Information-Seeking Styles Among Cancer Patients Before and After Treatment by Demographics and Use of Information Sources

References

• Arora , N. K. , Hesse , B. W. , Rimer , B. K. , Viswanath , K. , Clayman , M. L. , & Croyle , R. T. ( 2008 ). Frustrated and confused: The American public rates its cancer-related information seeking experiences . Journal of General Internal Medicine , 23 , 223 – 228 .
   PubMed Web of Science ®Google Scholar
• Basch , E. M. , Thaler , H. T. , Shi , W. , Yakren , S. , & Schrag , D. ( 2004 ). Use of information resources by patients with cancer and their companions . Cancer , 100 , 2476 – 2483 .
   PubMed Web of Science ®Google Scholar
• Booske , B. C. , Sainfort , F. , Hundt , A. S. ( 1999 ). Eliciting consumer preferences for health plans . Health Services Research , 34 , 839 – 854 .
   PubMed Web of Science ®Google Scholar
• Brant , B. ( 1991 ). Informational needs and selected variables in patients receiving brachytherapy . Oncology Nursing Forum , 18 , 1129 – 1221 .
   Google Scholar
• Butow , P. N. , Maclean , M. , Dunn , S. M. , Tattersall , M. H. , Boyer , M. J. ( 1997 ). The dynamics of change: Cancer patients' preferences for information, involvement and support . Annals of Oncology , 8 , 857 – 863 .
   PubMed Web of Science ®Google Scholar
• Carlsson , M. ( 2000 ). Cancer patients seeking information from sources outside the health care system . Supportive Care in Cancer , 8 , 453 – 457 .
   PubMed Web of Science ®Google Scholar
• Cawley , M. , Kostic , J. , & Cappello , C. (1990). Informational and psychosocial needs of women choosing conservative surgery/primary radiation for early stage breast cancer. Cancer Nursing , 13, 90–94.
   PubMed Web of Science ®Google Scholar
• Czaja , R. , Manfredi , C. , & Price , J. ( 2003 ). The determinants and consequences of information seeking among cancer patients . Health Communication , 8 , 529 – 562 .
   Google Scholar
• Davison , B. J. , Degner , L. F. , & Morgan , T. R. ( 1995 ). Information and decision-making preference of men with prostate cancer . Oncology Nursing Forum , 22 , 1401 – 1408 .
   PubMedGoogle Scholar
• Dutta-Bergman , M. J. ( 2005 ). Developing a profile of consumer intention to seek out additional information beyond a doctor: The role of communicative and motivation variables . Health Communication , 17 , 1 – 16 .
   PubMed Web of Science ®Google Scholar
• Ende , J. , Kazis , L. , Ash , A. , & Moskowitz , M. A. ( 1989 ). Measuring patients' desire for autonomy: Decision making and information-seeking preferences among medical patients . Journal of General Internal Medicine , 4 , 23 – 29 .
   PubMed Web of Science ®Google Scholar
• Fallowfield , L. J. , Hall , A. , Maguire , P. , Baum , M. , & A' Hern , R. P. ( 1994 ). Psychological effects of being offered choice of surgery for breast cancer . British Medical Journal , 309 , 448 .
   PubMed Web of Science ®Google Scholar
• Gray , R. E. , Fitch , M. , Davis , C. , & Phillips , C. ( 1997 ). Interviews with men with prostate cancer about their self-help group experience . Journal of Palliative Care , 13 , 15 – 21 .
   PubMed Web of Science ®Google Scholar
• Greenfield , S. , Kaplan , S. , & Ware , J. ( 1985 ). Expanding patient involvement in care: Effects on patient outcomes . Annals of Internal Medicine , 102 , 520 – 528 .
   PubMed Web of Science ®Google Scholar
• Harrison-Woermke , D. E. , & Graydon , J. E. ( 1993 ). Perceived informational needs of breast cancer patients receiving radiation therapy after excisional biopsy and axillary node dissection . Cancer Nursing , 16 , 449 – 455 .
   PubMed Web of Science ®Google Scholar
• Heyman , E. N. , & Rosner , T. T. ( 1996 ). Prostate cancer: An intimate view from patients and wives . Urologic Nursing , 16 , 37 – 44 .
   PubMedGoogle Scholar
• Hopkins , M. B. ( 1986 ). Information-seeking and adaptational outcomes in women receiving chemotherapy for breast cancer . Cancer Nursing , 9 , 256 – 262 .
   PubMedGoogle Scholar
• James , N. , Daniels , H. , Rahman , R. , McConkey , C. , Derry , J. , & Young , A. ( 2007 ). A study of information seeking by cancer patients and their carers . Clinical Oncolology , 19 , 356 – 362 .
   PubMed Web of Science ®Google Scholar
• Jemal , A. , Siegel , R. , Ward , E. , Murray , T. , Xu , J. , Smigal , C. , & Thun , M. J. ( 2006 ). Cancer Statistics . CA Cancer Journal for Clinicians , 56 , 106 – 130 .
   PubMed Web of Science ®Google Scholar
• Jefford , M. , & Tattersall , M. ( 2002 ). Informing and involving patients in their own care . Lancet Oncology , 3 , 629 – 637 .
   PubMed Web of Science ®Google Scholar
• Johnson , J. E. , Nail , L. M. , Lauver , D. , King , K. B. , & Keys , H. ( 1998 ). Reducing the negative impact of radiation therapy on functional status . Cancer , 61 , 46 – 51 .
