‘There’s nothing you can do … it’s like that in Chinatown’: Chinese immigrant women’s perceptions of experiences in Chicago Chinatown healthcare settings

References

• Barrier, P. A., J. T. Li, and N. M. Jensen. 2003. “Two Words to Improve Physician-Patient Communication: What Else?” Mayo Clinic Proceedings 78 (2): 211–214. doi:10.4065/78.2.211.
   PubMed Web of Science ®Google Scholar
• Barry, M. J., and S. Edgman-Levitan. 2012. “Shared Decision Making—The Pinnacle of Patient-Centered Care.” New England Journal of Medicine 366 (9): 780–781. doi:10.1056/NEJMp1109283.
   PubMed Web of Science ®Google Scholar
• Bauer, H. M., M. A. Rodriguez, S. S. Quiroga, and Y. G. Flores-Ortiz. 2000. “Barriers to Health Care for Abused Latina and Asian Immigrant Women.” Journal of Health Care for the Poor and Underserved 11 (1): 33–44. doi: 10.1353/hpu.2010.0590
   PubMed Web of Science ®Google Scholar
• Boulding, W., S. W. Glickman, M. P. Manary, K. A. Schulman, and R. Staelin. 2011. “Relationship Between Patient Satisfaction with Inpatient Care and Hospital Readmission Within 30 Days.” American Journal of Managed Care 17 (1): 41–48.
   PubMed Web of Science ®Google Scholar
• Brugge, D., T. Edgar, K. George, J. Heung, and M. B. Laws. 2009. “Beyond Literacy and Numeracy in Patient Provider Communication: Focus Groups Suggest Roles for Empowerment, Provider Attitude and Language.” BMC Public Health 9: 354. doi:10.1186/1471-2458-9-354.
   PubMed Web of Science ®Google Scholar
• Burroughs, T. E., A. D. Waterman, T. H. Gallagher, B. Waterman, D. Adams, D. B. Jeffe, W. C. Dunagan, et al. 2005. “Patient Concerns About Medical Errors in Emergency Departments.” Academic Emergency Medicine 12 (1): 57–64. doi:10.1197/j.aem.2004.08.052.
   PubMed Web of Science ®Google Scholar
• Bush, M. L., M. R. Kaufman, and T. Shackleford. 2017. “Adherence in the Cancer Care Setting: A Systematic Review of Patient Navigation to Traverse Barriers.” Journal of Cancer Education. doi:10.1007/s13187-017-1235-2.
   PubMed Web of Science ®Google Scholar
• Chen, A. H., M. K. Youdelman, and J. Brooks. 2007. “The Legal Framework for Language Access in Healthcare Settings: Title VI and Beyond.” Journal of General Internal Medicine 22 (Suppl 2): 362–367. doi:10.1007/s11606-007-0366-2.
   Google Scholar
• Chicago Metropolitan Agency for Planning. 2014. “Chinatown Community Vision Plan: Existing Conditions Report.” Accessed June 4. http://www.cct.org/wp-content/uploads/2015/05/ChinatownCommunityVisionPlan2013.pdf.
   Google Scholar
• Claramita, M., A. Utarini, H. Soebono, J. Van Dalen, and C. Van der Vleuten. 2011. “Doctor-Patient Communication in a Southeast Asian Setting: The Conflict Between Ideal and Reality.” Advances in Health Sciences Education 16 (1): 69–80. doi:10.1007/s10459-010-9242-7.
   PubMed Web of Science ®Google Scholar
• Clough, J., S. Lee, and D. H. Chae. 2013. “Barriers to Health Care among Asian Immigrants in the United States: A Traditional Review.” Journal of Health Care for the Poor and Underserved 24 (1): 384–403. doi:10.1353/hpu.2013.0019.
   PubMed Web of Science ®Google Scholar
• Corbin, Juliet, and Anselm Strauss. 2008. Basics of Qualitative Research: Techniques and Procedures for Developing Grounded Theory. Thousand Oaks, CA: Sage Publications, Inc.
   Google Scholar
• Damschroder, Laura J., David C. Aron, Rosalind E. Keith, Susan R. Kirsh, Jeffery A. Alexander, and Julie C. Lowery. 2009. “Fostering Implementation of Health Services Research Findings Into Practice: A Consolidated Framework for Advancing Implementation Science.” Implementation Science 4 (1): 50. doi: 10.1186/1748-5908-4-50
   PubMed Web of Science ®Google Scholar
• Documet, P. I., and R. K. Sharma. 2004. “Latinos’ Health Care Access: Financial and Cultural Barriers.” Journal of Immigrant Health 6 (1): 5–13. doi:10.1023/B:JOIH.0000014638.87569.2e.
   PubMedGoogle Scholar
• Dong, X., S. M. Bergren, and M. A. Simon. 2017. “The Decline of Directly Observed Physical Function Performance Among U.S. Chinese Older Adults.” The Journals of Gerontology: Series A 72 (suppl_1): S11–S15. doi:10.1093/gerona/glx046.
