Predictors of Health Literacy and Numeracy Concordance Among Adolescents With Special Health Care Needs and Their Parents

References

• American Academy of Pediatrics, American Academy of Family Physicians, & American College of Physicians–American Society of Internal Medicine. (2002). A consensus statement on health care transitions for young adults with special health care needs. Pediatrics, 110(6 Pt. 2), 1304–1306.
   PubMed Web of Science ®Google Scholar
• Baker, D. W. (2006). The meaning and the measure of health literacy. Journal of General Internal Medicine, 21(8), 878–883. doi:10.1111/j.1525-1497.2006.00540.x
   PubMed Web of Science ®Google Scholar
• Baker, D. W., Williams, M. V., Parker, R. M., Gazmararian, J. A., & Nurss, J. (1999). Development of a brief test to measure functional health literacy. Patient Education and Counseling, 38(1), 33–42. doi:10.1016/s0738-3991(98)00116-5
   PubMed Web of Science ®Google Scholar
• Bingham, G. E. (2007). Maternal literacy beliefs and the quality of mother-child book-reading interactions: Associations with children's early literacy development. Early Education & Development, 18(1), 23–49. doi:10.1080/10409280701274428
   Google Scholar
• Chew, L. D., Bradley, K. A., & Boyko, E. J. (2004). Brief questions to identify patients with inadequate health literacy. Family Medicine, 36(8), 588–594.
   PubMed Web of Science ®Google Scholar
• Davis, T. C., Wolf, M. S., Arnold, C. L., Byrd, R. S., Long, S. W., Springer, T., … Bocchini, J. A. (2006). Development and validation of the Rapid Estimate of Adolescent Literacy in Medicine (REALM-Teen): A tool to screen adolescents for below-grade reading in health care settings. Pediatrics, 118(6), e1707–e1714. doi:10.1542/peds.2006-1139
   PubMed Web of Science ®Google Scholar
• Debaryshe, B. D. (1993). Joint picture-book reading correlates of early oral language skill. Journal of Child Language, 20(2), 455–461. doi:10.1017/s0305000900008370
   PubMed Web of Science ®Google Scholar
• Duursma, E., Pan, B. A., & Raikes, H. (2008). Predictors and outcomes of low-income fathers’ reading with their toddlers. Early Childhood Research Quarterly, 23, 351–365. doi:10.1016/j.ecresq.2008.06.001
   Web of Science ®Google Scholar
• Gandhi, P. K., Kenzik, K. M., Thompson, L. A., DeWalt, D. A., Revicki, D. A., Shenkman, E. A., & Huang, I.-C. (2013). Exploring factors influencing asthma control and asthma-specific health-related quality of life among children. Respiratory Research, 14(1), 26. doi:10.1186/1465-9921-14-26
   PubMed Web of Science ®Google Scholar
• Gest, S. D., Freeman, N. R., Domitrovich, C. E., & Welsh, J. A. (2004). Shared book reading and children's language comprehension skills: The moderating role of parental discipline practices. Early Childhood Research Quarterly, 19(2), 319–336. doi:10.1016/j.ecresq.2004.04.007
   Web of Science ®Google Scholar
• Giedd, J. N., Blumenthal, J., Jeffries, N. O., Castellanos, F. X., Liu, H., Zijdenbos, A., … Rapoport, J. L. (1999). Brain development during childhood and adolescence: A longitudinal MRI study. Nature Neuroscience, 2(10), 861–863. doi:10.1038/13158
   PubMed Web of Science ®Google Scholar
• Hawley, K. M., & Weisz, J. R. (2003). Child, parent, and therapist (dis)agreement on target problems in outpatient therapy: The therapist's dilemma and its implications. Journal of Consulting and Clinical Psychology, 71(1), 62–70. doi:10.1037/0022-006x.71.1.62
   PubMed Web of Science ®Google Scholar
• Jones, M. W., & Englestad, D. M. (2004). “Womb” literacy: Reading to infants in the NICU. Neonatal Network, 23(4), 65–69. doi:10.1891/0730-0832.23.4.65
   PubMedGoogle Scholar
• Kyngäs, H. A., Kroll, T., & Duffy, M. E. (2000). Compliance of adolescents with chronic diseases: A review. Journal of Adolescent Health, 26, 379–388. doi:10.1016/s1054-139x(99)00042-7
   PubMed Web of Science ®Google Scholar
• Lariviere, J., & Rennick, J. E. (2011). Parent picture-book reading to infants in the neonatal intensive care unit as an intervention supporting parent-infant interaction and later book reading. Journal of Developmental & Behavioral Pediatrics, 32(2), 146–152. doi:10.1097/DBP.0b013e318203e3a1
   PubMed Web of Science ®Google Scholar
• Lewis, T., Thompson, R., Kotch, J. B., Proctor, L. J., Litrownik, A. J., English, D. J., … Dubowitz, H. (2012). Parent-youth discordance about youth-witnessed violence: Associations with trauma symptoms and service use in an at-risk sample. Child Abuse & Neglect, 36(11–12), 790–797.
