Health Literacy Demand of Printed Lifestyle Patient Information Materials Aimed at People With Chronic Kidney Disease: Are Materials Easy to Understand and Act On and Do They Use Meaningful Visual Aids?

References

• Ancker, J. S., Senathirajah, Y., Kukafka, R., & Starren, J. B. (2006). Design features of graphs in health risk communication: A systematic review. Journal of the American Medical Informatics Association, 13 (6), 608–618. doi:10.1197/jamia.M2115
   PubMed Web of Science ®Google Scholar
• Brown, D. R., Ludwig, R., Buck, G. A., Durham, D., Shumard, T., & Graham, S. S. (2004). Health literacy: Universal precautions needed. Journal of Allied Health, 33 (2), 150–155.
   PubMedGoogle Scholar
• Centers for Disease Control and Prevention. (2009). Simply Put: A guide for creating easy-to-understand materials. Atlanta, GA: Centers for Disease Control and Prevention.
   Google Scholar
• Clerehan, R., Buchbinder, R., & Moodie, J. (2005). A linguistic framework for assessing the quality of written patient information: Its use in assessing methotrexate information for rheumatoid arthritis. Health Education Research, 20 (3), 334–344. doi:10.1093/her/cyg123
   PubMed Web of Science ®Google Scholar
• Doak, C. C., Doak, L. G., & Root, J. H. (1996). Teaching patients with low health literacy (2nd ed.). Philadelphia, PA: J. P. Lippincott Company.
   Google Scholar
• Eichler, K., Wieser, S., & Brugger, U. (2009). The costs of limited health literacy: A systematic review. International Journal of Public Health, 54 (5), 313–324. doi:10.1007/s00038-009-0058-2
   PubMed Web of Science ®Google Scholar
• Fraser, S. D. S., Roderick, P. J., Casey, M., Taal, M. W., Yuen, H. M., & Nutbeam, D. (2013). Prevalence and associations of limited health literacy in chronic kidney disease: A systematic review. Nephrology Dialysis Transplantation, 28 (1), 129–137. doi:10.1093/ndt/gfs371
   PubMed Web of Science ®Google Scholar
• García-García, G., & Jha, V. (2015). World kidney day 2015: CKD in disadvantaged populations. American Journal of Kidney Diseases, 65 (3), 349–353. doi:10.1053/j.ajkd.2014.12.001
   PubMedGoogle Scholar
• Gazmararian, J. A., Williams, M. V., Peel, J., & Baker, D. W. (2003). Health literacy and knowledge of chronic disease. Patient Education and Counseling, 51 (3), 267–275.
   PubMed Web of Science ®Google Scholar
• Griffin, J., & Wright, P. (2009). Older readers can be distracted by embellishing graphics in text. European Journal of Cognitive Psychology, 21 (5), 740–757. doi:10.1080/09541440802155627
   Web of Science ®Google Scholar
• Houts, P. S., Doak, C. C., Doak, L. G., & Loscalzo, M. J. (2006). The role of pictures in improving health communication: A review of research on attention, comprehension, recall, and adherence. Patient Education and Counseling, 61 (2), 173–190. doi:10.1016/j.pec.2005.05.004
   PubMed Web of Science ®Google Scholar
• Jain, D., & Green, J. A. (2016). Health literacy in kidney disease: Review of the literature and implications for clinical practice. World Journal of Nephrology, 5 (2), 147–151.
