Rheumatic disease and fatigue: Participants’ experiences of an activity-pacing group

References

• Almutairi K, Nossent J, Preen D, et al. The global prevalence of rheumatoid arthritis: a meta-analysis based on a systematic review. Rheumatol Int. 2021;41:863–877.
   PubMed Web of Science ®Google Scholar
• Overman CL, Kool MB, Da Silva JAP, et al. The prevalence of severe fatigue in rheumatic diseases: an international study. Clin Rheumatol. 2016;35:409–415.
   PubMed Web of Science ®Google Scholar
• Pilgaard T, Hagelund L, Stallknecht SE, et al. Severity of fatigue in people with rheumatoid arthritis, psoriatic arthritis and spondyloarthritis – results of a cross-sectional study. PLOS One. 2019;14:e0218831.
   PubMed Web of Science ®Google Scholar
• Seifert O, Baerwald C. Impact of fatigue on rheumatic diseases. Best Pract Res Clin Rheumatol. 2019;33:101435.
   PubMed Web of Science ®Google Scholar
• Walter MJM, Kuijper TM, Hazes JMW, et al. Fatigue in early, intensively treated and tight-controlled rheumatoid arthritis patients is frequent and persistent: a prospective study. Rheumatol Int. 2018;38:1643–1650.
   PubMed Web of Science ®Google Scholar
• Braaten TJ, Zhang C, Presson AP, et al. Gender differences in psoriatic arthritis with fatigue, pain, function, and work disability. J Psoriasis Psoriatic Arthritis. 2019;4:192–197.
   Google Scholar
• Primdahl J, Hegelund A, Lorenzen AG, et al. The experience of people with rheumatoid arthritis living with fatigue: a qualitative metasynthesis. BMJ Open. 2019;9:e024338.
   PubMed Web of Science ®Google Scholar
• Hewlett S, Chalder T, Choy E, et al. Fatigue in rheumatoid arthritis: time for a conceptual model. Rheumatology. 2011;50:1004–1006.
   PubMed Web of Science ®Google Scholar
• Nikolaus S, Bode C, Taal E, et al. Fatigue and factors related to fatigue in rheumatoid arthritis: a systematic review. Arthritis Care Res. 2013;65:1128–1146.
   PubMed Web of Science ®Google Scholar
• Moverley AR, Vinall-Collier KA, Helliwell PS. It's not just the joints, it's the whole thing: qualitative analysis of patients' experience of flare in psoriatic arthritis. Rheumatology. 2015;54:1448–1453.
   PubMed Web of Science ®Google Scholar
• McArthur MA, Birt L, Goodacre L. "Better but not best": a qualitative exploration of the experiences of occupational gain for people with inflammatory arthritis receiving anti-TNFα treatment. Disabil Rehabil. 2015;37:854–863.
   PubMed Web of Science ®Google Scholar
• Davies H, Brophy S, Dennis M, et al. Patient perspectives of managing fatigue in ankylosing spondylitis, and views on potential interventions: a qualitative study. BMC Musculoskel Dis. 2013;14:163.
   PubMed Web of Science ®Google Scholar
• Jetha A, Badley E, Beaton D, et al. Unpacking early work experiences of young adults with rheumatic disease: an examination of absenteeism, job disruptions, and productivity loss. Arthritis Care Res. 2015;67:1246–1254.
   PubMed Web of Science ®Google Scholar
• Edelaar L, Nikiphorou E, Fragoulis GE, et al. 2019 EULAR recommendations for the generic core competences of health professionals in rheumatology. Ann Rheum Dis. 2020;79:53–60.
   PubMed Web of Science ®Google Scholar
• Miller WR, Lasiter S, Bartlett Ellis R, et al. Chronic disease self-management: a hybrid concept analysis. Nurs Outlook. 2015;63:154–161.
   PubMed Web of Science ®Google Scholar
• Barlow J, Wright C, Sheasby J, et al. Self-management approaches for people with chronic conditions: a review. Patient Educ Couns. 2002;48:177–187.
   PubMed Web of Science ®Google Scholar
• Grønning K, Lomundal B, Koksvik HS, et al. Coping with arthritis is experienced as a dynamic balancing process. A qualitative study. Clin Rheumatol. 2011;30:1425–1432.
   PubMed Web of Science ®Google Scholar
• Dures E, Almeida C, Caesley J, et al. Patient preferences for psychological support in inflammatory arthritis: a multicentre survey. Ann Rheum Dis. 2016;75:142–147.
   PubMed Web of Science ®Google Scholar
• Nikiphorou E, Santos EJF, Marques A, et al. EULAR recommendations for the implementation of self-management strategies in patients with inflammatory arthritis. Ann Rheum Dis. 2021;80:1278–1285.
   PubMed Web of Science ®Google Scholar
• Kier AØ, Midtgaard J, Hougaard KS, et al. How do women with lupus manage fatigue? A focus group study. Clin Rheumatol. 2016;35:1957–1965.
