Caregiver strain among non-Hispanic Black and Hispanic male caregivers with self-reported chronic health conditions

References

• AARP and NAC. 2020. “Caregiving in the U.S. 2020.” https://www.caregiving.org/research/caregiving-in-the-us/caregiving-in-the-us-2020/.
   Google Scholar
• Adelman, Ronald D., Lyubov L. Tmanova, Diana Delgado, Sarah Dion, and Mark S. Lachs. 2014. “Caregiver Burden: A Clinical Review.” JAMA 311 (10): 1052. https://doi.org/10.1001/jama.2014.304.
   PubMed Web of Science ®Google Scholar
• Allen, Andrew P., Eileen A. Curran, Áine Duggan, John F. Cryan, Aoife Ní Chorcoráin, Timothy G. Dinan, D. William Molloy, Patricia M. Kearney, and Gerard Clarke. 2017. “A Systematic Review of the Psychobiological Burden of Informal Caregiving for Patients with Dementia: Focus on Cognitive and Biological Markers of Chronic Stress.” Neuroscience & Biobehavioral Reviews 73 (February): 123–164. https://doi.org/10.1016/j.neubiorev.2016.12.006.
   PubMedGoogle Scholar
• Aranda, M. P., and B. G. Knight. 1997. “The Influence of Ethnicity and Culture on the Caregiver Stress and Coping Process: A Sociocultural Review and Analysis.” The Gerontologist 37 (3): 342–354. https://doi.org/10.1093/geront/37.3.342.
   PubMed Web of Science ®Google Scholar
• Bachner, Y. G., and N. O’Rourke. 2007. “Reliability Generalization of Responses by Care Providers to the Zarit Burden Interview.” Aging & Mental Health 11 (6): 678–685. https://doi.org/10.1080/13607860701529965.
   PubMed Web of Science ®Google Scholar
• Boersma, Peter, Lindsey I. Black, and Brian W. Ward. 2020. “Prevalence of Multiple Chronic Conditions Among US Adults, 2018.” Preventing Chronic Disease 17 (September): 200130. https://doi.org/10.5888/pcd17.200130.
   Google Scholar
• Boyczuk, Alana M., and Paula C. Fletcher. 2016. “The Ebbs and Flows: Stresses of Sandwich Generation Caregivers.” Journal of Adult Development 23 (1): 51–61. https://doi.org/10.1007/s10804-015-9221-6.
   Web of Science ®Google Scholar
• Brodaty, Henry, Michael Woodward, Karyn Boundy, David Ames, and Robert Balshaw. 2014. “Prevalence and Predictors of Burden in Caregivers of People with Dementia.” The American Journal of Geriatric Psychiatry, Caregiving 22 (8): 756–765. https://doi.org/10.1016/j.jagp.2013.05.004.
   PubMed Web of Science ®Google Scholar
• Calzada, Esther J., Yenny Fernandez, and Dharma E. Cortes. 2010. “Incorporating the Cultural Value of Respeto into a Framework of Latino Parenting.” Cultural Diversity and Ethnic Minority Psychology 16 (1): 77–86. https://doi.org/10.1037/a0016071.
   PubMed Web of Science ®Google Scholar
• Cancio, Roberto. 2020. “Pain and Masculinity: A Cohort Comparison between Mexican American Vietnam and Post–9/11 Combat Veterans.” Men and Masculinities 23 (3–4): 725–748. https://doi.org/10.1177/1097184X18761779.
   Web of Science ®Google Scholar
• CDC (Centers for Disease Control and Prevention). 2007. “Characteristics and Health of Caregivers and Care Recipients–North Carolina, 2005.” MMWR. Morbidity and Mortality Weekly Report 56 (21): 529–532.
   PubMedGoogle Scholar
• Centers for Disease Control and Prevention. 2020a. “Behavioral Risk Factor Surveillance System.” 2020. https://www.cdc.gov/brfss/index.html.
