Occupational balance among family members of people in palliative care

References

• Badr H, Acitelli LK, Taylor CLC. Does couple identity mediate the stress experienced by caregiving spouses? Psychology & Health. 2007;22:211–229.
   Web of Science ®Google Scholar
• Thorpe G. Enabling more dying people to remain at home. BMJ. 1993;307:915–918.
   PubMed Web of Science ®Google Scholar
• Munck B, Fridlund B, Mårtensson J. Next-of-kin caregivers in palliative home care-from control to loss of control. J Adv Nurs. 2008;64:578–586.
   PubMed Web of Science ®Google Scholar
• Milberg A, Strand P, Carlsson M, et al. Advanced Palliative Home Care: next-of-kin's perspective. J Palliat Med. 2003;6:749–756.
   PubMedGoogle Scholar
• Fransson G. Årsrapport För Svenska Palliativregistret Verksamhetsår 2015. Sweden: Svenska Palliativregistret
   Google Scholar
• Doyle D. Oxford Textbook of Palliative Medicine. 3rd ed. Oxford: Oxford University Press; 2005.
   Google Scholar
• Försäkringskassan. [Internet]. Stockholm: Försäkringskassan; [cited on 2017 aug 11]. Available from: https://www.forsakringskassan.se/arbetsgivare/sjukdom-och-skada/vard-av-narstaende
   Google Scholar
• Brobäck G, Berterö C. How next of kin experience palliative care of relatives at home. Eur J Cancer Care (Engl). 2003;12:339–346.
   PubMed Web of Science ®Google Scholar
• Neergaard MA, Olesen F, Jensen AB, et al. Palliative care for cancer patients in a primary health care setting: bereaved relatives' experience, a qualitative group interview study. BMC Palliat Care. 2008;7:1–8.
   PubMedGoogle Scholar
• Liedström E, Skovdahl K, Isaksson AK, et al. understanding the next of kin’s experience of their life situation in informal caregiving of older persons. Clin Nurs Stud. 2013;2:53–63.
   Google Scholar
• Wennman-Larsen A, Tishelman C. Advanced home care for cancer patients at the end of life: a qualitative study of hopes and expectations of family caregivers. Scand J Caring Sci. 2002;16:240–247.
   PubMed Web of Science ®Google Scholar
• Persson C, Wennman-Larsen A, Sundin K, et al. Assessing informal caregivers' experiences: a qualitative and psychometric evaluation of the Caregiver Reaction Assessment Scale. Eur J Cancer Care. 2008;17:189–199.
   PubMed Web of Science ®Google Scholar
• Lethin C, Renom-Guiteras A, Zwakhalen S, et al. Psychological well-being over time among informal caregivers caring for persons with dementia living at home. Aging Ment Health. 2017;21:1138–1146.
   PubMed Web of Science ®Google Scholar
• Andershed B. Relatives in end-of-life care. Part 1: a systematic review of the literature the five last years, January 1999-February 2004. J Clin Nurs. 2006;15:1158–1169.
   PubMed Web of Science ®Google Scholar
• Andershed B, Harstäde CW. Next of kin's feelings of guilt and shame in end-of-life care. Contemp Nurse. 2007;27:61–72.
   PubMed Web of Science ®Google Scholar
• Workman S, Mann OE. ‘No control whatsoever': end-of-life care on a medical teaching unit from the perspective of family members. Qjm. 2007;100:433–440.
   PubMed Web of Science ®Google Scholar
• Öhlén J, Andershed B, Berg C, et al. Relatives in end-of-life care-part 2: a theory for enabling safety. J Clin Nurs. 2007;16:382–390.
   PubMed Web of Science ®Google Scholar
• Morris SM, King C, Turner M, et al. Family carers providing support to a person dying in the home setting: a narrative literature review. Palliat Med. 2015;29:487–495.
   PubMed Web of Science ®Google Scholar
• Keesing S, Rosenwax L, McNamara B. ‘Doubly deprived': a post-death qualitative study of primary carers of people who died in Western Australia. Health Soc Care Community. 2011;19:636–644.
   PubMed Web of Science ®Google Scholar
• Wester A, Larsson L, Olofsson L, et al. Caregivers' experiences of caring for an elderly next of kin in Sweden. Nord J Nurs Res. 2013;33:28–32.
   Google Scholar
• Andersson EK, Borglin G, Sjöström-Strand A, et al. Standing alone when life takes an unexpected turn: being a midlife next of kin of a relative who has suffered a myocardial infarction. Scand J Caring Sci. 2013;27:864–871.
   PubMed Web of Science ®Google Scholar
• Olsson Ozanne A, Graneheim U, Persson L, et al. Factors that facilitate and hinder the manageability of living with amyotrophic lateral sclerosis in both patients and next of kin. J Clin Nurs. 2012;21:1364–1373.
   PubMed Web of Science ®Google Scholar
• Wilcock A. An Occupational Perspective of Health. 2nd ed. Thorofare (NJ): Slack; 2006.
   Google Scholar
• Wagman P, Björklund A, Håkansson C, et al. Perceptions of life balance among a working population in Sweden. Qual Health Res. 2011;21:410–418.
   PubMed Web of Science ®Google Scholar
• Emami A, Benner PE, Lipson JG, et al. Health as continuity and balance in life. West J Nurs Res. 2000;22:812–825.
   PubMed Web of Science ®Google Scholar
• Evans KL, Millsteed J, Richmond JE, et al. The complexity of role balance: Support for the Model of Juggling Occupations. Scand J Occup Ther. 2014;21:334–347.
   PubMed Web of Science ®Google Scholar
• Wagman P, Håkansson C, Björklund A. Occupational balance as used in occupational therapy: a concept analysis. Scand J Occup Ther. 2012;19:322–327.
   PubMed Web of Science ®Google Scholar
• Polit DF, Tatano Beck C. Essentials of nursing research: appraising evidence for nursing practice. 8th ed. Philadelphia: Lippincott Williams & Wilkins; 2014.
   Google Scholar
• Kvale S. Doing interwievs. Thousand Oaks (CA): SAGE; 2007.
   Google Scholar
• Patton M. Qualitative research & evaluation methods: integrating theory and practice. Thousand Oaks, California: SAGE Publications, inc; 2015.
   Google Scholar
• Olsson H, Sörenssen S. Forskningsprocessen. Kvalitativa och kvantitativa perspektiv. Stockholm: Liber; 2008.
   Google Scholar
• Graneheim UH, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Educ Today. 2004;24:105–112.
   PubMed Web of Science ®Google Scholar
• Kielhofner G. Model of human occupation: theory and application. 4th ed. Baltimore: Lippincott Williams & Wilkins; 2008.
   Google Scholar
• Mays N, Pope C. Qualitative Research in Health care. Assessing quality in qualitative research. BMJ. 2000;320:50–52.
   PubMed Web of Science ®Google Scholar