   PubMedGoogle Scholar
• Dong, XinQi, E-Shien Chang, Ping Zeng, and Melissa A. Simon. 2015. “Suicide in the Global Chinese Aging Population: A Review of Risk and Protective Factors, Consequences, and Interventions.” Aging and Disease 6 (2): 121–130. doi: 10.14336/AD.2014.0223
   PubMed Web of Science ®Google Scholar
• Dong, XinQi, Ruijia Chen, Chengyue Li, and Melissa A. Simon. 2014. “Understanding Depressive Symptoms among Community-Dwelling Chinese Older Adults in the Greater Chicago Area.” Journal of Aging and Health 26 (7): 1155–1171. doi: 10.1177/0898264314527611
   PubMed Web of Science ®Google Scholar
• Dong, X., E. Wong, and M. A. Simon. 2014. “Study Design and Implementation of the PINE Study.” Journal of Aging and Health 26 (7): 1085–1099. doi:10.1177/0898264314526620.
   PubMed Web of Science ®Google Scholar
• Ferguson, W. J., and L. M. Candib. 2002. “Culture, Language, and the Doctor-Patient Relationship.” Family Medicine 34 (5): 353–361.
   PubMed Web of Science ®Google Scholar
• Garrett, P. W., H. G. Dickson, L. Young, and A. K. Whelan. 2008. “‘The Happy Migrant Effect’: Perceptions of Negative Experiences of Healthcare by Patients with Little or No English: A Qualitative Study Across Seven Language Groups.” Quality and Safety in Health Care 17 (2): 101–103. doi:10.1136/qshc.2007.022426.
   PubMedGoogle Scholar
• Guest, Greg, Emily Namey, Jamilah Taylor, Natalie Eley, and Kevin McKenna. 2017. “Comparing Focus Groups and Individual Interviews: Findings From a Randomized Study.” International Journal of Social Research Methodology 20 (6): 693–708. doi: 10.1080/13645579.2017.1281601
   Web of Science ®Google Scholar
• Institute of Medicine. 2001. Crossing the Quality Chasm: A new Health System for the 21st Century. Washington, DC: National Academy Press.
   Google Scholar
• Institute of Medicine. 2013. Best Care at Lower Cost: The Path to Continuously Learning Health Care in America. (Mark Smith, Robert Saunders, Leigh Stuckhardt, and J. Michael McGinnis, Eds.).Washington, DC: National Academies Press.
   Google Scholar
• Karliner, S., S. E. Crewe, H. Pacheco, and Y. C. Gonzalez. 1998. “Latino Health Beliefs: A Guide for Health Care Professionals.” Accessed September 10. www.nldi.org/Documentos/English/healthy_lifestyles_guide_1.pdf.
   Google Scholar
• Kitzinger, J. 1995. “Qualitative Research: Introducing Focus Groups.” BMJ 311 (7000): 299–302. doi: 10.1136/bmj.311.7000.299
   PubMed Web of Science ®Google Scholar
• Krueger, Richard A. 2014. Focus Groups: A Practical Guide for Applied Research. Thousand Oaks: Sage.
   Google Scholar
• Krueger, Richard A., and Mary Anne Casey. 2014. Focus Groups: A Practical Guide for Applied Research. Thousand Oaks: Sage.
   Google Scholar
• McCracken, Melissa, Miho Olsen, Moon S Chen, Ahmedin Jemal, Michael Thun, Vilma Cokkinides, Dennis Deapen, and Elizabeth Ward. 2007. “Cancer Incidence, Mortality, and Associated Risk Factors among Asian Americans of Chinese, Filipino, Vietnamese, Korean, and Japanese Ethnicities.” CA: A Cancer Journal for Clinicians 57 (4): 190–205.
   PubMed Web of Science ®Google Scholar
• Morgan, David L. 1996. “Focus Groups.” Annual Review of Sociology 22 (1): 129–152. doi: 10.1146/annurev.soc.22.1.129
   Web of Science ®Google Scholar
• Namey, Emily, Greg Guest, Kevin McKenna, and Mario Chen. 2016. “Evaluating Bang for the Buck: A Cost-Effectiveness Comparison Between Individual Interviews and Focus Groups Based on Thematic Saturation Levels.” American Journal of Evaluation 37 (3): 425–440. doi: 10.1177/1098214016630406
   Web of Science ®Google Scholar
• Ngo-Metzger, Q., D. H. Sorkin, R. S. Phillips, S. Greenfield, M. P. Massagli, B. Clarridge, and S. H. Kaplan. 2007. “Providing High-Quality Care for Limited English Proficient Patients: The Importance of Language Concordance and Interpreter Use.” Journal of General Internal Medicine 22 (Suppl 2): 324–330. doi:10.1007/s11606-007-0340-z.