   Google Scholar
• Centers for Disease Control and Prevention. 2020b. “Health Equity Considerations and Racial and Ethnic Minority Groups.” 2020. https://www.cdc.gov/healthequity/whatis/index.html.
   Google Scholar
• Chang, Hsing-Yi, Chii-Jun Chiou, and Nain-Sen Chen. 2010. “Impact of Mental Health and Caregiver Burden on Family Caregivers’ Physical Health.” Archives of Gerontology and Geriatrics 50 (3): 267–271. https://doi.org/10.1016/j.archger.2009.04.006.
   PubMed Web of Science ®Google Scholar
• Chao, Ruth, and Akira Kanatsu. 2008. “Beyond Socioeconomics: Explaining Ethnic Group Differences in Parenting through Cultural and Immigration Processes.” Applied Development Science 12 (4): 181–187. https://doi.org/10.1080/10888690802388102.
   Web of Science ®Google Scholar
• Chappell, Neena L., Carren Dujela, and André Smith. 2014. “Spouse and Adult Child Differences in Caregiving Burden.” Canadian Journal on Aging / La Revue Canadienne Du Vieillissement 33 (4): 462–472. https://doi.org/10.1017/S0714980814000336.
   PubMed Web of Science ®Google Scholar
• Chejor, Pelden, Bridget Laging, Lisa Whitehead, and Davina Porock. 2022. “Experiences of Older Immigrants Living with Dementia and Their Carers: A Systematic Review and Meta-Synthesis.” BMJ Open 12 (5): e059783. https://doi.org/10.1136/bmjopen-2021-059783.
   PubMed Web of Science ®Google Scholar
• Cohen, Steven A., Carolyn A. Mendez-Luck, Mary L. Greaney, Ariana B. Azzoli, Sarah K. Cook, and Natalie J. Sabik. 2021. “Differences in Caregiving Intensity Among Distinct Sociodemographic Subgroups of Informal Caregivers: Joint Effects of Race/Ethnicity, Gender, and Employment.” Journal of Gerontological Nursing 47 (7): 23–32. https://doi.org/10.3928/00989134-20210610-01.
   PubMed Web of Science ®Google Scholar
• Cohen, Steven A., Natalie J. Sabik, Sarah K. Cook, Ariana B. Azzoli, and Carolyn A. Mendez-Luck. 2019. “Differences within Differences: Gender Inequalities in Caregiving Intensity Vary by Race and Ethnicity in Informal Caregivers.” Journal of Cross-Cultural Gerontology 34 (3): 245–263. https://doi.org/10.1007/s10823-019-09381-9.
   PubMed Web of Science ®Google Scholar
• Deater-Deckard, Kirby. 2008. Parenting Stress. New Haven, CT: Yale University Press.
   Google Scholar
• Di Lorito, Claudio, Alessandro Bosco, Maureen Godfrey, Marianne Dunlop, Juliette Lock, Kristian Pollock, Rowan H. Harwood, and Veronika van der Wardt. 2021. “Mixed-Methods Study on Caregiver Strain, Quality of Life, and Perceived Health.” Journal of Alzheimer’s Disease: Jad 80 (2): 799–811. https://doi.org/10.3233/JAD-201257.
   PubMed Web of Science ®Google Scholar
• Dilworth-Anderson, P., I. C. Williams, and B. E. Gibson. 2002. “Issues of Race, Ethnicity, and Culture in Caregiving Research: A 20-Year Review (1980–2000).” The Gerontologist 42 (2): 237–272. https://doi.org/10.1093/geront/42.2.237.
   PubMed Web of Science ®Google Scholar
• Dixon, Sara Villanueva, Julia A. Graber, and Jeanne Brooks-Gunn. 2008. “The Roles of Respect for Parental Authority and Parenting Practices in Parent-Child Conflict among African American, Latino, and European American Families.” Journal of Family Psychology 22 (1): 1–10. https://doi.org/10.1037/0893-3200.22.1.1.