   PubMedGoogle Scholar
• Kidney Health Australia. (2014). Exploring research priorities in chronic kidney disease. Retrieved from http://www.kidney.org.au/LinkClick.aspx?fileticket=zZc%2FBcOhA%2BA%3D&tabid=635&mid=1837
   Google Scholar
• Lambert, K., Mullan, J., Mansfield, K., & Lonergan, M. (2015). A cross-sectional comparison of health literacy deficits among patients with chronic kidney disease. Journal of Health Communication, 20 (sup2), 16–23. doi:10.1080/10810730.2015.1080329
   PubMed Web of Science ®Google Scholar
• Morony, S., Flynn, M., McCaffery, K. J., Jansen, J., & Webster, A. C. (2015). Readability of written materials for chronic kidney disease patients: A systematic review. American Journal of Kidney Diseases, 65 (6), 842–850. doi:10.1053/j.ajkd.2014.11.025
   PubMed Web of Science ®Google Scholar
• National Institute for Health and Care Excellence. (2014). Chronic kidney disease in adults: Assessment and management. Retrieved from https://www.nice.org.uk/guidance/cg182
   Google Scholar
• O’Lone, E., Connors, M., Masson, P., Wu, S., Kelly, P. J., Gillespie, D., … Webster, A. C. (2016). Cognition in people with end-stage kidney disease treated with hemodialysis: A Systematic review and meta-analysis. American Journal of Kidney Diseases: the Official Journal of the National Kidney Foundation, 67 (6), 925–935. doi:10.1053/j.ajkd.2015.12.028
   PubMed Web of Science ®Google Scholar
• Palmer, S. C., Hanson, C. S., Craig, J. C., Strippoli, G. F., Ruospo, M., Campbell, K., … Tong, A. (2014). Dietary and fluid restrictions in CKD: A thematic synthesis of patient views from qualitative studies. American Journal of Kidney Diseases. doi:10.1053/j.ajkd.2014.09.012
   Web of Science ®Google Scholar
• Ratner, R. K., & Riis, J. (2014). Communicating science-based recommendations with memorable and actionable guidelines. Proceedings of the National Academy of Sciences of the United States of America, 111 (Suppl 4), 13634–13641. doi:10.1073/pnas.1320649111
   PubMed Web of Science ®Google Scholar
• Seligman, H. K., Wallace, A. S., DeWalt, D. A., Schillinger, D., Arnold, C. L., Shilliday, B. B., … Davis, T. C. (2007). Facilitating behavior change with low-literacy patient education materials. American Journal of Health Behavior, 31 (Suppl 1), S69–S78. doi:10.5555/ajhb.2007.31.supp.S69
   PubMed Web of Science ®Google Scholar
• Shoemaker, S. J., Wolf, M. S., & Brach, C. (2013). Patient Education Materials Assessment Tool for Printable Materials (PEMAT-P) (AHRQ Publication No. 14-0002-EF). Rockville, MD: Agency for Healthcare Research and Quality.
   Google Scholar
• Shoemaker, S. J., Wolf, M. S., & Brach, C. (2014). Development of the Patient Education Materials Assessment Tool (PEMAT): A new measure of understandability and actionability for print and audiovisual patient information. Patient Education and Counseling, 96 (3), 395–403. doi:10.1016/j.pec.2014.05.027
   PubMed Web of Science ®Google Scholar
• Taylor-Clarke, K., Henry-Okafor, Q., Murphy, C., Keyes, M., Rothman, R., Churchwell, A., … Sampson, U. K. (2012). Assessment of commonly available education materials in heart failure clinics. Journal of Cardiovascular Nursing, 27 (6), 485–494. doi:10.1097/JCN.0b013e318220720c
   PubMed Web of Science ®Google Scholar
• Tong, A., Sainsbury, P., Carter, S. M., Hall, B., Harris, D. C., Walker, R. G., … Craig, J. C. (2008). Patients’ priorities for health research: Focus group study of patients with chronic kidney disease. Nephrology Dialysis Transplantation, 23 (10), 3206–3214. doi:10.1093/ndt/gfn207
   PubMed Web of Science ®Google Scholar
• Tuot, D. S., Davis, E., Velasquez, A., Banerjee, T., & Powe, N. R. (2013). Assessment of printed patient-educational materials for chronic kidney disease. American Journal of Nephrology, 38 (3), 184–194. doi:10.1159/000354314
   PubMed Web of Science ®Google Scholar
• U.S. Department of Health and Human Services. (2010). National action plan to improve health literacy. Washington, DC: Author.
   Google Scholar
• Walker, R. G., & Buchbinder, R. (2012). Fostering the ability of patients to self-manage their CKD. Nephrology Dialysis Transplantation, 27 (10), 3680–3682. doi:10.1093/ndt/gfs343
   PubMed Web of Science ®Google Scholar
• Weintraub, D., Maliski, S. L., Fink, A., Choe, S., & Litwin, M. S. (2004). Suitability of prostate cancer education materials: Applying a standardized assessment tool to currently available materials. Patient Education and Counseling, 55 (2), 275–280. doi:10.1016/j.pec.2003.10.003
   PubMed Web of Science ®Google Scholar
• Wilson, E. A., & Park, D. C. (2008). A case for clarity in the writing of health statements. Patient Education and Counseling, 72 (2), 330–335. doi:10.1016/j.pec.2008.02.008
   PubMed Web of Science ®Google Scholar