References
- Albertini, M. R. (2018). The age of enlightenment in melanoma immunotherapy. Journal for Immunotherapy of Cancer, 6(1), 80. doi:https://doi.org/10.1186/s40425-018-0397-8
- Amalraj, S., Starkweather, C., Nguyen, C., & Naeim, A. (2009). Health literacy, communication, and treatment decision-making in older cancer patients. Oncology, 23(4), 369–375.
- American Academy of Dermatology. (2017). Burden of skin disease. www.aad.org/BSD
- American Cancer Society (2020a). Cancer A-Z: Skin cancer. https://www.cancer.org/cancer/skin-cancer.html
- American Cancer Society (2020b). Key statistics for melanoma skin cancer. https://www.cancer.org/cancer/melanoma-skin-cancer/about/key-statistics.html
- Azzarello, L. M., Dessureault, S., Jacobsen, P. B., Dessureault, S., Jacobsen, P. B., & Jacobsen, P. B. (2006). Sun-protective behavior among individuals with a family history of melanoma. Cancer Epidemiology, Biomarkers & Prevention, 15(1), 142–145. doi:https://doi.org/10.1158/1055-9965.EPI-05-0478
- Baiocchi-Wagner, E. A., & Talley, A. E. (2013). The role of family communication in individual health attitudes and behaviors concerning diet and physical activity. Health Communication, 28(2), 193–205. doi:https://doi.org/10.1080/10410236.2012.674911
- Bandura, A. (1997). Self-efficacy: The exercise of control. New York: W H Freeman/Times Books/ Henry Holt & Co.
- Bowen, D. J., Hay, J. L., Harris-Wai, J. N., Meischke, H., & Burke, W. (2017). All in the family? Communication of cancer survivors with their families. Familial Cancer, 16(4), 597–603. doi:https://doi.org/10.1007/s10689-017-9987-8
- Chew, L. D., Bradley, K. A., & Boyko, E. J. (2004). Brief questions to identify patients with inadequate health literacy. Family Medicine, 36, 588–594.
- Chew, L. D., Griffin, J. M., Partin, M. R., Noorbaloochi, S., Grill, J. P., Snyder, A., … Vanryn, M. (2008). Validation of screening questions for limited health literacy in a large VA outpatient population. Journal of General Internal Medicine, 23(5), 561–566. doi:https://doi.org/10.1007/s11606-008-0520-5
- Christian, S. N., Schofield, E., Meyer-White, E., Sussman, A., Guest, D., Zielaskowski, K., & Hay, J. L. ( Under Review, 2020). Skin cancer threat and control appraisals and sun protection across ethnic groups in a primary care setting.
- Conic, R. Z., Cabrera, C. I., Khorana, A. A., & Gastman, B. R. (2018). Determination of the impact of melanoma surgical timing on survival using the national cancer database. Journal of the American Academy of Dermatology, 78(1), 40–46.e7. doi:https://doi.org/10.1016/j.jaad.2017.08.039
- Corona, R., Rodríguez, V., Quillin, J., Gyure, M., & Bodurtha, J. (2013). Talking (or not) about family health history in families of Latino young adults. Health Education & Behavior, 40(5), 571–580. doi:https://doi.org/10.1177/1090198112464495
- Covolo, L., Rubinelli, S., Ceretti, E., & Gelatti, U. (2015). Internet-based direct-to-consumer genetic testing: A systematic review. Journal of Medical Internet Research, 17(12), e279. doi:https://doi.org/10.2196/jmir.4378
- El Ghissassi, F., Baan, R., Straif, K., Grosse, Y., Secretan, B., Bouvard, V., … Cogliano, V.; WHO International Agency for Research on Cancer Monograph Working Group. (2009). A review of human carcinogens–part D: Radiation. The Lancet Oncology, 10(8), 751–752.
