Dying-well: the contribution of leisure services to hospice care

References

• Anderson, L. S., and L. A. Heyne. 2012. “Flourishing Through Leisure: An Ecological Extension of the Leisure and Well-being Model in Therapeutic Recreation Strengths-based Practice.” Therapeutic Recreation Journal 46 (2): 129.
   Google Scholar
• Atkinson, S. 2013. “Beyond Components of Wellbeing: The Effects of Relational and Situated Assemblage.” Topoi 32 (2): 137–144. doi:10.1007/s11245-013-9164-0.
   Web of Science ®Google Scholar
• Beng, T. S., L. E. Chin, N. C. Guan, Y. H. Ann, C. Wu, W. S. Kuan, and C. B. C. Meng. 2015. “The Experiences of Well-being of Palliative Care Patients in Malaysia: A Thematic Analysis.” American Journal of Hospice and Palliative Medicine® 32 (5): 490–503. doi:10.1177/1049909114523829.
   PubMed Web of Science ®Google Scholar
• Braun, V., and V. Clarke. 2006. “Using Thematic Analysis in Psychology.” Qualitative Research in Psychology 3 (2): 77–101. doi:10.1191/1478088706qp063oa.
   Google Scholar
• Broadie, S., and C. Rowe. 2002. Nichomachean Ethics: Translation, Introduction, Commentary. Oxford: Oxford University Press.
   Google Scholar
• Buckley, J., and K. Herth. 2004. “Fostering Hope in Terminally Ill Patients.” Nursing Standard (Through 2013) 19 (10). doi:10.7748/ns2004.11.19.10.33.c3759.
   Google Scholar
• Carruthers, C. P., and C. D. Hood. 2007. “Building a Life of Meaning Through Therapeutic Recreation: The Leisure and Well-being Model, Part I.” Therapeutic Recreation Journal 41 (4): 276.
   Google Scholar
• The Choice in End of Life Care Programme Board. 2015. What’s Important to Me. A Review of Choice in End of Life Care. The Choice in End of Life Care Programme Board. February. 72.
   Google Scholar
• Cleary, A., K. S. Fielding, S. L. Bell, Z. Murray, and A. Roiko. 2017. “Exploring Potential Mechanisms Involved in the Relationship Between Eudaimonic Wellbeing and Nature Connection.” Landscape and Urban Planning 158: 119–128. doi:10.1016/j.landurbplan.2016.10.003.
   Web of Science ®Google Scholar
• Cleeve, H., C. Tishelman, A. Macdonald, O. Lindqvist, and I. Golath. 2018. “Not Just Things: The Roles of Objects at the End of Life.” Sociology of Health and Illness 40 (4): 735–749. doi:10.1111/1467-9566.12719.
   PubMed Web of Science ®Google Scholar
• Collier, A., J. L. Phillips, and R. Iedema. 2015. “The Meaning of Home at the End of Life: A Video-Reflexive Ethnography Study.” Palliative Medicine 29 (8): 695–702. doi:10.1177/0269216315575677.
   PubMed Web of Science ®Google Scholar
• Davies, N. 2018. “Who Walks, Where and Why? Practitioners’ Observations and Perspectives on Recreational Walkers at UK Tourist Destinations.” Annals of Leisure Research 21 (5): 553–574. doi:10.1080/11745398.2016.1250648.
   Web of Science ®Google Scholar
• Denovan, A., and A. Macaskill. 2017. “Building Resilience to Stress Through Leisure Activities: A Qualitative Analysis.” Annals of Leisure Research 20 (4): 446–466. doi:10.1080/11745398.2016.1211943.
   Web of Science ®Google Scholar
• Department of Health. 2016. Our Commitment to You for End of Life Care. The Government Response to the Review of Choice in End of Life Care. Department of Health.
   Google Scholar
• Duquette, M. M., H. Carbonneau, and C. Jourdan-Ionescu. 2016. “Young People with Disabilities: The Influence of Leisure Experiences on Family Dynamics.” Annals of Leisure Research 19 (4): 405–423. doi:10.1080/11745398.2015.1122537.
   Web of Science ®Google Scholar
• Graham, C. 2011. “What We Mean by Happiness: A ‘Theory’ of Agency and Well-being.” In The Pursuit of Happiness: An Economy of Well-being, edited by C. Graham, 27–61. Washington D.C: Brookings Institution Press.
