13,475
Views
3
CrossRef citations to date
0
Altmetric
Original Articles

Everyday life when growing up with a mother with an intellectual or developmental disability: Four retrospective life-stories

, , &
Pages 418-430 | Received 22 Jan 2018, Accepted 26 Nov 2018, Published online: 20 Jan 2019

References

  • Collings S, Llewellyn G. Children of parents with intellectual disability: facing poor outcomes or faring okay?. J Intellect Dev Disabil. 2012;37:65–82.
  • Löfgren-Mårtenson L. Sexualitet och kärlek. In: Söderman L, Antonson S, editors. Nya Omsorgsboken. Malmö: Liber; 2011. p. 185–192.
  • Weiber I, Berglund J, Tengland PA, et al. Children born to women with intellectual disabilities – 5-year incidence in a Swedish county. J Intellect Disabil Res. 2011;55:1078–1085.
  • Odom SL, Horner RH, Snell ME, et al. The construct of developmental disabilities. In: Odom SL, editor. Handbook of developmental disabilities. New York: Guilford Press; 2007. p. 3–14.
  • Brown I, Wehmeyer ML, Shogren KA. What is meant by the terms intellectual disability and developmental disabilities? In: Wehmeyer ML, Brown I, Percy M, Shogren KA, Fung WLA, editors. A Comprehensive guide to intellectual and developmental disabilities. 2 ed. Baltimore (MD): Brookes Publishing; 2017. p. 3–18.
  • Bach M. Changing perspectives on intellectual and developmental disabilities. In: Wehmeyer ML, Brown I, Percy M, Shogren KA, Fung WLA, editors. A comprehensive guide to intellectual and developmental disabilities. 2 ed. Baltimore [MD]: Brookes Publishing; 2017. p. 35–45.
  • National Board of Health and Welfare. Barn som har föräldrar med utvecklingsstörning. Stockholm: Socialstyrelsen; 2007.
  • Llewellyn G, McConnell D, Mayes R. Health of mothers with intellectual limitations. Aust N Z J Public Health. 2003;27:17–19.
  • Llewellyn G, McConnell D. Mothers with learning difficulties and their support networks. J Intellect Disabil Res. 2002;46:17–34.
  • Mayes R, Llewellyn G. Mothering differently: narratives of mothers with intellectual disability whose children have been compulsorily removed. J Intellect Dev Disabil. 2012;37:121–130.
  • Llewellyn G. Parents with intellectual disability and their children: advances in policy and practice. J Policy Pract Intellect Disabil. 2013;10:82–85.
  • Pixa-Kettner U. Parents with intellectual disability in germany: results of a nation-wide study. J Appl Res Intellect Disabil. 1998;11:355–364.
  • McConnell D, Feldman M, Aunos M. Parents and parenting with intellectual disabilities: an expanding field of research. J Appl Res Intellect Disabil. 2017;30:419–422.
  • Booth T, Booth W, McConnell D. The prevalence and outcomes of care proceedings involving parents with learning difficulties in the family courts. J Appl Res Int Dis. 2005;18:7–17.
  • Tossebro J, Midjo T, Paulsen V, et al. Prevalence, trends and custody among children of parents with intellectual disabilities in Norway. J Appl Res Intellect Disabil. 2017;30:533–542.
  • McConnell D, Llewellyn G, Mayes R, et al. Developmental profiles of children born to mothers with intellectual disability. J Intellect Dev Disabil. 2003;28:122–134.
  • Emerson E, Brigham P. The developmental health of children of parents with intellectual disabilities: cross-sectional study. Res Dev Disabil. 2014;35:917–921.
  • Granqvist P, Forslund T, Fransson M, et al. Mothers with intellectual disability, their experiences of maltreatment, and their children's attachment representations: a small-group matched comparison study. Attach Hum Dev. 2014;16:417–436.
  • Booth T, Booth W. Against the odds: growing up with parents who have learning difficulties. Ment Retard. 2000;38:1–14.
  • Wołowicz-Ruszkowska A, McConnell D. The experience of adult children of mothers with intellectual disability: a qualitative retrospective study from Poland. J Appl Res Intellect Disabil. 2017;30:482–491.