- Ersig, A. L., Williams, J. K., Hadley, D. W., & Koehly, L. M. (2009). Communication, encouragement, and cancer screening in families with and without mutations for hereditary nonpolyposis colorectal cancer: A pilot study. Genetics in Medicine, 11(10), 728–734. doi:https://doi.org/10.1097/GIM.0b013e3181b3f42d
- Fehniger, J., Lin, F., Beattie, M. S., Joseph, G., & Kaplan, C. (2013). Family communication of BRCA1/2 results and family uptake of BRCA1/2 testing in a diverse population of BRCA1/2 carriers. Journal of Genetic Counseling, 22(5), 603–612. doi:https://doi.org/10.1007/s10897-013-9592-4
- Gaff, C., Galvin, K. M., & Bylund, C. L. (2010). Family systems theory and genetic counseling. In C. Gaff & C. L. Bylund (Eds.), Family communication about genetics (pp. 243–272). New York, NY: Oxford University Press.
- Gaff, C. L., Clarke, A. J., Atkinson, P., Sivell, S., Elwyn, G., Iredale, R., … Edwards, A. (2007). Process and outcome in communication of genetic information within families: A systematic review. European Journal of Human Genetics, 15(10), 999–d1011. doi:https://doi.org/10.1038/sj.ejhg.5201883
- Gafner, E. E. (2018). Families communicating about health: Conceptualization and validation of the family health communication quotient scale. Master of Arts (MA) Thesis, Communication/Theatre Arts, Old Dominion University. doi:https://doi.org/10.25777/CHQF-PT75. https://digitalcommons.odu.edu/communication_etds/6
- Gandini, S., Sera, F., Cattaruzza, M. S., Pasquini, P., Zanetti, R., Masini, C., … Melchi, C. F. (2005). Meta-analysis of risk factors for cutaneous melanoma: III. Family history, actinic damage and phenotypic factors. European Journal of Cancer, 41(14), 2040–2059. doi:https://doi.org/10.1016/j.ejca.2005.03.034
- Glanz, K., Yaroch, A. L., Dancel, M., Saraiya, M., Crane, L. A., Buller, D. B., … Robinson, J. K. (2008). Measures of sun exposure and sun protection practices for behavioral and epidemiologic research. Archives of Dermatology, 144(2), 217–222. doi:https://doi.org/10.1001/archdermatol.2007.46
- Guy, G. P., Jr, Machlin, S. R., Ekwueme, D. U., & Yabroff, K. R. (2015). Prevalence and costs of skin cancer treatment in the U.S., 2002-2006 and 2007-2011. American Journal of Preventive Medicine, 48(2), 183–187. doi:https://doi.org/10.1016/j.amepre.2014.08.036
- Harris, J. N., Hay, J., Kuniyuki, A., Asgari, M. M., Press, N., & Bowen, D. J. (2010). Using a family systems approach to investigate cancer risk communication within melanoma families. Psycho-oncology, 19(10), 1102–1111. doi:https://doi.org/10.1002/pon.1667
- Hay, J., Ostroff, J., Martin, A., Serle, N., Soma, S., Mujumdar, U., & Berwick, M. (2005). Skin cancer risk discussions in melanoma-affected families. Journal of Cancer Education, 20(4), 240–246. doi:https://doi.org/10.1207/s15430154jce2004_13
- Hay, J., Shuk, E., Zapolska, J., Ostroff, J., Lischewski, J., Brady, M. S., & Berwick, M. (2009). Family communication patterns after melanoma diagnosis. Journal of Family Communication, 9(4), 209–232. doi:https://doi.org/10.1080/15267430903182678
- Hay, J. L., Berwick, M., Zielaskowski, K., White, K. A., Rodríguez, V. M., Robers, E., … Buller, D. B. (2017). Implementing an internet-delivered skin cancer genetic testing intervention to improve sun protection behavior in a diverse population: Protocol for a randomized controlled trial. JMIR Research Protocols, 6(4), e52. doi:https://doi.org/10.2196/resprot.7158
- Hay, J. L., Gordon, M., & Li, Y. (2015). Family risk discussions after feedback on genetic risk of melanoma. JAMA Dermatology, 151(3), 342–343. doi:https://doi.org/10.1001/jamadermatol.2014.3421
