References
- 21st Century Cures Act: Interoperability, Information Blocking, and the ONC Health IT Certification Program, Office of the National Coordinator for Health Information Technology (ONC) and the Department of Health and Human Services (HHS) (2019). https://www.healthit.gov/topic/laws-regulation-and-policy/notice-proposed-rulemaking-improve-interoperability-health
- Alpert, J. M., Markham, M. J., Bjarnadottir, R. I., & Bylund, C. L. (2021). Twenty-first century bedside manner: Exploring patient-centered communication in secure messaging with cancer patients. Journal of Cancer Education, 36(1), 16–24. doi:https://doi.org/10.1007/s13187-019-01592-5
- Alpert, J. M., Wang, S., Bylund, C. L., Markham, M. J., Bjarnadottir, R. I., Lee, J.-H., … Salloum, R. G. (2021). Improving secure messaging: A framework for support, partnership & information-giving communicating electronically (SPICE). Patient Education and Counseling, 104(6), 1380–1386. doi:https://doi.org/10.1016/j.pec.2020.11.021
- Ballou-Nelson, P. (2018). Are portals a means to patient activation? MGMA STAT. Retrieved June 2 from https://www.mgma.com/data/data-stories/are-portals-a-means-to-patient-activation?
- Beckjord, E. B., Rechis, R., Nutt, S., Shulman, L., & Hesse, B. W. (2011). What do people affected by cancer think about electronic health information exchange? Results from the 2010 LIVESTRONG electronic health information exchange survey and the 2008 health information national trends survey. Journal of Oncology Practice, 7(4), 237–241. doi:https://doi.org/10.1200/JOP.2011.000324
- Berry, D. L., Blumenstein, B. A., Halpenny, B., Wolpin, S., Fann, J. R., Austin-Seymour, M., … McCorkle, R. (2011). Enhancing patient-provider communication with the electronic self-report assessment for cancer: A randomized trial. Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology, 29(8), 1029–1035. doi:https://doi.org/10.1200/JCO.2010.30.3909
- Bloom, R. (2014). Negotiating language in transnational health care: Exploring translingual literacy through grounded practical theory. Journal of Applied Communication Research, 42(3), 268–284. doi:https://doi.org/10.1080/00909882.2014.911942
- Burke, R. P., Rossi, A. F., Wilner, B. R., Hannan, R. L., Zabinsky, J. A., & White, J. A. (2010). Transforming patient and family access to medical information: Utilisation patterns of a patient-accessible electronic health record. Cardiology in the Young, 20(5), 477–484. doi:https://doi.org/10.1017/S1047951110000363
- Byrne, J. M., Elliott, S., & Firek, A. (2009). Initial experience with patient-clinician secure messaging at a VA medical center. Journal of the American Medical Informatics Association, 16(2), 267–270. doi:https://doi.org/10.1197/jamia.M2835
- Car, J., & Sheikh, A. (2004). Email consultations in health care: 1—scope and effectiveness. BMJ, 329(7463), 435–438. doi:https://doi.org/10.1136/bmj.329.7463.435
- Carayon, P., Hoonakker, P., Cartmill, R., & Hassol, A. (2015). Patient-reported health information technology and workflow. https://digital.ahrq.gov/sites/default/files/docs/citation/patient-reported-hit-and-workflow-final-report.pdf
- Castleberry, A., & Nolen, A. (2018). Thematic analysis of qualitative research data: Is it as easy as it sounds? Currents in Pharmacy Teaching and Learning, 10(6), 807–815. doi:https://doi.org/10.1016/j.cptl.2018.03.019
- Cemballi, A. G., Karter, A. J., Schillinger, D., Liu, J. Y., McNamara, D. S., Brown, W., III, … Lyles, C. R. (2020). Descriptive examination of secure messaging in a longitudinal cohort of diabetes patients in the ECLIPPSE study. Journal of the American Medical Informatics Association. doi:https://doi.org/10.1093/jamia/ocaa281
- Charmaz, K. (2006). Constructing grounded theory: A practical guide through qualitative research. London: Sage Publications Ltd.