  • Faureholm J. Children and their life experiences. In: Llewellyn G, Traustadóttir R, McConnell D, Sigurjónsdóttir HB, editors. Parents with intellectual disabilities – past present and futures. Chichester, West Sussex: John Wiley & Sons Ltd; 2010.
  • Starke M. Young adults with intellectual disability recall their childhood. J Intellect Disabil. 2011;15:229–240.
  • Lindblad I, Billstedt E, Gillberg C, et al. An interview study of young adults born to mothers with mild intellectual disability. J Intellect Disabil. 2013;17:329–338.
  • Brown DW, Anda RF, Tiemeier H, et al. Adverse childhood experiences and the risk of premature mortality. Am J Prev Med. 2009;37:389–396.
  • Chartier MJ, Walker JR, Naimark B. Separate and cumulative effects of adverse childhood experiences in predicting adult health and health care utilization. Child Abuse Negl. 2010;(34:):454–464.
  • Horwitz AV, Spatz Widom C, McLaughlin J, et al. The impact of childhood abuse and neglect on adult mental health: a prospective study. J Health Soc Behav. 2001;42:184–201.
  • Hovens JGFM, Giltay EJ, Wiersma JE, et al. Impact of childhood life events and trauma on the courses of depressive and anxiety disorders. Acta Psychiatr Scand. 2012;126:198–207.
  • Weiber I, Berglund J, Tengland PA, et al. Social and health care professional's experiences of giving support to families where a mother has an intellectual disability: Focusing on the children. J Policy Pract Intellect Disabil. 2014;11:293–301.
  • Weiber I, Eklund M, Tengland PA. The Characteristics of Local Support Systems, and the Roles of Professionals, in Supporting Families where a Mother has an Intellectual Disability. J Appl Res Intellect Disabil. 2016;29:197–210.
  • Taylor SJ, Bogdan R. Introduction to qualitative research methods: a guidebook and resource. New York: Wiley; 1998.
  • Lemley CK, Mitchell RW. Narrative inquiry: Stories lived, stories told. In: Lapan SD, Quartaroli MT, Riemer FJ, editors. Qualitative research: an introduction to methods and designs. San Francisco, CA: Jossey-Bass, Inc; 2011. p. 215–41.
  • Reissman CK. Narrative methods for the human sciences. London: SAGE; 2008.
  • Atkinson R. The life history interview. Thousand Oaks: SAGE University; 1998.
  • Neuendorf KA. The content analysis : guidebook. London: SAGE; 2002.
  • Pipping L. Kärlek och stålull: Att växa upp med en utvecklingsstörd mamma. Stockholm: Gothia; 2004.
  • Edwinson Månsson M. The value of informing children prior to investigations and procedures. Doctoral dissertation, Lund University, Lund, Sweden; 1992.
  • Seipel MO. Social consequences of malnutrition. Soc Work. 1999;44:416–425.
  • Umb-Carlsson Ö. Living conditions of oeople with intellectual disabilities [Elektronisk Resurs]: a study of helth, housing, work, leisure and social relations in a Swedish county population. Uppsala: Acta Universitatis Upsaliensis; 2005.
  • Desrosiers L, Laporte L. Occupational challenges of mothers with borderline personality disorder world federation of occupational therapists; 22 May; Cape Town, South Africa; 2018.
  • Tymchuk AJ. Predicting adequacy of parenting by people with mental retardation. Child Abuse Negl. 1992;16:165–178.
  • Ronai CR. On loving and hating my mentally retarded mother. Ment Retard. 1997;35:417–432.
  • Fernqvist S. Negotiating parenthood: experiences of economic hardship among parents with cognitive difficulties. J Intellect Disabil. 2015;19:215–229.
  • Adolfsson P, Lindstedt H, Janeslatt G. How people with cognitive disabilities experience electronic planning devices. NRE. 2015;37:379–392.
  • Hallgren M, Nygard L, Kottorp A. Technology and everyday functioning in people with intellectual disabilities: a Rasch analysis of the Everyday Technology Use Questionnaire (ETUQ). J Intellect Disabil Res. 2011;55:610–620.
  • Berk LE. Child development. Boston: Pearson; 2009.
  • Lincoln YS, Guba EG. Naturalistic inquiry. Beverly Hills (CA): Sage; 1985.