   Google Scholar
• Guba, E. G., and Y. S. Lincoln. 1994. “Competing Paradigms in Qualitative Research.” Handbook of Qualitative Research, edited by N. K. Denzin, and Y. S. Lincoln, 105–117. Thousand Oaks: Sage.
   Google Scholar
• Henderson, K. A. 2014. “Promoting Health and Well-being Through Leisure: Introduction to the Special Issue.” World Leisure Journal 56 (2): 96–98. doi:10.1080/16078055.2014.903730.
   Google Scholar
• Hilário, A. P. 2016. “In-patient Hospice: A Qualitative Study with Portuguese Patients, Family and Staff.” Death Studies 40 (5): 290–297. doi:10.1080/07481187.2015.1132283.
   PubMed Web of Science ®Google Scholar
• Hood, C. D., and C. P. Carruthers. 2007. “Enhancing Leisure Experience and Developing Resources: The Leisure and Well-being Model Part II.” Therapeutic Recreation Journal 41 (4): 298.
   Google Scholar
• Hospice UK. 2015. Facts and Figures Key Facts and Statistics about Hospice Care. http://www.hospiceuk.org/media-centre/facts-and-figures.
   Google Scholar
• Hull IV, R. B. 1990. “Mood as a Product of Leisure: Causes and Consequences.” Journal of Leisure Research 22 (2): 99–111. doi:10.1080/00222216.1990.11969818.
   Web of Science ®Google Scholar
• Huta, V. 2016. “An Overview of Hedonic and Eudaimonic Well-being Concepts.” In Handbook of Media Use and Well-being: International Perspectives on Theory and Research on Positive Media Effects, edited By L. Reinecke, and M. B. Oliver, 14–33. London, UK: Routledge.
   Google Scholar
• Huta, V., and R. M. Ryan. 2010. “Pursuing Pleasure or Virtue: The Differential and Overlapping Well-being Benefits of Hedonic and Eudaimonic Motives.” Journal of Happiness Studies 11 (6): 735–762. doi:10.1007/s10902-009-9171-4.
   Web of Science ®Google Scholar
• Huta, V., and A. S. Waterman. 2014. “Eudaimonia and Its Distinction from Hedonia: Developing a Classification and Terminology for Understanding Conceptual and Operational Definitions.” Journal of Happiness Studies 15 (6): 1425–1456. doi:10.1007/s10902-013-9485-0.
   Web of Science ®Google Scholar
• Iso-Ahola, S. E. 1997. “A Psychological Analysis of Leisure and Health.” In Work, Leisure and Wellbeing, edited by J. T. Hawarth, 131–144. London: Routledge.
   Google Scholar
• Iwasaki, Y., C. Coyle, J. Shank, E. Messina, and H. Porter. 2013. “Leisure-generated Meanings and Active Living for Persons with Mental Illness.” Rehabilitation Counseling Bulletin 57 (1): 46–56. doi:10.1177/0034355213486359.
   Web of Science ®Google Scholar
• Iwasaki, Y., E. Messina, C. Coyle, and J. Shank. 2015. “Role of Leisure in Meaning-making for Community-dwelling Adults with Mental Illness: Inspiration for Engaged Life.” Journal of Leisure Research 47 (5): 538–555. doi:10.18666/jlr-2015-v47-i5-5305.
   Web of Science ®Google Scholar
• Kay Smith, M., and A. Diekmann. 2017. “Tourism and Wellbeing.” Annals of Tourism Research 66 (Supplement C): 1–13. doi:10.1016/j.annals.2017.05.006.
   Web of Science ®Google Scholar
• Kellehear, A. 2013. “Compassionate Communities: End-of-life Care as Everyone’s Responsibility.” QJM: An International Journal of Medicine 106 (12): 1071–1075. doi:10.1093/qjmed/hct200.
   PubMed Web of Science ®Google Scholar
• Kellehear, A., E. Pugh, and L. Atter. 2009. “Home Away from Home? A Case Study of Bedside Objects in a Hospice.” International Journal of Palliative Nursing 15 (3): 148–152. doi:10.12968/ijpn.2009.15.3.41095.
