How context influences person-centred practice: A critical-creative case study examining the use of research evidence in occupational therapy with people living with dementia

References

• Prince M, Wimo A, Guercher M, et al. World Alzheimer report 2015: the global impact of dementia an analysis of prevalence, incidence, cost and trends. London: Alzheimer’s Disease International; 2015.
   Google Scholar
• Kitwood T. Dementia reconsidered: the person comes first. Buckingham: Open University Press; 1997.
   Google Scholar
• World Health Organisation. Global action plan on the public health response to dementia 2017–2025. Geneva, Switzerland: World Health Organisation; 2017.
   Google Scholar
• Scottish Government. Scotland’s national dementia strategy 2017–2020. Edinburgh, UK: Scottish Government; 2017.
   Google Scholar
• OECD. Renewing priority for dementia: Where do we stand? Paris: OECD; 2018.
   Google Scholar
• Alzheimer’s Disease International, Bupa. Ideas and advice on developing and implementing a national dementia plan. London: AlzInt; 2013.
   Google Scholar
• Alzheimer Scotland. Delivering integrated dementia care: the 8 pillars model of community support. Edinburgh, UK: Alzheimer Scotland; 2012.
   Google Scholar
• Upton D, Stephens D, Williams B, et al. Occupational therapists’ attitudes, knowledge, and implementation of evidence-based practice: a systematic review of published research. Br J Occup Ther. 2014;77:24–38.
   Web of Science ®Google Scholar
• Sackett DL, Rosenberg WM, Gray JA, et al. Evidence based medicine: What it is and what it isn’t. Br Med J. 1996;312:71–72.
   PubMed Web of Science ®Google Scholar
• Dougherty DA, Toth-Cohen SE, Tomlin GS. Beyond research literature: occupational therapists’ perspectives on and uses of “evidence” in everyday practice. Can J Occup Ther. 2016;83:288–296.
   PubMed Web of Science ®Google Scholar
• Kitson A, Harvey G, McCormack B. Approaches to implementing research in practice. Qual Health Care. 1998;7:149–58158.
   PubMedGoogle Scholar
• Greenhalgh T, Howick J. Evidence-based medicine: a movement in crisis? Br Med J. 2014;348:7.
   Google Scholar
• Rogers L, De Brun A, McAuliffe E. Defining and assessing context in healthcare implementation studies: a systematic review. BMC Health Serv Res. 2020;20:591.
   PubMed Web of Science ®Google Scholar
• Hunter PV, Hadjistavropoulos T, Thorpe L, et al. The influence of individual and organisational factors on person-centred dementia care. Aging Ment Health. 2016;20:700–708.
   PubMed Web of Science ®Google Scholar
• Di Bona L, Wenborn J, Field B, et al. Enablers and challenges to occupational therapists’ research engagement: a qualitative study. Br J Occup Ther. 2017;80:642–650.
   PubMed Web of Science ®Google Scholar
• Hynes SM, Field B, Ledgerd R, et al. Exploring the need for a new UK occupational therapy intervention for people with dementia and family carers: community Occupational Therapy in Dementia (COTiD). a focus group study. Aging Ment Health. 2016;20:762–769.
   PubMed Web of Science ®Google Scholar
• Wenborn J, Hynes S, Moniz-Cook E, et al. Community occupational therapy for people with dementia and family carer (COTiD-UK) versus treatment as usual (valuing active life in dementia [VALiD] programme): study protocol for a randomised controlled trial. Trials. 2016;17:10.
   PubMedGoogle Scholar
• Voigt-Radloff S, Graff M, Leonhart R, et al. A multicentre RCT on community occupational therapy in Alzheimer’s disease: 10 sessions are not better than one consultation. BMJ Open. 2011;1:e000096.
   PubMed Web of Science ®Google Scholar
• Graff MJL, Vernooij-Dassen MJM, Thijssen M, et al. Community based occupational therapy for patients with dementia and their care givers: randomised controlled trial. BMJ Open. 2006;333:1196.
   PubMed Web of Science ®Google Scholar
• Gitlin LN, Winter L, Burke J, et al. Tailored activities to manage neuropsychiatric behaviors in persons with dementia and reduce caregiver burden: a randomized pilot study. Am J Geriatr Psychiatry. 2008;16:229–239.