   PubMed Web of Science ®Google Scholar
• Manganello, J., & Shone, L. P. (2013). Health literacy. Retrieved from http://www.actforyouth.net/resources/rf/rf_health-literacy_0513.pdf
   Google Scholar
• Mendelsohn, A. L., Mogiler, L. N., Dreyer, B. P., Forman, J. A., Weinstein, S. C., Broderick, M., … Napier, C. (2001). The impact of a clinical based literacy intervention on language development in inner-city preschool children. Pediatrics, 107(1), 130–134. doi:10.1542/peds.107.1.130
   PubMed Web of Science ®Google Scholar
• Moon, R. Y., Cheng, T. L., Patel, K. M., Baumhaft, K., & Scheidt, P. C. (1998). Parental literacy level and understanding of medical information. Pediatrics, 102(2), 1–6. doi:10.1542/peds.102.2.e25
   PubMed Web of Science ®Google Scholar
• Morrison, A. K., Myrvik, M. P., Brousseau, D. C., Hoffmann, R. G., & Stanley, R. M. (2013). The relationship between parent health literacy and pediatric emergency department utilization: A systematic review. Academic Pediatrics, 13(5), 421–429. doi:10.1016/j.acap.2013.03.001
   PubMed Web of Science ®Google Scholar
• Nageswaran, S., Silver, E. J., & Stein, R. E. K. (2008). Association of functional limitation with health care needs and experiences of children with special health care needs. Pediatrics, 121(5), 994–1001. doi:10.1542/peds.2007-1795
   PubMed Web of Science ®Google Scholar
• National Cancer Institute. (n.d.). Health Information National Trends Survey (HINTS). Retrieved from http://hints.cancer.gov/question-details.aspx?qid=785&dataset=2007&method=Combined
   Google Scholar
• Nutbeam, D. (2000). Health literacy as a public health goal: A challenge for contemporary health education and communication strategies into the 21st century. Health Promotion International, 15(3), 259–267. doi:10.1093/heapro/15.3.259
   Web of Science ®Google Scholar
• Paasche-Orlow, M. K., Parker, R. M., Gazmararian, J. A., Nielsen-Bohlman, L. T., & Rudd, R. R. (2005). The prevalence of limited health literacy. Journal of General Internal Medicine, 20, 175–184. doi:10.1111/j.1525-1497.2005.40245.x
   PubMed Web of Science ®Google Scholar
• Payne, A. C., Whitehurst, G. J., & Angell, A. L. (1994). The role home literacy environment in the development of language ability in preschool children from low-income families. Early Childhood Research Quarterly, 9, 427–440. doi:10.1016/0885-2006(94)90018-3
   Web of Science ®Google Scholar
• Pizur-Barnekow, K., Darragh, A., & Johnston, M. (2011). “I cried because I didn't know if I could take care of him”: Toward a taxonomy of interactive and critical health literacy as portrayed by caregivers of children with special health care needs. Journal of Health Communication, 16, 205–221. doi:10.1080/10810730.2011.604386
   PubMed Web of Science ®Google Scholar
• Rodriguez, E. T., Tamis-LeMonda, C. S., Spellmann, M. E., Pan, B. A., Raikes, H., Lugo-Gil, J., & Luze, G. (2009). The formative role of home literacy experiences across the first three years of life in children from low-income families. Journal of Applied Developmental Psychology, 30, 677–694.