   PubMedGoogle Scholar
• Kim, J., J. Heo, R. Dvorak, J. Rye, and A. Han. 2018. “Benefits of Leisure Activities for Health and Life Satisfaction among Western Migrants.” Annals of Leisure Research 21 (1): 47–57. doi:10.1080/11745398.2017.1379421.
   Web of Science ®Google Scholar
• Kleiber, D. A., S. L. Hutchinson, and R. Williams. 2002. “Leisure as a Resource in Transcending Negative Life Events: Self-protection, Self-restoration, and Personal Transformation.” Leisure Sciences 24 (2): 219–235. doi:10.1080/01490400252900167.
   Web of Science ®Google Scholar
• Laing, J. H., and W. Frost. 2017. “Journeys of Well-being: Women's Travel Narratives of Transformation and Self-discovery in Italy.” Tourism Management 62 (Supplement C): 110–119. doi:10.1016/j.tourman.2017.04.004.
   Web of Science ®Google Scholar
• Lavoie, M., D. Blondeau, and J. Picard-Morin. 2011. “The Autonomy Experience of Patients in Palliative Care.” Journal of Hospice & Palliative Nursing 13 (1): 47–53. doi:10.1097/NJH.0b013e318202425c.
   Web of Science ®Google Scholar
• Lee, W., and C. Jeong. 2019. “Beyond the Correlation Between Tourist Eudaimonic and Hedonic Experiences: Necessary Condition Analysis.” Current Issues in Tourism 1–13. doi:10.1080/13683500.2019.1611747.
   Web of Science ®Google Scholar
• Lendon, J. P., S. C. Ahluwalia, A. M. Walling, K. A. Lorenz, O. A. Oluwatola, R. A. Price, D. Quigley, and J. M. Teno. 2015. “Measuring Experience with End-of-life Care: A Systematic Literature Review.” Journal of Pain and Symptom Management 49 (5): 904–915. doi:10.1016/j.jpainsymman.2014.10.018.
   PubMed Web of Science ®Google Scholar
• Lundberg, N. R., D. G. Groff, and R. B. Zabriskie. 2010. “Psychological Need Satisfaction Through Sports Participation among International Athletes with Cerebral Palsy.” Annals of Leisure Research 13 (1–2): 102–115. doi:10.1080/11745398.2010.9686840.
   Google Scholar
• Mannell, R. C., and D. A. Kleiber. 1997. A Social Psychology of Leisure. Pennsylvania: Venture Publishing Inc.
   Google Scholar
• Meier, D. E. 2011. “Increased Access to Palliative Care and Hospice Services: Opportunities to Improve Value in Health Care.” Milbank Quarterly 89 (3): 343–380.
   PubMed Web of Science ®Google Scholar
• Moore, A., B. Carter, A. Hunt, and K. Sheikh. 2013. “‘I Am Closer to This Place’ – Space, Place and Notions of Home in Lived Experiences of Hospice Day Care.” Health & Place 19: 151–158. doi:10.1016/j.healthplace.2012.11.002.
   PubMed Web of Science ®Google Scholar
• Morris, J. N., S. Suissa, S. Sherwood, S. M. Wright, and D. Greer. 1986. “Last Days: A Study of the Quality of Life of Terminally Ill Cancer Patients.” Journal of Chronic Diseases 39 (1): 47–62. doi:10.1016/0021-9681(86)90106-2.
   PubMedGoogle Scholar
• Morse, J. 2006. Strategies of Intraproject Sampling, in Nursing Research: A Qualitative Perspective, edited by P. L. Munhall. Sudbury, MA: Jones and Bartlett.
   Google Scholar
• Myers, G. E. 2002. “Can Illness Narratives Contribute to the Delay of Hospice Admission?” American Journal of Hospice & Palliative Care 19: 325–330. doi:10.1177/104990910201900509.
   PubMedGoogle Scholar
• Norton, D. L. 1976. Personal Destinies: A Philosophy of Ethical Individualism. Princeton: University Press.
   Google Scholar
• Parliamentary and Health Service Ombudsman. 2015. Dying Without Dignity: Investigations by the Parliamentary and Health Service Ombudsman into Complaints about End of Life Care. Parliamentary and Health Service Ombudsman.