   PubMed Web of Science ®Google Scholar
• Novelli NNPC, Machado SCB, Lima GB, et al. Effects of the tailored activity program in Brazil (TAP-BR) for persons with dementia: a randomized pilot trial. Alzheimer Dis Assoc Disord. 2018;32:339–345.
   PubMed Web of Science ®Google Scholar
• O’Connor CM, Clemson L, Brodaty H, et al. Use of the tailored activities program to reduce neuropsychiatric behaviors in dementia: an Australian protocol for a randomized trial to evaluate its effectiveness. Int Psychogeriatr. 2014;26:857–869.
   PubMed Web of Science ®Google Scholar
• Dooley NR, Hinojosa J. Improving quality of life for persons with Alzheimer’s disease and their family caregivers: brief occupational therapy intervention. Am J Occup Ther. 2004;58:561–569.
   PubMed Web of Science ®Google Scholar
• Morgan-Trimmer S, Kudlicka A, Warmoth K, et al. Implementation processes in cognitive rehabilitation intervention for people with dementia: a complexity-informed qualitative analysis. Br Med J Open. 2021;11:e051255.
   PubMed Web of Science ®Google Scholar
• Hawe P, Shiell A, Riley T. Theorising interventions as events in systems. Am J Community Psychol. 2009;43:267–276.
   PubMed Web of Science ®Google Scholar
• Pentland D, Kantartzis S, Giatsi Clausen M. Occupational therapy and complexity: defining and describing practice. London: Royal College of Occupational Therapists; 2018.
   Google Scholar
• Greenhalgh T. How to implement evidence-based healthcare. Oxford: Wiley & Sons; 2017.
   Google Scholar
• Taylor C. Evidence-based practice for occupational therapists, 2nd ed. Oxford: Blackwell Publishing; 2007.
   Google Scholar
• Bolt T, Huisman F. Towards person-centered healthcare via realistic evidence-based medicine- informing the debate historically. Eur J Pers Cent Healthc. 2015;3:275–278.
   Google Scholar
• McCormack B, Kitson A, Harvey G, et al. Getting evidence into practice: the meaning of ‘context’. J Adv Nurs. 2002;38:94–104.
   PubMed Web of Science ®Google Scholar
• McCormack B, McCance T. Chapter 2: underpinning principles of person-centred practice. In McCormack B, McCance T, editors. Person-centred practice in nursing and health care: theory and practice, 2nd ed. West Sussex: Wiley Blackwell; 2017. p. 13–35.
   Google Scholar
• Schön DA. Educating the reflective practitioner: toward a new design for teaching and learning in the professions. San Francisco: Jossey-Bass Inc.; 1987.
   Google Scholar
• McCormack B, Titchen A. Critical creativity: melding, exploding, blending. Educ Action Res. 2006;14:239–266.
   Google Scholar
• Titchen A, McCormack B. Dancing with stones: critical creativity as methodology for human flourishing. Educ Action Res. 2010;18:531–554.
   Google Scholar
• Wilson V, McCormack B. Critical realism as emancipatory action: the case for realistic evaluation in practice development. Nurs Philos. 2006;7:45–57.
   PubMedGoogle Scholar
• Morgan SJ, Pullon SRH, MacDonald LM, et al. Case study observational research: a framework for conducting case study research where observation data are the focus. Qual Health Res. 2017;27:1060–1068.
   PubMed Web of Science ®Google Scholar
• Simons H. Case study research in practice. London: SAGE; 2009.
   Google Scholar
• Van Lieshout F, Cardiff S. Reflections on being and becoming a person-centred facilitator. Int Pract Dev J. 2015;5:S1–S10.
   Google Scholar
• Fish D, Coles C. Developing professional judgement in healthcare: learning through the critical appreciation of practice. Oxford: Butterworth-Heinemann; 1998.
   Google Scholar
• McGrath M, Passmore P. Home-based memory rehabilitation programme for persons with mild dementia. Irish J of Med Sci. 2009;178:S330.
   Google Scholar
• Stake RE. The art of case study research. Cambridge, Mass: MIT Press; 1995.
   Google Scholar
• Dewing J. Process consent and research with older persons living with dementia. Res Ethics Rev. 2008;4:59–64.