   PubMed Web of Science ®Google Scholar
• Antcliff D, Keenan A-M, Keeley P, et al. Survey of activity pacing across healthcare professionals informs a new activity pacing framework for chronic pain/fatigue. Musculoskeletal Care. 2019;17:335–345.
   PubMed Web of Science ®Google Scholar
• Cramp F, Hewlett S, Almeida C, et al. Non-pharmacological interventions for fatigue in rheumatoid arthritis. Cochrane Database Syst Rev. 2013;23:Cd008322.
   Google Scholar
• Dures E, Kitchen K, Almeida C, et al. "They didn't tell us, they made us work it out ourselves": patient perspectives of a cognitive-behavioral program for rheumatoid arthritis fatigue. Arthritis Care Res. 2012;64:494–501.
   PubMed Web of Science ®Google Scholar
• Hewlett S, Almeida C, Ambler N, et al. Reducing arthritis fatigue impact: two-year randomised controlled trial of cognitive behavioural approaches by Rheumatology Teams (RAFT). Ann Rheum Dis. 2019;78:465–472.
   PubMed Web of Science ®Google Scholar
• Cuperus N, Vliet Vlieland T, Brodin N, et al. Characterizing the concept of activity pacing as a non-pharmacological intervention in rheumatology care: results of an International Delphi Survey. Scand J Rheumatol. 2016;45:66–74.
   PubMed Web of Science ®Google Scholar
• Creswell JW. Qualitative inquiry and research design. Choosing among five approaches. 3rd ed. Thousand Oaks (CA): SAGE; 2013.
   Google Scholar
• Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3:77–101.
   Google Scholar
• Heiberg T, Austad C, Kvien TK, et al. Performance of the rheumatoid arthritis impact of disease (RAID) score in relation to other patient-reported outcomes in a register of patients with rheumatoid arthritis. Ann Rheum Dis. 2011;70:1080–1082.
   PubMed Web of Science ®Google Scholar
• Nielson WR, Jensen MP, Karsdorp PA, et al. Activity pacing in chronic pain: concepts, evidence, and future directions. Clin J Pain. 2013;29:461–468.
   PubMed Web of Science ®Google Scholar
• Dures E, Cramp F, Hackett K, et al. Fatigue in inflammatory arthritis. Best Pract Res Clin Rheumatol. 2020;34:101526.
   PubMed Web of Science ®Google Scholar
• Berge T, Dehli L, Fjerstad E. Energityvene: utmattelse i sykdom og hverdag. Oslo (NO): Aschehoug; 2014.
   Google Scholar
• Bandura A. Self-efficacy: the exercise of control. New York (NY): Freeman; 1997.
   Google Scholar
• Antonovsky A. Unraveling the mystery of health: how people manage stress and stay well. San Francisco (CA): Jossey-Bass; 1987.
   Google Scholar
• Audulv A, Packer T, Hutchinson S, et al. Coping, adapting or self-managing – what is the difference? A concept review based on the neurological literature. J Adv Nurs. 2016;72:2629–2643.
   PubMed Web of Science ®Google Scholar
• Cane D, McCarthy M, Mazmanian D. Obstacles to activity pacing: assessment, relationship to activity and functioning. Pain. 2016;157:1508–1514.
   PubMed Web of Science ®Google Scholar
• Hammell KW. Opportunities for well-being: the right to occupational engagement. Can J Occup Ther. 2017;84:209–222.
   PubMed Web of Science ®Google Scholar
• Hitch D, Pepin G. Doing, being, becoming and belonging at the heart of occupational therapy: an analysis of theoretical ways of knowing. Scand J Occup Ther. 2021;28:13–25.
   PubMed Web of Science ®Google Scholar
• Eilertsen G, Ormstad H, Kirkevold M, et al. Similarities and differences in the experience of fatigue among people living with fibromyalgia, multiple sclerosis, ankylosing spondylitis and stroke. J Clin Nurs. 2015;24:2023–2034.
   PubMed Web of Science ®Google Scholar
• Menting J, Tack C, Bleijenberg G, et al. Is fatigue a disease-specific or generic symptom in chronic medical conditions? Health Psychol. 2018;37:530–543.
   PubMed Web of Science ®Google Scholar
• Combe B, Landewe R, Daien CI, et al. 2016 Update of the EULAR recommendations for the management of early arthritis. Ann Rheum Dis. 2017;76:948–959.
   PubMed Web of Science ®Google Scholar
• Nielsen KT, Klokker L, Guidetti S, et al. Identifying, organizing and prioritizing ideas on how to enhance ADL ability. Scand J Occup Ther. 2019;26:382–393.
   PubMed Web of Science ®Google Scholar
• Korstjens I, Moser A. Series: practical guidance to qualitative research. Part 4: trustworthiness and publishing. Eur J Gen Pract. 2018;24:120–124.
   PubMed Web of Science ®Google Scholar