1,003
Views
79
CrossRef citations to date
0
Altmetric
ARTICLES

Cancer Information Sources Used by Patients to Inform and Influence Treatment Decisions

, , , , , , , , & show all
Pages 445-463 | Published online: 21 Jun 2010

References

  • Anderson , A. S. , & Klemm , P. ( 2008 ). The Internet: Friend or foe when providing patient education? Clinical Journal of Oncology Nursing , 12 ( 1 ), 55 – 63 .
  • Bilodeau , B. A. , & Degner , L. F. ( 1996 ). Information needs, sources of information, and decisional roles in women with breast cancer . Oncology Nursing Forum , 23 ( 4 ), 691 – 696 .
  • Boudioni , M. , McPherson , K. , Moynihan , C. , Melia , J. , Boulton , M. , et al. . ( 2001 ). Do men with prostate or colorectal cancer seek different information and support from women with cancer? British Journal of Cancer , 85 ( 5 ), 641 – 648 .
  • Carlsson , M. ( 2000 ). Cancer patients seeking information from sources outside the health care system . Supportive Care in Cancer , 8 ( 6 ), 453 – 457 .
  • Chatwin , J. , & Tovey , P. ( 2004 ). Complementary and alternative medicine (CAM), cancer and group-based action: A critical review of the literature . European Journal of Cancer Care (Engl) , 13 ( 3 ), 210 – 218 .
  • Cowan , C. , & Hoskins , R. (2007). Information preferences of women receiving chemotherapy for breast cancer. European Journal of Cancer Care (Engl) , 16(6), 543–550.
  • Czaja , R. , Manfredi , C. , & Price , J. ( 2003 ). The determinants and consequences of information seeking among cancer patients . Journal of Health Communication , 8 ( 6 ), 529 – 562 .
  • Degner , L. F. , Kristjanson , L. J. , Bowman , D. , Sloan , J. A. , Carriere , K. C. , et al. . ( 1997 ). Information needs and decisional preferences in women with breast cancer . Journal of the American Medical Association , 277 ( 18 ), 1485 – 1492 .
  • Dey , A. ( 2004 ). Consumer health informatics: An overview of patient perspectives on health information needs . Health Information Management Journal , 33 ( 4 ), 121 – 126 .
  • Dillman , D. ( 1978 ). Mail and telephone surveys: The total design method . New York : John Wiley & Sons, Inc.
  • Evans , M. , Shaw , A. , Thompson , E. A. , Falk , S. , Turton , P. , et al. . ( 2007 ). Decisions to use complementary and alternative medicine (CAM) by male cancer patients: Information-seeking roles and types of evidence used . BMC Complementary and Alternative Medicine , 7 , 25 .
  • Feldman-Stewart , D. , Brennenstuhl , S. , & Brundage , M. D. ( 2008 ). The information needed by Canadian early-stage prostate cancer patients for decision-making: Stable over a decade . Patient Education and Counseling , 73 , 437 – 442 .
  • Feldman-Stewart , D. , Brundage , M. D. , Nickel , J. C. , & MacKillop , W. J. ( 2001 ). The information required by patients with early-stage prostate cancer in choosing their treatment . British Journal of Urology International , 87 ( 3 ), 218 – 223 .
  • Goldberg , R. , Guadagnoli , E. , Silliman , R. A. , & Glicksman , A. ( 1990 ). Cancer patients' concerns: Congruence between patients and primary care physicians . Journal of Cancer Education , 5 ( 3 ), 193 – 199 .
  • Gustafson , D. H. , Hawkins , R. P. , Boberg , E. W. , McTavish , F. , Owens , B. , et al. . ( 2002 ). CHESS: 10 years of research and development in consumer health informatics for broad populations, including the underserved . Int J Med Inform , 65 ( 3 ), 169 – 177 .
  • Krasuska , M. E. , & Stanislawek , A. ( 2003 ). Professional information, education and counselling as prerequisites for quality cancer care . Annales Universitatis Mariae Curie-Sklodowska , 58 ( 2 ), 179 – 184 .
  • Linssen , C. , Schook , R. M. , The , A. M. , Lammers , E. , Festen , J. , & Postmus , P. E. ( 2007 ). A web site on lung cancer: Who are the users and what are they looking for? Journal of Thoracic Oncology , 2 ( 9 ), 813 – 818 .