- Chewning, B., Bylund, C. L., Shah, B., Arora, N. K., Gueguen, J. A., & Makoul, G. (2012). Patient preferences for shared decisions: A systematic review. Patient Education and Counseling, 86(1), 9–18. doi:https://doi.org/10.1016/j.pec.2011.02.004
- Chou, W.-Y. S., Hunt, Y. M., Beckjord, E. B., Moser, R. P., & Hesse, B. W. (2009). Social media use in the United States: Implications for health communication. Journal of Medical Internet Research, 11(4), e48. doi:https://doi.org/10.2196/jmir.1249
- Craig, R. T., & Tracy, K. (1995). Grounded practical theory: The case of intellectual discussion. Communication Theory, 5(3), 248–272. doi:https://doi.org/10.1111/j.1468-2885.1995.tb00108.x
- Craig, R. T., & Tracy, K. (2014). Building grounded practical theory in applied communication research: Introduction to the special issue. Journal of Applied Communication Research, 42(3), 229–243. doi:https://doi.org/10.1080/00909882.2014.916410
- Creswell, J. W., & Miller, D. L. (2000). Determining validity in qualitative inquiry. Theory into Practice, 39(3), 124–130. doi:https://doi.org/10.1207/s15430421tip3903_2
- Dang, B. N., Westbrook, R. A., Njue, S. M., & Giordano, T. P. (2017). Building trust and rapport early in the new doctor-patient relationship: A longitudinal qualitative study. BMC Medical Education, 17(1), 32. doi:https://doi.org/10.1186/s12909-017-0868-5
- Delbanco, T., Walker, J., Bell, S. K., Darer, J. D., Elmore, J. G., Farag, N., … Ralston, J. D. (2012). Inviting patients to read their doctors’ notes: A quasi-experimental study and a look ahead. Annals of Internal Medicine, 157(7), 461–470. doi:https://doi.org/10.7326/0003-4819-157-7-201210020-00002
- Easton, P., Entwistle, V. A., & Williams, B. (2013). How the stigma of low literacy can impair patient-professional spoken interactions and affect health: Insights from a qualitative investigation. BMC Health Services Research, 13(1), 319. doi:https://doi.org/10.1186/1472-6963-13-319
- Epstein, R. M., Street, J. R., & L, R. (2007). Patient-centered communication in cancer care: Promoting healing and reducing suffering. Bethesda: National Cancer Institute.
- Garrido, T., Meng, D., Wang, J. J., Palen, T. E., & Kanter, M. H. (2014). Secure e-mailing between physicians and patients: Transformational change in ambulatory care. The Journal of Ambulatory Care Management, 37(3), 211. doi:https://doi.org/10.1097/JAC.0000000000000043
- Haun, J. N., Hathaway, W., Chavez, M., Antinori, N., Vetter, B., Miller, B. K., … Melillo, C. (2017). Clinical practice informs secure messaging benefits and best practices. Applied Clinical Informatics, 8(4), 1003–1011. doi:https://doi.org/10.4338/ACI-2017-05-RA-0088
- Haun, J. N., Patel, N. R., Lind, J. D., & Antinori, N. (2015a). Large-Scale survey findings inform patients’ experiences in using secure messaging to engage in patient-provider communication and self-care management: A quantitative assessment. Journal of Medical Internet Research, 17(12), e282. doi:https://doi.org/10.2196/jmir.5152
- HealthIT.gov. (2017, November 2, 2015). What is a patient portal? Retrieved September 23 from https://www.healthit.gov/providers-professionals/faqs/what-patient-portal
- Heisey-Grove, D. M., & DeShazo, J. P. (2020). Look who’s talking: Application of a theory-based taxonomy to patient–clinician e-mail messages. Telemedicine and e-Health, 26(11), 1345–1352. doi:https://doi.org/10.1089/tmj.2019.0192
- Henry, J., Barker, W., & Kachay, L. (2019). Electronic capabilities for patient engagement among US non-federal acute care hospitals: 2013-2017. Washington, D.C.: ONC Data Brief, Issue. https://www.healthit.gov/sites/default/files/page/2019-04/AHApatientengagement.pdf
- Hlubocky, F. J., Back, A. L., & Shanafelt, T. D. (2016). Addressing burnout in oncology: Why cancer care clinicians are at risk, what individuals can do, and how organizations can respond. American Society of Clinical Oncology Educational Book, 36(36), 271–279. doi:https://doi.org/10.1200/EDBK_156120
- Honeyman, A., Cox, B., & Fisher, B. (2005). Potential impacts of patient access to their electronic care records [electronic care records system; patient access]. Journal of Innovation in Health Informatics, 6. doi:https://doi.org/10.14236/jhi.v13i1.579
- Hoonakker, P. L., Carayon, P., & Cartmill, R. S. (2017). The impact of secure messaging on workflow in primary care: Results of a multiple-case, multiple-method study. International Journal of Medical Informatics, 100, 63–76. doi:https://doi.org/10.1016/j.ijmedinf.2017.01.004
- Institute of Medicine Committee on Quality of Health Care in America. (2001). Crossing the quality chasm: A new health system for the 21st century. Washington, D.C.: National Academy Press.