   Google Scholar
• Finlay L, Evans K. Ethical dimensions of relational research [internet]. 2008 [cited 2018 Jul 14]. Available from: http://lindafinlay.co.uk/
   Google Scholar
• Bucknall T, Aitken LM. 2015. Chapter 32: think aloud technique. In: Gerrish K and Lathlean J, editors. The research process in nursing, 7th ed. West Sussex: Wiley Blackwell, pp. 441–453.
   Google Scholar
• Dewing J, McCormack B, Titchen A. Practice development workbook for nursing, health and social care teams. Hoboken: Wiley; 2014.
   Google Scholar
• Titchen A, Cardiff S, Biong S, et al. Chapter 3: the knowing and being of person-centred research practice across worldviews: an epistemological and ontological framework. In McCormack B, Van Dulmen S, Eide H, Skovdahl K, editors. Person-centred healthcare research. West Sussex: Wiley Blackwell; 2017. pp. 31–50.
   Google Scholar
• Stokes J. Evoke Cards. [photographs]. DJ Stotty Images; 2017.
   Google Scholar
• Boomer CA, McCormack B. Creating the conditions for growth: a collaborative practice development programme for clinical nurse leaders. J Nurs Manag. 2010;18:633–644.
   PubMed Web of Science ®Google Scholar
• Gadamer H. Truth and method. Weinsheimer J, Marshall DG, translators. London: Bloomsbury; 1975.
   Google Scholar
• Van Manen M. Serendipitous insights and Kairos playfulness. Qual Inq. 2018;24:672–680.
   Web of Science ®Google Scholar
• McKenna P. Rookwood driving battery. US: Pearson; 2009.
   Google Scholar
• Allen CK, Austin SL, David SK, et al. Manual for the allen cognitive level screen (ACLS-5) and large allen cognitive level screen- 5 (LACLS-5). Camarillo, CA: ACLS and LACLS Committee; 2007.
   Google Scholar
• Boniface G, Seymour A. Using occupational therapy theory in practice. West Sussex: Wiley-Blackwell; 2012.
   Google Scholar
• Berwick D. A promise to learn- a commitment to act: improving the safety of patients in England. England: National Advisory Group on the Safety of Patients; 2013.
   Google Scholar
• Du Toit S, Shen X, McGrath M. Meaningful engagement and person-centred residential dementia care: a critical interpretive synthesis. Scand J Occup Ther. 2019;26:343–355.
   PubMed Web of Science ®Google Scholar
• Dewing J. Assuring care: are we ready to move beyond compliance measurement against targets? Int Pract Dev J. 2015;5:1–2.
   Google Scholar
• Manley K, Jackson C, McKenzie C. Microsystems culture change: a refined theory for developing person-centred, safe and effective workplaces based on strategies that embed a safety culture. Int Pract Dev J. 2019;9:1–21.
   Google Scholar
• Thomas Y, Menage D. Reclaiming compassion as a core value in occupational therapy. Br J Occup Ther. 2016;79:3–4.
   Web of Science ®Google Scholar
• Laloux F. Reinventing organizations: a guide to creating organizations inspired by the next stage in human consciousness. US: Nelson-Parker; 2014.
   Google Scholar
• Perryman-Fox MS. 2020. A theory of occupational agency: an international investigation of occupational therapists’ negotiations [unpublished doctoral dissertation]. Lancaster University.
   Google Scholar
• Senge P, Scharmer OC, Jaworski S, et al. Presence: exploring profound change in people, organizations and society. 2005. London and Boston: Nicholas Brealey Publishing.
   Google Scholar
• Schein E. Organisational culture and leadership. San Francisco; CA: Jossey-Bass; 2010.
   Google Scholar
• Scharmer OC. Theory U: Leading from the future as it emerges, 2nd ed. 2016. Oakland, CA: Berett Koelher.
   Google Scholar
• Krueger RB, Sweetman MM, Martin M, et al. Self-reflection as a support to evidence-based practice: a grounded theory exploration. Occup Ther Health Care. 2020;34:320–350.
   PubMed Web of Science ®Google Scholar
• Restall G, Egan MY. Collaborative relationship-focused occupational therapy: evolving lexicon and practice. Can J Occup Ther. 2021;88:220–230.
   PubMed Web of Science ®Google Scholar
• Fay B. Critical social science. Cambridge: Polity Press; 1987.
   Google Scholar