660
Views
1
CrossRef citations to date
0
Altmetric
Articles

‘They should walk with you’: the perspectives of African Americans living with hypertension and their family members on disease self-management

ORCID Icon, ORCID Icon, ORCID Icon, , & ORCID Icon
Pages 373-398 | Received 04 Jul 2021, Accepted 07 Feb 2022, Published online: 28 Feb 2022

References

  • Abel, Willie M., Jessica S. Joyner, Judith B. Cornelius, and Danice B. Greer. 2017. “Self-Care Management Strategies Used by Black Women Who Self-Report Consistent Adherence to Antihypertensive Medication.” Patient Preference and Adherence 11: 1401–1412. doi:10.2147/PPA.S138162.
  • Alick, Candice L., Carmen Samuel-Hodge, Dianne Ward, Alice Ammerman, Christine Rini, Christopher L. Edwards, and Deborah F. Tate. 2020. “Family Functioning and Psychosocial Factors in a Weight Loss Randomized Controlled Pilot for Black Men.” Progress in Preventive Medicine 5 (1): e0025.
  • Ameling, Jessica M., Patti L. Ephraim, Lee R. Bone, David M. Levine, Debra L. Roter, Jennifer L. Wolff, Felicia Hill-Briggs, Stephanie L. Fitzpatrick, Gary J. Noronha, and Peter J. Fagan. 2014. “Adapting Hypertension Self-Management Interventions to Enhance Their Sustained Effectiveness Among Urban African Americans.” Family & Community Health 37 ((2): 119–133. doi:10.1097/FCH.0000000000000020.
  • Ayotte, Brian J., Ranak Trivedi, and Hayden B. Bosworth. 2009. “Racial Differences in Hypertension Knowledge: Effects of Differential Item Functioning.” Ethnicity & Disease 19 (1): 23–27.
  • Berge, Jerica M., Tai J. Mendenhall, and William J. Doherty. 2009. “Using Community-Based Participatory Research (CBPR) to Target Health Disparities in Families.” Family Relations 58 (4): 475–488. doi:10.1111/j.1741-3729.2009.00567.x.
  • Boulware, L. Ebony, Patti L. Ephraim, Felicia Hill-Briggs, Debra L. Roter, Lee R. Bone, Jennifer L. Wolff, LaPricia Lewis-Boyer, et al. 2020. “Hypertension Self-Management in Socially Disadvantaged African Americans: The Achieving Blood Pressure Control Together (ACT) Randomized Comparative Effectiveness Trial.” Journal of General Internal Medicine 35 (1): 142–152. doi:10.1007/s11606-019-05396-7.
  • Boykin, A. Wade, Robert J. Jagers, Constance M. Ellison, and Aretha Albury. 1997. “Communalism: Conceptualization and Measurement of an Afrocultural Social Orientation.” Journal of Black Studies 27 (3): 409–418.
  • Buawangpong, Nida, Kanokporn Pinyopornpanish, Wichuda Jiraporncharoen, Nisachol Dejkriengkraikul, Pakorn Sagulkoo, Chanapat Pateekhum, and Chaisiri Angkurawaranon. 2020. “Incorporating the Patient-Centered Approach into Clinical Practice Helps Improve Quality of Care in Cases of Hypertension: A Retrospective Cohort Study.” BMC Family Practice 21 (1): 1–8. doi:10.1186/s12875-020-01183-0.
  • Campos, Belinda, and Heejung S. Kim. 2017. “Incorporating the Cultural Diversity of Family and Close Relationships into the Study of Health.” American Psychologist 72 (6): 543.
  • CDC (Centers for Disease Control and Prevention). 2021. Hypertension Cascade: Hypertension Prevalence, Treatment and Control Estimates Among US Adults Aged 18 Years and Older Applying the Criteria from the American College of Cardiology and American Heart Association’s 2017 Hypertension Guideline – NHANES 2015–2018. Atlanta, GA: US Department of Health and Human Services.
  • Chioneso, Nkechinyelum A., Carla D. Hunter, Robyn L. Gobin, Shardé McNeil Smith, Ruby Mendenhall, and Helen A. Neville. 2020. “Community Healing and Resistance Through Storytelling: A Framework to Address Racial Trauma in Africana Communities.” Journal of Black Psychology 46 (2–3): 95–121.
  • Cichy, Kelly E., Robert S. Stawski, and David M. Almeida. 2014. “A Double-Edged Sword: Race, Daily Family Support Exchanges, and Daily Well-Being.” Journal of Family Issues 35 (13): 1824–1845.
  • Czajkowski, S. M., L. H. Powell, N. Adler, S. Naar-King, K. D. Reynolds, C. M. Hunter, B. Laraia, et al. 2015. “From Ideas to Efficacy: The ORBIT Model for Developing Behavioral Treatments for Chronic Diseases.” Health Psychology 34 (10): 971–982. doi:10.1037/hea0000161.
