Advanced search
Publication Cover
Journal of Intellectual & Developmental Disability Volume 25, 2000 - Issue 1
Submit an article Journal homepage
190
Views
64
CrossRef citations to date
0
Altmetric
Research Article

Concurrence between subject and proxy ratings of quality of life for people with and without intellectual disabilities

Keith R McVilly School of Psychology, University of Tasmania
,
Rosanne M Burton-Smith School of Psychology, University of Tasmania
&
John A Davidson School of Psychology, University of Tasmania
Pages 19-39 | Published online: 10 Jul 2009

  • American Psychiatric Association (1994). Diagnostic and statistical manual of mental disorders, fourth edition: DSM-IV. Washington, D.C.
  • Andrews, F., & Withey, S. (1976). Social indicators of ‘well-being’: American’s perceptions of life quality. New York: Plenum Press.
  • Barlow, J., & Kirby L. (1991). Residential satisfaction of persons with an intellectual disability living in an institution or the community. Australia & New Zealand Journal of Developmental Disabilities, 17, 7-23.
  • Boyle, C., & Brann, E. (1992). Proxy respondents and the validity of occupational and other exposure data. American Journal of Epidemiology, 136, 712-721.
  • Burnett, P. (1989). Assessing satisfaction in people with an intellectual disability living in community based residential facilities. Australian Disability Review, 1, 14-19.
  • Chun Yu, A., Jupp, J., & Taylor, A. (1996). The discriminate validity of the Lifestyle Satisfaction Scale (LSS) for the assessment of Australian adults with intellectual disabilities. Journal of Developmental & Intellectual Disability, 21, 3-15.
  • Commonwealth of Australia (1986). Commonwealth Disability Services Act (1986). Canberra, Australia: Commonwealth Government Printing Office.
  • COMPIC Development Association (1992). COMPIC pictographs. Victoria, Australia: COMPIC Development Association.
  • Cummins, R. (1993). Comprehensive Quality of Life Scale (ComQol) Fourth Edition. Toorak, Australia: School of Psychology, Deakin University.
  • Cummins, R. (1995). On the trail of the gold standard for subjective well-being. Social Indicators Research, 35, 179-200.
  • Cummins, R. (1998). The second approximation to an international standard for life satisfaction. Social Indicators Research, 43, 307-334.
  • Cummins, R., McCabe, M., Romeo, Y., & Gullone, E. (1994). The Comprehensive Quality of Life Scale: Instrument development and psychometric evaluation on college staff and students. Educational and Psychological Measurement, 54, 372-382.
  • Davey, V. & Pitfield-Smith, S. (1990). A model for wholistic evaluation. Adelaide, Australia: Barkuma Incorporated.
  • Davey, V. & Pitfield-Smith, S. (1992). Wholistic Evaluation: an evaluation package developed by Barkuma Inc. for the review of residential programs. Adelaide, Australia: Barkuma Incorporated.
  • Emerson, E. & Hatton, C. (1996). Deinstitutionalisation in the UK and Ireland: outcomes for service users. Journal of Developmental & Intellectual Disability, 21, 17-39.
  • Epstein, A., Hall. J., Tognetti, J., Son, L., & Conant, L. (1989). Using proxies to evaluate quality of life. Medical Care, 27, 91-98.
  • Evans, G., Felce, D., & Hobbs, S. (1991). Evaluating service quality. Cardiff, UK: S.C.O.V.O.
  • Felce, D., & Perry, J. (1993). Quality of life: a contribution to its definition and measurement. Cardiff, UK: Welsh Centre for Learning Disabilities.
  • Fikree, F., Gray, R., & Shah, F. (1993). Can men be trusted? A comparison of pregnancy histories reported by husbands and wives. American Journal of Epidemiology, 138, 237-242.
  • Fogarty, D., & Cummins, R. (1994). Quality of life bibliography. Melbourne, Australia: School of Psychology, Deakin University.
  • Fontana, A., Marcus, J., Dowds, B., & Hughes, L. (1980). Psychological impairment and psychological health in the psychological well-being of the physically ill. Psychosomatic Medicine, 42, 279-288.
