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Articles

Social impacts of living with chronic hepatitis B in South Sudanese community in Australia

, ORCID Icon, , ORCID Icon &
Pages 529-541 | Received 25 Sep 2019, Accepted 09 Jun 2020, Published online: 22 Jun 2020

References

  • Adjei, C. A., S. E. Stutterheim, F. Naab, and R. A. Ruiter. 2019. “Chronic Hepatitis B Stigma in Ghana: A Qualitative Study with Patients and Providers.” BMJ Open 9 (6): e025503.
  • Allard, N. L., J. H. MacLachlan, and B. C. Cowie. 2015. “The Cascade of Care for Australians Living with Chronic Hepatitis B: Measuring Access to Diagnosis, Management and Treatment.” Australian and New Zealand Journal of Public Health 39 (3): 255–259. doi:https://doi.org/10.1111/1753-6405.12345.
  • Altindag, A., D. Cadirci, and F. Sirmatel. 2009. “Depression and Health Related Quality of Life in Non-Cirrhotic Chronic Hepatitis B Patients and Hepatitis B Carriers.” Neurosciences (Riyadh) 14 (1): 56–59.
  • Australian Bureau of Statistics. 2016. 2916.0 – Census of Population and Housing – QuickStats, Community Profiles and DataPacks User Guide. Canberra: Australian Bureau of Statistics.
  • Birt, L., S. Scott, D. Cavers, C. Campbell, and F. Walter. 2016. “Member Checking: A Tool to Enhance Trustworthiness or Merely a Nod to Validation?” Qualitative Health Research 26 (13): 1802–1811.
  • Braun, V., V. Clarke, N. Hayfield, and G. Terry. 2018. “Thematic Analysis.” In Handbook of Research Methods in Health Social Sciences, edited by, Pranee Liamputtong, 1–18. Singapore: Springer.
  • Burke, N. J., J. C. Jackson, H. C. Thai, F. Stackhouse, T. Nguyen, and A. Chen. 2004. “‘Honoring Tradition, Accepting New Ways’: Development of a Hepatitis B Control Intervention for Vietnamese Immigrants.” Ethnicity & Health 9, doi:https://doi.org/10.1080/1355785042000222860.
  • Burmeister, E., and L. M. Aitken. 2012. “Sample Size: How Many is Enough?” Australian Critical Care 25 (4): 271–274.
  • Carabez, R. M., J. A. Swanner, G. J. Yoo, and M. Ho. 2014. “Knowledge and Fears Among Asian Americans Chronically Infected with Hepatitis B.” Journal of Cancer Education 29 (3): 522–528.
  • Chabrol, F., D. N. Noah, E. P. Tchoumi, L. Vidal, C. Kuaban, M. P. Carrieri. 2019. “Screening, Diagnosis and Care Cascade for Viral Hepatitis B and C in Yaoundé, Cameroon: A Qualitative Study of Patients and Health Providers Coping with Uncertainty and Unbearable Costs.” BMJ Open 9 (3): e025415.
  • Coker, E. M. 2004. ““Traveling Pains”: Embodied Metaphors of Suffering Among Southern Sudanese Refugees in Cairo.” Culture, Medicine and Psychiatry 28: 15–39.
  • Cowie, B. 2011. “The Linguistic Demography of Australians Living with Chronic Hepatitis B.” Australian & New Zealand Journal of Public Health 35 (1): 12–15.
  • Creswell, J. W., and C. N. Poth. 2017. Qualitative Inquiry and Research Design: Choosing Among Five Approaches. Thousand Oaks, CA: Sage Publications.
  • Etikan, I., S. A. Musa, and R. S. Alkassim. 2016. “Comparison of Convenience Sampling and Purposive Sampling.” American Journal of Theoretical and Applied Statistics 5 (1): 1–4.
  • European Association For The Study Of The Liver. 2017. “EASL 2017 Clinical Practice Guidelines on the Management of Hepatitis B Virus Infection.” Journal of Hepatology 67 (2): 370–398.