   PubMedGoogle Scholar
• Pang, E. C., M. Jordan-Marsh, M. Silverstein, and M. Cody. 2003. “Health-seeking Behaviors of Elderly Chinese Americans: Shifts in Expectations.” The Gerontologist 43 (6): 864–874. doi: 10.1093/geront/43.6.864
   PubMed Web of Science ®Google Scholar
• Paskett, E. D., J. P. Harrop, and K. J. Wells. 2011. “Patient Navigation: An Update on the State of the Science.” CA: A Cancer Journal for Clinicians 61 (4): 237–249. doi:10.3322/caac.20111.
   PubMed Web of Science ®Google Scholar
• Paternotte, E., S. van Dulmen, N. van der Lee, A. J. Scherpbier, and F. Scheele. 2015. “Factors Influencing Intercultural Doctor-Patient Communication: A Realist Review.” Patient Education and Counseling 98 (4): 420–445. doi:10.1016/j.pec.2014.11.018.
   PubMed Web of Science ®Google Scholar
• Pew Research Center. 2013. “The Rise of Asian Americans.” Accessed February 14. http://www.pewsocialtrends.org/files/2013/04/Asian-Americans-new-full-report-04-2013.pdf.
   Google Scholar
• Rajaram, Shireen S, and Anahita Rashidi. 1998. “Minority Women and Breast Cancer Screening: The Role of Cultural Explanatory Models.” Preventive Medicine 27 (5): 757–764. doi: 10.1006/pmed.1998.0355
   PubMed Web of Science ®Google Scholar
• Simon, Melissa A., Yu Li, and XinQi Dong. 2014. “Preventive Care Service Usage Among Chinese Older Adults in the Greater Chicago Area.” The Journals of Gerontology Series A: Biological Sciences and Medical Sciences 69 (Suppl 2): S7–S14. doi: 10.1093/gerona/glu143
   PubMedGoogle Scholar
• Simon, M. A., L. S. Tom, N. J. Nonzee, K. R. Murphy, R. Endress, X. Dong, and J. Feinglass. 2015. “Evaluating a Bilingual Patient Navigation Program for Uninsured Women with Abnormal Screening Tests for Breast and Cervical Cancer: Implications for Future Navigator Research.” American Journal of Public Health 105 (5): e87–e94. doi:10.2105/AJPH.2014.302341.
   PubMed Web of Science ®Google Scholar
• Stewart, M. A. 1995. “Effective Physician-Patient Communication and Health Outcomes: A Review.” CMAJ 152 (9): 1423–1433.
   PubMed Web of Science ®Google Scholar
• Suurmond, J., E. Uiters, M. C. de Bruijne, K. Stronks, and M. L. Essink-Bot. 2011. “Negative Health Care Experiences of Immigrant Patients: a Qualitative Study.” BMC Health Services Research 11: 10. doi:10.1186/1472-6963-11-10.
   PubMed Web of Science ®Google Scholar
• Tajeu, G. S., A. L. Cherrington, L. Andreae, C. Prince, C. L. Holt, and J. H. Halanych. 2015. “‘We’ll Get to You When We Get to You’: Exploring Potential Contributions of Health Care Staff Behaviors to Patient Perceptions of Discrimination and Satisfaction.” American Journal of Public Health 105 (10): 2076–2082. doi:10.2105/AJPH.2015.302721.
   PubMed Web of Science ®Google Scholar
• Tsoh, J. Y., T. Sentell, G. Gildengorin, G. M. Le, E. Chan, L. C. Fung, R. J. Pasick, et al. 2016. “Healthcare Communication Barriers and Self-Rated Health in Older Chinese American Immigrants.” Journal of Community Health 41 (4): 741–752. doi:10.1007/s10900-015-0148-4.
   PubMed Web of Science ®Google Scholar
• Tucker, J. D., B. Wong, J. B. Nie, A. Kleinman, and Team Patient-Physician Trust. 2016. “Rebuilding Patient-Physician Trust in China.” The Lancet 388 (10046): 755. doi:10.1016/S0140-6736(16)31362-9.
   PubMed Web of Science ®Google Scholar
• US Census Bureau. 2017. “2017 American Community Survey 1-year Estimates.” Accessed September 25. http://factfinder.census.gov/.
   Google Scholar
• Villanueva, G., and D. Liu. 2017. “Chinatown Anti-Displacement Community Research Project Report.” Accessed February 20. https://static1.squarespace.com/static/564b414be4b07bf683d4222c/t/590762a0725e250c61187aef/1493656227799/Chinatown+Community+Research+Report_Apirl2017_rfs.pdf.
   Google Scholar
• Yang, J. S., and M. Kagawa-Singer. 2007. “Increasing Access to Care for Cultural and Linguistic Minorities: Ethnicity-Specific Health Care Organizations and Infrastructure.” Journal of Health Care for the Poor and Underserved 18 (3): 532–549. doi:10.1353/hpu.2007.0073.
   PubMed Web of Science ®Google Scholar
• Ye, J., D. Mack, Y. Fry-Johnson, and K. Parker. 2012. “Health Care Access and Utilization Among Us-Born and Foreign-Born Asian Americans.” J Immigr Minor Health 14 (5): 731–737. doi: 10.1007/s10903-011-9543-9
   PubMed Web of Science ®Google Scholar