- Jones, R. M., Devers, K. J., Kuzel, A. J., & Woolf, S. H. (2010). Patient-Reported barriers to colorectal cancer screening: A mixed-methods analysis. American Journal of Preventive Medicine, 38(5), 508–516. doi:https://doi.org/10.1016/j.amepre.2010.01.021
- Jørgensen, C. R., Thomsen, T. G., Ross, L., Dietz, S. M., Therkildsen, S., Groenvold, M., … Johnsen, A. T. (2018). What facilitates “patient empowerment” in cancer patients during follow-up: A qualitative systematic review of the literature. Qualitative Health Research, 28(2), 292–304. doi:https://doi.org/10.1177/1049732317721477
- Kessels, R. P. C. (2003). Patients’ memory for medical information. Journal of the Royal Society of Medicine, 96(5), 219–222. doi:https://doi.org/10.1258/jrsm.96.5.219
- Koenig, C. J., Wingard, L. M., Sabee, C., Olsher, D., & Vandergriff, I. (2014). Managing patient-centered communication across the type 2 diabetes illness trajectory: A grounded practical theory of interactional sensitivity. Journal of Applied Communication Research, 42(3), 244–267. doi:https://doi.org/10.1080/00909882.2014.911943
- Lafata, J. E., Shay, L. A., & Winship, J. M. (2017). Understanding the influences and impact of patient-clinician communication in cancer care. Health Expectations, 20(6), 1385–1392. doi:https://doi.org/10.1111/hex.12579
- Lee, J. L., Matthias, M. S., Huffman, M., Frankel, R. M., & Weiner, M. (2020). Insecure messaging: How clinicians approach potentially problematic messages from patients. JAMIA Open. doi:https://doi.org/10.1093/jamiaopen/ooaa051
- Lincoln, Y. S., & Guba, E. G. (1985). Naturalistic inquiry (Vol. 75). Newbury Park, California: Sage.
- Lyles, C. R., Sarkar, U., Schillinger, D., Ralston, J. D., Allen, J. Y., Nguyen, R., & Karter, A. J. (2016). Refilling medications through an online patient portal: Consistent improvements in adherence across racial/ethnic groups. Journal of the American Medical Informatics Association, 23(e1), e28–e33. doi:https://doi.org/10.1093/jamia/ocv126
- Lyles, C., Schillinger, D., & Sarkar, U. (2015). Connecting the dots: Health information technology expansion and health disparities. PLoS medicine, 12(7), e1001852. doi:https://doi.org/10.1371/journal.pmed.1001852
- North, F., Crane, S. J., Chaudhry, R., Ebbert, J. O., Ytterberg, K., Tulledge-Scheitel, S. M., & Stroebel, R. J. (2014). Impact of patient portal secure messages and electronic visits on adult primary care office visits. Telemedicine and e-Health, 20(3), 192–198. doi:https://doi.org/10.1089/tmj.2013.0097
- North, F., Luhman, K. E., Mallmann, E. A., Mallmann, T. J., Tulledge-Scheitel, S. M., North, E. J., & Pecina, J. L. (2020). A retrospective analysis of provider-to-patient secure messages: How much are they increasing, who is doing the work, and is the work happening after hours? JMIR Med Inform, 8(7) Original Paper, e16521. doi: https://doi.org/10.2196/16521.
