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Articles

Perceived challenges at work and need for professional support among people with inflammatory arthritis – A qualitative interview study

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Pages 640-649 | Received 19 Apr 2021, Accepted 30 Sep 2021, Published online: 13 Oct 2021

References

  • Smolen JS, Aletaha D, Barton A, et al. Rheumatoid arthritis. Nat Rev Dis Primers. 2018;4:18001.
  • Fernández-Carballido C, Martín-Martínez MA, García-Gómez C, et al. Impact of comorbidity on physical function in patients with ankylosing spondylitis and psoriatic arthritis attending rheumatology clinics. Results from the Cardiovascular in Rheumatology (CARMA) study. Arthrit Care Res. 2019;72(6):822–828.
  • Kristiansen TM, Primdahl J, Antoft R, et al. Everyday life with rheumatoid arthritis and implications for patient education and clinical practice: a focus group study. Musculoskeletal Care. 2012;10(1):29–38.
  • Kristiansen TM, Primdahl J, Antoft R, et al. It means everything: continuing normality of everyday life for people with rheumatoid arthritis in early remission. Musculoskeletal Care. 2012;10(3):162–170.
  • Lempp H, Scott D, Kingsley G. The personal impact of rheumatoid arthritis on patients' identity: a qualitative study. Chronic Illn. 2006;2(2):109–120.
  • Uhlig T, Moe RH, Kvien TK. The burden of disease in rheumatoid arthritis. Pharmacoeconomics. 2014;32(9):841–851.
  • Verstappen SMM, Watson KD, Lunt M, et al. BSR Biologics Register. Working status in patients with rheumatoid arthritis, ankylosing spondylitis and psoriatic arthritis: results from the British society for rheumatology biologics register. Rheumatology (Oxford)). 2010;49(8):1570–1577.
  • Hansen SM, Hetland ML, Pedersen J, et al. Effect of rheumatoid arthritis on longterm sickness absence in 1994–2011: a danish cohort study. J Rheumatol. 2016;43(4):707–715.
  • Webers C, Ramiro S, Landewé R, et al. Sick leave and its predictors in ankylosing spondylitis: long-term results from the outcome in ankylosing spondylitis international study. RMD Open. 2018;4(2):e000766.
  • Haglund E, Bremander A, Bergman S, et al. Work productivity in a population-based cohort of patients with spondyloarthritis. Rheumatology. 2013;52(9):1708–1714.
  • Holland P, Collins AM. "Whenever I can I push myself to go to work": a qualitative study of experiences of sickness presenteeism among workers with rheumatoid arthritis. Disabil Rehabil. 2018;40(4):404–413.
  • Wilkie R, Bjork M, Costa-Black KM, et al. Managing work participation for people with rheumatic and musculoskeletal diseases. Best Pract Res Cl Rh. 2020;34(2):101517.
  • Madsen M, Jensen KV, Esbensen BA. Men's experiences of living with ankylosing spondylitis: a qualitative study. Musculoskeletal Care. 2015;13(1):31–41.
  • Primholdt N, Primdahl J, Hendricks O. A difficult diagnosis: a qualitative study of the daily lives of young men diagnosed with ankylosing spondylitis. Musculoskeletal Care. 2017;15(2):140–149.
  • Kostova Z, Caiata-Zufferey M, Schulz PJ. The process of acceptance among rheumatoid arthritis patients in Switzerland: a qualitative study. Pain Res Manag. 2014;19(2):61–68.
  • Angouri J, Sanderson T. You'll find lots of help here’ unpacking the function of an online rheumatoid arthritis (RA) forum. Lang Commun. 2016;46:1–13.
  • Sanderson T, Calnan M, Morris M, et al. Shifting normalities: interactions of changing conceptions of a normal life and the normalisation of symptoms in rheumatoid arthritis. Sociol Health Illn. 2011;33(4):618–633.
  • Hoving JL, van Zwieten MC, van der Meer M, et al. Work participation and arthritis: a systematic overview of challenges, adaptations and opportunities for interventions. Rheumatology (Oxford)). 2013;52(7):1254–1264.
  • Lacaille D, White MA, Backman CL, et al. Problems faced at work due to inflammatory arthritis: new insights gained from understanding patients' perspective. Arthritis Rheum. 2007;57(7):1269–1279.
  • Feddersen H, Mechlenborg Kristiansen T, Tanggaard Andersen P, et al. Juggling identities of rheumatoid arthritis, motherhood and paid work - a grounded theory study. Disabil Rehabil. 2018;41(13):1536–1544.
  • Primdahl J, Hegelund A, Lorenzen AG, et al. The experience of people with rheumatoid arthritis living with fatigue: a qualitative metasynthesis. BMJ Open. 2019;9(3):e024338.
  • Ventriglio A, Torales J, Bhugra D. Disease versus illness: what do clinicians need to know? Int J Soc Psychiatry. 2017;63(1):3–4.