   PubMed Web of Science ®Google Scholar
• Do, Elizabeth K, Steven A Cohen, and Monique J Brown. 2014. “Socioeconomic and Demographic Factors Modify the Association between Informal Caregiving and Health in the Sandwich Generation.” BMC Public Health 14 (1): 362. https://doi.org/10.1186/1471-2458-14-362.
   PubMed Web of Science ®Google Scholar
• Egede, Leonard E. 2006. “Race, Ethnicity, Culture, and Disparities in Health Care.” Journal of General Internal Medicine 21 (6): 667–669. https://doi.org/10.1111/j.1525-1497.2006.0512.x.
   PubMed Web of Science ®Google Scholar
• Fabius, Chanee D., and Lauren J. Parker. 2023. “Paid Help and Caregiving Experiences of Black Caregivers of Community-Dwelling Older Adults.” Clinical Gerontologist 46 (1): 91–100. https://doi.org/10.1080/07317115.2022.2099776.
   PubMed Web of Science ®Google Scholar
• Heugten, Caroline van, Anne Visser-Meily, Marcel Post, and Eline Lindeman. 2006. “Care for Carers of Stroke Patients: Evidence-Based Clinical Practice Guidelines.” Journal of Rehabilitation Medicine 38 (3): 153–158. https://doi.org/10.1080/16501970500441898.
   PubMed Web of Science ®Google Scholar
• Hollingshead, Nicole A., Leslie Ashburn-Nardo, Jesse C. Stewart, and Adam T. Hirsh. 2016. “The Pain Experience of Hispanic Americans: A Critical Literature Review and Conceptual Model.” The Journal of Pain 17 (5): 513–528. https://doi.org/10.1016/j.jpain.2015.10.022.
   PubMed Web of Science ®Google Scholar
• “IBM SPSS Statistics”. 2021. Macintosh. Armonk, NY: IBM Corp.
   Google Scholar
• Kroenke, Kurt, Robert L. Spitzer, and Janet B. W. Williams. 2003. “The Patient Health Questionnaire-2: Validity of a Two-Item Depression Screener.” Medical Care 41 (11): 1284–1292. https://doi.org/10.1097/01.MLR.0000093487.78664.3C.
   PubMed Web of Science ®Google Scholar
• Lehdonvirta, Vili, Atte Oksanen, Pekka Räsänen, and Grant Blank. 2021. “Social Media, Web, and Panel Surveys: Using Non-Probability Samples in Social and Policy Research.” Policy & Internet 13 (1): 134–155. https://doi.org/10.1002/poi3.238.
   Web of Science ®Google Scholar
• Li, Chunyu, Bruce Friedman, Yeates Conwell, and Kevin Fiscella. 2007. “Validity of the Patient Health Questionnaire 2 (PHQ-2) in Identifying Major Depression in Older People.” Journal of the American Geriatrics Society 55 (4): 596–602. https://doi.org/10.1111/j.1532-5415.2007.01103.x.
   PubMed Web of Science ®Google Scholar
• Lipsett-Rivera, Sonya. 2019. The Origins of Macho: Men and Masculinity in Colonial Mexico. Diálogos Series. Albuquerque: University of New Mexico Press.
   Google Scholar
• Liu, Chelsea, Adrian N S Badana, Julia Burgdorf, Chanee D Fabius, David L Roth, and William E Haley. 2021. “Systematic Review and Meta-Analysis of Racial and Ethnic Differences in Dementia Caregivers’ Well-Being.” Edited by Patricia C. Heyn. The Gerontologist 61 (5): e228–e243. https://doi.org/10.1093/geront/gnaa028.
   PubMed Web of Science ®Google Scholar
• Marinho, Jéssica da Silva, Ilaise Brilhante Batista, Rute Alessandra da Silva Nobre, Maria Sortênia Alves Guimarães, Ariene Angelini dos Santos-Orlandi, Tábatta Renata Pereira Brito, Valéria Pagotto, et al. 2022. “Burden, Satisfaction Caregiving, and Family Relations in Informal Caregivers of Older Adults.” Frontiers in Medicine 9 (December): 1059467. https://doi.org/10.3389/fmed.2022.1059467.
