Occupational gaps reported by proxies for persons with dementia residing in a nursing home

References

• Kielsgaard K, Horghagen S, Nielsen D, et al. Approaches to engaging people with dementia in meaningful occupations in institutional settings: a scoping review. Scand J Occup Ther. 2021;28:329–347.
   PubMed Web of Science ®Google Scholar
• Socialstyrelsen, Nationella riktlinjer - Målnivåer - Vård och omsorg till personer med demenssjukdom (National Guidelines - Goal levels - Health and welfare for persons with dementia) (In Swedish). 2020.
   Google Scholar
• Sefcik JS, Madrigal C, Heid AR, et al. Person-centered care plans for nursing home residents with behavioral and psychological symptoms of dementia. J Gerontol Nurs. 2020;46:17–27.
   PubMed Web of Science ®Google Scholar
• Townsend EA, Polatajko JH. Enabling occupation II: Advancing an occupational therapy vision for health, well-being., & justice through occupation. Ottawa, Ontario: CAOT Publications ACE; 2007.
   Google Scholar
• Mallinson T, Hammel J. Measurement of participation: intersecting person, task, and environment. Arch Phys Med Rehabil. 2010;91:S29–S33.
   PubMed Web of Science ®Google Scholar
• Leven NV, Jonsson H. Doing and being in the atmosphere of the doing: Environmental influences on occupational performance in a nursing home. Scand J Occup Ther. 2002;9:148–155.
   Google Scholar
• Noreau L, Boschen K. Intersection of participation and environmental factors: a complex interactive process. Arch Phys Med Rehabil. 2010;91:S44–S53.
   PubMed Web of Science ®Google Scholar
• Njelesani J, Tang A, Jonsson H, et al. Articulating an occupational perspective. J Occup Sci. 2014;21:226–235.
   Google Scholar
• Cardol M, De Jong BA, Ward CD. On autonomy and participation in rehabilitation. Disabil Rehabil. 2002;24:970–974.
   PubMed Web of Science ®Google Scholar
• Hammel J, Magasi S, Heinemann A, et al. What does participation mean? An insider perspective from people with disabilities. Disabil Rehabil. 2008;30:1445–1460.
   PubMed Web of Science ®Google Scholar
• Mondaca M, Josephsson S, Katz A, et al. Influencing everyday activities in a nursing home setting: a call for ethical and responsive engagement. Nurs Inq. 2018;25:e12217.
   PubMed Web of Science ®Google Scholar
• Gustavsson M, Liedberg GM, Larsson Ranada A. Everyday doings in a nursing home – described by residents and staff. Scand J Occup Ther. 2015;22:435–441.
   PubMed Web of Science ®Google Scholar
• Faxén-Irving G, Luiking Y, Grönstedt H, et al. Do malnutrition, sarcopenia and frailty overlap in nursing-home residents? J Frailty Aging. 2021;10:17–21.
   PubMed Web of Science ®Google Scholar
• Pellfolk T, Gustafsson T, Gustafson Y, et al. Risk factors for falls among residents with dementia living in group dwellings. Int Psychogeriatr. 2009;21:187–194.
   PubMed Web of Science ®Google Scholar
• Vikström S, Grönstedt HK, Cederholm T, et al. A health concept with a social potential: an interview study with nursing home residents. BMC Geriatr. 2020;20:324–324.
   PubMed Web of Science ®Google Scholar
• Gronstedt H, et al. Effect of sit-to-stand exercises combined with protein-rich oral supplementation in older persons: the older person's exercise and nutrition study. J Am Med Dir Assoc. 2020;21:1229–1237.
   PubMed Web of Science ®Google Scholar
• Kolanowski A, Buettner L, Litaker M, et al. Factors that relate to activity engagement in nursing home residents. Am J Alzheimers Dis Other Demen. 2006;21:15–22.
   PubMedGoogle Scholar
• Vikström S, et al. Engagement in activities: experiences of persons with dementia and their caregiving spouses. Dementia. 2008;7:251–270.
   Google Scholar
• Bjork S, et al. Residents' engagement in everyday activities and its association with thriving in nursing homes. J Adv Nurs. 2017;73:1884–1895.
   PubMed Web of Science ®Google Scholar
• Patomella A-H, Sandman P-O, Bergland Å, et al. Characteristics of residents who thrive in nursing home environments: a cross-sectional study. J Adv Nurs. 2016;72:2153–2161.
   PubMed Web of Science ®Google Scholar
• Slettebø Å, Saeteren B, Caspari S, et al. The significance of meaningful and enjoyable activities for nursing home resident's experiences of dignity. Scand J Caring Sci. 2017;31:718–726.
   PubMed Web of Science ®Google Scholar
• Fleming R, Goodenough B, Low L-F, et al. The relationship between the quality of the built environment and the quality of life of people with dementia in residential care. Dementia. 2016;15:663–680.
   PubMedGoogle Scholar
• Socialstyrelsen En nationell strategi för demensukdom [A national strategy for dementia] (In Swedish). 2020. https://www.socialstyrelsen.se/globalassets/sharepoint-dokument/artikelkatalog/ovrigt/2020-9-6899.pdf
   Google Scholar
• Socialstyrelsen. Statistik om äldre och personer med funktionsnedsättning efter regiform 2018. 2019. https://www.socialstyrelsen.se/globalassets/sharepoint-dokument/artikelkatalog/statistik/2019-2-20.pdf.