- Hay, J. L., Kaphingst, K. A., Baser, R., Li, Y., Hensley-Alford, S., & McBride, C. M. (2012). Skin cancer concerns and genetic risk information-seeking in primary care. Public Health Genomics, 15(2), 57–72. doi:https://doi.org/10.1159/000330403
- International Agency for Research on Cancer Working Group on artificial ultraviolet (UV) light and skin cancer. (2007). The association of use of sunbeds with cutaneous malignant melanoma and other skin cancers: A systematic review. International Journal of Cancer, 120, 1116–1122. doi:https://doi.org/10.1002/ijc.22453
- Iorgulescu, J. B., Reardon, D. A., Chiocca, E. A., & Wu, C. J. (2018). Immunotherapy for glioblastoma: Going viral. Nature Medicine, 24(8), 1094–1096. doi:https://doi.org/10.1038/s41591-018-0142-3
- Jeong, M., & Bae, R. E. (2018). The effect of campaign-generated interpersonal communication on campaign-targeted health outcomes: A meta-analysis. Health Communication, 33(8), 988–1003. doi:https://doi.org/10.1080/10410236.2017.1331184
- Koerner, A. F., & Schrodt, P. (2014). An introduction to the special issue on family communication patterns theory. Journal of Family Communication, 14(1), 1–15. doi:https://doi.org/10.1080/15267431.2013.857328
- Lee, S. J. (2018). Testing the replication and extension of why-quit and how-to-quit antismoking health messages. Journal of Health Communication, 23(7), 597–605. doi:https://doi.org/10.1080/10810730.2018.1493062
- Lerman, C., Trock, B., Rimer, B. K., Jepson, C., Brody, D., & Boyce, A. (1991). Psychological side effects of breast cancer screening. Health Psychology, 10(4), 259–267. doi:https://doi.org/10.1037//0278-6133.10.4.259
- Loescher, L. J., Crist, J. D., & Siaki, L. A. C. L. (2009). Perceived intrafamily melanoma risk communication. Cancer Nursing, 32(3), 203–210. doi:https://doi.org/10.1097/NCC.0b013e31819ae11c
- McBride, C. M., Koehly, L. M., Sanderson, S. C., & Kaphingst, K. A. (2010). The behavioral response to personalized genetic information: Will genetic risk profiles motivate individuals and families to choose more healthful behaviors?. Annual Review of Public Health, 31(1), 89–103. doi:https://doi.org/10.1146/annurev.publhealth.012809.103532
- Miller-Day, M. A. (2002). Parent-adolescent communication about alcohol, tobacco, and other drug use. Journal of Adolescent Research, 17(6), 604–616. doi:https://doi.org/10.1177/074355802237466
- Neal, R., Tharmanathan, P., France, B., Din, N. U., Cotton, S., Fallon-Ferguson, J., … Emery, J. (2015). Is increased time to diagnosis and treatment in symptomatic cancer associated with poorer outcomes? Systematic review. British Journal of Cancer, 112(S1), S92–S107. doi:https://doi.org/10.1038/bjc.2015.48
- New Mexico Department of Health (2020). Indicator-based information system for public health. https://ibis.health.state.Nm.us/indicator/complete_profile/CancerDeathMelanoma.html
- Paddock, L. E., Lu, S. E., Bandera, E. V., Rhoads, G. G., Fine, J., Paine, S., … Berwick, M. (2016). Skin self-examination and long-term melanoma survival. Melanoma Research, 26(4), 401–408. doi:https://doi.org/10.1097/CMR.0000000000000255
- Peterson, E. B., Chou, W. S., Gaysynsky, A., Krakow, M., Elrick, A., Khoury, M. J., & Kaphingst, K. A. (2018). Communication of cancer-related genetic and genomic information: A landscape analysis of reviews. Translational Behavioral Medicine, 8(1), 59–70. doi:https://doi.org/10.1093/tbm/ibx063
- Roberts, M. E., Gerrard, M., Reimer, R., & Gibbons, F. X. (2010). Mother-daughter communication and human papillomavirus vaccine uptake by college students. Pediatrics, 125(5), 982–989. doi:https://doi.org/10.1542/peds.2009-2888
- Rodríguez, V. M., Berwick, M., & Hay, J. L. (2017). Communication about melanoma and risk reduction after melanoma diagnosis. Psycho-Oncology, 26(12), 2142–2148. doi:https://doi.org/10.1002/pon.4315