  • Madsen CMT, Bisgaard SK, Primdahl J, et al. A systematic review of job loss prevention interventions for persons with inflammatory arthritis. J Occup Rehabil. 2021. In press.
  • Jakobsen K, Lillefjell M. Factors promoting a successful return to work: from an employer and employee perspective. Scand J Occup Ther. 2014;21(1):48–57.
  • Lindseth A, Norberg A. A phenomenological hermeneutical method for researching lived experience. Scand J Caring Sci. 2004;18(2):145–153.
  • Patton MQ. Qualitative research & evaluation methods: integrating theory and practice. 4 ed. Thousand Oaks (CA): SAGE Publicationa, Inc.; 2015.
  • Miles MBH, MIchael A, Saldana J. Qualitative data analysis: a methods sourcebook. 3 ed. Thousand Oaks (CA): Sage; 2014.
  • Malterud K, Siersma VD, Guassora AD. Sample size in qualitative interview studies: guided by information power. Qual Health Res. 2016;26(13):1753–1760.
  • Work Ability Index 2019. Available from: http://www.arbeitsfaehigkeit.uni-wuppertal.de/index.php?wai-online-en.
  • Green J NickiT. In-depth interviews. In: Green J, Nicki T, editor. Qualitative methods for health research. 3 ed. London: Sage; 2014.
  • Prior Y, Amanna AE, Bodell SJ, et al. A qualitative evaluation of occupational therapy-led work rehabilitation for people with inflammatory arthritis: Patients' views. Br J Occup Ther. 2017;80(1):39–48.
  • Feddersen H, Kristiansen TM, Andersen PT, et al. Construction of meaningful identities in the context of rheumatoid arthritis, motherhood and paid work: a meta-ethnography. J Clin Nurs. 2017;26(23–24):4117–4128.
  • Connolly D, Fitzpatrick C, O'Toole L, et al. Impact of fatigue in rheumatic diseases in the work environment: a qualitative study. Int J Environ Res Public Health. 2015;12(11):13807–13822.
  • Österholm JH, Björk M, Håkansson C. Factors of importance for maintaining work as perceived by men with arthritis. Work. 2013;45(4):439–448.
  • Graneheim UH, Lindgren B-M, Lundman B, et al. Institutionen för h, avdelningen för omvårdnad - avancerad n. Methodological challenges in qualitative content analysis: a discussion paper. Nurse Educ Today. 2017;56:29–34.
  • Graneheim UH, Lundman B, Medicinska F. Umeå u, institutionen för o. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurs Educ Today. 2004;24(2):105–112.
  • Lindgren B-M, Lundman B, Graneheim UH. Abstraction and interpretation during the qualitative content analysis process. Int J Nurs Stud. 2020;108:103632.
  • Wagman P, Håkansson C, Björklund A, et al. Occupational balance as used in occupational therapy: a concept analysis. Scand J Occup Ther. 2012;19(4):322–327.
  • Definition of occupation 2021. Available from: https://www.wfot.org/about/about-occupational-therapy.
  • Forhan M, Backman C. Exploring occupational balance in adults with rheumatoid arthritis. OTJR. 2010;30(3):133–141.
  • Stamm T, Lovelock L, Stew G, et al. I have a disease but I am not ill: a narrative study of occupational balance in people with rheumatoid arthritis. OTJR. 2009;29(1):32–39.
  • Wagman P, Håkansson C, Jacobsson C, et al. What is considered important for life balance? Similarities and differences among some working adults. Scand J Occup Ther. 2012;19(4):377–384.
  • Wilcock AA, Chelin M, Hall M, et al. The relationship between occupational balance and health: a pilot study. Occup Ther Int. 1997;4(1):17–30.
  • Wilcock AA. Occupation and health: are they one and the same? J Occup Sci. 2007;14(1):3–8.
  • Wilcock A. A theory of the human need for occupation. J Occup Sci. 1993;1(1):17– 24.
  • Helme C, Hegarty RSM, Stebbings S, et al. "I actually just really need to stop work sometimes": Exploring fatigue-related barriers to employment among people with rheumatic diseases”. Musculoskeletal Care. 2019;17(1):97–104.
  • Nilsson I, Townsend E. Occupational Justice-Bridging theory and practice. Scand J Occup Ther. 2010;17(1):57–63.
  • Dures E, Cramp F, Hackett K, et al. Fatigue in inflammatory arthritis. Best Pract Res Cl Rh. 2020;34(2):101526.
  • Thomsen T, Beyer N, Aadahl M, et al. Sedentary behaviour in patients with rheumatoid arthritis: a qualitative study. Int J Qual Stud Health Well-Being. 2015;10(1):28578.
  • Novick G. Is there a bias against telephone interviews in qualitative research? Res Nurs Health. 2008;31(4):391–398.
  • Sandhu S, Veinot P, Embuldeniya G, et al. Peer-to-peer mentoring for individuals with early inflammatory arthritis: feasibility pilot. BMJ Open. 2013;3(3):e002267.

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