   Google Scholar
• Misra, Ranjita, and Elizabeth C. Kaster. 2012. “Health Beliefs.” In Encyclopedia of Immigrant Health, edited by Sana Loue, and Martha Sajatovic, 766–768. New York, NY: Springer New York. https://doi.org/10.1007/978-1-4419-5659-0_332.
   Google Scholar
• Miyawaki, Christina E. 2015. “Association of Social Isolation and Health Across Different Racial and Ethnic Groups of Older Americans.” Ageing and Society 35 (10): 2201–2228. https://doi.org/10.1017/S0144686X14000890.
   PubMed Web of Science ®Google Scholar
• National Alliance for Caregiviing, NAC, and AARP American Association of Retired Persons. 2020. “Caregiving in the U.S. 2020.” https://www.caregiving.org/wp-content/uploads/2021/01/full-report-caregiving-in-the-united-states-01-21.pdf.
   Google Scholar
• NCOA (National Council on Aging). n.d. “NCOA Issues Call-to-Action for National Chronic Care Reform Based on Survey of Americans with Chronic Conditions | Atlantic Philanthropies.” The Atlantic Philanthropies. Accessed September 26, 2022. https://www.atlanticphilanthropies.org/news/video-ncoa-issues-call-action-national-chronic-care-reform-based-results-comprehensive-survey-a.
   Google Scholar
• Nomaguchi, Kei, and Amanda N. House. 2013. “Racial-Ethnic Disparities in Maternal Parenting Stress: The Role of Structural Disadvantages and Parenting Values.” Journal of Health and Social Behavior 54 (3): 386–404. https://doi.org/10.1177/0022146513498511.
   PubMed Web of Science ®Google Scholar
• Ory, Marcia G., SangNam Ahn, Luohua Jiang, Kate Lorig, Phillip Ritter, Diana D. Laurent, Nancy Whitelaw, and Matthew Lee Smith. 2013. “National Study of Chronic Disease Self-Management: Six-Month Outcome Findings.” Journal of Aging and Health 25 (7): 1258–1274. https://doi.org/10.1177/0898264313502531.
   PubMed Web of Science ®Google Scholar
• Ory, Marcia G., SangNam Ahn, Luohua Jiang, Matthew Lee Smith, Philip L. Ritter, Nancy Whitelaw, and Kate Lorig. 2013. “Successes of a National Study of the Chronic Disease Self-Management Program: Meeting the Triple Aim of Health Care Reform.” Medical Care 51 (11): 992–998. https://doi.org/10.1097/MLR.0b013e3182a95dd1.
   PubMed Web of Science ®Google Scholar
• Pearlin, L. I., J. T. Mullan, S. J. Semple, and M. M. Skaff. 1990. “Caregiving and the Stress Process: An Overview of Concepts and Their Measures.” The Gerontologist 30 (5): 583–594. https://doi.org/10.1093/geront/30.5.583.
   PubMed Web of Science ®Google Scholar
• Phetsitong, Ruttana, Patama Vapattanawong, Rosie Mayston, Martin Prince, and Kia-Chong Chua. 2022. “In Caring for Older People in Low- and Middle-Income Countries, Do Older Caregivers Have a High Level of Care Burden and Psychological Morbidity Compared to Younger Caregivers?” International Journal of Environmental Research and Public Health 19 (24): 16405. https://doi.org/10.3390/ijerph192416405.
   PubMed Web of Science ®Google Scholar
• Pinquart, Martin, and Silvia Sörensen. 2011. “Spouses, Adult Children, and Children-in-Law as Caregivers of Older Adults: A Meta-Analytic Comparison.” Psychology and Aging 26 (1): 1–14. https://doi.org/10.1037/a0021863.