  • Fattovich, G., F. Bortolotti, and F. Donato. 2008. “Natural History of Chronic Hepatitis B: Special Emphasis on Disease Progression and Prognostic Factors.” Journal of Hepatology 48 (2): 335–352.
  • Franklin, S., A. Mouliom, E. Sinkala, A. Kanunga, A. Helova, J. Dionne-Odom. 2018. “Hepatitis B Virus Contact Disclosure and Testing in Lusaka, Zambia: A Mixed-Methods Study.” BMJ Open 8 (9): e022522.
  • Hajarizadeh, B., J. Richmond, N. Ngo, J. Lucke, and J. Wallace. 2016. “Hepatitis B-Related Concerns and Anxieties Among People With Chronic Hepatitis B in Australia.” Hepatitis Monthly 16 (6): e35566. doi:https://doi.org/10.5812/hepatmon.35566.
  • Hajarizadeh, B., J. Wallace, J. Richmond, N. Ngo, and C. Enright. 2015. “Hepatitis B Knowledge and Associated Factors Among People with Chronic Hepatitis B.” Australian and New Zealand Journal of Public Health 39 (6): 563–568. doi:https://doi.org/10.1111/1753-6405.12378.
  • Han, B. F., Q. L. Yuan, Y. H. Shi, L. Wei, J. L. Hou, J. Shang, et al. 2018. “The Experience of Discrimination of Individuals Living with Chronic Hepatitis B in Four Provinces of China.” PLoS One 13: 4. doi:https://doi.org/10.1371/journal.pone.0195455.
  • Hwang, J. P., A. K. Roundtree, and M. E. Suarez-Almazor. 2012. “Attitudes Toward Hepatitis B Virus Among Vietnamese, Chinese and Korean Americans in the Houston Area, Texas.” Journal of Community Health 37. doi:https://doi.org/10.1007/s10900-012-9543-2.
  • Khalid, F. A., A. A. Eltayeb, and N. E. Elbadawi. 2013. “Awareness and Knowledge of Hepatitis B and HIV/AIDS, Among the University of Kassala Students, Sudan.” Journal of Aids & Clinical Research 4: 2. doi:https://doi.org/10.4172/2155-6113.1000194.
  • Le, T. V., T. T. M. Vu, H. T. Mai, L. H. Nguyen, N. T. Truong, C. L. Hoang. 2019. “Social Determinants of Stigma and Discrimination in Vietnamese Patients with Chronic Hepatitis B.” International Journal of Environmental Research and Public Health 16 (3): 398.
  • Li, D., T. Tang, M. Patterson, M. Ho, J. Heathcote, and H. Shah. 2012. “The Impact of Hepatitis B Knowledge and Stigma on Screening in Canadian Chinese Persons.” Canadian Journal of Gastroenterology 26 (9): 597–602.
  • Liamputtong, P. 2009. “Qualitative Data Analysis: Conceptual and Practical Considerations.” Health Promotion Journal of Australia 20 (2): 133–139.
  • Lozano, R., M. Naghavi, K. Foreman, S. Lim, K. Shibuya, V. Aboyans. 2012. “Global and Regional Mortality From 235 Causes of Death for 20 Age Groups in 1990 and 2010: A Systematic Analysis for the Global Burden of Disease Study 2010.” The Lancet 380 (9859): 2095–2128.
  • Lyons, R. F., K. D. Mickelson, M. J. Sullivan, and J. Coyne. 1998. “Coping as a Communal Process.” Journal of Social Personal Relationships 15 (5): 579–605.
  • MacLachlan, J., N. Allard, V. Towell, and B. Cowie. 2013. “The Burden of Chronic Hepatitis B Virus Infection in Australia, 2011.” Australian & New Zealand Journal of Public Health 37 (5): 416–422.