- Rogers, H. W., Weinstock, M. A., Feldman, S. R., & Coldiron, B. M. (2015). Incidence Estimate of Nonmelanoma Skin Cancer (Keratinocyte Carcinomas) in the U.S. Population, 2012. JAMA Dermatology, 151(10), 1081–1086. doi:https://doi.org/10.1001/jamadermatol.2015.1187
- Romo, L. F., Cruz, M. E., & Neilands, T. B. (2011). Mother-daughter communication and college women’s confidence to communicate with family members and doctors about the human papillomavirus and sexual health. Journal of Pediatric and Adolescent Gynecology, 24(5), 256–262. doi:https://doi.org/10.1016/j.jpag.2011.02.006
- Smit, A. K., Espinoza, D., Newson, A. J., Morton, R. L., Fenton, G., Freeman, L., … Cust, A. E. (2017). A pilot randomized controlled trial of the feasibility, acceptability, and impact of giving information on personalized genomic risk of melanoma to the public. Cancer Epidemiology, Biomarkers & Prevention, 26(2), 212–221. doi:https://doi.org/10.1158/1055-9965.EPI-16-0395
- Southwell, B. G. (2013). Social networks and popular understanding of science and health: Sharing disparities. Baltimore, MD: Johns Hopkins University Press.
- Southwell, B. G., & Yzer, M. C. (2009). When (and why) interpersonal talk matters for campaigns. Communication Theory, 19(1), 1–8. doi:https://doi.org/10.1111/j.1468-2885.2008.01329.x
- Turner, L., & West, R. (Eds.) (2015). The Sage handbook of family communication. Thousand Oaks, CA: Sage.
- Ugurel, S., Röhmel, J., Ascierto, P. A., Flaherty, K. T., Grob, J. J., Hauschild, A., … Garbe, C. (2016). Survival of patients with advanced metastatic melanoma: The impact of novel therapies. European Journal of Cancer, 53, 125–134. doi:https://doi.org/10.1016/j.ejca.2015.09.013
- US Department of Health and Human Services. (2014). The Surgeon General’s Call to Action to Prevent Skin Cancer. Washington, DC: U.S. Dept of Health and Human Services, Office of the Surgeon General. /sites/default/files/call-to-action-prevent-skin-cancer.pdf
- Voss, R. K., Woods, T. N., Cromwell, K. D., Nelson, K. C., & Cormier, J. N. (2015). Improving outcomes in patients with melanoma: Strategies to ensure an early diagnosis. Patient Related Outcome Measures, 6, 229–242. doi:https://doi.org/10.2147/PROM.S69351
- Weinstein, N. D. (1982). Unrealistic optimism about susceptibility to health problems. Journal of Behavioral Medicine, 5(4), 441–460. doi:https://doi.org/10.1007/BF00845372
- Wiens, M. E., Wilson, B. J., Honeywell, C., & Etchegary, H. (2013). A family genetic risk communication framework: Guiding tool development in genetics health services. Journal of Community Genetics, 4(2), 233–242. doi:https://doi.org/10.1007/s12687-012-0134-9
- Wu, Y. P., Aspinwall, L. G., Conn, B. M., Stump, T., Grahmann, B., & Leachman, S. A. (2016). A systematic review of interventions to improve adherence to melanoma preventive behaviors for individuals at elevated risk. Preventive Medicine, 88, 153–167. doi:https://doi.org/10.1016/j.ypmed.2016.04.010
- Young, A. L., Butow, P. N., Vetsch, J., Quinn, V. F., Patenaude, V. F., Tucker, K. M., … Wakefield, C. E. (2017). Family communication, risk perception and cancer knowledge of young adults from BRCA1/2 families: A systematic review. Journal of Genetic Counseling, 26(6), 1179–1196. doi:https://doi.org/10.1007/s10897-017-0125-4
- Zhen-Duan, J., Engebretsen, B., & Laroche, H. H. (2019). Diet and physical activity changes among low-income families: Perspectives of mothers and their children. International Journal of Qualitative Studies on Health and Well-Being, 14(1), 1658700. doi:https://doi.org/10.1080/17482631.2019.1658700