   PubMed Web of Science ®Google Scholar
• Quiñones, Ana R., Anda Botoseneanu, Sheila Markwardt, Corey L. Nagel, Jason T. Newsom, David A. Dorr, and Heather G. Allore. 2019. “Racial/Ethnic Differences in Multimorbidity Development and Chronic Disease Accumulation for Middle-Aged Adults.” Edited by Stephen D. Ginsberg. Plos One 14 (6): e0218462. https://doi.org/10.1371/journal.pone.0218462.
   PubMed Web of Science ®Google Scholar
• Remington, P. L., M. Y. Smith, D. F. Williamson, R. F. Anda, E. M. Gentry, and G. C. Hogelin. 1988. “Design, Characteristics, and Usefulness of State-Based Behavioral Risk Factor Surveillance: 1981–87.” Public Health Reports (Washington, D.C.: 1974) 103 (4): 366–375.
   PubMed Web of Science ®Google Scholar
• Sherman, Ledric D, Kirby Goidel, Caroline D Bergeron, and Matthew Lee Smith. 2021. “Web-Based Health Information Seeking Among African American and Hispanic Men Living With Chronic Conditions: Cross-Sectional Survey Study.” Journal of Medical Internet Research 23 (7): e26180. https://doi.org/10.2196/26180.
   PubMed Web of Science ®Google Scholar
• Smith, Matthew Lee, Caroline D. Bergeron, Ledric D. Sherman, Kirby Goidel, and Ashley L. Merianos. 2022. “Contextualizing the Chronic Care Model among Non-Hispanic Black and Hispanic Men with Chronic Conditions.” International Journal of Environmental Research and Public Health 19 (6): 3655. https://doi.org/10.3390/ijerph19063655.
   PubMed Web of Science ®Google Scholar
• Smith, Matthew Lee, Marcia G. Ory, SangNam Ahn, and Toni P. Miles. 2013. “Factors Associated with Women’s Chronic Disease Management: Associations of Healthcare Frustrations, Physician Support, and Self-Care Needs.” Journal of Aging Research 2013: 1–12. https://doi.org/10.1155/2013/982052.
   Google Scholar
• Smith, Matthew Lee, Lesley E. Steinman, and E. A. Casey. 2020. “Combatting Social Isolation Among Older Adults in a Time of Physical Distancing: The COVID-19 Social Connectivity Paradox.” Frontiers in Public Health 8 (July), https://doi.org/10.3389/fpubh.2020.00403.
   Google Scholar
• Smith, Matthew, Samuel Towne, Angelica Herrera-Venson, Kathleen Cameron, Kristie Kulinski, Kate Lorig, Scott Horel, and Marcia Ory. 2017. “Dissemination of Chronic Disease Self-Management Education (CDSME) Programs in the United States: Intervention Delivery by Rurality.” International Journal of Environmental Research and Public Health 14 (6): 638. https://doi.org/10.3390/ijerph14060638.
   PubMed Web of Science ®Google Scholar
• Trivedi, Ranak, Kristine Beaver, Erin D Bouldin, Evercita Eugenio, Steven B Zeliadt, Karin Nelson, Ann-Marie Rosland, Jackie G Szarka, and John D Piette. 2014. “Characteristics and Well-Being of Informal Caregivers: Results from a Nationally-Representative US Survey.” Chronic Illness 10 (3): 167–179. https://doi.org/10.1177/1742395313506947.
   PubMedGoogle Scholar
• U.S. Department of Health and Human Services. 2018. Physical Activity Guidelines for Americans. 2nd ed. Washington, DC: U.S. Department of Health and Human Services.
   Google Scholar
• Whitfield, K. E., J. C. Allaire, R. Belue, and C. L. Edwards. 2008. “Are Comparisons the Answer to Understanding Behavioral Aspects of Aging in Racial and Ethnic Groups?” The Journals of Gerontology Series B: Psychological Sciences and Social Sciences 63 (5): P301–P308. https://doi.org/10.1093/geronb/63.5.P301.
   PubMed Web of Science ®Google Scholar