview. JAMA, 277, 678–682.
   PubMed Web of Science ®Google Scholar
• Surbonne, A., & Zwitter, M. (1997). Communication with the cancer patient: Information and truth. New York: The New York Academy of Sciences.
   Google Scholar
• Trent, J. (2014). The state of cancer care in America, 2014: A report by the American Society of Clinical Oncology. Journal of Oncology Practice, 10, 119–143.
   PubMedGoogle Scholar
• Venetis, M. K., Robinson, J. D., & Kearney, T. (2015). Breast-cancer patients’ participation behavior and coping during pre-surgical consultations: A pilot study. Health Communication, 30, 19–25.
   PubMed Web of Science ®Google Scholar
• Venetis, M. K., Robinson, J. D., & Kearney, T. (2013). Consulting with a surgeon before breast-cancer surgery: Patient question asking and satisfaction. Journal of Health Communication, 18, 943–959.
   PubMed Web of Science ®Google Scholar
• Venetis, M. K., Robinson, J. D., Turkiewicz, K. L., & Allen, M. (2009). An evidence base for patient-centered care: A meta-analysis of studies of observed communication between cancer specialists and their patients. Patient Education & Counseling, 77, 379–383.
   PubMed Web of Science ®Google Scholar
• Waitzkin, H. (1991). The politics of medical encounters. New Haven, CT: Yale University Press.
   Google Scholar
• Ward, M. M., Sundarmurthy, S., Lotstein, D., Bush, T. M., Neuwelt, C. M., & Street, R. L. (2003). Participatory patient–physician communication and morbidity in patients with systemic lupus erythematosus. Arthritis Rheumatology, 49, 810–818.
   PubMed Web of Science ®Google Scholar
• West, C. (1984). Routine complications: Troubles with talk between doctors and patients. Bloomington: Indiana University Press.
   Google Scholar
• West, H. F., & Baile, W. F. (2010). “Tell me what you understand”: The importance of checking for patient understanding. Journal of Supportive Oncology, 8, 216–218.
   PubMedGoogle Scholar