  • Diaz, Celso L., Nilay S. Shah, Donald M. Lloyd-Jones, and Sadiya S. Khan. 2021. “State of the Nation’s Cardiovascular Health and Targeting Health Equity in the United States: A Narrative Review.” JAMA Cardiology. doi:10.1001/jamacardio.2021.1137.
  • Dolezsar, Cynthia M., Jennifer J. McGrath, Alyssa J. M. Herzig, and Sydney B. Miller. 2014. “Perceived Racial Discrimination and Hypertension: A Comprehensive Systematic Review.” Health Psychology 33 (1): 20–34. doi:10.1037/a0033718.
  • Engel, George L. 1980. “The Clinical Application of the Biopsychosocial Model.” The American Journal of Psychiatry 137 (5): 535–544.
  • Ferdinand, Daphne P., Saihariharan Nedunchezhian, and Keith C. Ferdinand. 2020. “Hypertension in African Americans: Advances in Community Outreach and Public Health Approaches.” Progress in Cardiovascular Diseases 63 (1): 40–45. doi:10.1016/j.pcad.2019.12.005.
  • Ferdinand, Keith C., Kapil Yadav, Samar A. Nasser, Helene D. Clayton-Jeter, John Lewin, Dennis R. Cryer, and Fortunato Fred Senatore. 2017. “Disparities in Hypertension and Cardiovascular Disease in Blacks: The Critical Role of Medication Adherence.” The Journal of Clinical Hypertension 19 (10): 1015–1024. doi:10.1111/jch.13089.
  • Flynn, Sarah J., Jessica M. Ameling, Felicia Hill-Briggs, Jennifer L. Wolff, Lee R. Bone, David M. Levine, Debra L. Roter, et al. 2013. “Facilitators and Barriers to Hypertension Self-Management in Urban African Americans: Perspectives of Patients and Family Members.” Patient Preference and Adherence 7: 741–749. doi:10.2147/PPA.S46517.
  • Fongwa, Marie N., Lorraines S. Evangelista, Ron D. Hays, David S. Martins, David Elashoff, Marie J. Cowan, and Donald E. Morisky. 2008. “Adherence Treatment Factors in Hypertensive African American Women.” Vascular Health and Risk Management 4 (1): 157–166. doi:10.2147/vhrm.2008.04.01.157.
  • Fortuna, Robert J., Angela K. Nagel, Emily Rose, Robert McCann, John C. Teeters, Denise D. Quigley, John D. Bisognano, Sharon Legette-Sobers, Chang Liu, and Thomas A Rocco. 2015. “Effectiveness of a Multidisciplinary Intervention to Improve Hypertension Control in an Urban Underserved Practice.” Journal of the American Society of Hypertension 9 (12): 966–974. doi:10.1016/j.jash.2015.10.004.
  • Fryar, Cheryl D., Yechiam Ostchega, Craig M. Hales, Guangyu Zhang, and Deanna Kruszon-Moran. 2017. “Hypertension Prevalence and Control Among Adults: United States, 2015–2016.” NCHS Data Brief 289: 1–8.
  • Gearing, Robin Edward. 2004. “Bracketing in Research: A Typology.” Qualitative Health Research 14 (10): 1429–1452. doi:10.1177/1049732304270394.
  • Glynn, Liam G., Andrew W. Murphy, Susan M. Smith, Knut Schroeder, and Tom Fahey. 2010. “Interventions Used to Improve Control of Blood Pressure in Patients with Hypertension.” Cochrane Database of Systematic Reviews 3: CD005182. doi:10.1002/14651858.CD005182.pub4.
  • Heinert, Sara, Sandra Escobar-Schulz, Maya Jackson, Marina Del Rios, Sarah Kim, Jennica Kahkejian, and Heather Prendergast. 2020. “Barriers and Facilitators to Hypertension Control Following Participation in a Church-Based Hypertension Intervention Study.” American Journal of Health Promotion 34 (1): 52–58. doi:10.1177/0890117119868384.
  • Horowitz, Carol R., Leah Tuzzio, Mary Rojas, Sharifa A. Monteith, and Jane E. Sisk. 2004. “How do Urban African Americans and Latinos View the Influence of Diet on Hypertension?” Journal of Health Care for the Poor and Underserved 15 (4): 631–644. doi:10.1353/hpu.2004.0061.
  • Institute of Medicine. 2010. A Population-Based Policy and Systems Change Approach to Prevent and Control Hypertension. Washington, DC: The National Academies Press.