  • Manfredi , C. , Czaja , R. , Price , J. , Buis , M. , & Janiszewski , R. ( 1993 ). Cancer patients' search for information . Journal of The National Cancer Institute Monographs , 14 , 93 – 104 .
  • Niederdeppe , J. , Hornik , R. C. , Kelly , B. J. , Frosch , D. L. , Romantan , A. , et al. . ( 2007 ). Examining the dimensions of cancer-related information seeking and scanning behavior . Health Communication , 22 ( 2 ), 153 – 167 .
  • Nielsen-Bohlman , L. , Panzer , A. M. , & Kindig , D. A. ( 2004 ). Health literacy: A prescription to end confusion . Committee on Health Literacy Board on Neuroscience and Behavior, Institute of Medicine of the National Academies . Washington , DC : The National Academies Press .
  • O'Leary , K. A. , Estabrooks , C. A. , Olson , K. , & Cumming , C. ( 2007 ). Information acquisition for women facing surgical treatment for breast cancer: Influencing factors and selected outcomes . Patient Education and Counseling , 69 ( 1–3 ), 5 – 19 .
  • Rains , S. A. ( 2007 ). Perceptions of traditional information sources and use of the world wide web to seek health information: Findings from the health information national trends survey . Journal of Health Communication , 12 ( 7 ), 667 – 680 .
  • Royak-Schaler , R. , Passmore , S. R. , Gadalla , S. , Hoy , M. K. , Zhan , M. , et al. . ( 2008 ). Exploring patient-physician communication in breast cancer care for African American women following primary treatment . Oncology Nursing Forum , 35 ( 5 ), 836 – 843 .
  • Rutten , L. J. , Arora , N. K. , Bakos , A. D. , Aziz , N. , & Rowland , J. ( 2005 ). Information needs and sources of information among cancer patients: A systematic review of research (1980–2003) . Patient Education and Counseling , 57 ( 3 ), 250 – 261 .
  • Rutten , L. J. , Squiers , L. , & Hesse , B. (2006). Cancer-related information seeking: Hints from the 2003 Health Information National Trends Survey (HINTS). Journal of Health Communication , 11(Suppl. 1), 147–156.
  • Satterlund , M. J. , McCaul , K. D. , & Sandgren , A. K. ( 2003 ). Information gathering over time by breast cancer patients . Journal of Medical Internet Research , 5 ( 3 ), e15 .
  • Smith , R. P. , Devine , P. , Jones , H. , DeNittis , A. , Whittington , R. , & Metz , J. M. ( 2003 ). Internet use by patients with prostate cancer undergoing radiotherapy . Urology , 62 ( 2 ), 273 – 277 .
  • Suominen , T. , Leino-Kilpi , H. , & Laippala , P. ( 1995 ). Who provides support and how? Breast cancer patients and nurses evaluate patient support . Cancer Nursing , 18 ( 4 ), 278 – 285 .
  • Trentham-Dietz , A. , & Walsh , M. C. ( 2008 ). ACCESS: Assessment of cancer care and satisfaction. Summary of results . Madison , WI : University of Wisconsin Paul P. Carbone Comprehensive Cancer Center . Retrieved May 9, 2010 from http://www.wicancer.org/documents/ACCESS%20results%20doc.pdf
  • van de Poll-Franse , L. V. , & van Eenbergen , M. C. ( 2008 ). Internet use by cancer survivors: Current use and future wishes . Support Care in Cancer , 16 ( 10 ), 1189 – 1195 .
  • Verhoef , M. J. , Boon , H. S. , & Page , S. A. ( 2008 ). Talking to cancer patients about complementary therapies: Is it the physician's responsibility? Current Oncology , 15 ( Suppl. 2 ), S88 – S93 .
  • Weis , J. ( 2003 ). Support groups for cancer patients . Supportive Care in Cancer , 11 ( 12 ), 763 – 768 .
  • Ziebland , S. , Chapple , A. , Dumelow , C. , Evans , J. , Prinjha , S. , & Rozmovits , L. ( 2004 ). How the internet affects patients' experience of cancer: A qualitative study . British Medical Journal , 328 ( 7439 ), 564 .

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.