  • MacLachlan, J., and B. C. Cowie. 2018. “Cultural and Linguistic Diversity of People Living with Chronic Hepatitis B in 2011–2016: Changing Migration, Shifting Epidemiology.” Australian and New Zealand Journal of Public Health 42 (5): 441–443. doi:https://doi.org/10.1111/1753-6405.12826.
  • Mishel, M. H. 1988. “Uncertainty in Illness.” Image: The Journal of Nursing Scholarship 20 (4): 225–232.
  • Modabbernia, A., M. Ashra, and R. Malekzadeh. 2013. “A Review of Psychosocial Issues in Patients with Chronic Hepatitis B.” Archives of Iranian Medicine 16 (2): 114.
  • Mokaya, J., A. L. McNaughton, L. Burbridge, T. Maponga, G. O'Hara, M. Andersson. 2018. “A Blind Spot? Confronting the Stigma of Hepatitis B Virus (HBV) Infection-A Systematic Review.” Wellcome Open Research 3: 29–58.
  • Morris, M. D., S. T. Popper, T. C. Rodwell, S. K. Brodine, and K. C. Brouwer. 2009. “Healthcare Barriers of Refugees Post-Resettlement.” Journal of Community Health 34: 529–538. doi:https://doi.org/10.1007/s10900-009-9175-3.
  • Mude, W., C. Fisher, J. Richmond, J. Wallace, and R. Le Gautier. 2019. “A Qualitative Investigation of Barriers, Support-Seeking and Coping Among South Sudanese People with Chronic Hepatitis B in Australia.” Australian Journal of Primary Health 25 (3): 264–274. doi:https://doi.org/10.1071/Py19015.
  • Naghavi, M., H. Wang, R. Lozano, A. Davis, X. Liang, and M. Zhou. 2015. “Global, Regional, and National Age-sex Specific all-Cause and Cause-Specific Mortality for 240 Causes of Death, 1990–2013: A Systematic Analysis for the Global Burden of Disease Study 2013.” Lancet 385 (9963): 117–171.
  • Najjar, Z., L. Gupta, J. Pritchard-Jones, S. I. Strasser, M. T. Levy, S. T. Liaw. 2016. “A Survey of Sydney General Practitioners’ Management of Patients with Chronic Hepatitis B.” Medical Journal of Australia 204: 2. doi:https://doi.org/10.5694/mja15.00524.
  • Ng, C. J., W. Y. Low, L. P. Wong, M. R. Sudin, and R. Mohamed. 2013. “Uncovering the Experiences and Needs of Patients with Chronic Hepatitis B Infection at Diagnosis: A Qualitative Study.” Asia Pacific Journal of Public Health 25 (1): 32–40.
  • Oka, T., H. Enoki, Y. Tokimoto, T. Kawanishi, M. Minami, T. Okuizumi, et al. 2017. “Employment-Related Difficulties and Distressed Living Condition in Patients with Hepatitis B Virus: A Qualitative and Quantitative Study.” Bmc Public Health 17. doi:https://doi.org/10.1186/s12889-017-4416-3.
  • Pavlish, C. L., S. Noor, and J. Brandt. 2010. “Somali Immigrant Women and the American Health Care System: Discordant Beliefs, Divergent Expectations, and Silent Worries.” Social Science & Medicine 71 (2): 353–361. doi:https://doi.org/10.1016/j.socscimed.2010.04.010.
  • Perz, J. F., G. L. Armstrong, L. A. Farrington, Y. J. Hutin, and B. P. Bell. 2006. “The Contributions of Hepatitis B Virus and Hepatitis C Virus Infections to Cirrhosis and Primary Liver Cancer Worldwide.” Journal of Hepatology 45. doi:https://doi.org/10.1016/j.jhep.2006.05.013.
  • Philbin, M. M., M. Shaw, L. M. Wen, and S. Quine. 2012. “Hepatitis B and Liver Cancer Among Three Asian American Sub-Groups: A Focus Group Inquiry.” Journal of Immigrant and Minority Health 14. doi:https://doi.org/10.1007/s10903-011-9523-0.