   Web of Science ®Google Scholar
• Rosenthal, M. S., Socolar, R. R., DeWalt, D. A., Pignone, M., Garrett, J., & Margolis, P. A. (2007). Parents with low literacy report higher quality of parent-provider relationships in a residency clinic. Ambulatory Pediatrics, 7(1), 51–55. doi:10.1016/j.ambp.2006.10.006
   PubMedGoogle Scholar
• Sanders, L. M., Federico, S., Klass, P., Abrams, M. A., & Dreyer, B. (2009). Literacy and child health: A systematic review. Archives of Pediatrics & Adolescent Medicine, 163(2), 131–140. doi:10.1001/archpediatrics.2008.539
   PubMed Web of Science ®Google Scholar
• Sanders, L. M., Shaw, J. S., Guez, G., Baur, C., & Rudd, R. (2009). Health literacy and child health promotion: Implications for research, clinical care, and public policy. Pediatrics, 124(Suppl. 3), S306–S314. doi:10.1542/peds.2009-1162g
   PubMedGoogle Scholar
• Sawyer, S. M., Afifi, R. A., Bearinger, L. H., Blakemore, S.-J., Dick, B., Ezeh, A. C., & Patton, G. C. (2012). Adolescence: A foundation for future health. The Lancet, 379(9826), 1630–1640. doi:10.1016/s0140-6736(12)60072-5
   PubMed Web of Science ®Google Scholar
• Schilling, L. S., Knafl, K. A., & Grey, M. (2006). Changing patterns of self-management in youth with type I diabetes. Journal of Pediatric Nursing, 21(6), 412–424. doi:10.1016/j.pedn.2006.01.034
   PubMedGoogle Scholar
• Stein, R. E. K., Silver, E. J., & Bauman, L. J. (2001). Shortening the Questionnaire for Identifying Children With Chronic Conditions: What is the consequence? Pediatrics, 107(4), e61. doi:10.1542/peds.107.4.e61
   PubMed Web of Science ®Google Scholar
• Stein, R. E. K., Westbrook, L. E., & Bauman, L. J. (1997). The Questionnaire for Identifying Children With Chronic Conditions: A measure based on a noncategorical approach. Pediatrics, 99(4), 513–521. doi:10.1542/peds.99.4.513
   PubMed Web of Science ®Google Scholar
• Williams, C. D., Lindsey, M., & Joe, S. (2011). Parent–adolescent concordance on perceived need for mental health services and its impact on service use. Children and Youth Services Review, 33(11), 2253–2260. doi:10.1016/j.childyouth.2011.07.011
   PubMed Web of Science ®Google Scholar
• Wolf, M. S., Wilson, E. A. H., Rapp, D. N., Waite, K. R., Bocchini, M. V., Davis, T. C., & Rudd, R. E. (2009). Literacy and learning in health care. Pediatrics, 124(Suppl. 3), S275–S281. doi:10.1542/peds.2009-1162c
   PubMedGoogle Scholar
• Yin, H. S., Johnson, M., Mendelsohn, A. L., Abrams, M. A., Sanders, L. M., & Dreyer, B. P. (2009). The health literacy of parents in the United States: A nationally representative study. Pediatrics, 124(Suppl. 3), S289–S298. doi:10.1542/peds.2009-1162e
   PubMedGoogle Scholar