   Google Scholar
• Rahmani, K., J. Gnoth, and D. Mather. 2018. “Hedonic and Eudaimonic Well-being: A Psycholinguistic View.” Tourism Management 69: 155–166. doi:10.1016/j.tourman.2018.06.008.
   Web of Science ®Google Scholar
• Rasmussen, B. H., and D. Edvardsson. 2007. “The Influence of Environment in Palliative Care: Supporting or Hindering Experiences of ‘At-homeness’.” Contemporary Nurse 27 (1): 119–131. doi:10.5172/conu.2007.27.1.119.
   PubMed Web of Science ®Google Scholar
• Ryan, R. M., and E. L. Deci. 2001. “On Happiness and Human Potentials: A Review of Research on Hedonic and Eudaimonic Well-being.” Annual Review of Psychology 52 (1): 141–166. doi:10.1146/annurev.psych.52.1.141.
   PubMed Web of Science ®Google Scholar
• Sharma, S., J. Conduit, and S. Rao Hill. 2017. “Hedonic and Eudaimonic Well-being Outcomes from Co-creation Roles: A Study of Vulnerable Customers.” Journal of Services Marketing 31 (4/5): 397–411. doi:10.1108/JSM-06-2016-0236.
   Web of Science ®Google Scholar
• Stewart, A. L., J. Teno, D. L. Patrick, and J. Lynn. 1999. “The Concept of Quality of Life of Dying Persons in the Context of Health Care.” Journal of Pain and Symptom Management 17 (2): 93–108. doi:10.1016/S0885-3924(98)00131-6.
   PubMed Web of Science ®Google Scholar
• Sudbury-Riley, L., P. Hunter-Jones, A. Al-Abdin, D. Lewin, and M. C. Naraine. 2020. “The Trajectory Touchpoint Technique: A Deep Dive Methodology for Service Innovation.” Journal of Service Research. Advance online publication. doi:10.1177/1094670519894642.
   Web of Science ®Google Scholar
• Szabo, A. 2013. “Acute Psychological Benefits of Exercise: Reconsideration of the Placebo Effect.” Journal of Mental Health 22 (5): 449–455. doi:10.3109/09638237.2012.734657.
   PubMed Web of Science ®Google Scholar
• Szabo, A., S. Boros, S. Mezei, V. Németh, I. Soós, R. de la Vega, and J. Patakiné Bősze. 2018. “Subjective Psychological Experiences in Leisure and Competitive Swimming.” Annals of Leisure Research 10: 1–13. doi:10.1080/11745398.2018.1558409.
   Google Scholar
• Turner, V. 1974. Dramas, Fields, and Metaphors: Symbolic Action in Human Society. Ithaca, NY: Cornell University Press.
   Google Scholar
• Waldrop, D. P., and E. S. Rinfrette. 2009. “Making the Transition to Hospice: Exploring Hospice Professionals’ Perspectives.” Death Studies 33 (6): 557–580. doi:10.1080/07481180902961187.
   PubMed Web of Science ®Google Scholar
• Waterman, A. S. 2008. “Reconsidering Happiness: A Eudaimonist's Perspective.” The Journal of Positive Psychology 3 (4): 234–252. doi:10.1080/17439760802303002.
   Google Scholar
• White, S. C. 2017. “Relational Wellbeing: Re-centring the Politics of Happiness, Policy and the Self.” Policy & Politics 45 (2): 121–136. doi:10.1332/030557317X14866576265970.
   Web of Science ®Google Scholar
• WHO. 2015. WHO Definition of Palliative Care. http://www.who.int/cancer/palliative/definition/en/.
   Google Scholar
• Williams, A. 1999. Therapeutic Landscapes: The Dynamic Between Wellness and Place. Auflage: University Press of America.
   Google Scholar
• Young, J., and N. Carr. 2018. Domestic Animals, Humans and Leisure: Rights, Welfare and Wellbeing. Oxon: Routledge.
   Google Scholar
• Young, J., R. McGrath, and C. Adams. 2018. “Fresh Air, Sunshine and Happiness: Millennials Building Health (Salutogenesis) in Leisure and Nature.” Annals of Leisure Research 21 (3): 324–346. doi:10.1080/11745398.2018.1458634.
   Web of Science ®Google Scholar