The shared experience of couples with a spinal cord injury: ‘It happened to him, but it also happened to our relationship’

References

• Anderson, K. D., Borisoff, J. F., Johnson, R. D., Stiens, S. A., & Elliott, S. L. (2007). The impact of spinal cord injury on sexual function: Concerns of the general population. Spinal Cord, 45(5), 328–337.
   PubMed Web of Science ®Google Scholar
• Angel, S., & Buus, N. (2011). The experience of being a partner to a spinal cord injured person: A phenomenological-hermeneutic study. International Journal of Qualitative Studies on Health and Well-being, 6(4), 1–11.
   Web of Science ®Google Scholar
• Beauregard, L., & Noreau, L. (2010). Spouses of persons with spinal cord injury: Impact and coping. British Journal of Social Work, 40(6), 1945–1959.
   Web of Science ®Google Scholar
• Birenbaum, A. (1970). On managing a courtesy stigma. Journal of Health and Social Behavior, 11(3), 196–206.
   Web of Science ®Google Scholar
• Bocarro, J., & Sable, J. (2003). Finding the right P.A.T.H.: Exploring familial relationships and the role of a community TR program in the initial years after a spinal cord injury. Therapeutic Recreation Journal, 37(1), 58–72.
   Google Scholar
• Boschen, K. A., Tonack, M., & Gargaro, J. (2005). The impact of being a support provider to a person living in the community with a spinal cord injury. Rehabilitation Psychology, 50(4), 397–407.
   Web of Science ®Google Scholar
• Bourke, J. A., Hay-Smith, E. J. C., Snell, D. L., & DeJong, G. (2015). Attending to biographical disruption: The experience of rehabilitation following tetraplegia due to spinal cord injury. Disability & Rehabilitation, 37(4), 296–303.
   PubMed Web of Science ®Google Scholar
• Bury, M. (1982). Chronic illness as biographical disruption. Sociology of Health & Illness, 4(2), 167–182.
   PubMedGoogle Scholar
• Carricaburu, D., & Pierret, J. (1995). From biographical disruption to biographical reinforcement: The case of HIV-positive men. Sociology of Health & Illness, 17(1), 65–88.
   Web of Science ®Google Scholar
• Chan, R. K. (2000). How does spinal cord injury affect marital relationship? A story from both sides of the couple. Disability and Rehabilitation, 22(17), 764–775.
   PubMed Web of Science ®Google Scholar
• Chandler, M., Kennedy, P., & Sandhu, N. (2007). The association between threat appraisals and psychological adjustment in partners of people with spinal cord injuries. Rehabilitation Psychology, 52(4), 470–477.
   Web of Science ®Google Scholar
• Charmaz, K. (1999). Health, illness, and healing: Society, social context, and self. Los Angeles: Roxbury Publishing Company.
   Google Scholar
• Chun, S., & Lee, Y. (2008). The experience of posttraumatic growth for people with spinal cord injury. Qualitative Health Research, 18(7), 877–890.
   PubMed Web of Science ®Google Scholar
• Conti, A., Garrino, L., Montanari, P., & Dimonte, V. (2015). Informal caregivers’ needs on discharge from the spinal cord unit: Analysis of perceptions and lived experiences. Disability and Rehabilitation, 38(2), 159–167.
   PubMed Web of Science ®Google Scholar
• Corbin, J. M., & Strauss, A. L. (1988). Unending work and care: Managing chronic illness at home. San Francisco: Joosey-Bass Publisher.
   Google Scholar
• DeSanto-Madeya, S. (2006). The meaning of living with spinal cord injury 5 to 10 years after the injury. Western Journal of Nursing Research, 28(3), 265–289.
   PubMed Web of Science ®Google Scholar
• Dickson, A., Allan, D., & O’Carroll, R. (2008). Biographical disruption and the experience of loss following a spinal cord injury: An interpretative phenomenological analysis. Psychology & Health, 23(4), 407–425.
   PubMed Web of Science ®Google Scholar
• Dickson, A., Brien, G., Ward, R., Allan, D., & O’Carroll, R. (2010). The impact of assuming the primary caregiver role following traumatic spinal cord injury: An interpretative phenomenological analysis of the spouse’s experience. Psychology & Health, 25(9), 1101–1120.
   PubMed Web of Science ®Google Scholar
• Eisikovits, Z., & Koren, C. (2010). Approaches to and outcomes of dyadic interview analysis. Qualitative Health Research, 20(12), 1642–1655.
   PubMed Web of Science ®Google Scholar
• Finlay, L. (2002). Outing the researcher: The provenance, process, and practice of reflexivity. Qualitative Health Research, 12(4), 531–545.
   PubMed Web of Science ®Google Scholar
• Giddens, A. (1992). The transfromation of intimacy: Sexuality, love and eroticism in modern societies. Cambridge: Polity Press.
   Google Scholar
• Gifre, M., Del Valle, A., Gil, À., & Monreal-Bosch, P. (2014). The experience of identity transformation process for people living with tetraplegia and paraplegia. The UB Journal of Psychology, 44, 361–372.
   Google Scholar
• Giorgi, A. (1985). Phenomenology and psychological research. Pittsburgh: Duquensne University Press.
   Google Scholar
• Giorgi, A. (2009). The descriptive phenomenological method in psychology: A modified Husserlian approach. Pittsburgh: Duquesne University Press.
   Google Scholar
• Hammell, K. W. (2004). Quality of life among people with high spinal cord injury living in the community. Spinal Cord, 42(11), 607–620.