  • Hudson, A., & Cummins, R. (1991). General Service Plans: An evaluation of their content within two service delivery systems. Australia & New Zealand Journal of Developmental Disabilities, 17, 401-411.
  • Halabi, S., Zurayk, H., Awaida, R., Darwish, M., & Saab, B. (1992). Reliability and validity of self and proxy reporting of morbidity data. International Journal of Epidemiology, 21, 607-612.
  • Jenkinson, J., Copeland, C., Drivas, V., Scoon, H., & Yap, M. (1992). Decision making by community residents with an intellectual disability. Australia & New Zealand Journal of Developmental Disabilities, 18, 1-8.
  • McCusker, J., & Stoddard, A. (1984). Use of a surrogate for the Sickness Impact Profile. Medical Care, 22, 789-795.
  • McVilly, K. (1995). Interviewing people with a learning disability about their residential service. British Journal of Learning Disabilities, 23, 138-142.
  • McVilly, K., & Rawlinson, R. (1998). Quality of life issues in the development and evaluation of services for people with intellectual disability. Journal of Intellectual & Developmental Disabil ity, 23, 199-218.
  • Mehrabian, A., & Epstein, N. (1972). A measure of emotional empathy. Journal of Personality, 40, 525-543.
  • Nevitt, M., Cummins, S., Browner, W., Seeley, D., Cauley, J., Vogt, T., & Black, D. (1992). The accuracy of self-report of fractures in elderly women: evidence from a prospective study. American Journal of Epidemiology, 135, 490-499.
  • Parmenter, T. (1992). Quality of life of people with developmental disabilities. International Review of Research in Mental Retardation, 18, 247-287.
  • Rapley, M., Ridgway, J., & Beyer, S. (1997). Staff:staff and staff:client reliability of the Schalock & Keith (1993) Quality of Life Questionnaire. Journal of Intellectual Disability Research, 42, 37-42.
  • Rende, R., & Plomin, R. (1991). Child and parent perceptions of the upsettingness of major life events. Journal of Child Psychology and Psychiatry and Allied Disciplines, 32, 627-633.
  • Rigby, K., McCarron, L., & Ribby, J. (1990). Quality of life in a nursing home: a report on the perceptions of residents and staff at Julia Farr Centre. Adelaide, Australia: South Australian Institute of Technology.
  • Rowitz, L. (1989). Editorial: Trends in mental retardation in the 1990s. Mental Retardation, 27, iii-vi.
  • Schalock, R. (1989). Services for developmentally disabled adults - development, implementation and evaluation. Baltimore, AL: University Park Press.
  • Schalock, R., & Keith, K. (1993). Quality of Life Questionnaire. Hastings NE: IDS Publishing Corporation.
  • Schalock, R., Keith, K., & Hoffman, K. (1990). Quality of Life Questionnaire: Standardisation Manual. Hastings NE: Mid Nebraska Mental Retardation Service.
  • Sigelman, C., Budd, E. Spanhel, C., & Schoenrock, C. (1981). When in doubt, say yes: acquiescence in interviews with mentally retarded persons. Mental Retardation, 2, 53-58.
  • Stancliffe, R. (1995). Assessing opportunities for choice making: A comparison of self and staff reports. American Journal on Mental Retardation, 99, 418-429.
  • Tasmanian State Government (1992). Disability Services Act (Tas) 1992. Hobart, Australia: Government Printing Office.
  • United Nations (1994). The standard rules on the equalisation of opportunities for persons with disabilities. NY: United Nations.
  • Wehmeyer, M., and Metzler, C. (1995). How self-determined are people with mental retardation? The National Consumer Survey. Mental Retardation, 33, 111-119.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Order Reprints Request Corporate Permissions

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

Request Academic Permissions

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.

Related research

People also read lists articles that other readers of this article have read.

Recommended articles lists articles that we recommend and is powered by our AI driven recommendation engine.

Cited by lists all citing articles based on Crossref citations.
Articles with the Crossref icon will open in a new tab.