   Google Scholar
• Kakai , H. , Maskarinec , G. , Shumay , D. M. , Tatsumura , Y. , & Tasaki K. ( 2003 ). Ethnic differences in choices of health information by cancer patients using complementary and alternative medicine: An exploratory study with correspondence analysis . Social Science Medicine , 56 , 851 – 862 .
   PubMed Web of Science ®Google Scholar
• Liang , K. Y. , & Zeger , S. L. ( 1986 ). Longitudinal data analysis using generalized linear models . Biometrika , 73 , 13 – 22 .
   Web of Science ®Google Scholar
• Luker , K. A. , Beaver , K. , Leinster , S. J. , Owens , R. G. , Degner , L. F. , & Sloan , J. A. ( 1995 ). The information needs of women newly diagnosed with breast cancer . Journal of Advanced Nursing , 22 , 134 – 141 .
   PubMed Web of Science ®Google Scholar
• Mallinger , J. K. , Shields , C. G. , Griggs , J. J. , Roscoe , J. A. , Morrow , G. R. , Rosenbluth , R. J. , Lord , R. S. , & Gross , H. ( 2006 ). Stability of decisional role preference over the course of cancer therapy . Psychooncology , 15 , 297 – 305 .
   PubMed Web of Science ®Google Scholar
• Matthews , A. K. , Sellergren , S. A. , Manfredi , C. , & Williams , M. ( 2002 ). Factors influencing medical information seeking among African American cancer patients . Journal of Health Communication , 7 , 205 – 219 .
   PubMed Web of Science ®Google Scholar
• Mayer , D. K. , Terrin , N. C. , Kreps , G. L. , Menon , U. , McCance , K. , Parsons , S. K. , & Mooney , K. H. ( 2007 ). Cancer survivors information seeking behaviors: A comparison of survivors who do and do not seek information about cancer . Patient Education and Counseling , 65 , 342 – 350 .
   PubMed Web of Science ®Google Scholar
• McCaughan , E. , & McKenna , H. (2007). Never-ending making sense: Towards a substantive theory of the information-seeking behaviour of newly diagnosed cancer patients. Journal of Clinical Nursing , 16(11), 2096–2104.
   PubMed Web of Science ®Google Scholar
• Miller , S. M. ( 2005 ). Monitoring versus blunting styles of coping with cancer influence the information patients want and need about their disease. Implications for cancer screening and management . Cancer , 76 , 167 – 177 .
   Google Scholar
• Mills , M. E. , & Sullivan , K. ( 1999 ). The importance of information giving for patients newly diagnosed with cancer: A review of the literature . Journal of Clinical Nursing , 8 , 631 – 642 .
   PubMed Web of Science ®Google Scholar
• Ramanadhan , S. , & Viswanath , K. ( 2006 ). Health and the information nonseeker: A profile . Health Communication , 20 , 131 – 139 .
   PubMed Web of Science ®Google Scholar
• Ransom , S. , Jacobsen , P. B. , Schmidt , J. E. , & Andrykowski , M. A. ( 2005 ). Relationship of problem-focused coping strategies to changes in quality of life following treatment for early stage breast cancer . Journal of Pain Management , 30 , 243 – 253 .
   Google Scholar
• Rees , C. E. , & Bath , P. A. ( 2001 ). Information-seeking behaviors of women with breast cancer . Oncology Nursing Forum , 28 , 899 – 907 .
   PubMedGoogle Scholar
• Rutten , L. J. , Arora , N. K. , Bakos , A. D. , Aziz , N. , & Rowland , J. ( 2005 ). Information needs and sources of information among cancer patients: A systematic review of research (1980–2003) . Patient Education and Counseling , 57 , 250 – 261 .
   PubMed Web of Science ®Google Scholar
• Shields , C. G. , Morrow , G. R. , Griggs , J. , Mallinger , J. , Roscoe , J. , Wade , J. L. , Dakhil , S. R. , & Fitch , T. R. ( 2004 ). Decision-making role preferences of patients receiving adjuvant cancer treatment: A University of Rochester Cancer Center Community Clinical Oncology Program (URCC-CCOP) . Supportive Cancer Therapy , 1 , 119 – 126 .
   PubMedGoogle Scholar
• Stokes , M. E. , Davis , C. S. , & Coch , G. G. ( 2000 ). Categorical data analysis using the SAS system , (2nd ed.) . Cary , NC : SAS Institute Inc .
   Google Scholar
• Talosig-Garcia , M. , & Davis , S. W. ( 2005 ). Information-seeking behavior of minority breast cancer patients: An exploratory study . Jounal of Health Communication , 10 ( Suppl. 1 ), 53 – 64 .
   Google Scholar
• Turk-Charles , S. , Meyerowitz , B. E. , & Gatz , M. ( 1997 ). Age differences in information-seeking among cancer patients . International Journal of Aging Human Development , 45 , 85 – 98 .
   PubMed Web of Science ®Google Scholar
• U.S. Cancer Statistics Working Group . ( 2005 ). United States Cancer Statistics: 2002 incidence and mortality . Atlanta , GA : Department of Health and Human Services, Centers for Disease Control and Prevention and National Cancer Institute .
   Google Scholar
• Viswanath , K. ( 2005 ). Science and society: The communications revolution and cancer control . Nature Reviews Cancer , 5 , 828 – 835 .
   PubMed Web of Science ®Google Scholar
• Weiss , S. M. , Wegnert , P. A. , Jr. , Martinez , E. M. , Sewall , W. , & Kopp , E. ( 1996 ). Patient satisfaction with decision-making for breast cancer therapy . Annals of Surgical Oncology 1996 , 3 , 285 – 289 .
   PubMed Web of Science ®Google Scholar