- Noy, C. (2008). Sampling knowledge: The hermeneutics of snowball sampling in qualitative research. International Journal of Social Research Methodology, 11(4), 327–344. doi:https://doi.org/10.1080/13645570701401305
- Saleem, J. J., Read, J. M., Loehr, B. M., Frisbee, K. L., Wilck, N. R., Murphy, J. J., … Herout, J. (2020). Veterans’ response to an automated text messaging protocol during the COVID-19 pandemic. Journal of the American Medical Informatics Association, 27(8), 1300–1305. doi:https://doi.org/10.1093/jamia/ocaa122
- Sanderson, C., Kouzoupi, N., & Hall, C. L. (2020). Technology matters: The human touch in a digital age – A blended approach in mental healthcare delivery with children and young people. Child and Adolescent Mental Health, 25(2), 120–122. doi:https://doi.org/10.1111/camh.12385
- Schain, W. S. (1990). Physician-patient communication about breast cancer. A challenge for the 1990s. The Surgical Clinics of North America, 70(4), 917–936. doi:https://doi.org/10.1016/s0039-6109(16)45189-3
- Sieck, C. J., Hefner, J. L., Schnierle, J., Florian, H., Agarwal, A., Rundell, K., & McAlearney, A. S. (2017). The rules of engagement: Perspectives on secure messaging from experienced ambulatory patient portal users. JMIR Med Inform, 5(3), e13. doi:https://doi.org/10.2196/medinform.7516
- Stewart, M. A. (1995). Effective physician-patient communication and health outcomes: A review. CMAJ: Canadian Medical Association Journal, 152(9), 1423.
- Street, R. L., Elwyn, G., & Epstein, R. M. (2012). Patient preferences and healthcare outcomes: An ecological perspective. Expert Review of Pharmacoeconomics & Outcomes Research, 12(2), 167–180. doi:https://doi.org/10.1586/erp.12.3
- Street, R. L., Jr, Makoul, G., Arora, N. K., & Epstein, R. M. (2009). How does communication heal? Pathways linking clinician–patient communication to health outcomes. Patient Education and Counseling, 74(3), 295–301. doi:https://doi.org/10.1016/j.pec.2008.11.015
- Tan, S. S.-L., & Goonawardene, N. (2017). Internet health information seeking and the patient-physician relationship: A systematic review [review]. Journal of Medical Internet Research, 19(1), e9. doi:https://doi.org/10.2196/jmir.5729
- Thorne, S., Armstrong, E.-A., Harris, S. R., Hislop, T. G., Kim-Sing, C., Oglov, V., … Stajduhar, K. I. (2009). Patient real-time and 12-month retrospective perceptions of difficult communications in the cancer diagnostic period. Qualitative Health Research, 19(10), 1383–1394. doi:https://doi.org/10.1177/1049732309348382
- Tracy, S. J. (2012). Qualitative research methods: Collecting evidence, crafting analysis, communicating impact. Malden, MA: John Wiley & Sons.
- Turvey, C. L., Fuhrmeister, L. A., Klein, D. M., Moeckli, J., Howren, M. B., & Chasco, E. E. (2021). Patient and Provider Experience of Electronic Patient Portals and Secure Messaging in Mental Health Treatment. Telemedicine and e-Health. doi: https://doi.org/10.1089/tmj.2020.0395
- Wood, B., & Beyer, A. (2019). Clinician training. Retrieved July 19 from https://klasresearch.com/archcollaborative/report/clinician-training/303
- Wysocki, W. M., Komorowski, A. L., & Aapro, M. S. (2005). The new dimension of oncology: Teleoncology ante portas. Critical Reviews in Oncology/Hematology, 53(2), 95–100. doi:https://doi.org/10.1016/j.critrevonc.2004.09.005