   PubMed Web of Science ®Google Scholar
• Hellström, I., Nolan, M., & Lundh, U. (2007). Sustaining ‘couplehood’: Spouses’ strategies for living positively with dementia. Dementia, 6(3), 383–409.
   Google Scholar
• Hess, M. J., & Hough, S. (2012). Impact of spinal cord injury on sexuality: Broad-based clinical practice intervention and practical application. The Journal of Spinal Cord Medicine, 35(4), 211–218.
   PubMed Web of Science ®Google Scholar
• Isaksson, G., Josephsson, S., Lexell, J., & Skar, L. (2008). Men’s experiences of giving and taking social support after their wife’s spinal cord injury. Scandinavian Journal of Occupational Therapy, 15(4), 236–246.
   PubMed Web of Science ®Google Scholar
• Jamieson, L. (1998). Intimacy: Personal relationships in modern societies. Cambridge: Polity Press.
   Google Scholar
• Jamieson, L. (1999). Intimacy transformed? A critical look at the ‘pure relationship’. Sociology, 33(3), 477–494.
   Google Scholar
• Kaplan, L. (2001). A couplehood typology for spouses of institutionalized persons with Alzheimer’s disease: Perceptions of “We”-”I”. Family Relations, 50(1), 87–98.
   Web of Science ®Google Scholar
• Kreuter, M. (2000). Spinal cord injury and partner relationships. Spinal Cord, 38(1), 2–6.
   PubMed Web of Science ®Google Scholar
• Lopez, K. A., & Willis, D. G. (2004). Descriptive versus interpretive phenomenology: Their contributions to nursing knowledge. Qualitative Health Research, 14(5), 726–735.
   PubMed Web of Science ®Google Scholar
• Lyons, R. F., Sullivan, M. J. L., & Ritvo, P. G. (1995). Relationships in chronic illness and disability. Thousand Oaks, California: Sage Publications.
   Google Scholar
• Mill, B., & Turnbull, G. (2004). Broken hearts and mending bodies: The impact of trauma on intimacy. Sexual and Relationship Therapy, 19(3), 265–289.
   Google Scholar
• Milligan, M. S., & Neufeldt, A. H. (1998). Postinjury marriage to men with spinal cord injury: Women’s perspectives on making a commitment. Sexuality and Disability, 16(2), 117–132.
   Web of Science ®Google Scholar
• Molyneaux, V. J., Butchard, S., Simpson, J., & Murray, C. (2012). The co-construction of couplehood in dementia. Dementia, 11(4), 483–502.
   Google Scholar
• Morris, S. M. (2001). Joint and individual interviewing in the context of cancer. Qualitative Health Research, 11(4), 553–567.
   PubMed Web of Science ®Google Scholar
• Munce, S. E., Webster, F., Fehlings, M. G., Straus, S. E., Jang, E., & Jaglal, S. B. (2014). Perceived facilitators and barriers to self-management in individuals with traumatic spinal cord injury: A qualitative descriptive study. BMC Neurology, 14(48), 1–12.
   PubMed Web of Science ®Google Scholar
• Noe, B. B., Bjerrum, M., & Angel, S. (2014). Expectations, wishes and worries: The challenges of returning to home after initial hospital rehabilitation for traumatic spinal cord injury. International Journal of Physical Medicine and Rehabilitation, 2(5), 1–5.
   Google Scholar
• Patton, M. (2002). Qualitative research & evaluation methods (3rd ed.). Thousand Oaks: Sage Publications.
   Google Scholar
• Pound, P., Gompertz, P., & Ebrahim, S. (1998). Illness in the context of older age: The case of stroke. Sociology of Health & Illness, 20(4), 489–506.
   Web of Science ®Google Scholar
• Rolland, J. S. (1994). In sickness and in health: The impact of illness on couples relationships. Journal of Marital and Family Therapy, 20(4), 327–347.
   Web of Science ®Google Scholar
• Taylor, B., & de Vocht, H. (2011). Interviewing separately or as couples? Considerations of authenticity of method. Qualitative Health Research, 21(11), 1576–1587.
   PubMed Web of Science ®Google Scholar
• Unalan, H., Gencosmanoglu, B., Akgun, K., Karamehmetoglu, S., Tuna, H., Ones, K., … Tuzun, F. (2001). Quality of life of primary caregivers of spinal cord injury survivors living in the community: Controlled study with short form-36 questionnaire. Spinal Cord, 39(6), 318–322.
   PubMed Web of Science ®Google Scholar
• Weitzenkamp, D. A., Gerhart, K. A., Charlifue, S. W., Whiteneck, G. G., & Savic, G. (1997). Spouses of spinal cord injury survivors: The added impact of caregiving. Archives of Physical Medicine and Rehabilitation, 78(8), 822–827.
   PubMed Web of Science ®Google Scholar
• Williams, S. (2000). Chronic illness as biographical disruption or biographical disruption as chronic illness? Reflections on a core concept. Sociology of Health & Illness, 22(1), 40–67.
   Web of Science ®Google Scholar
• Yim, S. Y., Lee, I. Y., Yoon, S. H., Song, M. S., Rah, E. W., & Moon, H. W. (1998). Quality of marital life in Korean spinal cord injured patients. Spinal Cord, 36(12), 826–831.
   PubMed Web of Science ®Google Scholar
• Yoshida, K. K. (1993). Reshaping of self: A pendular reconstruction of self and identity among adults with traumatic spinal cord injury. Sociology of Health & Illness, 15(2), 217–245.
   Web of Science ®Google Scholar