  • Jonkman, Nini H., Marieke J. Schuurmans, Tiny Jaarsma, Lillie M. Shortridge-Baggett, Arno W. Hoes, and Jaap C. A. Trappenburg. 2016. “Self-Management Interventions: Proposal and Validation of a New Operational Definition.” Journal of Clinical Epidemiology 80: 34–42. doi:10.1016/j.jclinepi.2016.08.001.
  • Kang, Augustine W., Akilah Dulin, Sarah Nadimpalli, and Patricia M. Risica. 2018. “Stress, Adherence, and Blood Pressure Control: A Baseline Examination of Black Women with Hypertension Participating in the SisterTalk II Intervention.” Preventive Medicine Reports 12: 25–32. doi:10.1016/j.pmedr.2018.08.002.
  • Mansyur, Carol L., Valory N. Pavlik, David J. Hyman, Wendell C. Taylor, and G. Kenneth Goodrick. 2013. “Self-Efficacy and Barriers to Multiple Behavior Change in Low-Income African Americans with Hypertension.” Journal of Behavioral Medicine 36 (1): 75–85. doi:10.1007/s10865-012-9403-7.
  • Morgan, David L., Jutta Ataie, Paula Carder, and Kim Hoffman. 2013. “Introducing Dyadic Interviews as a Method for Collecting Qualitative Data.” Qualitative Health Research 23 (9): 1276–1284. doi:10.1177/1049732313501889.
  • Mueller, Michael, Tanjala S. Purnell, George A. Mensah, and Lisa A. Cooper. 2014. “Reducing Racial and Ethnic Disparities in Hypertension Prevention and Control: What Will it Take to Translate Research into Practice and Policy?” American Journal of Hypertension 28 (6): 699–716. doi:10.1093/ajh/hpu233.
  • National Institute on Minority Health and Health Disparities. 2021. NIMHD Research Framework. Accessed 3 June. https://www.nimhd.nih.gov/about/overview/research-framework/nimhd-framework.html.
  • Ogedegbe, G., J. N. Tobin, S. Fernandez, A. Cassells, M. Diaz-Gloster, C. Khalida, T. Pickering, and J. E. Schwartz. 2014. “Counseling African Americans to Control Hypertension: Cluster-Randomized Clinical Trial Main Effects.” Circulation 129 (20): 2044–2051. doi:10.1161/circulationaha.113.006650.
  • Paige, Samantha R, Michael Stellefson, and Briana Singh. 2016. “Patient Perspectives on Factors Associated with Enrollment and Retension in Chronic Disease Self-Management Programs: A Systematic Review.” Patient Intelligence 8: 21–37. doi:10.2147/PI.S70185.
  • Peters, Rosalind M., Karen J. Aroian, and John M. Flack. 2006. “African American Culture and Hypertension Prevention.” Western Journal of Nursing Research 28 (7): 831–854.
  • Pettey, Christina M., Jean C. McSweeney, Katharine E. Stewart, Mario A. Cleves, Elvin T. Price, Seongkum Heo, and Elaine Souder. 2016. “African Americans’ Perceptions of Adherence to Medications and Lifestyle Changes Prescribed to Treat Hypertension.” SAGE Open 6 (1): 2158244015623595. doi:10.1177/2158244015623595.
  • Polak, Louisa, and Judith Green. 2016. “Using Joint Interviews to Add Analytic Value.” Qualitative Health Research 26 (12): 1638–1648. doi:10.1177/1049732315580103.
  • QSR International Pty Ltd. 2019. NVivo 12. https://www.qsrinternational.com/nvivo-qualitative-data-analysis-software/home.
  • Ray, Rashawn. 2014. “An Intersectional Analysis to Explaining a Lack of Physical Activity Among Middle Class Black Women.” Sociology Compass 8 (6): 780–791. doi:10.1111/soc4.12172.
  • Reid, Jane, Chantal F. Ski, and David R. Thompson. 2013. “Psychological Interventions for Patients with Coronary Heart Disease and Their Partners: A Systematic Review.” PLoS ONE 8 (9): e73459. doi:10.1371/journal.pone.0073459.
  • Rimando, Marylen. 2015. “Perceived Barriers to and Facilitators of Hypertension Management Among Underserved African American Older Adults.” Ethnicity & Disease 25 (3): 329–336. doi:10.18865/ed.25.3.329.
  • Robbins, Paul A, Melissa J Scott, Eugenia Conde, Yannet Daniel, William A Darity, and Keisha L Bentley-Edwards. 2020. “Denominational and Gender Differences in Hypertension Among African American Christian Young Adults.” Journal of Racial and Ethnic Health Disparities, 1–12. doi:10.1007/s40615-020-00895-4.