  • Richmond, J., B. Hajarizadeh, and J. Wallace. 2015. “Patients’ Perspectives on the Delivery of Hepatitis B Management and Care.” Australian Family Physician 44 (6): 346.
  • Richmond, J., E. Smith, J. Wallace, D. Duncan, and J. Lucke. 2017. “Hepatitis B Testing and Diagnosis Experiences of Patients and Primary Care Professionals in Australia.” Australian Family Physician 46 (7): 513–519.
  • Schweitzer, A., J. Horn, R. T. Mikolajczyk, G. Krause, and J. J. Ott. 2015. “Estimations of Worldwide Prevalence of Chronic Hepatitis B Virus Infection: A Systematic Review of Data Published Between 1965 and 2013.” The Lancet 386 (10003): 1546–1555.
  • Sheikh-Mohammed, M., C. R. MacIntyre, N. J. Wood, J. Leask, and D. Isaacs. 2006. “Barriers to Access to Health Care for Newly Resettled Sub-Saharan Refugees in Australia.” Medical Journal of Australia 185 (11–12): 594–597.
  • Sievert, K., P. O'Neill, Y. Koh, J. H. Lee, A. Dev, and S. Le. 2018. “Barriers to Accessing Testing and Treatment for Chronic Hepatitis B in Afghan, Rohingyan, and South Sudanese Populations in Australia.” Journal of Immigrant and Minority Health 20 (1): 140–146. doi:https://doi.org/10.1007/s10903-017-0546-z.
  • Smith-Palmer, J., R. Pollock, K. Bonroy, U. Sbarigia, W. Valentine, and K. Cerri. 2018. “The Nature and Impact of Stigma in Patients with Chronic Hepatitis B: A Systematic Literature Review.” Journal of Hepatology 68: S185.
  • Stanaway, J. D., A. D. Flaxman, M. Naghavi, C. Fitzmaurice, T. Vos, and I. Abubakar. 2016. “The Global Burden of Viral Hepatitis From 1990 to 2013: Findings From the Global Burden of Disease Study 2013.” The Lancet 388 (10049): 1081–1088. doi:https://doi.org/10.1016/S0140-6736(16)30579-7.
  • The Polaris Observatory Collaborators. 2018. “Global Prevalence, Treatment, and Prevention of Hepatitis B Virus Infection in 2016: A Modelling Study.” The Lancet Gastroenterology & Hepatology 3: 383–403. doi:https://doi.org/10.1016/S2468-1253(18)30056-6.
  • Thomas, D. R. 2017. “Feedback From Research Participants: Are Member Checks Useful in Qualitative Research?” Qualitative Research in Psychology 14 (1): 23–41.
  • Trigg, A., H. Kitchen, E. Chan, T. Willgoss, J. Sears, N. V. Aldhouse. 2017. “Patients’ Experiences Living with Chronic Hepatitis B Infection: A Multinational Qualitative Study.” Value in Health 20 (9): A793–A793.
  • Valizadeh, L., V. Zamanzadeh, R. Negarandeh, F. Zamani, A. Hamidia, and A. Zabihi. 2016. “Psychological Reactions Among Patients with Chronic Hepatitis B: A Qualitative Study.” Journal of Caring Sciences 5 (1): 57.
  • Wallace, J., S. McNally, J. Richmond, B. Hajarizadeh, and M. Pitts. 2011. “Managing Chronic Hepatitis B: A Qualitative Study Exploring the Perspectives of People Living with Chronic Hepatitis B in Australia.” BMC Research Notes 4 (1): 45.
  • Wu, H., C. Yim, A. Chan, H. O. M, and J. Heathcote. 2009. “Sociocultural Factors That Potentially Affect the Institution of Prevention and Treatment Strategies for Hepatitis B Chinese Canadians.” Canadian Journal of Gastroenterology 23 (1): 31–36.

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