   Google Scholar
• Skoldunger A, Sandman P-O, Backman A. Exploring person-centred care in relation to resource utilization, resident quality of life and staff job strain – findings from the SWENIS study. BMC Geriatr. 2020;20:465–465.
   PubMed Web of Science ®Google Scholar
• Tak SH, Kedia S, Tongumpun TM, et al. Activity engagement: perspectives from nursing home residents with dementia. Educ Gerontol. 2015;41:182–192.
   PubMed Web of Science ®Google Scholar
• Eyssen IC, Steultjens MP, Dekker J, et al. A systematic review of instruments assessing participation: challenges in defining participation. Arch Phys Med Rehabil. 2011;92:983–997.
   PubMed Web of Science ®Google Scholar
• Eriksson, G. Occupational Gaps Questionnaire, version 1.0/2013. 2013.
   Google Scholar
• Bergstrom AL, et al. Perceived occupational gaps one year after stroke: an explorative study. J Rehabil Med. 2012;44:36–42.
   PubMed Web of Science ®Google Scholar
• Fallahpour M, Tham K, Joghataei MT, et al. Occupational gaps in everyday life after stroke and the relation to aspects of functioning and perceived life satisfaction. Occup Ther J Res. 2011;31:200–208.
   Google Scholar
• Eriksson G, Kottorp A, Borg J, et al. Relationship between occupational gaps in everyday life, depressive mood and life satisfaction after acquired brain injury. J Rehabil Med. 2009;41:187–194.
   PubMed Web of Science ®Google Scholar
• Bergström A, Guidetti S, Tham K, et al. Association between satisfaction and participation in everyday occupations after stroke. Scand J Occup Ther. 2017;24:339–348.
   PubMed Web of Science ®Google Scholar
• Hodson T, Wall B, Gustafsson L, et al. Occupational engagement following mild stroke in the Australian context using the occupational gaps questionnaire. Scand J Occup Ther. 2021;28:384–387.
   PubMed Web of Science ®Google Scholar
• Svensson JS, Westerlind E, Persson HC, et al. Occupational gaps 5 years after stroke. Brain Behav. 2019;9:e01234n/a.
   PubMed Web of Science ®Google Scholar
• Eriksson G, Tham K, Borg J. Occupational gaps in everyday life 1-4 years after acquired brain injury. J Rehabil Med. 2006;38:159–165.
   PubMed Web of Science ®Google Scholar
• Bergstrom AL, et al. Participation in everyday life and life satisfaction in persons with stroke and their caregivers 3-6 months after onset. J Rehabil Med. 2015;47:508–515.
   PubMed Web of Science ®Google Scholar
• Margot-Cattin I, Ludwig C, Kühne N, et al. Visiting out-of-home places when living with dementia: a cross-sectional observational study: visiter des lieux hors du domicile lorsque l'on vit avec une démence: étude transversale observationnelle. Can J Occup Ther. 2021;88:131–141.
   PubMedGoogle Scholar
• Vikström S, Sandman P-O, Stenwall E, et al. A model for implementing guidelines for person-centered care in a nursing home setting. Int Psychogeriatr. 2015;27:49–59.
   PubMed Web of Science ®Google Scholar
• Edvardsson D, Sandman PO, Borell L. Implementing national guidelines for person-centered care of people with dementia in residential aged care: effects on perceived person-centeredness, staff strain, and stress of conscience. Int Psychogeriatr. 2014;26:1171–1179.
   PubMed Web of Science ®Google Scholar
• Eriksson G, Tham K, Kottorp A. A cross-diagnostic validation of an instrument measuring participation in everyday occupations: the occupational gaps questionnaire (OGQ). Scand J Occup Ther. 2013;20:152–160.
   PubMed Web of Science ®Google Scholar
• Mondaca M, Josephsson S, Borell L, et al. Altering the boundaries of everyday life in a nursing home context. Scand J Occup Ther. 2019;26:441–451.
   PubMed Web of Science ®Google Scholar
• Kalis A, Schermer MHN, van Delden JJM. Ideals regarding a good life for nursing home residents with dementia: views of professional caregivers. Nurs Ethics. 2005;12:30–42.
   PubMed Web of Science ®Google Scholar
• Kindblom K, Edvardsson D, Boström A‐M, et al. A learning process towards person-centred care: a second-year follow-up of guideline implementation. Int J Older People Nurs. 2021;16:e12373–e12373.
   PubMed Web of Science ®Google Scholar
• Li M, Harris I, Lu ZK. Differences in proxy-reported and patient-reported outcomes: assessing health and functional status among medicare beneficiaries. BMC Med Res Methodol. 2015;15:62–62.
   PubMed Web of Science ®Google Scholar
• Han A, Radel J, McDowd JM, et al. Perspectives of people with dementia about meaningful activities: a synthesis. Am J Alzheimers Dis Other Demen. 2016;31:115–123.
   PubMed Web of Science ®Google Scholar
• Moyle W, Murfield JE, Griffiths SG, et al. Assessing quality of life of older people with dementia: a comparison of quantitative self-report and proxy accounts. J Adv Nurs. 2012;68:2237–2246.
   PubMed Web of Science ®Google Scholar
• Brandburg GL, Symes L, Mastel-Smith B, et al. Resident strategies for making a life in a nursing home: a qualitative study. J Adv Nurs. 2013;69:862–874.
   PubMed Web of Science ®Google Scholar
• Baldwin C, Greason M. Micro-citizenship, dementia and long-term care. Dementia. 2016;15:289–303.
   PubMedGoogle Scholar