  • Shah, Nilay S., Rebecca Molsberry, Jamal S. Rana, Stephen Sidney, Simon Capewell, Martin O’Flaherty, Mercedes Carnethon, Donald M. Lloyd-Jones, and Sadiya S. Khan. 2020. “Heterogeneous Trends in Burden of Heart Disease Mortality by Subtypes in the United States, 1999–2018: Observational Analysis of Vital Statistics.” BMJ 370: m2688. doi:10.1136/bmj.m2688.
  • Sher, Tamara, Lynne Braun, Andrea Domas, Albert Bellg, Donald H. Baucom, and Timothy T. Houle. 2014. “The Partners for Life Program: A Couples Approach to Cardiac Risk Reduction.” Family Process 53 (1): 131–149. doi:10.1111/famp.12061.
  • Spruill, Tanya M. 2010. “Chronic Psychosocial Stress and Hypertension.” Current Hypertension Reports 12 (1): 10–16. doi:10.1007/s11906-009-0084-8.
  • Spruill, Tanya M., Mark J. Butler, S. Justin Thomas, Gabriel S. Tajeu, Jolaade Kalinowski, Sheila F. Castañeda, Aisha T. Langford, et al. 2019. “Association Between High Perceived Stress Over Time and Incident Hypertension in Black Adults: Findings from the Jackson Heart Study.” Journal of the American Heart Association 8 (21): e012139. doi:10.1161/JAHA.119.012139.
  • Starks, Helene, and Susan Brown Trinidad. 2007. “Choose Your Method: A Comparison of Phenomenology, Discourse Analysis, and Grounded Theory.” Qualitative Health Research 17 (10): 1372–1380. doi:10.1177/1049732307307031.
  • Tan, Felicia Clara Jun Hui, Prawira Oka, Hajira Dambha-Miller, and Ngiap Chuan Tan. 2021. “The Association Between Self-Efficacy and Self-Care in Essential Hypertension: A Systematic Review.” BMC Family Practice 22 (1): 1–12. doi:10.1186/s12875-021-01391-2.
  • Taylor, Ronald D, Mia Budescu, and Rebecca Kang McGill. 2011. “Demanding Kin Relations and Depressive Symptoms Among Low-Income African American Women: Mediating Effects of Self-Esteem and Optimism.” Cultural Diversity and Ethnic Minority Psychology 17 (3): 303.
  • Thomas, S. Justin, John N Booth, Chen Dai, Xuelin Li, Norrina Allen, David Calhoun, April P Carson, et al. 2018. “Cumulative Incidence of Hypertension by 55 Years of Age in Blacks and Whites: The CARDIA Study.” Journal of the American Heart Association 7 (14): e007988. doi:10.1161/JAHA.117.007988.
  • Thornton, Rachel L. J., Tracy J. Yang, Patti L. Ephraim, L. Ebony Boulware, and Lisa A. Cooper. 2019. “Understanding Family-Level Effects of Adult Chronic Disease Management Programs: Perceived Influences of Behavior Change on Adolescent Family Members’ Health Behaviors Among Low-Income African Americans With Uncontrolled Hypertensions.” Frontiers in Pediatrics 6 (386). doi:10.3389/fped.2018.00386.
  • Tulloch, Heather, Karen Bouchard, Matthew J. Clyde, Lorenzo Madrazo, Natasha Demidenko, Susan Johnson, and Paul Greenman. 2020. “Learning a New Way of Living Together: A Qualitative Study Exploring the Relationship Changes and Intervention Needs of Patients with Cardiovascular Disease and Their Partners.” BMJ Open 10 (5): e032948. doi:10.1136/bmjopen-2019-032948.
  • Warren-Findlow, Jan, and Thomas R. Prohaska. 2008. “Families, Social Support, and Self-Care Among Older African-American Women with Chronic Illness.” American Journal of Health Promotion 22 (5): 342–349. doi:10.4278/ajhp.22.5.342.
  • Woods, Sarah B., S. Katie Bridges, and Erica N. Carpenter. 2020. “The Critical Need to Recognize That Families Matter for Adult Health: A Systematic Review of the Literature.” Family Process 59 (4): 1608–1626. doi:10.1111/famp.12505.
  • Yang, Tracy J., Lisa A. Cooper, L. Ebony Boulware, and Rachel L. J. Thornton. 2019. “Leveraging Delivery of Blood Pressure Control Interventions Among Low-Income African American Adults: Opportunities to Increase Social Support and Produce Family-Level Behavior Change.” Ethnicity & Disease 29 (4): 549–558. doi:10.18865/ed.29.4.549.
  • Yatim, H. M., Y. Y. Wong, C. F. Neoh, S. H. Lim, M. A. Hassali, and Y. H. Hong. 2019. “Factors Influencing Patients’ Hypertension Self-Management and Sustainable Self-Care Practices: A Qualitative Study.” Public Health 173: 5–8. doi:10.1016/j.puhe.2019.04.020.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.